474
Views
41
CrossRef citations to date
0
Altmetric
Research Article

Japanese and American ALS patient preferences regarding TIV (tracheostomy with invasive ventilation): A cross-national survey

, , , , , , , , , , , , , , & show all
Pages 185-191 | Received 08 Oct 2013, Accepted 18 Feb 2014, Published online: 10 Apr 2014

References

  • Vianello A, Arcaro G, Palmieri A, Ermani M, Braccioni F, Gallan F, et al. Survival and quality of life after tracheostomy for acute respiratory failure in patients with amyotrophic lateral sclerosis. J Crit Care. 2011;26:e7–14.
  • Chio A, Calvo A, Ghiglione P, Mazzini L, Mutani R, Mora G for the PARALS. Tracheostomy in amyotrophic lateral sclerosis: a 10-year population based study in Italy. J Neurol Neurosurg Psychiatry. 2010;81:1141–3.
  • Hayashi H. ALS patients on TPPV: totally locked-in state, neurologic and ethical implications. Neurology. 2003; 61:135–7.
  • Smyth A, Riedl M, Kimura R, Olick R, Siegler M. End-of-life decisions in amyotrophic lateral sclerosis: a cross-cultural perspective. J Neurolog Sci. 1997; 152 (Suppl 1):S93–6.
  • Moss AH, Casey P, Stocking CB, Roos RP, Brooks R, Seigler M. Home ventilation for amyotrophic lateral sclerosis patients: outcomes, costs and physician attitudes. Neurology. 1993;43:438–43.
  • Oppenheimer EA. Treating respiratory failure in ALS: the details are becoming clearer. (Editorial). J Neurological Sciences. 2003;209:1–4.
  • Miller RG, Anderson FA, Bradley W, Brooks B, Mitsumoto H, Munsat T, Ringel S. The ALS patient care database: goals, design and early results. ALS C.A.R.E. Study Group. Neurology. 2000;54:53–7.
  • Sorenson EJ, Windbank A, Mandrekar J, Bamler W, Appel S, Armon C, et al. Subcutaneous IGF-1 is not beneficial in two-year ALS trial. Neurology. 2008;71: 1770–5.
  • Vender RL, Mauger D, Walsh S, Alam S, Simmons Z. Respiratory systems abnormalities and clinical milestones for patients with amyotrophic lateral sclerosis with emphasis on survival. Amyotroph Lateral Scler. 2007;8:36–41.
  • Tsou A, Karlawash K, McCluskey L, Xie S, Long J. Predictors of emergent feeding tubes and tracheostomies in amyotrophic lateral sclerosis (ALS). Amyotroph Lateral Scler. 2012; 13:318–25.
  • Neudert C, Oliver D, Wasner M, Borasio G. The course of the terminal phase in patients with amyotrophic lateral sclerosis. J Neurol. 2001;248:612–6.
  • Atsuta N, Watanabe H, Ito M, Aoki M, Nakano I, Yuasa T, et al. Clinical features of ALS in Japan from the registration system of intractable diseases. Amyotroph Lateral Scler. 2006;7(Suppl 1):100.
  • Atsuta N, Watanabe H, Ito M, Tanaka F, Tamakoshi A, Nakano I, et al. Age at onset influences on wide-ranged clinical features of sporadic amyotrophic lateral sclerosis. J Neurological Sciences. 2009;276;163–9.
  • Kimura I. Patient support in Japan. Amyotroph Lateral Scler. 2006;7(Suppl 1):7.
  • Borasio G, Gelinas D, Yanagisawa N. Mechanical ventilation in amyotrophic lateral sclerosis: a cross-cultural perspective. J Neurol. 1998;245(Suppl 2):S7–12.
  • Lemoignan J, Ells C. Amyotrophic lateral sclerosis and assisted ventilation: how patients decide. Palliative and Supportive Care. 2010;8:207–13.
  • Albert SM, Murphy P, Del Dene M, Rowland L. A prospective study of preferences and actual treatment choices in ALS. Neurology. 1999;53:278–83.
  • Miller R, Anderson F, Bradley W, Brooks B, Mitsumoto H, Moore D, et al. In: Mitsumoto H, Przedborski S, Gordon P, editors. Amyotrophic Lateral Scerosis. New York: Taylor & Francis; 2006. pp. 638.
  • Albert S, Whitaker A, Rabkin JG, Del Bene M, Tider T, O’Sulloivan I, Mitsumoto H. Medical and supportive care among people with ALS in the months before death or tracheostomy. J Pain Symptom Manage. 2009;38:546–53.
  • Rabkin JG. Ogino M, Goetz R, McElhiney M, Marzilano A, Imai T, et al. Tracheostomy with invasive ventilation for ALS patients: neurologists’ roles in the US and Japan. Amyotroph Lateral Scler. 2013;14:116–23.
  • Mitsumoto H, Rabkin JG. Palliative care for patients with amyotrophic lateral sclerosis. JAMA. 2007;298: 207–16.
  • McKim DA, King J, Walker K, Leblanc C, Timpson D, Wilson K, et al. Formal ventilation patient education for ALS predicts real-life choices. Amyotroph Lateral Scler. 2012;13:59–65.

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.