Assessing the Quality of Life of Persons with Developmental Disabilities: Description of a New Model, Measuring Instruments, and Initial Findings

References

• Bakan , D. 1964 . The duality of human existence: Isolation and communion in Western man , Boston : Beacon .
   Google Scholar
• Becker , E. 1971 . The birth and death of meaning , 2nd ed , New York : Free Press .
   Google Scholar
• Brown , R.I. 1993 . Quality of life issues in aging and intellectual disability . Australia and New Zealand Journal of Developmental Disabilities , 18 : 219 – 227 .
   Google Scholar
• Brown , R.I. , Bayer , M.B. and Brown , P.M. 1992 . Empowerment and developmental handicaps: Choices and quality of life , Toronto : Captus Press .
   Google Scholar
• Centre for Health Promotion . 1995 . Quality of Life Newsletter , Toronto : Author .
   Google Scholar
• Cummins , R. , Polzin , U. and Theobald , T. 1990 . Deinstitutionalization of St. Nicholas Hospital: IV. A four‐year follow‐up of resident lifestyle . Australia and New Zealand Journal of Developmental Disabilities , 16 : 305 – 321 .
   Google Scholar
• Goode , D. , ed. 1994 . Quality of life for persons with disabilities: International issues and perspectives , Boston : Brookline Press .
   Google Scholar
• Heal , L.W. and Chadsey‐Rusch , J. 1985 . The Lifestyle Satisfaction Scale (LSS): Assessing individuals’ satisfaction with residence, community setting, and associated services . Applied Research in Mental Retardation , 6 : 475 – 490 .
   PubMedGoogle Scholar
• Heal , L.W. and Sigelman , C.K. 1990 . “ Methodological issues in measuring the quality of life of individuals with mental retardation ” . In Quality of life: Perspectives and issues , Edited by: Schalock , R.L. 161 – 176 . Washington, DC : American Association on Mental Retardation .
   Google Scholar
• Landesman , S. 1986 . Quality of life and personal satisfaction: Definition and measurement . Mental Retardation , 24 : 141 – 143 .
   PubMedGoogle Scholar
• Ministry of Community and Social Services, Government of Ontario . 1987 . Challenges and opportunities: Community living for people with developmental handicaps , Toronto : Queen's Printer for Ontario .
   Google Scholar
• Parmenter , T. 1992 . “ Quality of life of persons with developmental disabilities ” . In International review of research in mental retardation , Edited by: Bray , N.W. Vol. 18 , 247 – 287 . New York : Academic Press .
   Google Scholar
• Parmenter , T. 1994 . Quality of life as a concept and measurable entity . Social Indicators Research , 33 : 1 – 8 .
   Web of Science ®Google Scholar
• Raphael , D. “ Issues in measuring quality of life ” . In Quality of life in health promotion and rehabilitation: Conceptual approaches, issues, and applications , Edited by: Renwick , R. , Brown , I. and Nagler , M. Thousand Oaks, CA : Sage . (in press).
   Google Scholar
• Raphael , D. , Brown , I. , Renwick , R. and Rootman , I. 1994 . Quality of life theory and assessment: What are the implications for health promotion? , Issues in Health Promotion Monograph Series Toronto : Centre for Health Promotion, University of Toronto and ParticipACTION .
   Google Scholar
• Raphael , D. , Renwick , R. and Brown , I. 1993 . Studying the lives of persons with developmental disabilities: Methodological lessons from the quality of life project . Journal on Developmental Disabilities , 2 : 30 – 49 .
   Google Scholar
• Renwick , R. , Brown , I. and Raphael , D. 1994 . Quality of life: A new conceptual approach to service provision . Journal on Developmental Disabilities , 3 : 34 – 46 .
   Google Scholar
• Rogers , C. 1961 . On becoming a person , New York : Houghton Mifflin .
   Google Scholar
• Romney , E. , Brown , R. and Fry , P. 1994 . Improving the quality of life of people with and without disabilities. [Special Issue] . Social Indicators Research , 33 (1‐3) : 1 – 273 .
   Web of Science ®Google Scholar
• Rootman , I. , Raphael , D. , Shewchuk , D. , Renwick , R. , Friefeld , S. , Garber , M. , Talbot , Y. and Woodill , G. 1992a . Development of an approach and instrument package to measure quality of life of persons with developmental disabilities , Toronto : Centre for Health Promotion .
   Google Scholar
• Rootman , I. , Raphael , D. , Shewchuk , D. , Renwick , R. , Friefeld , S. , Garber , M. , Talbot , Y. , Woodill , G. and Brown , I. 1992b . Highlights from the development of an approach and instrument package to measure quality of life of persons with developmental disabilities , Toronto : Centre for Health Promotion .
   Google Scholar
• Rootman , I. , Raphael , D. , Renwick , R. , Brown , I. , Friefeld , S. , Talbot , Y. and Garber , M. 1993 . Manual for the quality of life instrument package , Toronto : Centre for Health Promotion .
   Google Scholar
• Schalock , R.L. , ed. 1990 . Quality of life: Perspectives and issues , Washington, DC : American Association on Mental Retardation .
   Google Scholar
• Schalock , R.L. 1993 . Viewing quality of life in the larger context . Australia and New Zealand Journal of Developmental Disabilities , 18 : 201 – 208 .
   Google Scholar
• Schalock , R.L. , Keith , K.D. , Hoffman , K. and Karan , O.C. 1989 . Quality of life: Its measurement and use . Mental Retardation , 27 : 25 – 31 .
   PubMedGoogle Scholar
• Sigelman , C. , Schoenrock , C , Winer , J.L. , Spanhel , C.L. , Hromas , S.G. , Martin , P.W. , Budd , E. and Bensberg , G.J. 1981 . “ Issues in interviewing mentally retarded persons: An empirical study ” . In Deinstitutionalization and community adjustment of mentally retarded people , Edited by: Bruininks , R.H. , Meyers , C.E. , Sigford , B.B. and Lakin , K.C. 114 – 129 . Washington, DC : American Association on Mental Deficiency .
   Google Scholar
• Sullivan , E.V. 1984 . A critical psychology: Interpretation of the personal world , New York : Plenum .
   Google Scholar
• Woodill , G. 1992 . Independent living and participation in research: A critical analysis , Toronto : Centre for Independent Living in Toronto .
   Google Scholar
• Woodill , G. , Renwick , R. , Brown , I. and Raphael , D. 1994 . “ Being, belonging and becoming: A new conceptual approach to quality of life among the developmentally disabled ” . In Quality of life for persons with disabilities: International issues and perspectives , Edited by: Goode , D. 57 – 74 . Boston : Brookline Press .
   Google Scholar
• Wyngaarden , M. 1981 . “ Interviewing mentally retarded persons: Issues and strategies ” . In Deinstitutionalization and community adjustment of mentally retarded people , Edited by: Bruininks , R.H. , Meyers , C.E. , Sigford , B.B. and Lakin , K.C. 107 – 113 . Washington, DC : American Association on Mental Deficiency .
   Google Scholar