272
Views
11
CrossRef citations to date
0
Altmetric
Original Article

Ethics in neonatology: a look over Europe

, , , , , , & show all
Pages 984-991 | Received 16 May 2011, Accepted 28 Jun 2011, Published online: 30 Aug 2011

References

  • Keller M, Felderhoff-Mueser U, Lagercrantz H, Dammann O, Marlow N, Hüppi P, Buonocore G, et al. Policy benchmarking report on neonatal health and social policies in 13 European countries. Acta Paediatr 2010;99:1624–1629.
  • Parappil H, Rahman S, Salama H, Al Rifai H, Parambil NK, El Ansari W. Outcomes of 28 + 1 to 32 + 0 weeks gestation babies in the state of Qatar: finding facility-based cost effective options for improving the survival of preterm neonates in low income countries. Int J Environ Res Public Health 2010;7:2526–2542.
  • Zayek MM, Trimm RF, Hamm CR, Peevy KJ, Benjamin JT, Eyal FG. The limit of viability: a single regional unit’s experience. Arch Pediatr Adolesc Med 2011;165:126–133.
  • Field D, Draper ES, Fenton A, Papiernik E, Zeitlin J, Blondel B, Cuttini M, et al.; MOSAIC research group. Rates of very preterm birth in Europe and neonatal mortality rates. Arch Dis Child Fetal Neonatal Ed 2009;94:F253–F256.
  • WAPM Declaration of Barcelona on the Rights of Mother and Newborn, 2001. Electronic Citation: http://www.declaration_of_barcelona.
  • Bevilacqua G, Corradi M, Donzelli GP, Fanos V, Gianotti D, Magnani C, Orzalesi M, et al. The Parma charter of the rights of the newborn. J Matern Fetal Neonatal Med 2011;24:171.
  • Guimaraes H, Sanchez-Luna M, Bellieni CV, Buonocore G. Ethical charter of Union of European Neonatal and Perinatal Societies. J Matern Fetal Neonatal Med 2011;24:855–858.
  • Rebagliato M, Cuttini M, Broggin L, Berbik I, de Vonderweid U, Hansen G, Kaminski M, et al.; EURONIC Study Group (European Project on Parents’ Information,and Ethical Decision Making in Neonatal Intensive Care Units). Neonatal end-of-life decision making: Physicians’ attitudes and relationship with self-reported practices in 10 European countries. JAMA 2000;284:2451–2459.
  • Samaan MC, Cuttini M, Casotto V, Ryan CA. Doctors’ and nurses’ attitudes towards neonatal ethical decision making in Ireland. Arch Dis Child Fetal Neonatal Ed 2008;93:F217–F221.
  • Bilgen H, Topuzoğlu A, Kuşçu K, Altuncu E, Ozek E. End-of-life decisions in the newborn period: attitudes and practices of doctors and nurses. Early Hum Dev 2009;85:21–5.
  • Cuttini M, Casotto V, Orzalesi M; Euronic Study Group. Ethical issues in neonatal intensive care and physicians’ practices: a European perspective. Acta Paediatr Suppl 2006;95:42–46.
  • Paterlini G, Tagliabue P. Decision making in neonatologia. Minerva Pediatr 2010;62:121–123.
  • Cuttini M, Nadai M, Kaminski M, Hansen G, de Leeuw R, Lenoir S, Persson J, et al. End-of-life decisions in neonatal intensive care: physicians’ self-reported practices in seven European countries. EURONIC Study Group. Lancet 2000;355:2112–2118.
  • Garel M, Séguret S, Kaminski M, Cuttini M. [Ethical problems of extreme prematurity: results of a qualitative study with obstetricians and midwives]. Gynecol Obstet Fertil 2007;35:945–950.
  • Cuttini M, Rebagliato M, Bortoli P, Hansen G, de Leeuw R, Lenoir S, Persson J, et al. Parental visiting, communication, and participation in ethical decisions: a comparison of neonatal unit policies in Europe. Arch Dis Child Fetal Neonatal Ed 1999;81:F84–F91.
  • Azria E, Bétrémieux P, Caeymaex L, Debillon T, Fournié A, Huillery ML, Kuhn P, et al.; pour le groupe de ré, flexion sur les aspects éthiques de lapérinatalogie. [Information in perinatal medicine: ethical aspects]. Gynecol Obstet Fertil 2008;36:476–483.
