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Research Article

Living with Coeliac Disease: Controlled Study of the Burden of Illness

Pages 39-42 | Published online: 08 Jul 2009

Keep up to date with the latest research on this topic with citation updates for this article.

Read on this site (11)

A. Justine Dowd, Karen T. Y. Tang, Michelle Y. Chen, Mary E. Jung, Amber Mosewich, Lori Welstead & S. Nicole Culos-Reed. (2023) Improvements in self-compassion after an online program for adults with celiac disease: Findings from the POWER-C study. Self and Identity 22:2, pages 197-226.
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Thomas O. Kipp, Steffen Husby & Halfdan Skjerning. (2019) The large majority of coeliacs have a high degree of perceived dietary competence. Scandinavian Journal of Gastroenterology 54:12, pages 1452-1457.
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Jungmin Lee & Kofi Clarke. (2017) Effect of clinical and laboratory parameters on quality of life in celiac patients using celiac disease-specific quality of life scores. Scandinavian Journal of Gastroenterology 52:11, pages 1235-1239.
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Maryam Taghdir, Naser Honar, Seyed Mohammad Mazloomi, Mojtaba Sepandi, Mahkameh Ashourpour & Musa Salehi. (2016) Dietary compliance in Iranian children and adolescents with celiac disease. Journal of Multidisciplinary Healthcare 9, pages 365-370.
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Katri Lindfors, Marja-Leena Lähdeaho, Suvi Kalliokoski, Kalle Kurppa, Pekka Collin, Markku Mäki & Katri Kaukinen. (2012) Future treatment strategies for celiac disease. Expert Opinion on Therapeutic Targets 16:7, pages 665-675.
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Kalle Kurppa, Pekka Collin, Markku Mäki & Katri Kaukinen. (2011) Celiac disease and health-related quality of life. Expert Review of Gastroenterology & Hepatology 5:1, pages 83-90.
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Susanne Roos, Susan Wilhelmsson & Claes Hallert. (2011) Swedish women with coeliac disease in remission use more health care services than other women: a controlled study. Scandinavian Journal of Gastroenterology 46:1, pages 13-19.
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Kalle Kurppa, Pekka Collin, Harri Sievänen, Heini Huhtala, Markku Mäki & Katri Kaukinen. (2010) Gastrointestinal symptoms, quality of life and bone mineral density in mild enteropathic coeliac disease: A prospective clinical trial. Scandinavian Journal of Gastroenterology 45:3, pages 305-314.
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Pekka Collin, Katri Kaukinen, Aino K. Mattila & Matti Joukamaa. (2008) Psychoneurotic symptoms and alexithymia in coeliac disease. Scandinavian Journal of Gastroenterology 43:11, pages 1329-1333.
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Matti A. Verkasalo, Olli T. Raitakari, Jorma Viikari, Jukka Marniemi & Erkki Savilahti. (2005) Undiagnosed silent coeliac disease: A risk for underachievement?. Scandinavian Journal of Gastroenterology 40:12, pages 1407-1412.
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M. Peräaho, K. Kaukinen, K. Mustalahti, N. Vuolteenaho, M. Mäki, P. Laippala & P. Collin. (2004) Effect of an oats‐containing gluten‐free diet on symptoms and quality of life in coeliac disease. A randomized study. Scandinavian Journal of Gastroenterology 39:1, pages 27-31.
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Articles from other publishers (119)

Anna Maria Mazzola, Irene Zammarchi, Maria Chiara Valerii, Enzo Spisni, Ilaria Maria Saracino, Francesco Lanzarotto & Chiara Ricci. (2024) Gluten-Free Diet and Other Celiac Disease Therapies: Current Understanding and Emerging Strategies. Nutrients 16:7, pages 1006.
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Maialen Vázquez-Polo, Virginia Navarro, Idoia Larretxi, Gesala Perez-Junkera, Arrate Lasa, Silvia Matias, Edurne Simon & Itziar Churruca. (2023) Uncovering the Concerns and Needs of Individuals with Celiac Disease: A Cross-Sectional Study. Nutrients 15:17, pages 3681.
