710
Views
71
CrossRef citations to date
0
Altmetric
Original Articles

A Qualitative Analysis of Reasons for Leaving, or Not Attending, a Cancer Support Group

, , &
Pages 14-29 | Received 09 Dec 2006, Accepted 03 Jan 2007, Published online: 11 Oct 2008

Keep up to date with the latest research on this topic with citation updates for this article.

Read on this site (23)

Linda Kwakkenbos, Andrea Carboni-Jiménez, Marie-Eve Carrier, Mia Pépin, Sandra Peláez, Vanessa L. Malcarne, Ghassan El-Baalbaki & Brett D. Thombs. (2021) Reasons for not participating in scleroderma patient support groups: a comparison of results from the North American and European scleroderma support group surveys. Disability and Rehabilitation 43:9, pages 1279-1286.
Read now
Nele Christiansen, Stefanie Walter, Bijan Zomorodbakhsch, Emadaldin Ahmadi Sartakhti & Jutta Hübner. (2021) Assessment of Self-Efficacy as a Way to Help Identify Cancer Patients Who Might Benefit from Self-Help Group Attendance?. Cancer Investigation 39:2, pages 133-143.
Read now
Isabella V. Cinà, Katie M. Di Sebastiano & Guy E. Faulkner. (2020) “One stroke, with twenty-two people”: exploring prostate cancer survivors' participation in dragon boating. Journal of Psychosocial Oncology 38:4, pages 375-388.
Read now
Justin Harmon. (2019) Tell cancer to take a hike: post traumatic growth on the trail to recovery. Leisure/Loisir 43:4, pages 459-478.
Read now
Miriam Levinger, Zehavit Spitzer & Shahar Michael. (2019) In life and in death: the story of people living with metastatic cancer. Journal of Social Work Practice 33:3, pages 253-267.
Read now
Stephanie T. Gumuchian, Vanessa C. Delisle, Linda Kwakkenbos, Mia Pépin, Marie-Eve Carrier, Vanessa L. Malcarne, Sandra Peláez, Ghassan El-Baalbaki & Brett D. Thombs. (2019) Reasons for attending support groups and organizational preferences: the European scleroderma support group members survey. Disability and Rehabilitation 41:8, pages 974-982.
Read now
Anna Thit Johnsen, Nanna Bjerg Eskildsen, Thora Grothe Thomsen, Mogens Grønvold, Lone Ross & Clara R. Jørgensen. (2017) Conceptualizing patient empowerment in cancer follow-up by combining theory and qualitative data. Acta Oncologica 56:2, pages 232-238.
Read now
Douglas Crews & Marcus Crawford. (2015) Exploring the Role of Being Out on a Queer Person's Self-Compassion. Journal of Gay & Lesbian Social Services 27:2, pages 172-186.
Read now
Kate Wakelin & Annette F. Street. (2015) An Online Expressive Writing Group for People Affected by Cancer: A Virtual Third Place. Australian Social Work 68:2, pages 198-211.
Read now
Foteini Lekka, Giorgos Efstathiou & Anastasia Kalantzi-Azizi. (2015) The effect of counselling-based training on online peer support. British Journal of Guidance & Counselling 43:1, pages 156-170.
Read now
Erin E. Donovan, Leah LeFebvre, Sarah Tardif, Laura E. Brown & Brad Love. (2014) Patterns of Social Support Communicated in Response to Expressions of Uncertainty in an Online Community of Young Adults with Cancer. Journal of Applied Communication Research 42:4, pages 432-455.
Read now
Päivi Juuso, Siv Söderberg, Malin Olsson & Lisa Skär. (2014) The significance of FM associations for women with FM. Disability and Rehabilitation 36:21, pages 1755-1761.
Read now
Ritva Rissanen, Cecilia Arving, Johan Ahlgren & Karin Nordin. (2014) Group versus individual stress management intervention in breast cancer patients for fatigue and emotional reactivity: A randomised intervention study. Acta Oncologica 53:9, pages 1221-1229.
Read now
Jessica Chavez, ChakiraM. Haddock & LisaR. Rubin. (2014) Contextualizing African American and Latina Women's Postmastectomy Social Support Experiences: Support Groups and Beyond. Women & Therapy 37:3-4, pages 242-263.
