Psychological morbidity in ALS: The importance of psychological assessment beyond depression alone

References

• Simmons Z, Bremer BA, Robbins RA, Walsh SM, Fischer S. Quality of life depends on factors other than strength and physical function. Neurology. 2000;55:388–92.
   PubMed Web of Science ®Google Scholar
• Robbins RA, Simmons Z, Bremer BA, Walsh SM, Fischer S. Quality of life in ALS is maintained as physical function declines. Neurology. 2001;56:442–4.
   PubMed Web of Science ®Google Scholar
• McDonald ER, Wiedenfeld SA, Hillel A, Carpenter CL, Walter RA. Survival in amyotrophic lateral sclerosis: the role of psychological factors. Arch Neurol. 1994;51:17–23.
   PubMed Web of Science ®Google Scholar
• Johnston M, Earll L, Giles M, McClenahan R, Stevens D, Morrison V. Mood as a predictor of disability and survival in patients newly diagnosed with ALS/MND. Br J Health Psychol. 1999;4:127–36.
   Web of Science ®Google Scholar
• Derogatis LR. Brief Symptom Inventory. Baltimore: Clinical Psychometric Research, 1975.
   Google Scholar
• Boulet J, Boss, MW. Reliability and validity of the brief symptom inventory. Psychol Assess. 1991;3:433–7.
   Google Scholar
• Derogatis LR. BSI Brief Symptom Inventory: Administration, Scoring, and Procedures Manual, 4th edn. Minneapolis: National Computer Systems, 1993.
   Google Scholar
• Simmons Z, Felgoise SH, Bremer BA, Walsh SM, Hufford DJ, Bromberg MB, . The ALSSQoL: balancing physical and non-physical factors in assessing quality of life in ALS. Neurology. 2006;67:1659–64.
   PubMed Web of Science ®Google Scholar
• The ALS CNTF Treatment Study (ACTS) Phase I–II Study Group. The amyotrophic lateral sclerosis functional rating scale. Arch Neurol. 1996;53:141–7.
   PubMed Web of Science ®Google Scholar
• The Guarantors of Brain. Aids to the Examination of the Peripheral Nervous System, 4th edn. London: Harcourt Publishers Ltd; 2000.
   Google Scholar
• Juergens SM, Kurland LT, Okazaki H, Mulder DW. ALS in Rochester, Minnesota, 1925–1977. Neurology. 1980;30: 463–70.
   PubMed Web of Science ®Google Scholar
• Annegers JF, Appel S, Lee JR, Perkins P. Incidence and prevalence of amyotrophic lateral sclerosis in Harris County, Texas, 1985–1988. Arch Neurol. 1991;48:589–93.
   PubMed Web of Science ®Google Scholar
• Sorenson EJ, Stalker AP, Kurland LT, Windebank AJ. Amyotrophic lateral sclerosis in Olmsted County, Minnesota, 1925–1998. Neurology. 2002;59:280–2.
   PubMed Web of Science ®Google Scholar
• Averill AJ, Kasarskis EJ, Severstrom SC. Psychological health in patients with amyotrophic lateral sclerosis. Amyotroph Lateral Scler. 2007;8:243–54.
   PubMed Web of Science ®Google Scholar
• Wicks P, Abrahams S, Masi D, Hejda-Forde S. Leigh PN, Goldstein LH. Prevalence of depression in a 12-month consecutive sample of patients with ALS. Eur J Neurol. 2007;14:993–1001.
   PubMed Web of Science ®Google Scholar
• Ganzini L, Johnston WS, McFarland BH, Tolle SW, Lee MA. Attitudes of patients with amyotrophic lateral sclerosis and their caregivers toward assisted suicide. N Engl J Med. 1998;339:967–73.
   PubMed Web of Science ®Google Scholar
• Ganzini L, Johnston WS, Hoffman WF. Correlates of suffering in amyotrophic lateral sclerosis. Neurology. 1999;52: 1434–40.
   PubMed Web of Science ®Google Scholar
• Rabkin JG, Wagner GJ, Del Bene M. Resilience and distress among amyotrophic lateral sclerosis patients and caregivers. Psychosom Med. 2000;62:271–9.
   PubMed Web of Science ®Google Scholar
• Rabkin JG, Albert SM, Del Bene ML, O'Sullivan I, Tider T, Rowland LP, . Prevalence of depressive disorders and change over time in late-stage ALS. Neurology. 2005;65: 62–7.
   PubMed Web of Science ®Google Scholar
• Hillemacher T, Grabel E, Tigges S, Bleich S, Neundorfer B, Kornhuber J, . Depression and bulbar involvement in amyotrophic lateral sclerosis. Amyotroph Lateral Scler Other Motor Neuron Disord. 2004;5:245–9.
