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Research Article

Quality of Life in Patients with Inflammatory Bowel Disease: Translation, Data Quality, Scaling Assumptions, Validity, Reliability and Sensitivity to Change of the Norwegian Version of IBDQ

Pages 1164-1174 | Published online: 08 Jul 2009

Keep up to date with the latest research on this topic with citation updates for this article.

Read on this site (5)

Kalle Mattila, Rasmus Rankala, Markku Voutilainen & Anssi Mustonen. (2022) Inflammatory bowel disease: perceived impact on leisure-time activities. Scandinavian Journal of Gastroenterology 57:8, pages 930-935.
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Rasmus Rankala, Kalle Mattila, Markku Voutilainen & Anssi Mustonen. (2021) Inflammatory bowel disease-related economic costs due to presenteeism and absenteeism. Scandinavian Journal of Gastroenterology 56:6, pages 687-692.
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Gert Huppertz-Hauss, Marte Lie Høivik, Lars-Petter Jelsness-Jørgensen, Randi Opheim, Magne Henriksen, Ole Høie, Øistein Hovde, Iril Kempski-Monstad, Inger Camilla Solberg, Jørgen Jahnsen, Geir Hoff, Bjørn Moum & Tomm Bernklev. (2017) Fatigue in a population-based cohort of patients with inflammatory bowel disease 20 years after diagnosis: The IBSEN study. Scandinavian Journal of Gastroenterology 52:3, pages 351-358.
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Henrik Stjernman, Curt Tysk, Sven Almer, Magnus Ström & Henrik Hjortswang. (2010) Worries and concerns in a large unselected cohort of patients with Crohn's disease. Scandinavian Journal of Gastroenterology 45:6, pages 696-706.
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Henrik Stjernman, Christer Grännö, Göran Bodemar, Gunnar Järnerot, Leif Ockander, Curt Tysk, Björn Blomberg, Sven Almer, Magnus Ström & Henrik Hjortswang. (2006) Evaluation of the Inflammatory Bowel Disease Questionnaire in Swedish patients with Crohn's disease. Scandinavian Journal of Gastroenterology 41:8, pages 934-943.
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Articles from other publishers (39)

Bjorn Christian Olsen, Randi Opheim, Vendel A. Kristensen, Marte Lie Høivik, Charlotte Lund, Tone Bergene Aabrekk, Ingunn Johansen, Kristina Holten, Vibeke Strande, May-Bente Bengtson, Petr Ricanek, Trond Espen Detlie, Tomm Bernklev, Lars-Petter Jelsness-Jørgensen & Gert Huppertz-Hauss. (2023) Health-related quality of life in patients with newly diagnosed inflammatory bowel disease: an observational prospective cohort study (IBSEN III). Quality of Life Research 32:10, pages 2951-2964.
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Line Alvestad, Lars-Petter Jelsness-Jørgensen, Rasmus Goll, Anne Clancy, Thomas Gressnes, Per Christian Valle & Ann Ragnhild Broderstad. (2022) Health-related quality of life in inflammatory bowel disease: a comparison of patients receiving nurse-led versus conventional follow-up care. BMC Health Services Research 22:1.
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Joana Roseira, Helena T. Sousa, Ana Marreiros, Luís F. Contente & Fernando Magro. (2021) Short Inflammatory Bowel Disease Questionnaire: translation and validation to the Portuguese language. Health and Quality of Life Outcomes 19:1.
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Joana Roseira, Ana Rita Ventosa, Helena Tavares de Sousa & Jorge Brito. (2020) The new simplified MARIA score applies beyond clinical trials: A suitable clinical practice tool for Crohn’s disease that parallels a simple endoscopic index and fecal calprotectin. United European Gastroenterology Journal 8:10, pages 1208-1216.
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Emma M van Andel, Brechtje D M Koopmann, Femke Crouwel, Casper G Noomen, Nanne K H de Boer, Dirk P van Asseldonk & Lidwine B Mokkink. (2020) Systematic Review of Development and Content Validity of Patient-reported Outcome Measures in Inflammatory Bowel Disease: Do We Measure What We Measure?. Journal of Crohn's and Colitis 14:9, pages 1299-1315.
