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Clinical Measurement
A qualitative evaluation of the revised amyotrophic lateral sclerosis functional rating scale (ALSFRS-R) by the patient community: a web-based cross-sectional survey
Danielle Boyce1 Johns Hopkins University School of Medicine, Baltimore, MD, USA
, Michael Robinson2 Independent ALS Patient Advocate, Denver, CO, USA
, Jesse M. Cedarbaum3 Coeruleus Clinical Sciences, Woodbridge, CT, USA;4 Yale School of Medicine, New Haven, CT, USA
, Lisa M. Shank5 Independent researcher, Glen Burnie, MD, USAhttps://orcid.org/0000-0002-6922-7946
, Christopher J. McDermott6 Department of Neuroscience, The University of Sheffield, Sheffield, South Yorkshire, UKhttps://orcid.org/0000-0002-1269-9053
& Ruben P. A. van Eijk7 Department of Neurology, UMC, Utrecht Brain Centre, University Medical Centre Utrecht, Utrecht, the Netherlands;8 Biostatistics & Research Support, Julius Centre for Health Sciences and Primary Care, University Medical Centre Utrecht, Utrecht, the NetherlandsCorrespondence[email protected]
https://orcid.org/0000-0002-7132-5967
https://orcid.org/0000-0002-7132-5967
Pages 272-280
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Received 02 Aug 2022, Accepted 21 Oct 2022, Published online: 04 Nov 2022
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