Read now
Laura Shannonhouse, Jane Myers, Sejal Barden, Philip Clarke, Rochelle Weimann, Allison Forti, Terry Moore-Painter, Tami Knutson & Michael Porter. (2014) Finding Your New Normal: Outcomes of a Wellness-Oriented Psychoeducational Support Group for Cancer Survivors. The Journal for Specialists in Group Work 39:1, pages 3-28.
Read now
Jan Pringle, John S. Drummond & Ella McLafferty. (2013) Revisioning, reconnecting and revisiting: the psychosocial transition of returning home from hospital following a stroke. Disability and Rehabilitation 35:23, pages 1991-1999.
Read now
Dorothee Noeres, Alexandra Von Garmissen, Mechthild Neises & Siegfried Geyer. (2011) Differences in illness-related knowledge of breast cancer patients according to their involvement in self-help groups. Journal of Psychosomatic Obstetrics & Gynecology 32:3, pages 147-153.
Read now
Traci Brenner Rogers & SusanC. Mapp. (2011) Improving Effectiveness for Support Groups for Males with HIV/AIDS: Feedback from Leaders and Potential Participants. Journal of HIV/AIDS & Social Services 10:1, pages 55-67.
Read now
Kirsten Bell, Joyce Lee, Sydney Foran, Sandy Kwong & John Christopherson. (2010) Is There an “Ideal Cancer” Support Group? Key Findings from a Qualitative Study of Three Groups. Journal of Psychosocial Oncology 28:4, pages 432-449.
Read now
Frances Twomey & Katie Robinson. (2010) Pilot study of participating in a fatigue management programme for clients with multiple sclerosis. Disability and Rehabilitation 32:10, pages 791-800.
Read now
CamerynC. Garrett & Maggie Kirkman. (2009) Being an XY Female: An Analysis of Accounts From the Website of the Androgen Insensitivity Syndrome Support Group. Health Care for Women International 30:5, pages 428-446.
Read now
Jane Maria Ussher, Janette Perz, Yasmin Hawkins & Marita Brack. (2009) Evaluating the efficacy of psycho-social interventions for informal carers of cancer patients: a systematic review of the research literature. Health Psychology Review 3:1, pages 85-107.
Read now

Articles from other publishers (48)

Karsten Geeck, Sebastian Kreil, Michaela Hausmann, Wolf-Karsten Hofmann, Daniela Heidenreich & Stefan A. Klein. (2023) Prospective analysis of the attendance behaviour of the participants of a facilitated support group for patients after allogeneic hematopoietic cell transplantation. Supportive Care in Cancer 32:1.
Crossref
Joseph O. Atarere, Henry K. Onyeaka, Onyema G. Chido‐Amajuoyi, Comfort Adewunmi, Chisom Nwaneki, Gideon T. Dosunmu, Chilotam O. Faith & Hermioni L. Amonoo. (2024) Social media use and health promotion among cancer survivors. Psycho-Oncology 33:1.
Crossref
Li En Dana Siew, Neil Russell Teo, Wei How Darryl Ang & Ying Lau. (2022) Social media–based interventions for patients with cancer: a meta-analysis and meta-regression of randomised controlled trials. Journal of Cancer Survivorship 17:6, pages 1606-1627.
Crossref
Bethany McLoughlin, Helen Atherton, John MacArtney & Jeremy Dale. (2023) Online support groups for carers of people living with dementia: An investigation of videoconferencing support groups in lockdown. Dementia 22:3, pages 561-575.
Crossref
Lisa Beatty, Emma Kemp, Phyllis Butow, Afaf Girgis, Nicholas Hulbert-Williams, Billingsley Kaambwa, Penelope Schofield, Jane Turner, Richard Woodman, Frances Boyle, Anthony Daly, Amanda Jones, Belinda Kiely, Nicholas Zdenkowski & Bogda Koczwara. (2022) Finding My Way-Advanced: can a web-based psychosocial intervention improve the mental quality of life for women with metastatic breast cancer vs attention-control? Study protocol of a randomised controlled trial. BMC Cancer 22:1.
