INCLUSIVE RESEARCH DESIGN

Abstract

This paper explores inclusive research design (IRD) as an integral component in what we term community partnership research in the information management and systems field. It aims to unravel the challenges and complexities of the double hermeneutic spiral associated with designing and doing this type of research in order to identify principles and processes appropriate to the engagement of all partners – in the community that provides the setting for the research and in the academy – in the iterative, ongoing design of the research. The research reported in the paper was undertaken within an interpretivist framework, using literary warrant analysis, autoethnography and a second generation grounded theory approach to data analysis. It involved in-depth analysis of our experiences over the last 10 years in community partnership research relating to smart health information portals, including reflection on our particular roles and interests in the research, as well as our changing needs, values and expectations. The paper concludes by presenting an IRD framework for community partnership research in information management and systems.

Keywords:

• community partnership research
• inclusive research design
• reflective research practice
• double hermeneutic research spiral
• information studies research
• smart health information portals

Acknowledgements

The development of BCKOnline would not have been possible without the direct, personal contribution of women with breast cancer, their families or friends. Some of these women were incredibly ill, yet still determined to participate in a project which they believed would benefit others. All participants enriched this project with their thoughtful reflections and commitment. We are forever grateful for their altruism and dedication. Sadly, not all participants have been able to bear witness to the product of this commitment and how we might translate these learnings into future collaborative research. The research reported in this paper would not have been possible without the commitment of all our community and academic partners (academic researchers, research fellows, PhD and Masters students from Monash, Deakin and Swinburne universities), and the financial support of BCV, beyondblue, an Australian Government initiative, the Helen McPherson Trust, Monash University and the Australian Research Council.

Notes

We dedicate this work to Sue Lockwood, AM and all those kindred spirits who allowed us to glimpse the possible through their courage and insight.