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Scandinavian Journal of Gastroenterology Volume 37, 2002 - Issue 10
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Research Article

Quality of Life in Patients with Inflammatory Bowel Disease: Translation, Data Quality, Scaling Assumptions, Validity, Reliability and Sensitivity to Change of the Norwegian Version of IBDQ

T. Bernklev
,
B. Moum
&
T. Moum
Pages 1164-1174 | Published online: 08 Jul 2009

  • Best WR, Becktel JM, Singleton JW, Kern F. Development of a Crohn's Disease Activity Index; National Cooperative Crohn's Disease Study. Gastroenterology 1976;70:439-44.
  • Harvey RF, Bradshaw JM. A simple index of Crohn's disease activity. Lancet 1980;i:514.
  • Myren J, Bouchier IAD, Watkinson G, Softley A, Clamp SE, de Dombal FT. The OMGE Multinational Inflammatory Bowel Disease Survey 1976-1982. A further report on 2657 cases. Scand J Gastroenterol 1984;29 Suppl 95:1-27.
  • Van Hees PAM, Van Eiteren PH, Van Lier HJJ, Van Tongeren JHM. An index of inflammatory activity in patients with Crohn's disease. Gut 1980;21279-86.
  • Fitzpatrick R, Fletcher A, Gore S, Jones D, Spiegelhalter D, Cox D. Quality of life measures in health care. I. Applications and issues in assessment. Br Med J 1992;305:1074-7.
  • Deyo RA. The quality of life, research, and care. Ann Intern Med 1991;15;114:695-7.
  • Kirshner B, Guyatt G. A methodological framework for assessing health indices. J Chronic Dis 1985;38:27-36.
  • Drossman DA, Leserman J, Mitchell CM, Li ZM, Zagami EA, Patrick DL. Health status and health care use in persons with inflammatory bowel disease: a national sample. Dig Dis Sci 1991;36:1746-55.
  • Garrett JW, Drossman DA. Health status in IBD: biological and behavioral considerations. Gastroenterology 1990;99:90-6.
  • SØrensen VZ, Olsen BG, Binder V. Life prospects and quality of life in patients with Crohn's disease. Gut 1987;28:382-5.
  • Ware J. The status of health assessment 1994. Annu Rev Public Health 1995;16:327-54.
  • Guillemin EG, Bombardier C, Beaton D. Cross-culture adaptation of health-related quality of life measures: literature review and proposed guidelines. J Clin Epidemiol 1993;46:1417-32.
  • Aaronson NK, Acquadro C, Alonso J, Apolone G, Bucquet D, Bullinger M, et al. International quality of life assessment (IQOLA) project. Qual Life Res 1992;1:349-51.
  • Guyatt G, Mitchell A, Irvine EJ, Singer J, Williams N, Goodacre R, Tompkins C. A new measure of health status for clinical trials in inflammatory bowel disease. Gastroenterology 1989;96:804-10.
  • Irvine EJ, Feagan B, Rochon J, Archambault A, Fedorak RN, Groll A, et al. Quality of life: a valid and reliable measure of therapeutic efficacy in the treatment of inflammatory bowel disease. Canadian Crohn's Relapse Prevention Trial Study Group. Gastroenterology 1994;106:287-96.
  • Russel MGVM, Pastoor CJ, Brandon S, Rijken J, Engels LGJB, van der Heijde DMFM, et al. Validation of the Dutch translation of the inflammatory bowel disease questionnaire (IBDQ): a health-related quality of life questionnaire in inflammatory bowel disease. Digestion 1997;58:282-8.
  • de Boer AGEM, Wijker W, Bartelsman JFW, de Haes HCJM. Inflammatory bowel disease questionnaire: cross-cultural adaption and further validation. Eur J Gastroenterol Hepatol 1995;7:1043-50.
  • Han SW, McCoIl E, Steen N, Barton JR, Welfare MR. The inflammatory bowel disease questionnaire: a valid and reliable measure in ulcerative colitis patients in the North East of England. Scand J Gastroenterol 1998;33:961-6.
  • Kim WH, Cho YS, Yoo HM, Park IS, Park EC, Lim JG. Quality of life in Korean patients with inflammatory bowel diseases: ulcerative colitis, Crohn's disease and intestinal Behccet's disease. Int J Colorec Dis 1999;14:52-7.
  • Cheung WY, Garratt AM, Russell IT, Williams JG. The UK IBDQ--A British version of the inflammatory bowel disease questionnaire: development and validation. J Clin Epidemiol 2000;53:297-306.
