An exploration into experiences and attitudes regarding risky health behaviours in an adult cystic fibrosis population

ABSTRACT

Health risk behaviours (HRBs) are prevalent within the cystic fibrosis (CF) population, and there is a lack of research around what influences their engagement. This research explored beliefs associated with HRBs within an adult CF population using qualitative semi-structured interviews. Participants’ beliefs towards their CF and its life impact were investigated to explore reasons for engaging in HRB. A desire for normalcy was evident, often accompanied by engagement in everyday HRB as a method of minimising the illness identity. Evidence of a life-orientated illness perspective was also prevalent, with participants engaging in some risky behaviours for fun. Overall, there was a lack of knowledge on the consequences of HRB, with many participants reporting not being informed of these by clinicians. This research highlights a dilemma between clinical recommendations and personal life strategies undertaken by individuals with CF to support their identity.

KEYWORDS:

• Cystic fibrosis
• smoking
• alcohol
• substance use
• qualitative methods

Compliance with Ethical Standards

Author A (Dr Rebecca Keyte) declares that she has no conflict of interest. Author B (Dr Helen Egan) declares that she has no conflict of interest. Author C (Dr Edward Nash) declares that he has no conflict of interest. Author D (Dr Anna Regan) declares that she has no conflict of interest. Author E (Prof. Craig Jackson) declares that he has no conflict of interest. Author F (Dr Michail Mantzios) declares that he has no conflict of interest.

All procedures performed within this research which involved human participants were in accordance with the ethical standards of the institutional and/or national research committee (NHS NRES Committee East Midlands – Leicester; REC Reference: 14/EM/1183) and with the 1964 Helsinki declaration and its later amendments.

Informed consent was obtained from all individual participants included in the study.

Additional information

Funding

This study received no funding.