The American Journal of Bioethics, Volume 14, Issue 11 (2014)

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The American Journal of Bioethics, Volume 14, Issue 11 (2014)

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Editorial

Editorial
Compassion and Research in Compassionate Use
David Magnus
Pages: 1-2
Published online: 17 Oct 2014
CitationforCompassion and Research in Compassionate Use | Full Text | References | PDF (30.1 KB)
  • 557 Views
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Target Article

Article
Ethical Justifications for Access to Unapproved Medical Interventions: An Argument for (Limited) Patient Obligations
Mary Jean Walker, Wendy A. Rogers & Vikki Entwistle
Pages: 3-15
Published online: 17 Oct 2014
AbstractforEthical Justifications for Access to Unapproved Medical Interventions: An Argument for (Limited) Patient Obligations | Full Text | References | PDF (127.3 KB)
  • 1501 Views
  • 41 CrossRef citations
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Open Peer Commentaries

Article Commentary
Compassion for Each Individual's Own Sake
Arthur Caplan & Alison Bateman-House
Pages: 16-17
Published online: 17 Oct 2014
CitationforCompassion for Each Individual's Own Sake | Full Text | References | PDF (39.6 KB)
  • 387 Views
  • 8 CrossRef citations
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Article Commentary
FDA Implementation of the Expanded Access Program in the United States
Michelle Roth-Cline & Robert Nelson
Pages: 17-19
Published online: 17 Oct 2014
First Page PreviewforFDA Implementation of the Expanded Access Program in the United States | Full Text | References | PDF (46.7 KB)
  • 273 Views
  • 6 CrossRef citations
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Article Commentary
SAPs: A Different Perspective
Jess Rabourn & Richard S. Bedlack
Pages: 19-20
Published online: 17 Oct 2014
CitationforSAPs: A Different Perspective | Full Text | References | PDF (38.4 KB)
  • 179 Views
  • 5 CrossRef citations
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Article Commentary
Access to Unapproved Medical Interventions in Cases of Catastrophic Illness
Udo Schuklenk
Pages: 20-22
Published online: 17 Oct 2014
First Page PreviewforAccess to Unapproved Medical Interventions in Cases of Catastrophic Illness | Full Text | References | PDF (46.5 KB)
  • 347 Views
  • 8 CrossRef citations
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Article Commentary
Right Answer, Wrong Question: Special Access, Knowledge Generation, and Clinical Trial Legitimacy
Christopher Lowry
Pages: 22-24
Published online: 17 Oct 2014
First Page PreviewforRight Answer, Wrong Question: Special Access, Knowledge Generation, and Clinical Trial Legitimacy | Full Text | References | PDF (45.5 KB)
  • 169 Views
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Article Commentary
Proposal for Patient Obligations for Access to Unapproved Medical Interventions: Both Too Much and Not Enough
Audrey Chapman
Pages: 25-26
Published online: 17 Oct 2014
CitationforProposal for Patient Obligations for Access to Unapproved Medical Interventions: Both Too Much and Not Enough | Full Text | References | PDF (38.3 KB)
  • 238 Views
  • 5 CrossRef citations
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Article Commentary
Data Donation Could Power the Learning Health Care System, Including Special Access Programs
P. Wicks & J. A. Heywood
Pages: 27-29
Published online: 17 Oct 2014
First Page PreviewforData Donation Could Power the Learning Health Care System, Including Special Access Programs | Full Text | References | PDF (47.6 KB)
  • 1390 Views
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Open Access
Article Commentary
Special Access Programs and Clinical Research Trials—An Integration Long Overdue
Anthony Vernillo
Pages: 29-31
Published online: 17 Oct 2014
First Page PreviewforSpecial Access Programs and Clinical Research Trials—An Integration Long Overdue | Full Text | References | PDF (45 KB)
  • 151 Views
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Target Article