  • Cuttini M, Kaminski M, Saracci R, de Vonderweid U. The EURONIC Project: a European concerted action on information to parents and ethical decision-making in neonatal intensive care. Paediatr Perinat Epidemiol 1997;11:461–474.
  • Glick S. Withholding versus withdrawal of life support: is there an ethical difference? BMJ 2011;342:d728.
  • Donohue PK, Boss RD, Aucott SW, Keene EA, Teague P. The impact of neonatologists’ religiosity and spirituality on health care delivery for high-risk neonates. J Palliat Med 2010;13:1219–1224.
  • Batton DG; Committee on Fetus and Newborn. Clinical report–Antenatal counseling regarding resuscitation at an extremely low gestational age. Pediatrics 2009;124:422–427.
  • Bétrémieux P, Gold F, Parat S, Caeymaex L, Danan C, De Dreuzy P, Vernier D, et al. [Palliative care in the neonatal period. Part one: general considerations]. Arch Pediatr 2010;17:409–412.
  • Bétrémieux P, Gold F, Parat S, Moriette G, Huillery ML, Chabernaud JL, Storme L, et al. [Imagining a palliative care project for newborns. Part two of Palliative care in the neonatal period]. Arch Pediatr 2010;17:413–419.
  • Bétrémieux P, Gold F, Parat S, Farnoux C, Rajguru M, Boithias C, Mahieu-Caputo D, et al. [Implementing palliative care for newborns in various care settings. Part 3 of “Palliative care in the neonatal period”]. Arch Pediatr 2010;17:420–425.
  • Moriette G, Rameix S, Azria E, Fournié A, Andrini P, Caeymaex L, Dageville C, et al.; Groupe de ré flexion sur les aspects éthiques de lapérinatologie. [Very premature births: Dilemmas and management. Part 1. Outcome of infants born before 28 weeks of postmenstrual age, and definition of a gray zone]. Arch Pediatr 2010;17:518–526.
  • Moriette G, Rameix S, Azria E, Fournié A, Andrini P, Caeymaex L, Dageville C, et al.; Groupe de réflexion sur les aspects éthiques de lapérinatologie. [Very premature births: Dilemmas and management. Second part: Ethical aspects and recommendations]. Arch Pediatr 2010;17:527–539.
  • Pignotti MS, Berni R. Extremely preterm births: end-of-life decisions in European countries. Arch Dis Child Fetal Neonatal Ed 2010;95:F273–F276.
  • De Leeuw R, Cuttini M, Nadai M, Berbik I, Hansen G, Kucinskas A, Lenoir S, et al.; EURONIC study group. Treatment choices for extremely preterm infants: an international perspective. J Pediatr 2000;137:608–616.
  • Lavoie PM, Keidar Y, Albersheim S. Attitudes of Canadian neonatologists in delivery room resuscitation of newborns at threshold of viability. J Obstet Gynaecol Can 2007;29:719–725.
  • Lorenz JM. Ethical dilemmas in the care of the most premature infants: the waters are murkier than ever. Curr Opin Pediatr 2005;17:186–190.
  • Turillazzi E, Fineschi V. How old are you? Newborn gestational age discriminates neonatal resuscitation practices in the Italian debate. BMC Med Ethics 2009;10:19.
  • Pignotti MS, Donzelli G. Perinatal care at the threshold of viability: an international comparison of practical guidelines for the treatment of extremely preterm births. Pediatrics 2008;121:e193–e198.
  • Wariyar U, Richmond S, Hey E. Pregnancy outcome at 24-31 weeks’ gestation: neonatal survivors. Arch Dis Child 1989;64:678–686.
  • Lantos JD, Meadow W. Variation in the treatment of infants born at the borderline of viability. Pediatrics 2009;123:1588–1590.
  • Lee HC, Green C, Hintz SR, Tyson JE, Parikh NA, Langer J, Gould JB. Prediction of death for extremely premature infants in a population-based cohort. Pediatrics 2010;126:e644–e650.
  • Tyson JE, Parikh NA, Langer J, Green C, Higgins RD; National Institute of Child Health and Human Development Neonatal Research Network. Intensive care for extreme prematurity–moving beyond gestational age. N Engl J Med 2008;358:1672–1681.
