INCLUSIVE RESEARCH DESIGN

References

• Ackerly , B. A. , Stern , M. and True , J. 2006 . Feminist Methodologies for International Relations , 1 , Edited by: Ackerly , B. A. , Stern , M. and True , J. Cambridge University Press, Cambridge, UK .
   Google Scholar
• Anderson , L. 2006 . Analytic Autoethnography . Journal of Contemporary Ethnography , 35 ( 4 ) : 373 – 395 .
   Web of Science ®Google Scholar
• Baskerville , R. L. and Wood-Harper , A. T. 1996 . A critical perspective on action research as a method for information systems research . Journal of Information Technology , 11 ( 3 ) : 235 – 246 .
   Web of Science ®Google Scholar
• Bastian , J. A. 2003 . Owning Memory: How a Caribbean Community Lost Its Archives and Found Its History , Westoirt , CT : Libraries Unlimited .
   Google Scholar
• Beacham , B. , Kalucy , L. , McIntyre , E. and Thomas , F. 2004 . Collaborative partnerships in research . Journal Watch: Evidence-Based Policy & Practice Research Bulletin , pp. 1–24, [Online] Available at: http://www.phcris.org.au/phplib/filedownload.php?file=/publications/jwatch/april04.pdf (27 January 2012)
   Google Scholar
• Bilandzic , M. and Venable , J. 2011 . Towards participatory action design research: adapting action research and design science research methods for urban informatics . The Journal of Community Informatics , 7 ( 3 ) [Online] Available at: http://ci-journal.net/index.php/ciej/article/view/786/804 (3 March 2012)
   Google Scholar
• Borning, A. & Muller, M. (2012) ‘Next steps for value sensitive design’, In Proceedings of the 2012 ACM annual conference on Human Factors in Computing Systems (CHI '12), ACM, Cambridge University Press, New York, NY, pp. 1125–1134, [Online]. Available at: http://doi.acm.org/10.1145/2208516.2208560 (2 March 2012).
   Google Scholar
• Brigg , M. and Bleiker , R. 2010 . Autoethnographic international relations: exploring the self as a source of knowledge . Review of International Studies , 36 ( 3 ) : 779 – 798 .
   Web of Science ®Google Scholar
• Burstein , F. 2002 . “ Systems development in information systems research ” . In Research Methods for Students, Academics and Professionals: Information Management and Systems , Edited by: Williamson , K. 147 – 158 . Wagga Wagga : Centre for Information Studies, Charles Sturt University .
   Google Scholar
• Burstein, F., Fisher, J. L., McKemmish, S. M., Manaszewicz, R. & Malhotra, P. (2005) ‘User centred quality health information provision: benefits and challenges’, in Proceedings of the Thirty-Eighth Annual Hawaii International Conference on System Sciences, Big Island, Hawaii, 03 January 2005 to 06 January 2005, IEEE Computer Society, Los Alamitos, CA, USA, pp. 1–10.
   Google Scholar
• Burstein, F., McKemmish, S. M., Fisher, J. L., Manaszewicz, R. & Malhotra, P. (2006) ‘A role for information portals as intelligent decision support systems: breast cancer knowledge online experience’, in Intelligent Decision-making Support Systems: Foundations, Applications and Challenges, eds J. N. D. Gupta, G. A. Forgionne & T. Manuel Mora, Springer, London, pp. 359–383.
   Google Scholar
• Charmaz , K. 2000 . “ Grounded theory methodology: objectivist and constructivist qualitative methods ” . In Handbook of Qualitative Research , Edited by: Denzin , N. K. and Lincoln , Y. S. 509 – 535 . Thousand Oaks , CA : Sage .
   Google Scholar
• Charmaz , K. 2004 . Premises, principles, and practices in qualitative research: revisiting the foundations . Qualitative Health Research , 14 ( 7 ) : 976 – 993 .
   PubMed Web of Science ®Google Scholar
• Charmaz , K. 2006 . Constructing Grounded Theory: A Practical Guide Through Qualitative Analysis , 1 , Sage, London .
   Google Scholar
• Charmaz , K. and Mitchell , R. G. 1996 . The myth of silent authorship: self, substance, and style in ethnographic writing . Symbolic Interaction , 19 ( 4 ) : 285 – 302 .
