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Social Work in Health Care Volume 47, 2008 - Issue 4
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Original Articles

The Quality of Life of Patients with Malignant Gliomas and Their Caregivers

Connie Muñoz MSW Center for Neurosciences, Department of Utilization Management and Social Work, Huntington Hospital, Pasadena, CaliforniaCorrespondence[email protected]
,
Gloria Juarez PhD Department of Neurosurgery, Division of Medical Oncology and Therapeutics Program, Department of Nursing Research & Education, City of Hope National Medical Center/Beckman Research Institute, Duarte, California
,
Maria L. Muñoz PhD Department of Communications Sciences and Disorders, Texas Christian University, Fort Worth, Texas
,
Jana Portnow MD Department of Neurosurgery, Division of Medical Oncology and Therapeutics Program, Department of Nursing Research & Education, City of Hope National Medical Center/Beckman Research Institute, Duarte, California
,
Igor Fineman MD Center for Neurosciences, Department of Utilization Management and Social Work, Huntington Hospital, Pasadena, California; Department of Neurosurgery, Division of Medical Oncology and Therapeutics Program, Department of Nursing Research & Education, City of Hope National Medical Center/Beckman Research Institute, Duarte, California
,
Behnam Badie MD Department of Neurosurgery, Division of Medical Oncology and Therapeutics Program, Department of Nursing Research & Education, City of Hope National Medical Center/Beckman Research Institute, Duarte, California
,
Adam Mamelak MD Department of Neurosurgery, Cedars-Sinai Medical Center, Los Angeles, California
&
Betty Ferrell PhD Department of Neurosurgery, Division of Medical Oncology and Therapeutics Program, Department of Nursing Research & Education, City of Hope National Medical Center/Beckman Research Institute, Duarte, California
 show all
Pages 455-478 | Received 03 Jan 2008, Accepted 14 Apr 2008, Published online: 12 Dec 2008

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Elizabeth A. Lobb, Georgia K. B. Halkett, Emma McDougall, Rachel Campbell, Haryana M. Dhillon, Jane L. Phillips & Anna K. Nowak. (2023) Bereavement outcomes of carers of patients with high grade glioma: Experiences of support before and after the death. Death Studies 47:10, pages 1094-1103.
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Martina Köhler, Elisabeth Steinmann, H. Maximilian Mehdorn, Anya Pedersen & Simone Goebel. (2020) The importance of social relationships for brain tumor patients’ quality of life: A case for the inclusion of the concept of disclosure in psycho-oncological care. Journal of Psychosocial Oncology 38:3, pages 310-327.
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Maria Heckel, Bettina Hoser & Stephanie Stiel. (2018) Caring for patients with brain tumors compared to patients with non-brain tumors: Experiences and needs of informal caregivers in home care settings. Journal of Psychosocial Oncology 36:2, pages 189-202.
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Una Stenberg, Mirjam Ekstedt, Mariann Olsson & Cornelia M. Ruland. (2014) Living Close to a Person With Cancer: A Review of the International Literature and Implications for Social Work Practice. Journal of Gerontological Social Work 57:6-7, pages 531-555.
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Maria Wasner, Piret Paal & Gian Domenico Borasio. (2013) Psychosocial Care for the Caregivers of Primary Malignant Brain Tumor Patients. Journal of Social Work in End-of-Life & Palliative Care 9:1, pages 74-95.
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Izidor Mlakar, Simon Lin, Jama Nateqi, Stefanie Gruarin, Lorena Diéguez, Paulina Piairo, Liliana R. Pires, Sara Tement, Ilona Aleksandraviča, Mārcis Leja, Krista Arcimoviča, Valérie Bleret, Jean-François Kaux, Philippe Kolh, Didier Maquet, Jesús Garcia Gómez, Jesus García Mata, Mercedes Salgado, Matej Horvat, Maja Ravnik, Vojko Flis & Urška Smrke. (2022) Establishing an Expert Consensus on Key Indicators of the Quality of Life among Breast Cancer Survivors: A Modified Delphi Study. Journal of Clinical Medicine 11:7, pages 2041.
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Sé Maria Frances, Galina Velikova, Martin Klein, Susan C Short, Louise Murray, Judy M Wright & Florien Boele. (2022) Long-term impact of adult WHO grade II or III gliomas on health-related quality of life: A systematic review. Neuro-Oncology Practice 9:1, pages 3-17.
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Ashlee R. Loughan, Autumn Lanoye, Farah J. Aslanzadeh, Audrey Ann Lois Villanueva, Rachel Boutte, Mariya Husain & Sarah Braun. (2019) Fear of Cancer Recurrence and Death Anxiety: Unaddressed Concerns for Adult Neuro-oncology Patients. Journal of Clinical Psychology in Medical Settings 28:1, pages 16-30.
