245
Views
16
CrossRef citations to date
0
Altmetric
Research Article

Safety of home parenteral nutrition in patients with amyotrophic lateral sclerosis: A French national survey

, , , , , , , , , , , , , & show all
Pages 178-184 | Received 03 Jul 2010, Accepted 08 Aug 2010, Published online: 15 Nov 2010

References

  • Mazzini L, Corra T, Zaccala M, Mora G, del Piano M, Galante M. Percutaneous endoscopic gastrostomy and enteral nutrition in amyotrophic lateral sclerosis. J Neurol. 1995;242:695–8.
  • Kasarskis EJ, Scarlata D, Hill R, Fuller C, Stambler N, Cedarbaum JM. A retrospective study of percutaneous endoscopic gastrostomy in ALS patients during the BDNF and CNTF trials. J Neurol Sci. 1999;169:118–25.
  • Desport JC, Preux PM, Truong TC, Vallat JM, Sautereau D, Couratier P. Nutritional status is a prognostic factor for survival in ALS patients. Neurology. 1999;53:1059–63.
  • Lechtzin N, Wiener CM, Clawson L, Chaudhry V, Diette GB. Hospitalization in amyotrophic lateral sclerosis: causes, costs, and outcomes. Neurology. 2001;56:753–7.
  • Sherman MS, Pillai A, Jackson A, Heiman-Patterson T. Standard equations are not accurate in assessing resting energy expenditure in patients with amyotrophic lateral sclerosis. JPEN J Parenter Enteral Nutr. 2004;28: 442–6.
  • Kasarskis EJ, Berryman S, van der Leest JG, Schneider AR, McClain CJ. Nutritional status of patients with amyotrophic lateral sclerosis: relation to the proximity of death. Am J Clin Nutr. 1996;63:130–7.
  • Desport JC, Preux PM, Magy L, Boirie Y, Vallat JM, Beaufrere B, . Factors correlated with hypermetabolism in patients with amyotrophic lateral sclerosis. Am J Clin Nutr. 2001;74:328–34.
  • Desport JC, Torny F, Lacoste M, Preux PM, Couratier P. Hypermetabolism in ALS: correlations with clinical and paraclinical parameters. Neurodegener Dis. 2005;2:202–7.
  • Stambler N, Charatan M, Cedarbaum JM. Prognostic indicators of survival in ALS. ALS CNTF Treatment Study Group. Neurology. 1998;50:66–72.
  • Chio A, Finocchiaro E, Meineri P, Bottacchi E, Schiffer D. Safety and factors related to survival after percutaneous endoscopic gastrostomy in ALS. ALS Percutaneous Endoscopic Gastrostomy Study Group. Neurology. 1999;53: 1123–5.
  • Desport JC, Preux PM, Truong CT, Courat L, Vallat JM, Couratier P. Nutritional assessment and survival in ALS patients. Amyotroph Lateral Scler Other Motor Neuron Disord. 2000;1:91–6.
  • Desport JC, Marin B, Funalot B, Preux PM, Couratier P. Phase angle is a prognostic factor for survival in amyotrophic lateral sclerosis. Amyotroph Lateral Scler. 2008;9:273–8.
  • Lacomblez L, Bensimon G, Leigh PN, Guillet P, Meininger V. Dose-ranging study of riluzole in amyotrophic lateral sclerosis. Amyotrophic Lateral Sclerosis/Riluzole Study Group II. Lancet. 1996;347:1425–31.
  • Silani V, Kasarskis EJ, Yanagisawa N. Nutritional management in amyotrophic lateral sclerosis: a worldwide perspective. J Neurol. 1998;245:S13–9, discussion S29.
  • Miller RG, Rosenberg JA, Gelinas DF, Mitsumoto H, Newman D, Sufit R, . Practice parameter: the care of the patient with amyotrophic lateral sclerosis (an evidence-based review): report of the Quality Standards Subcommittee of the American Academy of Neurology: ALS Practice Parameters Task Force. Neurology. 1999;52:1311–23.
  • Andersen PM, Borasio GD, Dengler R, Hardiman O, Kollewe K, Leigh PN, . Good practice in the management of amyotrophic lateral sclerosis: clinical guidelines. An evidence-based review with good practice points. EALSC Working Group. Amyotroph Lateral Scler. 2007;8:195–213.
  • (Perioperative artificial nutrition. Recommendations by the Consensus Conference). Soins Chir. 1995;35–44.
  • Miller RG, Jackson CE, Kasarskis EJ, England JD, Forshew D, Johnston W, . Practice parameter update. The care of the patient with amyotrophic lateral sclerosis: drug, nutritional, and respiratory therapies (an evidence-based review): report of the Quality Standards Subcommittee of the American Academy of Neurology. Neurology. 2009;73:1218–26.
