414
Views
25
CrossRef citations to date
0
Altmetric
Research Article

Agreement between parent‐adolescent ratings on psychosocial outcome and quality‐of‐life following childhood traumatic brain injury

, , , &
Pages 105-113 | Received 28 Oct 2011, Accepted 02 Nov 2011, Published online: 20 Mar 2012

References

  • Chevignard M, Toure H, Brugel DG, Poirier J, Laurent‐Vannier A. A comprehensive model of care for rehabilitation of children with acquired brain injuries. Child: Care, Health and Development 2009; 36: 31–43
  • Crooks CY, Zumsteg JM, Bell KR. Traumatic brain injury: A review of practice management and recent advances. Physical Medicine and Rehabilitation Clinics of North America 2007; 18: 681–710
  • Taylor HG, Yeates K, Wade S, Drotar D, Stancin T, Minich N. A prospective study of short and long‐term outcomes after traumatic brain injury in children: Behavior and academic achievement. Neuropsychology 2002; 16: 15–27
  • Yeates KO, Taylor HG, Drotar D, Wade SL, Klein S, Stancin T, et al. Pre‐injury family environment as a determinant of recovery from traumatic brain injuries in school‐age children. Journal of the International Neuropsychological Society 1997; 3: 617–630
  • Yeates KO, Taylor GH, Wade SL, Drotar D, Stancin T, Minich N. A prospective study of short‐and long‐term neuropsychological outcomes after traumatic brain injury in children. Neuropsychology 2002; 16: 514–523
  • Yeates K, Swift E, Taylor HG, Wade S, Drotar D, Stancin T, et al. Short and long‐term social outcomes following pediatric traumatic brain injury. Journal of the International Neuropsychological Society 2004; 10: 412–426
  • Yeates K, Armstrong K, Janusz J, Taylor GH, Wade S, Stancin T, et al. Long‐term attention problems in children with traumatic brain injury. Journal of the American Academy in Child and Adolescent Psychiatry 2005; 44: 574–584
  • Anderson VA, Catroppa C. Recovery of executive skills following paediatric traumatic brain injury (TBI): A 2 year follow‐up. Brain Injury 2005; 19: 459–470
  • Anderson VA, Catroppa C. Memory outcome at 5 years post-childhood traumatic brain injury. Brain Injury 2007; 21: 1399–1409
  • Anderson V, Moore C. Age at injury as a predictor of outcome following pediatric head injury. Child Neuropsychology 1995; 1: 187–202
  • Anderson V, Catroppa C, Morse S, Haritou F, Rosenfeld JV. Intellectual outcome from preschool traumatic brain injury: A 5-year prospective, longitudinal study. Pediatrics 2009; 124: e1064–e1071
  • Anderson VA, Spencer-Smith M, Coleman L, Anderson P, Williams J, Greenham M, Leventer RJ, Jacobs R. Children's executive functions: Are they poorer after very early brain insult. Neuropsychologia 2010; 48: 2041–2050
  • Prasad MR, Ewing‐cobbs L, Swank PR, Kramer L. Predictors of outcome following traumatic brain injury in young children. Pediatric Neurosurgery 2001; 36: 64–74
  • Kinsella G, Packer S, Olver J. Maternal reporting of behaviour following very severe blunt head injury. Journal of Neurology, Neurosurgery and Psychiatry 1991; 54: 422–426
  • Asarnow RF, Satz P, Light R, Lewis R, Neumann E. Behavior problems and adaptive functioning in children with mild and severe closed head injury. Journal of Pediatric Psychology 1991; 16: 543–555
  • Cattelani R, Lombardi F, Brianti R, Mazzucchi A. Traumatic brain injury in childhood: Intellectual, behavioural and social outcome into adulthood. Brain Injury 1998; 12: 283–296
  • Varni JW, Limbers CA, Burwinkle TM. How young can children reliably and validly self report their health‐related quality of life?: An analysis of 8,591 children across age subgroups with the PedsQL™ 4.0 Generic Core Scales. Health and Quality of Life Outcomes 2007; 5(11)1–13
