Exploring involuntary childlessness in men – a qualitative study assessing quality of life, role aspects and control beliefs in men’s perception of the fertility treatment process

References

• Abbey, A., Andrews, F.M., & Halman, L.J. (1992). Infertility and subjective well-being: The mediating roles of self-esteem, internal control, and interpersonal conflict. Journal of Marriage and the Family, 54, 408–417. doi: 10.1177/0192513X07300710
   Web of Science ®Google Scholar
• Boivin, J., Appleton, T.C., Baetens, P., Baron, J., Bitzer, J., Corrigan, E…. & Kentenich, H. (2001). European Society of Human Reproduction and Embryology. Guidelines for Counselling in Infertility: Outline Version. Human Reproduction, 16, 1301–1304. doi: 10.1093/humrep/16.6.1301
   Web of Science ®Google Scholar
• Charmaz, K. (1994). Identity dilemmas of chronically ill men. The Sociological Quarterly, 35, 269–288. doi: 10.1111/j.1533-8525.1994.tb00410.x
   Web of Science ®Google Scholar
• Daniluk, J.C. (2001). Reconstructing their lives: A longitudinal, qualitative analysis of the transition to biological childlessness for infertile couples. Journal of Counseling and Development, 79, 439–449. doi: 10.1002/j.1556-6676.2001.tb01991.x
   Web of Science ®Google Scholar
• DiMatteo, M.R. (2004). Social support and patient adherence to medical treatment: a meta-analysis. Health Psychology, 23, 207–218. doi: org/10.1037/0278-6133.23.2.207
   PubMed Web of Science ®Google Scholar
• Dolan, A. & Coe, C. (2011). Men, masculine identities and childbirth. Sociology of Health & Illness, 33, 1019–1034. doi: 10.1111/j.1467-9566.2011.01349.x
   PubMed Web of Science ®Google Scholar
• Dooley, M., Nolan, A., & Sarma, K.M. (2011). The psychological impact of male factor infertility and fertility treatment on men: a qualitative study. The Irish Journal of Psychology, 32, 14–24. doi: 10.1080/03033910.2011.611253
   Google Scholar
• Drosdzol, A. & Skrzypulec, V. (2009). Evaluation of Marital and Sexual Interactions Of Polish Infertile Couples. Journal of Sexual Medicine, 6, 3335–3346. doi: 10.1111/j.1743-6109.2009.01355.x
   PubMed Web of Science ®Google Scholar
• Glaser B.G., & Strauss A.L. (1998). Grounded Theory: Strategien qualitativer Forschung. Bern: Huber.
   Google Scholar
• Greil, A.L. (1997). Infertility and psychological distress: a critical review of the literature. Social Science & Medicine, 45, 1679–1704. doi: 10.1016/S0277-9536(97)00102-0
   PubMed Web of Science ®Google Scholar
• Greil, A.L., Slauson-Blevins, K., & McQuillan, J. (2010). The experience of infertility: a review of recent literature. Sociology of Health & Illness, 32, 140–162. doi: 10.1111/j.1467-9566.2009.01213.x
   PubMed Web of Science ®Google Scholar
• Herrera, F. (2013). “Men always adopt”: Infertility and reproduction from a male perspective. Journal of Family Issues, 34, 1059–1080. doi: 10.1177/0192513X13484278
   Web of Science ®Google Scholar
• Holder, E.E., & Levi, D.J. (1988). Mental health and locus of control: SCL-90-R and Levenson's IPC scales. Journal of Clinical Psychology, 44, 753–755. doi: 10.1002/1097-4679(198809)44:5 < 753::AID-JCLP2270440514 > 3.0.CO;2-A
   PubMed Web of Science ®Google Scholar
• Hudson, N., & Culley, L. (2013). 'The bloke can be a bit hazy about what's going on': men and cross-border reproductive treatment. Reproductive BioMedicine Online, 27, 253–260. doi: 10.1016/j.rbmo.2013.06.007
   PubMed Web of Science ®Google Scholar
• Inhorn, M.C. (2013). Why me? Male infertility and responsibility in the Middle East. Men and Masculinities, 16, 49–70. doi: 10.1177/1097184X12468098
   Web of Science ®Google Scholar
• Kowalcek, I. (1999). Kontrollüberzeugungen zu Krankheit und Gesundheit bei ungewollt kinderlosen Paaren. [Loci of Control for Health and Illness in Infertile Couples]. Geburtshilfe Und Frauenheilkunde, 59, 402–407. doi: 10.1055/s-1999-15363
   Web of Science ®Google Scholar
• Kowalcek, I., Buhrow, G., Wihstutz, N., & Diedrich, K. (2000). Psychodynamik der Paarstruktur bei unerfülltem Kinderwunsch in Abhängigkeit von der Dauer des unerfüllten Kinderwunsches. Zeitschrift Für Medizinische Psychologie, 9, 63–68.
