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The American Journal of Bioethics Volume 14, 2014 - Issue 11
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Open Peer Commentaries

Data Donation Could Power the Learning Health Care System, Including Special Access Programs

P. WicksPatientsLikeMeCorrespondence[email protected]
&
J. A. HeywoodPatientsLikeMe
Pages 27-29 | Published online: 17 Oct 2014
 
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ACKNOWLEDGMENTS

We thank the patient advocates Humberto Macedo (deceased), Rob Tison (deceased), and Eric Valor, as well as caregiver Karen Felzer, for their work in championing participant-led research in the ALS community.

Related Research Data

Lunasin does not slow ALS progression: results of an open-label, single-center, hybrid-virtual 12-month trial.
Source: Informa UK Limited
Digital orphans: Data closure and openness in patient-powered networks
Source: Springer Science and Business Media LLC

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