  • Coghill D, Danckaerts M, Sonuga‐Barke E, Sergeant J, Banaschewski T, Buitelaar J, Zuddas A, et al. Practitioner review: Quality of life in child mental health — conceptual challenges and practical choices. Child Psychology and Psychiatry 2009; 50: 544–561
  • Eiser C, Morse R. Can parents rate their child's health‐related quality of life? Results of a systematic review. Quality of Life Research 2001; 10: 347–357
  • Varni JW, Limbers CA, Burwinkle TM. Parent proxy‐report of their children's health‐related quality of life: An analysis of 13,878 parents’ reliability and validity across age subgroups using the PedsQL™ 4.0 Generic Core Scales. Health and Quality of Life Outcomes 2007; 5
  • Hellawell DJ, Signorini DF, Pentland B. Reliability of the relative's questionnaire for assessment of outcome after brain injury. Disability and Rehabilitation 2000; 22: 446–450
  • Alonso EM, Limbers CA, Neighbors K, Martz K, Bucuvalas JC, Webb T, Varni JW. Cross‐Sectional analysis of health‐related quality of life in pediatric liver transplant recipients. The Journal of Pediatrics 2010; 156: 270–276
  • Wehmeier PM, Schacht A, Dittmann RW, Dopfner M. Global impression of perceived difficulties in children and adolescents with attention‐deficit/hyperactivitydisorder: Reliability and validity of a new instrument assessing perceived difficulties from a patient, parent and physician perspective over the day. Child and Adolescent Psychiatry and Mental Health 2008; 2: 1–12
  • McKinlay WW, Brooks DN. Methodological problems in assessing psychosocial recovery following severe head injury. Journal of Clinical Neuropsychology 1984; 6: 87–99
  • Leathem JM, Murphy LJ, Flett RA. Self‐ and informant‐ratings on the Patient Competency Rating Scale in patients with traumatic brain injury. Journal of Clinical and Experimental Neuropsychology 1998; 20: 694–705
  • Berg‐Nielson TS, Vika A, Dahl AA. When adolescents disagree with their mothers: CBCL‐YSR discrepancies related to maternal depression and adolescent self‐esteem. Child: Care, Health and Development 2003; 29: 207–213
  • Hartung CM, McCarthy DM, Milich R, Martin CA. Parent‐adolescent agreement on disruptive behaviour symptoms: A multi‐trait‐multi‐method model. Journal of Psychopathology and Behavioral Assessment 2005; 27: 159–168
  • Kramer TL, Phillips SD, Hargis MB, Miller TL, Burns BJ, Robbins JM. Disagreement between parent and adolescent reports of functional impairment. Journal of Child Psychology and Psychiatry 2004; 45: 248–259
  • Prigatano G. Behavioural limitations TBI patients tend to underestimate: A replication and extension to patients with lateralized cerebral dysfunction. The Clinical Neuropsychologist 1996; 10: 199–201
  • Waters E, Stewart‐Brown S, Fitzpatrick R. Agreement between adolescent self report and parent reports of health and well‐being: Results of an epidemiological study. Child: Care, Health & Development 2003; 29: 501–509
  • Teasdale G, Jennet B. Assessment of coma and impaired consciousness. Lancet 1974; 2: 81–84
  • Soo C, Tate RL, Anderson V, Beauchamp M, Catroppa C, Eren S, Galvin J, Muscara F, Adapting the Sydney Psychosocial Reintegration Scale for children and adolescents with acquired brain injury (in preparation)
  • Tate R, Hodgkinson A, Veerabangsa A, Maggiotto S. Measuring psychosocial recovery after traumatic brain injury: Psychometric properties of a new scale. Journal of Head Trauma Rehabilitation 1999; 14: 543–557
