Assessing the Quality of Life of Persons with Developmental Disabilities: Description of a New Model, Measuring Instruments, and Initial Findings

Abstract

A conceptual model of quality of life and associated instrumentation for collecting data from persons with developmental disabilities are presented. The conceptual model assumes that the components of quality of life for persons with developmental disabilities are the same as for all persons. Additionally, in recognition of the complexity and importance of quality of life assessments, a multi‐method, multi‐source approach was developed. Results from a preliminary study provide evidence for the reliability and validity of the instrumentation associated with the model. The meaning of these preliminary results are examined and the issues raised by such assessments are discussed.