   Web of Science ®Google Scholar
• Cornwall , A. and Jewkes , R. 1995 . What is participatory research? . Social Science and Medicine , 41 ( 12 ) : 1667 – 1676 .
   PubMed Web of Science ®Google Scholar
• Delanty , G. 2003 . Community , New York : Routledge .
   Google Scholar
• Duff , W. M. 1998 . Harnessing the power of warrant . American Archivist , 61 ( 1 ) : 88 – 105 .
   Google Scholar
• Earthy , J. , Jones , B. S. and Bevan , N. 2001 . The improvement of human-centred processes – facing the challenge and reaping the benefit of ISO 13407 . International Journal of Human-Computer Studies , 55 ( 4 ) : 553 – 585 .
   Web of Science ®Google Scholar
• Evans , J. and Rouche , N. 2004 . Utilizing systems development methods in archival systems research: building a metadata schema registry . Archival Science , 4 ( 3–4 ) : 315 – 334 .
   Google Scholar
• Evans, J., Manaszewicz, R. & Xie, J. (2009) ‘The role of domain expertise in smart, user-sensitive, health information portals’, in Proceedings of the 42nd Annual Hawaii International Conference on System Sciences, Los Alamitos, CA, 5–8 January, 2009, IEEE Computer Society, Los Alamitos, CA, [Online] Available at: http://ieeexplore.ieee.org/xpls/abs_all.jsp?arnumber=4755572 (27 January 2012).
   Google Scholar
• Fook , J. 1999 . Reflexivity as method . Annual Review of Health Social Sciences , 9 : 11 – 20 .
   Google Scholar
• Friedman , B. 2004 . “ Value sensitive design ” . In Encyclopedia of Human-Computer Interaction , Edited by: Bainbridge , W. S. 769 – 774 . Great Barrington , MA : Berkshire Publishing Group .
   Google Scholar
• Friedman, B., Kahn, P. H., Jr. & Borning, A. (2006) ‘Value sensitive design and information systems’, in Human-Computer Interaction and Management Information Systems: Foundations, eds P. Zhang, D. Galleta & M. E. Sharpe, Armonk, NY, London, pp. 348–372.
   Google Scholar
• Giddens , A. 1984 . The Constitution of Society , Cambridge , UK : Polity Press .
   Google Scholar
• Gilliland , A. and McKemmish , S. 2004 . Building an infrastructure for archival research . Archival Science , 4 ( 3–4 ) : 149 – 197 .
   Google Scholar
• Glaser , B. and Strauss , A. 1967 . The Discovery of Grounded Theory: Strategies for Qualitative Research , Chicago : Aldine Transaction .
   Google Scholar
• Gould , J. D. and Lewis , C. 1985 . Designing for usability: key principles and what designers think . Communications of the ACM , 28 ( 3 ) : 300 – 311 .
   Web of Science ®Google Scholar
• Green , L. W. and Mercer , S. L. 2001 . Can public health researchers and agencies reconcile the push from funding bodies and the pull from communities? . American Journal of Public Health , 91 ( 12 ) : 1926 – 1929 .
   PubMed Web of Science ®Google Scholar
• Hagey , R. S. 1997 . Guest editorial: the use and abuse of participatory action research . Chronic Diseases in Canada , 18 ( 1 ) : 1 – 4 .
   PubMedGoogle Scholar
• van den Hoven , J. 2007 . “ ICT and value sensitive design ” . In The Information Society: Innovation, Legitimacy, Ethics and Democracy in Honor of Professor Jacques Berleur S.J , Edited by: Goujon , P. , Lavelle , S. , Duquenoy , P. , Kimppa , K. and Laurent , V. 67 – 72 . Boston , MA : Springer .
   Google Scholar
• Iivari, J. & Venable, J. (2009) ‘Action research and design science research – seemingly similar but decisively dissimilar’, [Online] Available at: http://www.ecis2009.it/papers/ecis2009-0424.pdf (2 March 2012)
   Google Scholar
• Israel , B. , Schulz , A. J. , Parker , E. A. and Becker , A. B. 1998 . Review of community-based research: assessing partnership approaches to improve public health . Annual Review of Public Health , 19 : 173 – 202 .