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Gelareh Sadigh, Kathleen Gallagher, Jennifer Obenchain, Al BensonIIIIII, Edith Mitchell, Soma Sengupta & Ruth C. Carlos. (2019) Pilot Feasibility Study of an Oncology Financial Navigation Program in Brain Cancer Patients. Journal of the American College of Radiology 16:10, pages 1420-1424.
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Karine Baumstarck, Olivier Chinot, Emeline Tabouret, Patrizia Farina, Marilyne Barrié, Chantal Campello, Gregorio Petrirena, Zeinab Hamidou & Pascal Auquier. (2018) Coping strategies and quality of life: a longitudinal study of high-grade glioma patient-caregiver dyads. Health and Quality of Life Outcomes 16:1.
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Maxi Sacher, Jürgen Meixensberger & Wolfgang Krupp. (2018) Interaction of quality of life, mood and depression of patients and their informal caregivers after surgical treatment of high-grade glioma: a prospective study. Journal of Neuro-Oncology 140:2, pages 367-375.
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Ashlee R. Loughan, Deborah H. Allen, Karine Baumstarck, Laurent Boyer, Pascal Auquier, Autumn Lanoye & Sarah Braun. 2018. Handbook of Brain Tumor Chemotherapy, Molecular Therapeutics, and Immunotherapy. Handbook of Brain Tumor Chemotherapy, Molecular Therapeutics, and Immunotherapy 767 781 .
G. K. B. Halkett, E. A. Lobb, T. Shaw, M. M. Sinclair, L. Miller, E. Hovey & A. K. Nowak. (2017) Do carer’s levels of unmet needs change over time when caring for patients diagnosed with high-grade glioma and how are these needs correlated with distress?. Supportive Care in Cancer 26:1, pages 275-286.
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Marlon Garzo Saria, Natasia Courchesne, Lorraine Evangelista, Joshua Carter, Daniel A. MacManus, Mary Kay Gorman, Adeline M. Nyamathi, Linda R. Phillips, David Piccioni, Santosh Kesari & Sally Maliski. (2016) Cognitive dysfunction in patients with brain metastases: influences on caregiver resilience and coping. Supportive Care in Cancer 25:4, pages 1247-1256.
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Georgia K. B. Halkett, Elizabeth A. Lobb, Thèrése Shaw, Michelle M. Sinclair, Lisa Miller, Elizabeth Hovey & Anna K. Nowak. (2016) Distress and psychological morbidity do not reduce over time in carers of patients with high-grade glioma. Supportive Care in Cancer 25:3, pages 887-893.
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Allison J. ApplebaumMaria Kryza-LacombeJustin ButhornAntonio DeRosaGeoff CornerEli L. Diamond. (2016) Existential distress among caregivers of patients with brain tumors: a review of the literature. Neuro-Oncology Practice 3:4, pages 232-244.
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Hanneke Zwinkels, Linda Dirven, Thomas Vissers, Esther J.J. Habets, Maaike J. Vos, Jaap C. Reijneveld, Martin J. van den Bent & Martin J.B. Taphoorn. (2016) Prevalence of changes in personality and behavior in adult glioma patients: a systematic review. Neuro-Oncology Practice 3:4, pages 222-231.
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K. Baumstarck, T. Leroy, Z. Hamidou, E. Tabouret, P. Farina, M. Barrié, C. Campello, G. Petrirena, O. Chinot & P. Auquier. (2016) Coping with a newly diagnosed high-grade glioma: patient-caregiver dyad effects on quality of life. Journal of Neuro-Oncology 129:1, pages 155-164.
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Anne Long, Georgia K.B. Halkett, Elizabeth A. Lobb, Thérèse Shaw, Elizabeth Hovey & Anna K. Nowak. (2016) Carers of patients with high-grade glioma report high levels of distress, unmet needs, and psychological morbidity during patient chemoradiotherapy. Neuro-Oncology Practice 3:2, pages 105-112.
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Megan K. Applewhite, Benjamin C. James, Sharone P. Kaplan, Peter Angelos, Edwin L. Kaplan, Raymon H. Grogan & Briseis Aschebrook-Kilfoy. (2015) Quality of Life in Thyroid Cancer is Similar to That of Other Cancers with Worse Survival. World Journal of Surgery 40:3, pages 551-561.
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Paula R Sherwood, Maureen Cwiklik & Heidi S Donovan. (2016) Neuro-oncology family caregiving: review and directions for future research. CNS Oncology 5:1, pages 41-48.
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Briseis Aschebrook-KilfoyBenjamin JamesSapna NagarSharone KaplanVanessa SengHabibul AhsanPeter AngelosEdwin L. KaplanMarlon A. GuerreroJennifer H. KuoJames A. LeeElliot J. MitmakerJacob MoalemDaniel T. RuanWen T. ShenRaymon H. Grogan. (2015) Risk Factors for Decreased Quality of Life in Thyroid Cancer Survivors: Initial Findings from the North American Thyroid Cancer Survivorship Study. Thyroid 25:12, pages 1313-1321.