  • Mathus-Vliegen LM, Louwerse LS, Merkus MP, Tytgat GN, Vianney de Jong JM. Percutaneous endoscopic gastrostomy in patients with amyotrophic lateral sclerosis and impaired pulmonary function. Gastrointest Endosc. 1994;40:463–9.
  • Boitano LJ, Jordan T, Benditt JO. Non-invasive ventilation allows gastrostomy tube placement in patients with advanced ALS. Neurology. 2001;56:413–4.
  • Gregory S, Siderowf A, Golaszewski AL, McCluskey L. Gastrostomy insertion in ALS patients with low vital capacity: respiratory support and survival. Neurology. 2002;58: 485–7.
  • Leigh PN, Abrahams S, Al-Chalabi A, Ampong MA, Goldstein LH, Johnson J, . The management of motor neuron disease. J Neurol Neurosurg Psychiatry. 2003;74 (Suppl 4):32–47.
  • Shaw AS, Ampong MA, Rio A, McClure J, Leigh PN, Sidhu PS. Entristar skin-level gastrostomy tube: primary placement with radiologic guidance in patients with amyotrophic lateral sclerosis. Radiology. 2004;233:392–9.
  • Verschueren A, Monnier A, Attarian S, Lardillier D, Pouget J. Enteral and parenteral nutrition in the later stages of ALS: an observational study. Amyotroph Lateral Scler. 2009; 10:42–6.
  • (HAS recommendations on amyotrophic lateral sclerosis). Rev Neurol (Paris) 2006; 162 Spec No 2, 4S363–93.
  • Neary D, Snowden JS, Gustafson L, Passant U, Stuss D, Black S, . Frontotemporal lobar degeneration: a consensus on clinical diagnostic criteria. Neurology. 1998;51:1546–54.
  • Cedarbaum JM, Stambler N, Malta E, Fuller C, Hilt D, Thurmond B, . The ALSFRS-R: a revised ALS functional rating scale that incorporates assessments of respiratory function. BDNF ALS Study Group (Phase III). J Neurol Sci. 1999;169:13–21.
  • Bozzetti F. Home total parenteral nutrition in incurable cancer patients: a therapy, a basic humane care or something in between? Clin Nutr. 2003;22:109–11.
  • Hoda D, Jatoi A, Burnes J, Loprinzi C, Kelly D. Should patients with advanced, incurable cancers ever be sent home with total parenteral nutrition? A single institution's 20-year experience. Cancer. 2005;103:863–8.
  • Green CJ, Mountford V, Hamilton H, Kettlewell MG, Travis SP. A 15-year audit of home parenteral nutrition provision at the John Radcliffe Hospital, Oxford. QJM. 2008;101:365–9.
  • Siepler J. Principles and strategies for monitoring home parenteral nutrition. Nutr Clin Pract. 2007;22:340–50.
  • Guidelines for the use of parenteral and enteral nutrition in adult and paediatric patients. JPEN J Parenter Enteral Nutr. 2002;26:SA1–38.
  • Messing B, Joly F. Guidelines for management of home parenteral support in adult chronic intestinal failure patients. Gastroenterology. 2006;130:S43–51.
  • Chio A, Galletti R, Finocchiaro C, Righi D, Ruffino MA, Calvo A, . Percutaneous radiological gastrostomy: a safe and effective method of nutritional tube placement in advanced ALS. J Neurol Neurosurg Psychiatry. 2004;75: 645–7.
  • Santarpia L, Pasanisi F, Alfonsi L, Violante G, Tiseo D, de Simone G, . Prevention and treatment of implanted central venous catheter (CVC) related sepsis: a report after six years of home parenteral nutrition (HPN). Clin Nutr. 2002;21:207–11.
  • Ireton-Jones C, de Legge M. Home parenteral nutrition registry: a five-year retrospective evaluation of outcomes of patients receiving home parenteral nutrition support. Nutrition. 2005;21:156–60.
  • Ugur A, Marashdeh BH, Gottschalck I, Brobech Mortensen P, Staun M, Bekker Jeppesen P. Home parenteral nutrition in Denmark in the period from 1996 to 2001. Scand J Gastroenterol. 2006;41:401–7.
  • Violante G, Alfonsi L, Santarpia L, Cillis MC, Negro G, de Caprio C, . Adult home parenteral nutrition: a clinical evaluation after a three-year experience in a southern European centre. Eur J Clin Nutr. 2006;60:58–61.
  • Wang MY, Wu MH, Hsieh DY, Lin LJ, Lee PH, Chen WJ, . Home parenteral nutrition support in adults: experience of a medical centre in Asia. JPEN J Parenter Enteral Nutr. 2007;31:306–10.
  • Crispin A, Thul P, Arnold D, Schild S, Weimann A. Central venous catheter complications during home parenteral nutrition: a prospective pilot study of 481 patients with more than 30,000 catheter days. Onkologie. 2008;31:605–9.

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.