  • Salter K, Foley N, Jutai J, Bayley M, Teasell R. Assessment of community integration following traumatic brain injury. Brain Injury 2008; 22: 820–835
  • Varni JW, PedsQL™ Website. 1998. Available online at: http://www.pedsql.org, accessed April 19, 2010
  • McCarthy ML, MacKenzie EJ, Durbin DR, Aitken ME, Jaffe KM, Paidas CN, Slomine BS, Dorsch AM, Berk RA, Christensen JR, Ding R. The Pediatric Quality of Life Inventory: An evaluation of reliability and validity for children with traumatic brain injury. Archives of Physical and Medical Rehabilitation 2005; 86: 1901–1909
  • Daniel A. Power, privilege and prestige: Occupations in Australia. Longman‐Cheshire, Melbourne 1983
  • Cichetti DV. The precision of reliability and validity estimates revisited: Distinguishing between clinical and statistical significance of sample size requirements. Journal of Clinical and Experimental Neuropsychology 2001; 23: 695–700
  • Kuipers P, Kendall M, Fleming J, Tate R. Comparison of the Sydney Psychosocial Reintegration Scale with the Community Integration Questionnaire: Psychometric properties. Brain Injury 2004; 18: 161–177
  • Port A, Willmott C, Charlton J. Self-awareness following traumatic brain injury and implications for rehabilitation. Brain Injury 2002; 16: 277–289
  • Gan C, Schuller R. Family system outcome following acquired brain injury: Clinical and research perspectives. Brain Injury 2002; 16: 311–322
  • Sbordone R, Seyranian G. Ruff R. Are the subjective complaints of traumatically brain injured parents reliable?. Brain Injury 1998; 12: 505–515
  • Godfrey HPD, Partridge FM, Knight RG. Course of insight disorder and emotional dysfunction following closed head injury: A controlled cross‐sectional follow‐up study. Journal of Clinical and Experimental Neuropsychology 1993; 15: 502–515
  • Sherer M, Boake C, Levin E, Silver BV, Ringholz G, High W, Jr. Characteristics of impaired awareness after traumatic brain injury. Journal of the International Neuropsychological Society 1998; 4: 380–387
  • Teasdale TW, Christensen A, Willmes K, Deloche G, Braga L, Stachowiak F, Vendrell JM, Castro Caldas A, Laaksonen RK, Leclercq M. Subjective experience in brain‐injured patients and their close relatives: A European Brain Injury Questionnaire study. Brain Injury 1997; 11: 543–563
  • Hart T, Sherer M, Temkin N, Whyte J, Dikmen S, Heinemann AW, Bell K. Participant proxy agreement on objective and subjective aspects of societal participation following traumatic brain injury. Journal of Head Trauma Rehabilitation 2010; 25: 339–348
  • Dijkers MP. Quality of life after traumatic brain injury: A review of research approaches and findings. Archives of Physical and Medical Rehabilitation 2004; 85: s21–s35
  • Brown M, Gordon WA, Haddad L. Models for predicting subjective quality of life in individuals with traumatic brain injury. Brain Injury 2000; 14: 5–19
  • Loeber R, Green SM, Lahey BB, Stouthamer‐Loeber M. Optimal informants on childhood disruptive behaviours. Development and Psychopathology 1990; 1: 317–337
  • Ownsworth T, Fleming J, Strong J, Radel M, Chan W, Clare L. Awareness typologies, long term emotional adjustment and psychosocial outcomes following acquired brain injury. Neuropsychological Rehabilitation 2007; 17: 129–150
  • Ownsworth T, Clare L. The association between awareness deficits and rehabilitation outcome following acquired brain injury. Clinical Psychology Review 2006; 26: 783–795
  • Snow AL, Cook KF, Lin PS, Morgan RO, Magaziner J. Proxies and other external raters: Methodological considerations. Health Services Research 2005; 40: 1676–1693

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.