   PubMed Web of Science ®Google Scholar
• Ketelaar , E. 2005 . Sharing: collected memories in communities of records . Archives and Manuscripts , 33 ( 1 ) : 44 – 61 .
   Google Scholar
• Koshy , V. 2005 . Action Research for Improving Practice: A Practical Guide , Sage, London .
   Google Scholar
• Kukafka , R. , Khan , S. A. , Hutchinson , C. , McFarlane , D. J. , Li , J. , Ancker , J. S. and Cohall , A. 2007 . Digital partnerships for health: steps to develop a community-specific health portal aimed at promoting health and well-being . AMIA Annual Symposium Proceedings , 2007 : 428 – 432 .
   Google Scholar
• Linger , H. 2006 . “ Supporting collaborative knowledge work: a methodology for developing ict tools for biomedical research ” . In Neural Nets , Edited by: Apolloni , B. , Marinaro , M. , Nicosia , G. and Tagliaferri , R. 261 – 271 . Berlin : Springer .
   Google Scholar
• Lincoln, Y. S. & Guba, E. G. (2003) ‘Paradigmatic controversies, contradictions, and emerging confluences’, in Landscape of Qualitative Research: Themes and Issues, eds N. K. Denzin & Y. S. Lincoln, Sage, Thousand Oaks, CA, pp. 253–291.
   Google Scholar
• Macaulay , A. C. , Commanda , L. E. , Freeman , W. L. , Gibson , N. , McCabe , M. L. , Robbins , C. M. and Twohig , P. L. 1999 . Participatory research maximises community and lay involvement . British Medical Journal , 319 ( 7212 ) : 774 – 778 .
   PubMed Web of Science ®Google Scholar
• Manaszewicz, R. (2009) ‘Different Time, Different Place’: An Exploratory Study of Information Use by Women with Advanced Breast Cancer, PhD Thesis, Monash University.
   Google Scholar
• Mattarelli, E., Bertolotti, F. & Macrì, D. M. (2011) ‘The use of ethnography and grounded theory in the development of a management information system’, European Journal of Information Systems, [Online] Available at: http://www.palgrave-journals.com/ejis/journal/vaop/ncurrent/abs/ejis201134a.html (4 March 2012)
   Google Scholar
• McKay , J. and Marshall , P. 2001 . The dual imperatives of action research . Information Technology & People , 14 ( 1 ) : 46 – 59 .
   Google Scholar
• McKay , J. and Marshall , P. 2007 . “ Driven by two masters, serving both: the interplay of problem solving and research in information systems action research projects ” . In Information Systems Action Research Applied View of Emerging Concepts and Methods, Integrated Series in Information Systems , Edited by: Kock , N. 131 – 158 . Boston , MA : Springer .
   Google Scholar
• McKemmish , S. , Manaszewicz , R. , Burstein , F. and Fisher , J. 2009 . Consumer empowerment through metadata-based information quality reporting: the breast cancer knowledge online portal . Journal of the American Society for Information Science and Technology , 60 ( 9 ) : 1792 – 1807 .
   Web of Science ®Google Scholar
• Merkel, C. B., Xiao, L., Farooq, U., Ganoe, C. H., Lee, R., Carroll, J. M. & Rosson, M. B. (2004) ‘Participatory design in community computing contexts: tales from the field’, in Proceedings of the Eighth Conference on Participatory Design: Artful Integration: Interweaving Media, Materials and Practices – Volume 1, New York, NY, ACM, New York, NY, [Online] Available at: http://doi.acm.org.ezproxy.lib.monash.edu.au/10.1145/1011870.1011872 (6 March 2012)
   Google Scholar
• Oosthuizen, M. (2002) ‘Action research’, in Research Methods for Students, Academics and Professionals: Information Management and Systems, ed. K. Williamson, Centre for Information Studies, Charles Sturt University, Wagga Wagga, pp. 159–175.
   Google Scholar
• Ominsky , M. , Stern , K. R. and Rudd , J. R. 2002 . User-centered design at IBM consulting . International Journal of Human Computer Interaction , 14 ( 3–4 ) : 349 – 368 .
   Web of Science ®Google Scholar
• Pier , C. , Shandley , K. A. , Fisher , J. L. , Burstein , F. , Nelson , M. R. and Piterman , L. 2008 . Identifying the health and mental health information needs of people with coronary heart disease, with and without depression . Medical Journal of Australia , 188 ( 12 ) : S142 – S144 .