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Alvilde Maria Ossum, Øyvind Palm, Milada Cvancarova, Tomm Bernklev, Jørgen Jahnsen, Bjørn Moum & Marte Lie Høivik. (2020) The Impact of Spondyloarthritis and Joint Symptoms on Health-Related Quality of Life and Fatigue in IBD Patients. Results From a Population-Based Inception Cohort (20-Year Follow-up in the Ibsen Study). Inflammatory Bowel Diseases 26:1, pages 114-124.
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Raquel Pellizzari CALIXTO, Cristina FLORES & Carlos Fernando FRANCESCONI. (2018) INFLAMMATORY BOWEL DISEASE: IMPACT ON SCORES OF QUALITY OF LIFE, DEPRESSION AND ANXIETY IN PATIENTS ATTENDING A TERTIARY CARE CENTER IN BRAZIL. Arquivos de Gastroenterologia 55:3, pages 202-207.
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Xin-Lin Chen, Liang-huan Zhong, Yi Wen, Tian-Wen Liu, Xiao-Ying Li, Zheng-Kun Hou, Yue Hu, Chuan-wei Mo & Feng-Bin Liu. (2017) Inflammatory bowel disease-specific health-related quality of life instruments: a systematic review of measurement properties. Health and Quality of Life Outcomes 15:1.
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Jiayin Ruan, Yan Chen & Yunxian Zhou. (2017) Development and Validation of a Questionnaire to Assess the Quality of Life in Patients with Inflammatory Bowel Disease in Mainland China. Inflammatory Bowel Diseases 23:3, pages 431-439.
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Gert Huppertz-Hauss, Marte Lie Høivik, Lars-Petter Jelsness-Jørgensen, Magne Henriksen, Ole Høie, Jørgen Jahnsen, Geir Hoff, Bjørn Moum & Tomm Bernklev. (2016) Health-related Quality of Life in Patients with Inflammatory Bowel Disease 20 Years After Diagnosis. Inflammatory Bowel Diseases 22:7, pages 1679-1687.
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Jeanette Wilburn, Stephen P. McKenna, James Twiss, Karen Kemp & Simon Campbell. (2015) Assessing quality of life in Crohn’s disease: development and validation of the Crohn’s Life Impact Questionnaire (CLIQ). Quality of Life Research 24:9, pages 2279-2288.
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Kai Zheng, Shengsheng Zhang, Chuijie Wang, Wenxia Zhao & Hong Shen. (2015) Health-Related Quality of Life in Chinese Patients with Mild and Moderately Active Ulcerative Colitis. PLOS ONE 10:4, pages e0124211.
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Laith Alrubaiy, Ibtihal Rikaby, Phedra Dodds, Hayley Anne Hutchings & John Gordon Williams. (2015) Systematic Review of Health-related Quality of Life Measures for Inflammatory Bowel Disease. Journal of Crohn's and Colitis 9:3, pages 284-292.
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Gert Huppertz-Hauss, Marte Lie Høivik, Ebbe Langholz, Selwyn Odes, Milada Småstuen, Reinhold Stockbrugger, Geir Hoff, Bjørn Moum & Tomm Bernklev. (2015) Health-related Quality of Life in Inflammatory Bowel Disease in a European-wide Population-based Cohort 10 Years After Diagnosis. Inflammatory Bowel Diseases 21:2, pages 337-344.
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Laith Alrubaiy, Hayley A Hutchings & John G Williams. (2014) Assessing patient reported outcome measures: A practical guide for gastroenterologists. United European Gastroenterology Journal 2:6, pages 463-470.
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Nicolas Williet, William J. Sandborn & Laurent Peyrin–Biroulet. (2014) Patient-Reported Outcomes as Primary End Points in Clinical Trials of Inflammatory Bowel Disease. Clinical Gastroenterology and Hepatology 12:8, pages 1246-1256.e6.