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Cláudia Chaves, António Raposo, Renata Puppin Zandonadi, Eduardo Yoshio Nakano, Fernando Ramos & Edite Teixeira-Lemos. (2023) Quality of Life Perception among Portuguese Celiac Patients: A Cross-Sectional Study Using the Celiac Disease Questionnaire (CDQ). Nutrients 15:9, pages 2051.
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Niranjani Venkateswaran, Benjamin Claxton, David Locke, Allison Baragona, Erik B. Lehman, Shannon Dalessio & Kofi Clarke. (2023) Referral for Dietary Intervention in Celiac Disease Is Low among Gastroenterologists and Primary Care Providers. Digestive Diseases 41:2, pages 343-352.
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Satvik R Verma & Manpreet Bains. (2022) The Impact of the Media Portrayal of Coeliac Disease: A Qualitative Study. Cureus.
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Camilla Pasternack, Kaisa Hervonen, Eriika Mansikka, Timo Reunala, Katri Kaukinen & Teea Salmi. (2022) Sex-differences in Gluten-free Dietary Adherence and Clinical Symptoms in Patients with Long-term Treated Dermatitis Herpetiformis. Acta Dermato-Venereologica 102, pages adv00713.
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Katie O'Shaughnessy, William Stack, Triona Hayes, Elizabeth Kenny & Lucina Jackson. (2022) An Investigation Into What Factors Influence Patterns of Clinical Presentation in Adult-Onset Celiac Disease. Cureus.
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Stephan P. Möller, Pragalathan Apputhurai, Jason A. Tye-Din & Simon R. Knowles. (2022) Longitudinal assessment of the common sense model before and during the COVID-19 pandemic: A large coeliac disease cohort study. Journal of Psychosomatic Research 153, pages 110711.
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Fabiana Zingone, Erica Secchettin, Ilaria Marsilio, Flavio Valiante, Valerio Zorzetto, Giovanni Cataudella, Anna D'Odorico & Cristina Canova. (2021) Clinical features and psychological impact of celiac disease at diagnosis. Digestive and Liver Disease 53:12, pages 1565-1570.
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Mojgan Akhavan Sabbagh, Reza Mahdavi, Masood Shirmohammadi & Zeinab Nikniaz. (2021) Barriers of Adherence to a Gluten-Free Diet in Iranian Adults With Celiac Disease. Gastroenterology Nursing 44:5, pages 320-327.
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Stephan P. Möller, Bree Hayes, Helen Wilding, Pragalathan Apputhurai, Jason A. Tye-Din & Simon R. Knowles. (2021) Systematic review: Exploration of the impact of psychosocial factors on quality of life in adults living with coeliac disease. Journal of Psychosomatic Research 147, pages 110537.
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Pezhman Alavinejad, Yosra Shafiolleh Talokdar & Zahra Shokati Ashkiki. (2021) Evaluation of Gluten-Free Diet Efficacy for Improving Quality of Life of Patients with Celiac Disease. Jundishapur Journal of Chronic Disease Care 10:1.
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Zelnik Yovel Dana, Berezovsky lena, Richter Vered, Shirin Haim & Broide Efrat. (2020) Factors associated with non adherence to a gluten free diet in adult with celiac disease: A survey assessed by BIAGI score. Clinics and Research in Hepatology and Gastroenterology 44:5, pages 762-767.
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Ilaria Marsilio, Cristina Canova, Anna D’Odorico, Matteo Ghisa, Letizia Zingone, Greta Lorenzon, Edoardo Vincenzo Savarino & Fabiana Zingone. (2020) Quality-of-Life Evaluation in Coeliac Patients on a Gluten-Free Diet. Nutrients 12:10, pages 2981.
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Nicole Selleski, Renata Puppin Zandonadi, Laura B. Milde, Lenora Gandolfi, Riccardo Pratesi, Winfred Häuser, Rosa Harumi Uenishi, Eduardo Yoshio Nakano & Claudia B. Pratesi. (2020) Evaluation of Quality of Life of Adult Patients with Celiac Disease in Argentina: From Questionnaire Validation to Assessment. International Journal of Environmental Research and Public Health 17:19, pages 7051.