   Google Scholar
• Letherby, G. (2002). Childless and Bereft?: Stereotypes and Realities in Relation to ‘Voluntary’ and ‘Involuntary’ Childlessness and Womanhood. Sociological Inquiry, 72, 7–20. doi: 10.1111/1475-682X.00003
   Web of Science ®Google Scholar
• Levenson, H. (1972). Distinctions within the concept of internal-external control: Development of a new scale. Proceedings of the Annual Convention of the American Psychological Association, 7, 261–262. doi: org/10.1037/h0035127
   Google Scholar
• Malik, S.H., & Coulson, N. (2008). The male experience of infertility: a thematic analysis of an online infertility support group bulletin board. Journal of Reproductive and Infant Psychology, 26, 18–30. doi: 10.1080/02646830701759777
   Web of Science ®Google Scholar
• MAXQDA11. The Art of Data Analysis [computer program]. VERBI Software. Consult Sozialforschung GmbH: Berlin, 2013.
   Google Scholar
• McCreight, B.S. (2004). A grief ignored: Narratives of pregnancy loss from a male perspective. Sociology of Health & Illness, 26, 326–350. doi: 10.1111/j.1467-9566.2004.00393.x
   PubMed Web of Science ®Google Scholar
• McLeod J. (1996). Qualitative research methods in counselling psychology. In R. Woolfe & W. Dryden (Eds.), Handbook of counselling psychology. (pp. 65–86). Thousand Oaks, CA US: Sage Publications, Inc.
   Google Scholar
• Moura-Ramos, M., Gameiro, S., Soares, I., & Santos, T.A. (2010). Psychosocial adjustment in infertility: A comparison study of infertile couples, couples undergoing assisted reproductive technologies and presumed fertile couples. Psicologia Saúde & Doenças, 11, 297–318.
   Google Scholar
• Payne S. (2007). Grounded theory. In E. Lyons & A. Coyle (Eds.), Analysing qualitative data in psychology. (pp. 65–86). Thousand Oaks, CA: Sage Publications Ltd.
   Google Scholar
• Peronace, L.A., Boivin, J., & Schmidt, L. (2007). Patterns of suffering and social interactions in infertile men: 12 months after unsuccessful treatment. Journal of Psychosomatic Obstetrics and Gynaecology, 28, 105–114. doi: org/10.1080/01674820701410049
   PubMed Web of Science ®Google Scholar
• Popay J., & Groves K. (2000). ‘Narrative’ in research on gender inequalities in health. In E. Annandale & K. Hunt (Eds.), Gender Inequalities in Health (pp. 64–89). Buckingham: Open University Press.