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Lars-Petter Jelsness-Jørgensen, Tomm Bernklev & Bjørn Moum. (2014) Coexisting Irritable Bowel–Like Symptoms in Inflammatory Bowel Disease in Remission Is Associated With Impaired Social Functioning and Increased Bodily Pain. Gastroenterology Nursing 37:4, pages 280-287.
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Lars-Petter Jelsness-Jørgensen, Tomm Bernklev & Bjørn Moum. (2011) Quality of life in patients with inflammatory bowel disease: translation, validity, reliability and sensitivity to change of the Norwegian version of the Short Health Scale (SHS). Quality of Life Research 21:9, pages 1671-1676.
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Lars-Petter Jelsness-Jørgensen, Tomm Bernklev, Magne Henriksen, Roald Torp & Bjørn Moum. (2012) Is patient reported outcome (PRO) affected by different follow-up regimens in inflammatory bowel disease (IBD)? A one year prospective, longitudinal comparison of nurse-led versus conventional follow-up. Journal of Crohn's and Colitis 6:9, pages 887-894.
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Marte L. Hoivik, Bjorn Moum, Inger C. Solberg, Milada Cvancarova, Ole Hoie, Morten H. Vatn & Tomm Bernklev. (2012) Health-Related Quality of Life in Patients with Ulcerative Colitis After a 10-year Disease Course: Results from the IBSEN Study. Inflammatory Bowel Diseases 18:8, pages 1540-1549.
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Marte Lie Høivik, Tomm Bernklev, Inger Camilla Solberg, Milada Cvancarova, Idar Lygren, Jørgen Jahnsen & Bjørn Moum. (2012) Patients with Crohn's disease experience reduced general health and vitality in the chronic stage: Ten-year results from the IBSEN study. Journal of Crohn's and Colitis 6:4, pages 441-453.
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Birgitte Boye, Knut E.A. Lundin, Günter Jantschek, Siv Leganger, Kjell Mokleby, Tone Tangen, Ingrid Jantschek, Are H. Pripp, Swavek Wojniusz, Astri Dahlstroem, Ann Christin Rivenes, Dieter Benninghoven, Trygve Hausken, Arne Roseth, Sebastian Kunzendorf, Ingvard Wilhelmsen, Michael Sharpe, Svein Blomhoff, Ulrik F. Malt & Jorgen Jahnsen. (2011) INSPIRE study: Does stress management improve the course of inflammatory bowel disease and disease-specific quality of life in distressed patients with ulcerative colitis or crohnʼs disease? A randomized controlled trial. Inflammatory Bowel Diseases 17:9, pages 1863-1873.
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Rachele Ciccocioppo, Catherine Klersy, Maria Luisa Russo, Monica Valli, Vincenzo Boccaccio, Venerina Imbesi, Sandro Ardizzone, Gabriele Bianchi Porro & Gino Roberto Corazza. (2011) Validation of the Italian translation of the Inflammatory Bowel Disease Questionnaire. Digestive and Liver Disease 43:7, pages 535-541.
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Lars-Petter Jelsness-Jørgensen, Tomm Bernklev, Magne Henriksen, Roald Torp & Bjørn A. Moum. (2011) Chronic fatigue is more prevalent in patients with inflammatory bowel disease than in healthy controls. Inflammatory Bowel Diseases 17:7, pages 1564-1572.
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Lars-Petter Jelsness-Jørgensen, Bjørn Moum & Tomm Bernklev. (2011) Worries and Concerns among Inflammatory Bowel Disease Patients Followed Prospectively over One Year. Gastroenterology Research and Practice 2011, pages 1-8.
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L.‐P. Jelsness‐Jørgensen, T. Bernklev, M. Henriksen, R. Torp & B. A. Moum. (2010) Chronic fatigue is associated with impaired health‐related quality of life in inflammatory bowel disease. Alimentary Pharmacology & Therapeutics 33:1, pages 106-114.
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Marte Lie Hoivik, Tomm Bernklev & Bjorn Moum. (2010) Need for standardization in population-based quality of life studies. Inflammatory Bowel Diseases 16:3, pages 525-536.