   Web of Science ®Google Scholar
• Plumb , M. , Price , W. and Kavanaugh-Lynch , M. H. E. 2004 . Funding community-based participatory research: lessons learned . Journal of Interprofessional Care , 18 ( 4 ) : 428 – 439 .
   PubMedGoogle Scholar
• Reason , P. and Bradbury , H. 2001 . Handbook of Action Research: Participative Inquiry and Practice , 1 , Sage, London .
   Google Scholar
• Reason , P. and Bradbury , H. 2008 . The Sage Handbook of Action Research: Participative Inquiry and Practice , 2 , London : Sage .
   Google Scholar
• Reinharz , S. 1997 . “ Who am I?: the need for a variety of selves in the field ” . In Reflexivity and Voice , Edited by: Hertz , R. 3 – 20 . Thousand Oaks, CA : Sage .
   Google Scholar
• Schauder , D. 2002 . “ Seven questions for information management and systems researchers ” . In Research Methods for Students, Academics and Professionals: Information Management and Systems , Edited by: Williamson , K. 323 – 330 . Wagga Wagga : Centre for Information Studies, Charles Sturt University .
   Google Scholar
• Sparkes , A. C. 2000 . Autoethnography and narratives of self: reflections on criteria in action . Sociology of Sport Journal , 17 ( 1 ) : 21 – 43 .
   Web of Science ®Google Scholar
• Stoecker , R. 2005 . Research Methods for Community Change a Project-Based Approach , Sage, Thousand Oaks, CA .
   Google Scholar
• Stoecker , R. 2009 . Are we talking the walk of community-based research? . Action Research , 7 ( 4 ) : 385 – 404 .
   Web of Science ®Google Scholar
• Strauss , A. and Corbin , J. 1998 . Basics of Qualitative Research: Techniques and Procedures for Developing Grounded Theory , 3 , Thousand Oaks , CA : Sage .
   Google Scholar
• Tillmann-Healy , L. M. 2003 . Friendship as method . Qualitative Inquiry , 9 ( 5 ) : 729 – 749 .
   Web of Science ®Google Scholar
• Wall , S. 2006 . An autoethnography on learning about autoethnography . International Journal of Qualitative Methods , 5 ( 2 ) : 146 – 160 .
   Google Scholar
• Weiss , J. B. and Lorenzi , N. M. 2008 . Synthesizing community wisdom: a model for sharing cancer-related resources through social networking and collaborative partnerships . AMIA Annual Symposium Proceedings , 2008 : 793 – 797 .
   Google Scholar
• Williamson , A. and Desouza , R. (eds) . 2007 . Researching with Communities: Grounded Perspectives on Engaging Communities in Research , Muddy Creek Press, Auckland, New Zealand .
   Google Scholar
• Williamson , K. , Burstein , F. and McKemmish , S. 2002 . “ The two major traditions of research ” . In in Research Methods for Students, Academics and Professionals: Information Management and Systems , 25 – 47 . Wagga Wagga : ed. K. Williamson, Centre for Information Studies, Charles Sturt University .
   Google Scholar
• Winschiers-Theophilus, H., Chivuno-Kuria, S., Kapuire, G. K., Bidwell, N. J. & Blake, E. (2010) ‘Being participated: a community approach’, in Proceedings of the 11th Biennial Participatory Design Conference, Sydney, Australia, November 29--December 03, 2010, ACM, New York, NY. doi:10.1145/1900441.1900443.
   Google Scholar
• Xie, J. (2009) ‘Sustaining quality assessment processes in user-centred health information portals’, in AMCIS 2009 Proceedings, [Online] Available at: http://aisel.aisnet.org/amcis2009/189 (27 January 2012)
   Google Scholar
• Xie, J. & Burstein, F. (2011) ‘Using machine learning to support resource quality assessment: an adaptive attribute-based approach for health information portals’, in 16th International Conference on Database Systems for Advanced Applications (DASFAA'2011), Hong Kong, China, April 22–25, 2011, eds J. Yu, M. Kim & R. Unland, Springer-Verlag, Berlin, pp. 526–537.
   Google Scholar