   Google Scholar
• Sabatelli, R.M., Meth, R.L., & Gavazzi, S.M. (1988). Factors mediating the adjustment to involuntary childlessness. Family Relations, 37, 338–343. doi: 10.2307/584573
   Web of Science ®Google Scholar
• Schanz, S., Baeckert-Sifeddine, I.T., Braeunlich, C., Collins, S.E., Batra, A., Gebert, S…., & Fierlbeck, G. (2005). A new quality-of-life measure for men experiencing involuntary childlessness. Human Reproduction, 20, 2858–2865. doi: 10.1093/humrep/dei127
   PubMed Web of Science ®Google Scholar
• Schmidt, L. (2009). Social and psychological consequences of infertility and assisted reproduction - what are the research priorities? reproduction–what are the research priorities? Hum Fertil (Camb) Human Fertility, 12, 14–20. doi: 10.1080/14647270802331487
   PubMed Web of Science ®Google Scholar
• Schmidt, L., Holstein, B.E., Christensen, U., & Boivin, J. (2005). Communication and coping as predictors of fertility problem stress: cohort study of 816 participants who did not achieve a delivery after 12 months of fertility treatment. Human Reproduction, 20, 3248–3256. doi: 10.1093/humrep/dei193
   PubMed Web of Science ®Google Scholar
• Smith, J.F., Walsh, T.J., Shindel, A.W., Turek, P.J., Wing, H., Pasch, L., & Katz, P.P. (2009). Sexual, marital, and social impact of a man's perceived infertility diagnosis. Journal of Sexual Medicine, 6, 2505–2515. doi: 10.1111/j.1743-6109.2009.01383.x
   PubMed Web of Science ®Google Scholar
• Thompson, R., & Lee, C. (2011). Sooner or later? Young Australian men's perspectives on timing of parenthood. men’s perspectives on timing of parenthood. Journal of Health Psychology, 16, 807–818. doi: 10.1177/1359105310392091
   PubMed Web of Science ®Google Scholar
• Throsby, K., & Gill, R. (2004). “It's Different for Men”: Masculinity and IVF. Men and Masculinities, 6, 330–348. doi: 10.1177/1097184X03260958
   Google Scholar
• van Dulmen, S., Sluijs, E., van Dijk, L., de Ridder, D., Heerdink, R., & Bensing, J. (2007). Patient adherence to medical treatment: a review of reviews. BMC Health Services Research, 7, 55. doi: 10.1186/1472-6963-7-55
   PubMed Web of Science ®Google Scholar
• van Empel, I.W.H., Dancet, E.A.F., Koolman, X.H.E., Nelen, W. L. D. M., Stolk, E.A., Sermeus, W …. Kremer, J.A. (2011). Physicians underestimate the importance of patient-centredness to patients: a discrete choice experiment in fertility care. Human Reproduction, 26, 584–593. doi: 10.1093/humrep/deq389
   PubMed Web of Science ®Google Scholar
• van Zyl, C., van Dyk, A.C., & Niemandt, C. (2005). The embryologist as counsellor during assisted reproduction procedures. Reproductive BioMedicine Online, 11, 545–551. doi: org/10.1016/S1472-6483(10)61160-1
   PubMed Web of Science ®Google Scholar
• Webb, R.E. & Daniluk, J.C. (1999). The End of the Line: Infertile Men's Experiences of Being Unable to Produce a Child. Men and Masculinities, 2, 6–25. doi: 10.1177/1097184X99002001002
   Google Scholar
• Wischmann T. (2012). Einführung Reproduktionsmedizin: Medizinische Grundlagen – Psychosomatik – Psychosoziale Aspekte (Vol. 3757: Psychologie, Medizin). München; Basel: Reinhardt.
   Google Scholar
• Wischmann, T. (2013). 'Your count is zero'-counselling the infertile man. Your count is zero’ – Counselling the infertile man. Human Fertility, 16, 35–39. doi: 10.3109/14647273.2013.776179
   Web of Science ®Google Scholar
• Wischmann, T., Scherg, H., Strowitzki, T., & Verres, R. (2009). Psychosocial characteristics of women and men attending infertility counselling. Human Reproduction, 24, 378–385. doi: 10.1093/humrep/den401
   PubMed Web of Science ®Google Scholar
• Wischmann, T. & Thorn, P. (2013). (Male) infertility: What does it mean to men? The shift from biological to social fatherhood – men’s experiences with donor insemination. Reproductive Biomedicine Online, 27, 236–243. doi: 10.1016/j.rbmo.2013.06.002
   PubMed Web of Science ®Google Scholar