Crossref
Christine Rini, Margaret Waltz, Katrin Bovbjerg, David Farrell, Betina Yanez, Anthony Chicaiza, Madison L. Hartstein, Rahma Omar, Rebecca Thompson, Scott D. Rowley, Annette L. Stanton, Heiddis Valdimarsdottir, Jane Austin, Alyssa N. Van Denburg & Kristi D. Graves. (2022) Optimizing use of written peer support as a supportive resource in cancer: Focus group insights. Psycho-Oncology 31:9, pages 1589-1596.
Crossref
Claudia Bernabéu‐Álvarez, Joaquín‐Salvador Lima‐Rodríguez & Marta Lima‐Serrano. (2021) Effect of support groups on caregiver’s quality of life. Family Process 61:2, pages 643-658.
Crossref
Katrin Bovbjerg, Kristi Graves, Margaret Waltz, David Farrell, Betina Yanez, Anthony Chicaiza, Rahma Omar, Rebecca Thompson, Mariska Kop, Alyssa N. Van Denburg, Danielle Lorch, Scott D. Rowley & Christine Rini. (2022) Expanding access to cancer peer support: development of a website to deliver written peer support that meets patients’ individual emotional and informational needs while reducing potential harms. Procedia Computer Science 206, pages 195-205.
Crossref
S.E. Alexander, L. Booth, L. Delacroix, A. Gordon, N. Kirkpatrick & A.C. Tree. (2021) Evaluation of a urology specialist therapeutic radiographer implemented radiotherapy pathway for prostate cancer patients. Radiography 27:2, pages 430-436.
Crossref
Archana Waller, Chiara Paganini, Katrina Andrews & Vicki Hutton. (2020) The experience of adults recovering from an eating disorder in professionally-led support groups. Qualitative Research Journal 21:2, pages 217-229.
Crossref
Kathryn Rehberg, Adina Fleischmann, Elana Silber, Suzanne C O’neill, Frances Marcus Lewis & Kenneth P Tercyak. (2021) Facilitators of peer coaching/support engagement and dissemination among women at risk for and surviving with breast cancer. Translational Behavioral Medicine 11:1, pages 153-160.
Crossref
Tamryn F. Gray, Desiree R. Azizoddin & Paula V. Nersesian. (2019) Loneliness among cancer caregivers: A narrative review. Palliative and Supportive Care 18:3, pages 359-367.
Crossref
Sasha Mallya, Maureen Daniels, Cheryl Kanter, Alyson Stone, Amanda Cipolla, Kim Edelstein & Norma D’Agostino. (2019) A qualitative analysis of the benefits and barriers of support groups for patients with brain tumours and their caregivers. Supportive Care in Cancer 28:6, pages 2659-2667.
Crossref
James R. Platt & Richard R. Brady. (2019) #BCSM and #breastcancer: Contemporary cancer‐specific online social media communities. The Breast Journal 26:4, pages 729-733.
Crossref
Kristin Litzelman, Maija Reblin, Helene E. McDowell & Lori L. DuBenske. (2019) Trajectories of social resource use among informal lung cancer caregivers. Cancer 126:2, pages 425-431.
Crossref
Mia Pépin, Linda Kwakkenbos, Marie-Eve Carrier, Sandra Peláez, Ghassan El-Baalbaki, Vanessa L Malcarne & Brett D Thombs. (2019) Reasons for attending support groups and organizational preferences: A replication study using the North American Scleroderma Support Group Survey. Journal of Scleroderma and Related Disorders 4:3, pages 173-186.
Crossref
Jing Han, Jun-E Liu, Ya-Li Su & Hui Qiu. (2019) Effect of a group-based acceptance and commitment therapy (ACT) intervention on illness cognition in breast cancer patients. Journal of Contextual Behavioral Science 14, pages 73-81.
Crossref
Emma Kemp, Bogda Koczwara, Jane Turner, Afaf Girgis, Penelope Schofield, Nicholas Hulbert-Williams, Janelle Levesque, Danielle Spence, Sina Vatandoust, Ganessan Kichenadasse, Amitesh Roy, Shawgi Sukumaran, Christos S. Karapetis, Caroline Richards, Michael Fitzgerald & Lisa Beatty. (2019) Internet use and preferences among women living with advanced breast cancer. The Breast Journal 25:2, pages 290-295.