   PubMed Web of Science ®Google Scholar
• Kubler A, Winter S, Ludolph AC, Hautzinger M, Birbaumer N. Severity of depressive symptoms and quality of life in patients with amyotrophic lateral sclerosis. Neurorehabil Neural Repair. 2005;19:182–93.
   PubMed Web of Science ®Google Scholar
• Gauthier A, Vignola A, Calvo A, Cavallo E, Moglia C, Sellitti L, . A longitudinal study of qualify of life and depression in ALS patient-caregiver couples. Neurology. 2007;68: 923–6.
   PubMed Web of Science ®Google Scholar
• Ramirez C, Piemonte MEP, Callegaro D, Da Silva HCA. Fatigue in amyotrophic lateral sclerosis: frequency and associated factors. Amyotroph Lateral Scler. 2008;9:75–80.
   PubMed Web of Science ®Google Scholar
• Lou J-S, Reeves A, Benice T, Sexton G. Fatigue and depression are associated with poor quality of life in ALS. Neurology. 2003;60:122–3.
   PubMed Web of Science ®Google Scholar
• Plahuta JM, McCulloch BJ, Kasarskis EJ, Ross MA, Walter RA, McDonald ER. Amyotrophic lateral sclerosis and hopelessness: psychosocial factors. Soc Sci Med. 2002;55: 2131–40.
   PubMed Web of Science ®Google Scholar
• Dobratz M. A comparative study of variables that have an impact on non-cancer end-of-life diagnoses. Clin Nurs Res. 2004;13:309–25.
   PubMedGoogle Scholar
• Minkoff K, Bergman E, Beck AT, Beck R. Hopelessness, depression, and attempted suicide. Am J Psychiatry. 1973; 130:455–9.
   PubMed Web of Science ®Google Scholar
• Beck AT, Brown G, Berchick RJ, Stewart BL, Steer RA. Relationship between hopelessness and ultimate suicide: a replication with psychiatric outpatients. Am J Psychiatry. 1990;147:190–5.
   PubMed Web of Science ®Google Scholar
• Fanos JH, Gelinas DF, Foster RS, Postone N, Miller RG. Hope in palliative care: from narcissism to self-transcendence in amyotrophic lateral sclerosis. J Palliat Med. 2008;11: 470–5.
   PubMed Web of Science ®Google Scholar
• Spielberger CD, Gorsuch RL, Lushene R, Vagg PR, Jacobs GA. Manual for the State-Trait Anxiety Inventory. Palo Alto, CA: Consulting Psychologists Press, Inc., 1983.
   Google Scholar
• Vignola A, Guzzo A, Calvo A, Moglia C, Pessia A, Cavallo E, . Anxiety undermines quality of life in ALS patients and caregivers. Eur J Neurol. 2008;15:1231–6.
   PubMed Web of Science ®Google Scholar
• Lomen-Hoerth C, Murphy J, Langmore S, Kramer JH, Olney RK, Miller B. Are amyotrophic lateral sclerosis patients cognitively normal? Neurology. 2003;60:1094–7.
   PubMed Web of Science ®Google Scholar
• Ringholz GM, Appel SH, Bradshaw M, Cooke NA, Mosnik DM, Schulz PE. Prevalence and patterns of cognitive impairment in sporadic ALS. Neurology. 2005;65:586–90.
   PubMed Web of Science ®Google Scholar
• Rippon GA, Scarmeas N, Gordon PH, Murphy PL, Albert SM, Mitsumoto H, . An observational study of cognitive impairment in amyotrophic lateral sclerosis. Arch Neurol. 2006;63:345–52.
   PubMed Web of Science ®Google Scholar
• Neary D, Snowden JS, Gustafson L, Passant U, Stuss D, Black S, . Frontotemporal lobar degeneration: a consensus on clinical diagnostic criteria. Neurology. 1998;51:1546–54.
   PubMed Web of Science ®Google Scholar
• Olney RK, Murphy J, Forshew D, Garwood E, Miller BL, Langmore S, . The effects of executive and behavioral dysfunction on the course of ALS. Neurology. 2005; 65:1774–7.
   PubMed Web of Science ®Google Scholar
• Kilani M, Micallef J, Soubrouillard C, Rey-Lardiller D, Demattei C, Dib M, . A longitudinal study of the evolution of cognitive function and affective state in patients with amyotrophic lateral sclerosis. Amyotroph Lateral Scler Other Motor Neuron Disord. 2004;5:46–54.
   PubMed Web of Science ®Google Scholar
• Bremer BA, Simone A-L, Walsh S, Simmons, Z, Felgoise SH. Factors supporting quality of life over time for individuals with amyotrophic lateral sclerosis: the role of positive self-perception and religiosity. Ann Behav Med. 2004;28: 119–25.
   PubMed Web of Science ®Google Scholar