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Yunxian Zhou, Weihong Ren, Elizabeth Jan Irvine & Dagan Yang. (2009) Assessing health‐related quality of life in patients with inflammatory bowel disease in Zhejiang, China. Journal of Clinical Nursing 19:1-2, pages 79-88.
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Johanna Haapamäki, Ulla Turunen, Risto P. Roine, Martti A. Färkkilä & Perttu E. T. Arkkila. (2009) Impact of demographic factors, medication and symptoms on disease-specific quality of life in inflammatory bowel disease. Quality of Life Research 18:8, pages 961-969.
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Ian Clara, Lisa M Lix, John R Walker, Lesley A Graff, Norine Miller, Linda Rogala, Patricia Rawsthorne & Charles N Bernstein. (2009) The Manitoba IBD Index: Evidence for a New and Simple Indicator of IBD Activity. The American Journal of Gastroenterology 104:7, pages 1754-1763.
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Birgitte Boye, Jorgen Jahnsen, Kjell Mokleby, Siv Leganger, Günter Jantschek, Ingrid Jantschek, Sebastian Kunzendorf, Dieter Benninghoven, Ingvard Wilhelmsen, Michael Sharpe, Svein Blomhoff, Ulrik F. Malt & Knut E A. Lundin. (2008) The INSPIRE study: Are different personality traits related to disease-specific quality of life (IBDQ) in distressed patients with ulcerative colitis and Crohnʼs disease?. Inflammatory Bowel Diseases 14:5, pages 680-686.
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Jan E. Irvine. (2008) Quality of life of patients with ulcerative colitis: Past, present, and future. Inflammatory Bowel Diseases 14:4, pages 554-565.
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Henrik Stjernman, Christer Grännö, Gunnar Järnerot, Leif Ockander, Curt Tysk, Björn Blomberg, Magnus Ström & Henrik Hjortswang. (2008) Short health scale: A valid, reliable, and responsive instrument for subjective health assessment in Crohnʼs disease. Inflammatory Bowel Diseases 14:1, pages 47-52.
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P. K. Dhruva Rao, M. Davies, P. E. Price & J. Torkington. (2007) Crohn's disease: systematic review of assessment of disease severity and its relevance to surgery. Colorectal Disease 9:8, pages 678-685.
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W. H. Ren, M. Lai, Y. Chen, E. J. Irvine & Y. X. Zhou. (2007) Validation of the mainland Chinese version of the inflammatory bowel disease questionnaire (IBDQ) for ulcerative colitis and Crohnʼs disease. Inflammatory Bowel Diseases 13:7, pages 903-910.
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Ángela Vidal, Esther Gómez-Gil, Miquel Sans, Maria J. Portella, Manel Salamero, Josep M. Piqué & Julián Panés. (2007) Psychometric properties of the original Inflammatory Bowel Disease Questionnaire, a Spanish version. Gastroenterología y Hepatología 30:4, pages 212-218.
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Tomm Bernklev, Jrgen Jahnsen, Idar Lygren, Magne Henriksen, Morten Vatn & Bjrn Moum. (2005) Health-related Quality of Life in Patients with Inflammatory Bowel Disease Measured with the Short Form-36: Psychometric Assessments and a Comparison with General Population Norms. Inflammatory Bowel Diseases 11:10, pages 909-918.
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Tomm Bernklev, J??rgen Jahnsen, Tom Schulz, Jostein Sauar, Idar Lygren, Magne Henriksen, Nj??l Stray, ??ystein Kjellevold, Erling Aadland, Morten Vatn & Bj??rn Moum. (2005) Course of disease, drug treatment and health-related quality of life in patients with inflammatory bowel disease 5 years after initial diagnosis. European Journal of Gastroenterology & Hepatology 17:10, pages 1037-1045.
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Gino C. Matibag, Hiroshi Nakazawa, Paolo Giamundo & Hiko Tamashiro. (2003) Trends and current issues in adult fecal incontinence (FI): Towards enhancing the quality of life for FI patients. Environmental Health and Preventive Medicine 8:4, pages 107-117.
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