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Original Articles

Communicative access and decision making for people with aphasia: Implementing sustainable healthcare systems change

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Pages 39-66 | Published online: 05 Apr 2011

Keep up to date with the latest research on this topic with citation updates for this article.

Read on this site (78)

Sophie Eleanor Brown, Lesley Scobbie, Linda Worrall, Ruth Mc Menamin & Marian C. Brady. (2023) Access G-AP: development of an accessible goal setting and action planning resource for stroke survivors with aphasia. Disability and Rehabilitation 45:13, pages 2107-2117.
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Sophie Eleanor Brown, Lesley Scobbie, Linda Worrall & Marian C. Brady. (2023) A multinational online survey of the goal setting practice of rehabilitation staff with stroke survivors with aphasia. Aphasiology 37:3, pages 479-503.
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Annesofie Ishøy Nielsen, Lise Randrup Jensen & Emma Power. (2023) Meeting the confused patient with confidence: perceived benefits of communication partner training in subacute TBI. Brain Injury 37:3, pages 208-221.
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Rebecca Karmas, Karri Kneebone & Fiona Murphy. (2022) Communication for Safe Care: Enhancing Healthcare Access for People with Communication Disabilities. Journal of Clinical Practice in Speech-Language Pathology 24:3, pages 114-117.
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Maren Nelleke van Rijssen, Marloes Veldkamp, Els Bryon, Lianne Remijn, Johanna M. A. Visser-Meily, Ellen Gerrits & Lizet van Ewijk. (2022) How do healthcare professionals experience communication with people with aphasia and what content should communication partner training entail?. Disability and Rehabilitation 44:14, pages 3671-3678.
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Dorthe Hansen, Lisbeth Frölund Kristensen, Maria Elm Christensen, Karin Eriksson & Gunilla Thunberg. (2022) ‘They get the opportunity to say what is important for them’: exploring staff’s early perceptions of the implementation of a new communicative approach to patients with aphasia. Disability and Rehabilitation 44:13, pages 3071-3080.
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Lise Randrup Jensen, Regina Fromsejer Heiberg, Jytte Isaksen & Gabriele Berg-Beckhoff. (2022) Psychometric properties of the Health Professionals and Aphasia Questionnaire (HPAQ): a new self-assessment tool for evaluating health communication with people with aphasia. Aphasiology 36:6, pages 687-705.
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Renee Heard, Hayley Anderson & Chloe Horsted. (2022) Exploring the communication experiences of stroke nurses and patients with aphasia in an acute stroke unit. Speech, Language and Hearing 25:2, pages 177-191.
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Marcella Carragher, Gillian Steel, Robyn O’Halloran, Torab Torabi, Hilary Johnson, Nicholas F. Taylor & Miranda Rose. (2021) Aphasia disrupts usual care: the stroke team’s perceptions of delivering healthcare to patients with aphasia. Disability and Rehabilitation 43:21, pages 3003-3014.
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Emma Power, Kate Falkenberg, Elise Elbourn, Michelle Christine Attard & Leanne Togher. (2021) The test–retest reliability of the Aphasia Attitudes, Strategies and Knowledge (AASK) survey with student health professionals. Aphasiology 35:9, pages 1190-1206.
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Brent Archer, Jamie H. Azios, Nora Gulick & Jennifer Tetnowski. (2021) Facilitating participation in conversation groups for aphasia. Aphasiology 35:6, pages 764-782.
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Nicholas Behn, Jane Marshall, Leanne Togher & Madeline Cruice. (2021) Participants’ perspectives of feasibility of a novel group treatment for people with cognitive communication difficulties following acquired brain injury. Disability and Rehabilitation 43:2, pages 171-180.
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Sophie Eleanor Brown, Marian C. Brady, Linda Worrall & Lesley Scobbie. (2021) A narrative review of communication accessibility for people with aphasia and implications for multi-disciplinary goal setting after stroke. Aphasiology 35:1, pages 1-32.
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Marita P. McCabe, Elizabeth Beattie, Gery Karantzas, David Mellor, Kerrie Sanders, Lucy Busija, Belinda Goodenough, Michelle Bennett, Kathryn von Treuer & Jessica Byers. (2020) Consumer directed care in residential aged care: an evaluation of a staff training program. Aging & Mental Health 24:4, pages 673-678.