Crossref
Melissa Legg, Melissa K. Hyde, Stefano Occhipinti, Philippa H. Youl, Jeff Dunn & Suzanne K. Chambers. (2018) A prospective and population-based inquiry on the use and acceptability of peer support for women newly diagnosed with breast cancer. Supportive Care in Cancer 27:2, pages 677-685.
Crossref
Danielle Gentile, Merry Jennifer Markham & Tara Eaton. (2018) Patients With Cancer and Social Media: Harness Benefits, Avoid Drawbacks. Journal of Oncology Practice 14:12, pages 731-736.
Crossref
Emily K. Green, Amelework Wodajo, Yajuan Yang, Miriam Sleven & Huibrie C. Pieters. (2018) Perceptions of Support Groups Among Older Breast Cancer Survivors. Cancer Nursing 41:6, pages E1-E10.
Crossref
Dena Schulman-Green & Shelli Feder. (2018) Integrating Family Caregivers into Palliative Oncology Care Using the Self- and Family Management Approach. Seminars in Oncology Nursing 34:3, pages 252-263.
Crossref
Stephanie T. Gumuchian, Vanessa C. Delisle, Sandra Peláez, Vanessa L. Malcarne, Ghassan El‐Baalbaki, Linda Kwakkenbos, Lisa R. Jewett, Marie‐Eve Carrier, Mia Pépin & Brett D. Thombs. (2018) Reasons for Not Participating in Scleroderma Patient Support Groups: A Cross‐Sectional Study. Arthritis Care & Research 70:2, pages 275-283.
Crossref
Gabriel R. Signorelli, Matilde M. Fernandez, Francisco M.M. Guerra, Luis Fernandez-Luque & Brian Caulfield. (2017) Quality of Information About Physical Activity in Breast Cancer Facebook Pages: A Preliminary Content Review. Quality of Information About Physical Activity in Breast Cancer Facebook Pages: A Preliminary Content Review.
Eleni Papamikrouli, Carine M. H. van Schie, Julia Schoenmaker, Anita Boekelaar-vd Berge & Winifred A. Gebhardt. (2017) Peer Support Needs Among Adults With Burns. Journal of Burn Care & Research 38:2, pages 112-120.
Crossref
Ritva Rissanen, Karin Nordin, Johan Ahlgren & Cecilia Arving. (2015) A stepped care stress management intervention on cancer-related traumatic stress symptoms among breast cancer patients-a randomized study in group vs. individual setting. Psycho-Oncology 24:9, pages 1028-1035.
Crossref
Deanna J Attai, Michael S Cowher, Mohammed Al-Hamadani, Jody M Schoger, Alicia C Staley & Jeffrey Landercasper. (2015) Twitter Social Media is an Effective Tool for Breast Cancer Patient Education and Support: Patient-Reported Outcomes by Survey. Journal of Medical Internet Research 17:7, pages e188.
Crossref
Rie Tamagawa, Yong Li, Theo Gravity, Karen Altree Piemme, Sue DiMiceli, Kate Collie & Janine Giese-Davis. (2014) Deconstructing therapeutic mechanisms in cancer support groups: do we express more emotion when we tell stories or talk directly to each other?. Journal of Behavioral Medicine 38:1, pages 171-182.
Crossref
Anna Stickel, Sabrina Gröpper, Antonia Pallauf & Ute Goerling. (2015) Patients' Knowledge and Attitudes towards Cancer Peer Support Programs. Oncology 89:4, pages 242-244.
Crossref
Liz Margolies & Charles Kamen. 2015. Cancer and the LGBT Community. Cancer and the LGBT Community 203 226 .
Alexandra Farren Gibson, Christina Lee & Shona Crabb. (2014) ‘ If you grow them, know them ’: Discursive constructions of the pink ribbon culture of breast cancer in the Australian context . Feminism & Psychology 24:4, pages 521-541.
Crossref
Iren Johnsen, Kari Dyregrov & Atle Dyregrov. (2014) Etterlattes erfaringer med sorggruppetilbud i Norge. Nordisk sygeplejeforskning 4:3, pages 227-240.