  • Dammann O, Shah B, Naples M, Bednarek F, Zupancic J, Allred EN, Leviton A; ELGAN Study Investigators. Interinstitutional variation in prediction of death by SNAP-II and SNAPPE-II among extremely preterm infants. Pediatrics. 2009 Nov;124(5): e1001-6.
  • Bader D, Kugelman A, Boyko V, Levitzki O, Lerner-Geva L, Riskin A, Reichman B; Israel Neonatal Network. Risk factors and estimation tool for death among extremely premature infants: a national study. Pediatrics 2010;125:696–703.
  • Kon AA. Neonatal euthanasia. Semin Perinatol 2009;33:377–383.
  • Cuttini M, Casotto V, Kaminski M, de Beaufort I, Berbik I, Hansen G, Kollée L, et al. Should euthanasia be legal? An international survey of neonatal intensive care units staff. Arch Dis Child Fetal Neonatal Ed 2004;89:F19–F24.
  • Simeoni U. Commission d’éthique de la Société Française de Néonatologie; Groupe de Réflexion sur les Aspects Ethiques de la Périnatalogie.Ethics in perinatal medicine: reflections from health care professionals in France, 2001–2008. Arch Pediatr 2009;16:28–37.
  • McHaffie HE, Cuttini M, Brölz-Voit G, Randag L, Mousty R, Duguet AM, Wennergren B, Benciolini P. Withholding/withdrawing treatment from neonates: legislation and official guidelines across Europe. J Med Ethics 1999;25:440–446.
  • Cuttini M, Casotto V, de Vonderweid U, Garel M, Kollée LA, Saracci R; EURONIC Study Group. Neonatal end-of-life decisions and bioethical perspectives. Early Hum Dev 2009;85:S21–S25.
  • Harrison H. The offer they can’t refuse: parents and perinatal treatment decisions. Semin Fetal Neonatal Med 2008;13:329–334.
  • Einaudi MA, Le Coz P, Malzac P, Michel F, D’Ercole C, Gire C. Parental experience following perinatal death: exploring the issues to make progress. Eur J Obstet Gynecol Reprod Biol 2010;151:143–148.
  • Hynson JL, Gillis J, Collins JJ, Irving H, Trethewie SJ. The dying child: how is care different? Med J Aust 2003;179:S20–S22.
  • Wilkinson D. The window of opportunity: decision theory and the timing of prognostic tests for newborn infants. Bioethics 2009;23:503–514.
  • Wilkinson DJ. A life worth giving? The threshold for permissible withdrawal of life support from disabled newborn infants. Am J Bioeth 2011;11:20–32
  • Bellieni CV, Buonocore G. Flaws in the assessment of the best interests of the newborn. Acta Paediatr 2009;98:613–617.
  • Boss RD, Hutton N, Donohue PK, Arnold RM. Neonatologist training to guide family decision making for critically ill infants. Arch Pediatr Adolesc Med 2009;163:783–788.
  • Leuthner SR. Decisions regarding resuscitation of the extremely premature infant and models of best interest. J Perinatol 2001;21:193–198.
  • Salih ZN, Boyle DW. Ethics education in neonatal-perinatal medicine in the United States. Semin Perinatol 2009;33:397–404.
  • Nilstun T, Cuttini M, Saracci R. Teaching medical ethics to experienced staff: participants, teachers and method. J Med Ethics 2001;27:409–412.
  • Snijders C, Kollen BJ, van Lingen RA, Fetter WP, Molendijk H; NEOSAFE Study Group. Which aspects of safety culture predict incident reporting behavior in neonatal intensive care units? A multilevel analysis. Crit Care Med 2009;37:61–67.
  • Davies R. New understandings of parental grief: literature review. J Adv Nurs 2004;46:506–513.
  • Chervenak FA, McCullough LB. Ethics of research in perinatal medicine. Semin Perinatol 2009;33:391–396.
  • Hurst SA. Vulnerability in research and health care; describing the elephant in the room? Bioethics 2008;22:191–202.
  • Bellieni CV, Buonocore G. Recommendations for an ethical treatment of newborns involved in clinical trials. Acta Paediatr 2010;99:30–32.

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.