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Emma Power, Lucy Bryant & Kirstine Shrubsole. (2020) Making aphasia implementation stick: ensuring the sustainability of implementation. Speech, Language and Hearing 23:1, pages 25-29.
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Maren van Rijssen, Marloes Veldkamp, Leonore Meilof & Lizet van Ewijk. (2019) Feasibility of a communication program: improving communication between nurses and persons with aphasia in a peripheral hospital. Aphasiology 33:11, pages 1393-1409.
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Kirstine Shrubsole, Linda Worrall, Emma Power & Denise A. O’Connor. (2019) Barriers and facilitators to meeting aphasia guideline recommendations: what factors influence speech pathologists’ practice?. Disability and Rehabilitation 41:13, pages 1596-1607.
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Jessica Hickey, Kirstine Shrubsole, Professor Linda Worrall & Emma Power. (2019) Implementing aphasia recommendations in the acute setting: speech-language pathologists’ perspectives of a behaviour change intervention. Aphasiology 33:5, pages 606-628.
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Jamie H. Azios, Monica Bellon-Harn, Ashley L. Dockens & Vinaya Manchaiah. (2019) Quality and readability of English-language internet information for aphasia. International Journal of Speech-Language Pathology 21:1, pages 1-9.
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Lucy Bryant, Alison Ferguson, Megan Valentine & Elizabeth Spencer. (2019) Implementation of discourse analysis in aphasia: investigating the feasibility of a Knowledge-to-Action intervention. Aphasiology 33:1, pages 31-57.
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Ingrid Henriksson, Andreas Hjertén, Jesper Zackariasson, Linda Davidsson, Amanda Andersson Damberg, Charlotta Saldert, Martin J. Ball & Nicole Müller. (2019) Public awareness of aphasia – results of a Swedish sample. Aphasiology 33:1, pages 94-104.
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Emma Finch, Jennifer Fleming, Ashley Cameron, Jennifer Lethlean, Kyla Hudson, Samantha Dassanayake & Steven M. McPhail. (2018) Is an educational lecture a critical component of communication partner training?. International Journal of Speech-Language Pathology 20:7, pages 779-789.
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Simon Horton & Carole Pound. (2018) Communication partner training: re-imagining community and learning. Aphasiology 32:10, pages 1250-1265.
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Madeline Cruice, Monica Blom Johansson, Jytte Isaksen & Simon Horton. (2018) Reporting interventions in communication partner training: a critical review and narrative synthesis of the literature. Aphasiology 32:10, pages 1135-1166.
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C. Saldert, L. R. Jensen, M. Blom Johansson & N. Simmons-Mackie. (2018) Complexity in measuring outcomes after communication partner training: alignment between goals of intervention and methods of evaluation. Aphasiology 32:10, pages 1167-1193.
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Jytte Isaksen & Lise Randrup Jensen. (2018) The (S)CAse of Denmark: multisite implementation of supported conversation for adults with aphasia (SCA™). Aphasiology 32:sup1, pages 101-102.
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Ashley Cameron, Steven McPhail, Kyla Hudson, Jennifer Fleming, Jennifer Lethlean, Ngang Ju Tan & Emma Finch. (2018) The confidence and knowledge of health practitioners when interacting with people with aphasia in a hospital setting. Disability and Rehabilitation 40:11, pages 1288-1293.
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Barbara Jane Cunningham, Mary Jo Cooley Hidecker, Nancy Thomas-Stonell & Peter Rosenbaum. (2018) Moving research tools into practice: the successes and challenges in promoting uptake of classification tools. Disability and Rehabilitation 40:9, pages 1099-1107.
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Deborah Hersh. (2018) From individual to global: Human rights and aphasia. International Journal of Speech-Language Pathology 20:1, pages 39-43.
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Sandra Wielaert, Mieke W.M.E. van de Sandt-Koenderman, Nina Dammers & Karen Sage. (2018) ImPACT: a multifaceted implementation for conversation partner training in aphasia in Dutch rehabilitation settings. Disability and Rehabilitation 40:1, pages 76-89.
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Karianne Berg, Torunn Askim, Susan Balandin, Elizabeth Armstrong & Marit By Rise. (2017) Experiences of participation in goal setting for people with stroke-induced aphasia in Norway. A qualitative study. Disability and Rehabilitation 39:11, pages 1122-1130.