Crossref
P. Kane, M. Jasperse, P. Boland & P. Herst. (2014) A pathway to empowerment: evaluating a cancer education and support programme in New Zealand. European Journal of Cancer Care 23:5, pages 668-674.
Crossref
Bronwyn A. Morris, Stephen J. Lepore, Bridget Wilson, Morton A. Lieberman, Jeff Dunn & Suzanne K. Chambers. (2014) Adopting a survivor identity after cancer in a peer support context. Journal of Cancer Survivorship 8:3, pages 427-436.
Crossref
Gunn Grande, Janine Arnott, Caroline Brundle & Mark Pilling. (2014) Predicting cancer patients’ participation in support groups: A longitudinal study. Patient Education and Counseling 96:2, pages 229-236.
Crossref
L. Sautier, A. Mehnert, A. Höcker & G. Schilling. (2014) Participation in patient support groups among cancer survivors: do psychosocial and medical factors have an impact?. European Journal of Cancer Care 23:1, pages 140-148.
Crossref
Kari Dyregrov, Atle Dyregrov & Iren Johnsen. (2013) Participants' Recommendations for the Ideal Grief Group: A Qualitative Study. OMEGA - Journal of Death and Dying 67:4, pages 363-377.
Crossref
Bronwen Morrell, Christopher F. C. Jordens, Ian H. Kerridge, Paul Harnett, Kim Hobbs & Catherine Mason. (2011) The perils of a vanishing cohort: a study of social comparisons by women with advanced ovarian cancer. Psycho-Oncology 21:4, pages 382-391.
Crossref
Rachel D. Zordan, Phyllis N. Butow, Laura Kirsten, Ilona Juraskova, Amanda O’Reilly, John Friedsam, Nataly Bovopolous, Paul Heinrich, Margaret Charles, Kim Hobbs & David Kissane. (2011) The development of novel interventions to assist the leaders of cancer support groups. Supportive Care in Cancer 20:3, pages 445-454.
Crossref
L. Dany, C. Gauthier, J. -P. Calla & E. Dudoit. (2011) Prédiction de l’intention de participer à un groupe de parole en centre hospitalier chez des patients sous chimiothérapiePrediction of intention to participate to cancer support group in hospital. Psycho-Oncologie 5:4, pages 241-250.
Crossref
Tanya R. Fitzpatrick & Jean Remmer. (2011) Needs, expectations and attendance among participants of a cancer wellness centre in Montreal, Quebec. Journal of Cancer Survivorship 5:3, pages 235-246.
Crossref
Louisa Ng, Paul Talman & Fary Khan. (2011) Neuropsychological sequelae in motor neurone disease: outcomes of a peer support programme. International Journal of Therapy and Rehabilitation 18:8, pages 429-437.
Crossref
Clare Stevinson, Anne Lydon & Ziv Amir. (2010) Cancer support group participation in the United Kingdom: a national survey. Supportive Care in Cancer 19:5, pages 675-683.
Crossref
Nancy Sherman. 2011. Oxford Textbook of Palliative Social Work. Oxford Textbook of Palliative Social Work 287 298 .
Eiko Hagiwara & Tamae Futawatari. (2011) Trends and Issues Related to Studies on Cancer Patient Empowerment. The KITAKANTO Medical Journal The Kitakanto Medical Journal 61:3, pages 367-375.
Crossref
Louise Locock & Janice B. Brown. (2010) ‘All in the same boat’? Patient and carer attitudes to peer support and social comparison in Motor Neurone Disease (MND). Social Science & Medicine 71:8, pages 1498-1505.
Crossref
Bianca Devitt, Allison Hatton, Carl Baravelli, Penelope Schofield, Michael Jefford & Linda Mileshkin. (2010) What Should a Support Program for People with Lung Cancer Look Like? Differing Attitudes of Patients and Support Group Facilitators. Journal of Thoracic Oncology 5:8, pages 1227-1232.
Crossref
Jaime Corvin, Jeannine Coreil, Rebecca Nupp & Karen Dyer. (2013) Ethnic Differences in Cultural Models of Breast Cancer Support Groups. International Journal of Self Help and Self Care 7:2, pages 193-215.
Crossref

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.