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A Justine Dowd, Cassandra B Warbeck, Karen TY Tang, Tak Fung & S Nicole Culos-Reed. (2020) MyHealthyGut: Findings from a pilot randomized controlled trial on adherence to a gluten-free diet and quality of life among adults with celiac disease or gluten intolerance. DIGITAL HEALTH 6, pages 205520762090362.
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Mohammad Rostami-Nejad, Nazanin Taraghikhah, Carolina Ciacci, Mohamad Amin Pourhoseingholi, Farnoush Barzegar, Mostafa Rezaei-Tavirani, David Aldulaimi & Mohammad Reza Zali. (2020) Anxiety Symptoms in Adult Celiac Patients and the Effect of a Gluten-Free Diet: An Iranian Nationwide Study. Inflammatory Intestinal Diseases 5:1, pages 42-48.
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Joaquim Calvo-Lerma, Paula Crespo-Escobar, Sandra Martínez-Barona, Victoria Fornés-Ferrer, Ester Donat & Carmen Ribes-Koninckx. (2019) Differences in the macronutrient and dietary fibre profile of gluten-free products as compared to their gluten-containing counterparts. European Journal of Clinical Nutrition 73:6, pages 930-936.
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Prashant Singh, Jocelyn A. Silvester & Daniel Leffler. (2019) (Outcome) Measure for (Intervention) Measures. Gastroenterology Clinics of North America 48:1, pages 85-99.
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Kvetoslava Rimárová, Erik Dorko, Jana Diabelková, Zlatana Sulinová, Pavol Makovický, Jana Baková, Tomáš Uhrin, Andrej Jenča, Janka Jenčová, Adriána Petrášová, Andrej Jenča & Jozef Jenča. (2018) Compliance with gluten-free diet in a selected group of celiac children in the Slovak Republic. Central European Journal of Public Health 26:Supplement, pages S19-S24.
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Henna Pekki, Katri Kaukinen, Tuire Ilus, Markku Mäki, Heini Huhtala, Kaija Laurila & Kalle Kurppa. (2018) Long-term follow-up in adults with coeliac disease: Predictors and effect on health outcomes. Digestive and Liver Disease 50:11, pages 1189-1194.
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Helen Crocker, Crispin Jenkinson & Michele Peters. (2018) Quality of life in coeliac disease: item reduction, scale development and psychometric evaluation of the Coeliac Disease Assessment Questionnaire ( CDAQ ) . Alimentary Pharmacology & Therapeutics 48:8, pages 852-862.
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Claudia Pratesi, Winfred Häuser, Rosa Uenishi, Nicole Selleski, Eduardo Nakano, Lenora Gandolfi, Riccardo Pratesi & Renata Zandonadi. (2018) Quality of Life of Celiac Patients in Brazil: Questionnaire Translation, Cultural Adaptation and Validation. Nutrients 10:9, pages 1167.
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Deepak C, Neha Berry, Kim Vaiphei, Narendra Dhaka, Saroj K Sinha & Rakesh Kochhar. (2018) Quality of life in celiac disease and the effect of gluten‐free diet. JGH Open 2:4, pages 124-128.
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Neriya Levran, Michael Wilschanski, Jessica Livovsky, Edna Shachar, Moti Moskovitz, Lama Assaf-Jabrin & Eyal Shteyer. (2018) Obesogenic habits among children and their families in response to initiation of gluten-free diet. European Journal of Pediatrics 177:6, pages 859-866.
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Halfdan Skjerning, Jonathan Hourihane, Steffen Husby & Audrey DunnGalvin. (2017) A comprehensive questionnaire for the assessment of health-related quality of life in coeliac disease (CDQL). Quality of Life Research 26:10, pages 2831-2850.