  • Lopez-Vivancos J, Casellas F, Badia X, Vilaseca J, Malagelada JR. Validation of the Spanish version of the inflammatory bowel disease questionnaire on ulcerative colitis and Crohn's disease. Digestion 1999;60:274-80.
  • Love JR, Irvine EJ, Fedorak RN. Quality of life in inflammatory bowel disease. J Clin Gastroenterol 1992;14:15-9.
  • Moum B, Vatn MH, Ekbom A, Aadland E, Fausa O, Lygren I, et al. Incidence of ulcerative colitis and indeterminate colitis in four counties of southeastern Norway, 1990-93. A prospective population-based study. Scand J Gastroenterol 1996;31:362-6.
  • Moum B, Vatn MH, Ekbom A, Aadland E, Fausa O, Lygren I, et al. Incidence of Crohn's disease in four counties of southeastern Norway, 1990-93. A prospective population-based study. Scand J Gastroenterol 1996;31:355-61.
  • Moum B, Ekbom A, Vatn MH, Aadland E, Sauar J, Lygren I, et al. Inflammatory bowel disease: re-evaluation of the diagnosis in a prospective population based study in south eastern Norway. Gut 1997;40:328-32.
  • Moum B, Ekbom A, Vatn MH, Aadland E, Sauar J, Lygren I, et al. Clinical course during the first year after diagnosis in ulcerative colitis and Crohn's disease. Results of a large prospective population-based study in southeastern Norway 1990-1993. Scand J Gastroenterol 1997;32:1005-12.
  • Streiner DL, Norman GR. Devising the items. In: Streiner DL, Norman GR, editors. Health measurement scales: a practical guide to their development. New York: Oxford University Press; 1995. p. 15-27.
  • Ware JE, Gandek B, Keller SD, IQOLA Group. Evaluating instruments used cross-nationally: methods from the IQOLA project. In: Spilker B, editor. Quality of life and pharmaeconomics in clinical trials, 2nd ed. Philadelphia: Lippincott-Raven Press; 1996. p. 681-92.
  • Thurstone LL, Chave EJ. The measurement of attitude. Chicago: University of Chicago Press; 1929.
  • Ware JE, Sherbourne CD. The MOS 36-item Short-Form Health Survey (SF-36). I. Conceptual framework and item selection. Med Care 1992;30:473-81.
  • McHorney CA, Ware JE, Raczek AE. The MOS 36-item Short-Form Health Survey (SF-36). II. Psychometric and clinical tests of validity in measuring physical and mental health constructs. Med Care 1993;31:247-63.
  • Loge JH, Kaasa S. Short-Form 36 (SF-36) health survey: normative data from the general Norwegian population. Scand J Soc Med vol. 26, no. 4.
  • Hjortswang H, Järnerot G, Curman B, Sandberg-Geitzén H, Tysk C, Blomberg B, et al. Validation of the inflammatory bowel disease questionnaire in Swedish patients with ulcerative colitis. Scand J Gastroenterol 2001;36:77-85.
  • Deyo RA, Diehr P, Patrick DL. Reproducibility and responsiveness of health status measurements: statistics and strategies for evaluation. Control Clin Trials 1991;12:1425-585.
  • Bulpitt CJ, Fletcher AE. The measurement of quality of life in hypertensive patients; a practical approach. Br J Clin Pharmacol 1990;30:353-64.
  • Guyatt G, Walter S, Norman G. Measuring change over time: assessing the usefulness of evaluative instruments. J Chron Dis 1987;40:171-8.
  • Bowling A. Measuring disease. A review of disease-specific quality of life measurement scales. Buckingham, UK: Open University Press; 1995.
  • Irvin EJ. Development and subsequent refinement of the inflammatory bowel disease questionnaire: a quality-of-life instrument for adults patients with inflammatory bowel disease. J Fed Gastroenterol Nutr 1999;28:S23-7.
  • Lennard-Jones JE, Shivananda S and the EC-IBD study group. Clinical uniformity of inflammatory bowel disease at presentation and during the first year of disease in the north and south of Europe. Eur J Gastroenterol Hepatol 1997:9:353-9.
  • Singleton JW. The Crohn's disease activity index is a useful tool in clinical practice of gastroenterology. Inflamm Bowel Dis 1999;5:138.
  • Korelitz BI. Is the Crohn's disease activity index outdated? Yes. Is it the gold standard that clinicians should use? No. Inflamm Bowel Dis 1999;5:139-40.
  • Section Editor's commentary: Usefulness of Crohn's disease activity index in medicine. Inflamm Bowel Dis 1999;5:141-3.

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