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Melissa M. Romero, Lisa Sue Flood, Nanci K. Gasiewicz, Richard Rovin & Samantha Conklin. (2015) Validation of the National Institutes of Health Patient-Reported Outcomes Measurement Information System Survey as a Quality-of-Life Instrument for Patients with Malignant Brain Tumors and Their Caregivers. Nursing Clinics of North America 50:4, pages 679-690.
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Gloria Juarez, Joan J. Branin & Monica Rosales. (2014) Perceptions of QOL among caregivers of Mexican ancestry of adults with advanced cancer. Quality of Life Research 24:7, pages 1729-1740.
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Hannah Wilkinson & Anne McLeod. (2015) The impact of gliomas on quality of life. British Journal of Neuroscience Nursing 11:3, pages 120-127.
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Patricia Minaya FloresJulie BerbisOlivier Chinot,Pascal Auquier. (2014) Assessing the quality of life among caregivers of patients with gliomas. Neuro-Oncology Practice 1:4, pages 191-197.
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Bethany Russell, Anna Collins, Michael Dally, Anthony Dowling, Michelle Gold, Michael Murphy & Jennifer Philip. (2014) Living longer with adult high-grade glioma:setting a research agenda for patients and their caregivers. Journal of Neuro-Oncology 120:1, pages 1-10.
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Daniel I. Jacobs, Priya Kumthekar, Becky V. Stell, Sean A. Grimm, Alfred W. Rademaker, Laurie Rice, James P. Chandler, Kenji Muro, MaryAnne Marymont, Irene B. Helenowski, Lynne I. Wagner & Jeffrey J. Raizer. (2014) Concordance of patient and caregiver reports in evaluating quality of life in patients with malignant gliomas and an assessment of caregiver burden. Neuro-Oncology Practice 1:2, pages 47-54.
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Florien W. Boele, Jan J. Heimans, Neil K. Aaronson, Martin J. B. Taphoorn, Tjeerd J. Postma, Jaap C. Reijneveld & Martin Klein. (2013) Health-related quality of life of significant others of patients with malignant CNS versus non-CNS tumors: a comparative study. Journal of Neuro-Oncology 115:1, pages 87-94.
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Mohammed Abdullah Al-Maqbali. (2013) Glioblastoma multiforme in adults and the role of the advanced nurse practitioner. British Journal of Neuroscience Nursing 9:4, pages 179-186.
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Jean D. Pawl, Shih-Yu Lee, Patricia C. Clark & Paula R. Sherwood. (2013) Sleep Characteristics of Family Caregivers of Individuals With a Primary Malignant Brain Tumor. Oncology Nursing Forum 40:2, pages 171-179.
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Florien W. Boele, Wopke Hoeben, Karen Hilverda, Jeroen Lenting, Anne-Lucia Calis, Eefje M. Sizoo, Emma H. Collette, Jan J. Heimans, Martin J. B. Taphoorn, Jaap C. Reijneveld & Martin Klein. (2012) Enhancing quality of life and mastery of informal caregivers of high-grade glioma patients: a randomized controlled trial. Journal of Neuro-Oncology 111:3, pages 303-311.
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Shirley Otis-Green & Gloria Juarez. (2012) Enhancing the Social Well-Being of Family Caregivers. Seminars in Oncology Nursing 28:4, pages 246-255.
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E. Ford, S. Catt, A. Chalmers & L. Fallowfield. (2012) Systematic review of supportive care needs in patients with primary malignant brain tumors. Neuro-Oncology 14:4, pages 392-404.
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Neil K. AaronsonMartin J.B. TaphoornJan J. HeimansTjeerd J. PostmaChad M. GundyGuus N. BeuteBen J. SlotmanMartin Klein. (2011) Compromised Health-Related Quality of Life in Patients With Low-Grade Glioma. Journal of Clinical Oncology 29:33, pages 4430-4435.
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Ruth McConigleyGeorgia Halkett, Elizabeth Lobb & Anna Nowak. (2010) Caring for someone with high-grade glioma: a time of rapid change for caregivers. Palliative Medicine 24:5, pages 473-479.
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R. Lanfroy, E. Busch, K. Colmar, A. Bremond, E. Garat, A. Nicole, A. S. Lanoix, P. Beauchesne & L. Taillandier. (2010) Intérêt et nature de la prise en charge dite psychologique du patient et son entourage dans le suivi hospitalier des tumeurs du système nerveux. À propos de l’expérience d’une équipe dédiéeInterest and nature of the psychological care for patients and close relations in a medical dedicated neuro-oncology unit. Psycho-Oncologie 4:2, pages 72-83.
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Michele R. Lucas. 2010. Chemo Fog. Chemo Fog 21 25 .

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