Article
Protecting Posted Genes: Social Networking and the Limits of GINA
Sandra Soo-Jin Lee & Emily Borgelt
Pages: 32-44
Published online: 17 Oct 2014
AbstractforProtecting Posted Genes: Social Networking and the Limits of GINA | Full Text | References | PDF (263.6 KB)
  • 564 Views
  • 17 CrossRef citations
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Open Peer Commentaries

Article Commentary
GINA's Limits or Something More? The Need for Greater Protection of Employee Health-Related Information
Jessica L. Roberts
Pages: 45-48
Published online: 17 Oct 2014
First Page PreviewforGINA's Limits or Something More? The Need for Greater Protection of Employee Health-Related Information | Full Text | References | PDF (59.7 KB)
  • 159 Views
  • 2 CrossRef citations
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Article Commentary
Beyond Social Media: Inadvertent Acquisition of Genetic Information in Medical Certifications
Anya E. R. Prince
Pages: 48-50
Published online: 17 Oct 2014
First Page PreviewforBeyond Social Media: Inadvertent Acquisition of Genetic Information in Medical Certifications | Full Text | References | PDF (48.7 KB)
  • 103 Views
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Article Commentary
How Political Cultures Affect Governance Efforts To Protect “Posted Genes”: Insights From Germany
Jonas Lander & Ine Van Hoyweghen
Pages: 50-53
Published online: 17 Oct 2014
First Page PreviewforHow Political Cultures Affect Governance Efforts To Protect “Posted Genes”: Insights From Germany | Full Text | References | PDF (55.1 KB)
  • 95 Views
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Article Commentary
Sharing Genetic Information Online: An Exploration of GINA's 2.0 Frontier
Vassilis Ragoussis, Ida Ngueng Feze & Yann Joly
Pages: 53-55
Published online: 17 Oct 2014
First Page PreviewforSharing Genetic Information Online: An Exploration of GINA's 2.0 Frontier | Full Text | References | PDF (48 KB)
  • 158 Views
  • 1 CrossRef citations
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Article Commentary
Direct-to-Consumer Genomics Companies Should Provide Guidance to Their Customers on (Not) Sharing Personal Genomic Information
Nanibaa’ A. Garrison & Amy L. Non
Pages: 55-57
Published online: 17 Oct 2014
First Page PreviewforDirect-to-Consumer Genomics Companies Should Provide Guidance to Their Customers on (Not) Sharing Personal Genomic Information | Full Text | References | PDF (46.6 KB)
  • 289 Views
  • 1 CrossRef citations
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Article Commentary
Policy and the Inevitability of Sharing: GINA and Social Media
Joon-Ho Yu & Rebecca S. Engrav
Pages: 57-59
Published online: 17 Oct 2014
First Page PreviewforPolicy and the Inevitability of Sharing: GINA and Social Media | Full Text | References | PDF (46 KB)
  • 125 Views
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Correspondence

Special Access Programs Warrant Further Critical Attention: Authors’ Response to Open Peer Commentaries on “Ethical Justifications for Access to Unapproved Medical Interventions: An Argument for (Limited) Patient Obligations”
Mary Jean Walker, Wendy A. Rogers & Vikki Entwistle
Pages: W1-W2
Published online: 17 Oct 2014
CitationforSpecial Access Programs Warrant Further Critical Attention: Authors’ Response to Open Peer Commentaries on “Ethical Justifications for Access to Unapproved Medical Interventions: An Argument for (Limited) Patient Obligations” | Full Text | References | PDF (35.7 KB)
  • 165 Views
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Response to Open Peer Commentaries on “The Principle of Equivalence Reconsidered: Assessing the Relevance of the Principle of Equivalence in Prison Medicine”
Fabrice Jotterand & Tenzin Wangmo
Pages: W3-W4
Published online: 17 Oct 2014
CitationforResponse to Open Peer Commentaries on “The Principle of Equivalence Reconsidered: Assessing the Relevance of the Principle of Equivalence in Prison Medicine” | Full Text | References | PDF (33.2 KB)
  • 102 Views
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