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Renee Heard, Robyn O’Halloran & Kathryn McKinley. (2017) Communication partner training for health care professionals in an inpatient rehabilitation setting: A parallel randomised trial. International Journal of Speech-Language Pathology 19:3, pages 277-286.
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Charlotta Plejert, Christina Samuelsson & Jan Anward. (2016) Enhanced patient involvement in Swedish aphasia intervention. Clinical Linguistics & Phonetics 30:10, pages 730-748.
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Karin Eriksson, Emma Forsgren, Lena Hartelius & Charlotta Saldert. (2016) Communication partner training of enrolled nurses working in nursing homes with people with communication disorders caused by stroke or Parkinson’s disease. Disability and Rehabilitation 38:12, pages 1187-1203.
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Deborah Hersh. (2016) Therapy in transit: managing aphasia in the early period post stroke. Aphasiology 30:5, pages 509-516.
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Deborah Hersh, Erin Godecke, Elizabeth Armstrong, Natalie Ciccone & Julie Bernhardt. (2016) “Ward talk”: Nurses’ interaction with people with and without aphasia in the very early period poststroke. Aphasiology 30:5, pages 609-628.
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Laura Cubirka, Scott Barnes & Alison Ferguson. (2015) Student speech pathologists’ experiences of an aphasia therapy group. Aphasiology 29:12, pages 1497-1515.
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Ashley Cameron, Steven M. McPhail, Kyla Hudson, Jennifer Fleming, Jennifer Lethlean & Emma Finch. (2015) Increasing the confidence and knowledge of occupational therapy and physiotherapy students when communicating with people with aphasia: A pre–post intervention study. Speech, Language and Hearing 18:3, pages 148-155.
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Melissa Miao, Emma Power & Robyn O'Halloran. (2015) Factors affecting speech pathologists’ implementation of stroke management guidelines: a thematic analysis. Disability and Rehabilitation 37:8, pages 674-685.
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Lise R. Jensen, Annelise P. Løvholt, Inger R. Sørensen, Anna M. Blüdnikow, Helle K. Iversen, Anders Hougaard, Lone L. Mathiesen & Hysse B. Forchhammer. (2015) Implementation of supported conversation for communication between nursing staff and in-hospital patients with aphasia. Aphasiology 29:1, pages 57-80.
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Robyn O’Halloran, Yan Shan Lee, Miranda Rose & Pranee Liamputtong. (2014) Creating communicatively accessible healthcare environments: Perceptions of speech-language pathologists. International Journal of Speech-Language Pathology 16:6, pages 603-614.
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Alexandra Carling-Rowland, Sandra Black, Lynn McDonald & Aura Kagan. (2014) Increasing access to fair capacity evaluation for discharge decision-making for people with aphasia: A randomised controlled trial. Aphasiology 28:6, pages 750-765.
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Guylaine Le Dorze, Émilie Salois-Bellerose, Marjolaine Alepins, Claire Croteau & Marie-Christine Hallé. (2014) A description of the personal and environmental determinants of participation several years post-stroke according to the views of people who have aphasia. Aphasiology 28:4, pages 421-439.
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Nina Simmons-Mackie, Aura Kagan, J. Charles Victor, Alex Carling-Rowland, Ada Mok, Jeffrey S. Hoch, Maria Huijbregts & David L. Streiner. (2014) The assessment for living with aphasia: Reliability and construct validity. International Journal of Speech-Language Pathology 16:1, pages 82-94.
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Leora R. Cherney, Nina Simmons-Mackie, Anastasia Raymer, Elizabeth Armstrong & Audrey Holland. (2013) Systematic review of communication partner training in aphasia: Methodological quality. International Journal of Speech-Language Pathology 15:5, pages 535-545.
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Breanna Tomkins, Samantha Siyambalapitiya & Linda Worrall. (2013) What do people with aphasia think about their health care? Factors influencing satisfaction and dissatisfaction. Aphasiology 27:8, pages 972-991.
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Shelley Tregea & Kyla Brown. (2013) What makes a successful peer-led aphasia support group?. Aphasiology 27:5, pages 581-598.