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H. Pekki, K. Kurppa, M. Mäki, H. Huhtala, K. Laurila, T. Ilus & K. Kaukinen. (2017) Performing routine follow‐up biopsy 1 year after diagnosis does not affect long‐term outcomes in coeliac disease. Alimentary Pharmacology & Therapeutics 45:11, pages 1459-1468.
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Eylem Sevin?Fatih Hilmi ?etin & Banu Demet Co?kun. (2017) Psychopathology, quality of life, and related factors in children with celiac disease. Jornal de Pediatria (Vers?o em Portugu?s) 93:3, pages 267-273.
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Eylem Sevin?Fatih Hilmi ?etin & Banu Demet Co?kun. (2017) Psychopathology, quality of life, and related factors in children with celiac disease. Jornal de Pediatria 93:3, pages 267-273.
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Julián Rodríguez Almagro, Antonio Hernández Martínez, María Carmen Solano Ruiz & José Siles González. (2016) Using mixed‐methods research to study the quality of life of coeliac women. Journal of Clinical Nursing 26:7-8, pages 1119-1130.
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Francesco Russo, Guglielmina Chimienti, Caterina Clemente, Carla Ferreri, Antonella Orlando & Giuseppe Riezzo. (2015) A possible role for ghrelin, leptin, brain-derived neurotrophic factor and docosahexaenoic acid in reducing the quality of life of coeliac disease patients following a gluten-free diet. European Journal of Nutrition 56:2, pages 807-818.
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Abhik Roy, Maria Minaya, Milka Monegro, Jude Fleming, Reuben K. Wong, Suzanne Lewis, Benjamin Lebwohl & Peter H. R. Green. (2016) Partner Burden: A Common Entity in Celiac Disease. Digestive Diseases and Sciences 61:12, pages 3451-3459.
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Pilvi Laurikka, Teea Salmi, Pekka Collin, Heini Huhtala, Markku Mäki, Katri Kaukinen & Kalle Kurppa. (2016) Gastrointestinal Symptoms in Celiac Disease Patients on a Long-Term Gluten-Free Diet. Nutrients 8:7, pages 429.
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Camilla Pasternack, Katri Kaukinen, Kalle Kurppa, Markku Mäki, Pekka Collin, Timo Reunala, Heini Huhtala & Teea Salmi. (2015) Quality of Life and Gastrointestinal Symptoms in Long-Term Treated Dermatitis Herpetiformis Patients: A Cross-Sectional Study in Finland. American Journal of Clinical Dermatology 16:6, pages 545-552.
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J. Villafuerte‐Galvez, R. R. Vanga, M. Dennis, J. Hansen, D. A. Leffler, C. P. Kelly & R. Mukherjee. (2015) Factors governing long‐term adherence to a gluten‐free diet in adult patients with coeliac disease. Alimentary Pharmacology & Therapeutics 42:6, pages 753-760.
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Elena Lionetti, Simona Gatti, Alfredo Pulvirenti & Carlo Catassi. (2015) Celiac disease from a global perspective. Best Practice & Research Clinical Gastroenterology 29:3, pages 365-379.
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Jonas F Ludvigsson, Timothy R Card, Katri Kaukinen, Julio Bai, Fabiana Zingone, David S Sanders & Joseph A Murray. (2015) Screening for celiac disease in the general population and in high‐risk groups. United European Gastroenterology Journal 3:2, pages 106-120.
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Fabiana Zingone, Gillian L Swift, Timothy R Card, David S Sanders, Jonas F Ludvigsson & Julio C Bai. (2015) Psychological morbidity of celiac disease: A review of the literature. United European Gastroenterology Journal 3:2, pages 136-145.
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Bernadette Capili, Michelle Chang & Joyce K. Anastasi. (2014) A Clinical Update: Nonceliac Gluten Sensitivity—Is It Really the Gluten?. The Journal for Nurse Practitioners 10:9, pages 666-673.
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Mario Veen, Hedwig te Molder, Bart Gremmen & Cees van Woerkum. (2012) If you can’t eat what you like, like what you can: how children with coeliac disease and their families construct dietary restrictions as a matter of choice. Sociology of Health & Illness 35:4, pages 592-609.
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