Spotlighting Structural Constraints on Decisions About Participation in Genomic and Precision Medicine

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Acknowledgements

This special issue would not be possible without the support of the National Human Genome Research Institute and its support of the biennial ELSI Congress (Grant number U13HG010830) and the Center for ELSI Resources and Analysis (Grant number U24HG010733). We are grateful to Editor-in-Chief, Holly Tabor, Executive Managing Editor Bela Fishbeyn, and the publishers of the AJOB Empirical Bioethics, Tiana Y. Sepahpour, Rachel H. Lee, and several anonymous reviewers for the opportunity to present this research to the community. We hope the conclusions presented in this issue will stimulate both scholarship and action.

Disclosure statement

No potential conflict of interest was reported by the author(s).

Notes

1 The ELSI Congress was co-directed by Sandra Soo-Jin Lee and Mildred Cho, who convened an organizing committee that included Dounya Alami-Nassif (Columbia University), Paul Appelbaum (Columbia University), Jessica Blanchard (University of Oklahoma), Joy Boyer (NHGRI), Larry Brody (NHGRI), Shawneequa Callier (George Washington University), Mildred Cho (Stanford University), Deanne Dunbar Dolan (Stanford University), Gail Henderson (University of North Carolina), Steven Joffe (University of Pennsylvania), Angelica Johnson (Columbia University), Dave Kaufman (NHGRI), Gabriel Lázaro-Muñoz (Harvard Medical School), Sandra Soo-Jin Lee (Columbia University), Nicole Lockhart (NHGRI), Caroline Moore (Stanford University), Osagie Obasogie (UC Berkeley), Lisa Parker (University of Pittsburgh), Kayte Spector-Bagdady (University of Michigan), Rene Sterling (NHGRI), James Tabery (University of Utah), Wendy Uhlmann (University of Michigan), Emily Van Poetsch (Stanford University), Joe Vitti (Broad/Harvard/MIT), Alexis Walker (Columbia University), Joon-Ho Yu (University of Washington), and Rachel Yarmolinsky (Columbia University).

Additional information

Funding

This work was supported by the National Human Genome Research Institute under grant numbers U13HG010830 and U24HG010733.