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AbbyM. Foster, LindaE. Worrall, MirandaL. Rose & Robyn O'Halloran. (2013) Turning the tide: Putting acute aphasia management back on the agenda through evidence-based practice. Aphasiology 27:4, pages 420-443.
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Linda E. Worrall, Tami Howe, Anna O'Callaghan, Anne J. Hill, Miranda Rose, Sarah J. Wallace, Tanya Rose, Kyla Brown, Emma Power, Robyn O'Halloran & Alexia Rohde. (2013) The World Report on Disability as a blueprint for international, national, and local aphasia services. International Journal of Speech-Language Pathology 15:1, pages 106-112.
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MichaelI. Burns, CarolynR. Baylor, MeganA. Morris, ThomasE. McNalley & KathrynM. Yorkston. (2012) Training healthcare providers in patient–provider communication: What speech-language pathology and medical education can learn from one another. Aphasiology 26:5, pages 673-688.
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Tanya A. Rose, Linda E. Worrall, Louise M. Hickson & Tammy C. Hoffmann. (2012) Guiding principles for printed education materials: Design preferences of people with aphasia. International Journal of Speech-Language Pathology 14:1, pages 11-23.
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Davida Fromm, Audrey Holland, Elizabeth Armstrong, Margaret Forbes, Brian MacWhinney, Amy Risko & Nicole Mattison. (2011) “Better but no cigar”: Persons with aphasia speak about their speech. Aphasiology 25:11, pages 1431-1447.
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Maura English Silverman. (2011) The Dignity of Struggle. Topics in Stroke Rehabilitation 18:2, pages 134-138.
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Gill Pearl, Karen Sage & Alys Young. (2011) Involvement in volunteering: an exploration of the personal experience of people with aphasia. Disability and Rehabilitation 33:19-20, pages 1805-1821.
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NancyA. Paul & GregoryF. Sanders. (2010) Applying an ecological framework to education needs of communication partners of individuals with aphasia. Aphasiology 24:9, pages 1095-1112.
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Aura Kagan, Nina Simmons-Mackie, Jane Brenneman Gibson, James Conklin & RobertaJ. Elman. (2010) Closing the evidence, research, and practice loop: Examples of knowledge transfer and exchange from the field of aphasia. Aphasiology 24:4, pages 535-548.
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Robyn O'Halloran, Linda Worrall & Louise Hickson. (2010) Environmental factors that influence communication between patients and their healthcare providers in acute hospital stroke units: an observational study. International Journal of Language & Communication Disorders 0:0, pages 1-18.
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Tanya Rose, Linda Worrall, Louise Hickson & Tammy Hoffmann. (2010) Do People With Aphasia Want Written Stroke and Aphasia Information? A Verbal Survey Exploring Preferences for When and How to Provide Stroke and Aphasia Information. Topics in Stroke Rehabilitation 17:2, pages 79-98.
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Nancy A. Paul & Gregory F. Sanders. (2009) Strategies Used by Communication Partners of Aphasic Speakers. Activities, Adaptation & Aging 33:3, pages 161-178.
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TanyaA. Rose, LindaE. Worrall, KryssT. McKenna, LouiseM. Hickson & TammyC. Hoffmann. (2009) Do people with aphasia receive written stroke and aphasia information? . Aphasiology 23:3, pages 364-392.
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Glenn Goldblum & Erna Alant. (2009) Sales assistants serving customers with traumatic brain injury . Aphasiology 23:1, pages 87-109.
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TamiJ. Howe, LindaE. Worrall & LouiseM. H. Hickson. (2008) Interviews with people with aphasia: Environmental factors that influence their community participation . Aphasiology 22:10, pages 1092-1120.
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TamiJ. Howe, LindaE. Worrall & LouiseM. H. Hickson. (2008) Observing people with aphasia: Environmental factors that influence their community participation . Aphasiology 22:6, pages 618-643.
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Aura Kagan, Nina Simmons‐Mackie, Alexandra Rowland, Maria Huijbregts, Elyse Shumway, Sara McEwen, Travis Threats & Shelley Sharp. (2008) Counting what counts: A framework for capturing real‐life outcomes of aphasia intervention . Aphasiology 22:3, pages 258-280.
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Madeline Cruice. (2007) Issues of access and inclusion with aphasia. Aphasiology 21:1, pages 3-8.
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