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Original Articles

Living successfully with aphasia during the first year post-stroke: A longitudinal qualitative study

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Pages 1405-1425 | Received 13 Feb 2014, Accepted 12 Jun 2014, Published online: 22 Jul 2014

Keep up to date with the latest research on this topic with citation updates for this article.

Read on this site (26)

Felicity A. S. Bright, Claire Ibell-Roberts & Bobbie-Jo Wilson. (2024) Psychosocial well-being after stroke in Aotearoa New Zealand: a qualitative metasynthesis. Disability and Rehabilitation 46:10, pages 2000-2013.
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Leana Nichol, Rachelle Pitt, Sarah J. Wallace, Amy D. Rodriguez & Annie J. Hill. (2023) “There are endless areas that they can use it for”: speech-language pathologist perspectives of technology support for aphasia self-management. Disability and Rehabilitation: Assistive Technology 18:8, pages 1473-1488.
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Yejin Lee$suffix/text()$suffix/text(), Katrina Fritz$suffix/text()$suffix/text(), Chaitali Dagli$suffix/text()$suffix/text(), Marjorie L. Nicholas & Lisa Tabor Connor. (2023) Social Support Fully Mediates the Association Between Communication Abilities and Social Participation Among Persons with Post-Stroke Aphasia. Aphasiology 37:7, pages 980-992.
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Bonnie B. Y. Cheng, Brooke J. Ryan, David A. Copland & Sarah J. Wallace. (2023) Prognostication in post-stroke aphasia: Perspectives of people with aphasia on receiving information about recovery. Neuropsychological Rehabilitation 33:5, pages 871-902.
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Bonnie B. Y. Cheng, Brooke Ryan, David A. Copland & Sarah J. Wallace. (2022) Prognostication in post-stroke aphasia: speech pathologists’ clinical insights on formulating and delivering information about recovery. Disability and Rehabilitation 44:18, pages 5046-5059.
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Molly Manning, Anne MacFarlane, Anne Hickey, Rose Galvin & Sue Franklin. (2022) The relevance of stroke care for living well with post-stroke aphasia: a qualitative interview study with working-aged adults. Disability and Rehabilitation 44:14, pages 3440-3452.
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Mauro Viganò, Giulia Gilardone, Dario Cassinelli, Francesca M. Fumagalli, Maria Scialla, Marco Gilardone, Roberta Dameno, Massimo Corbo & Alessia Monti. (2022) The Italian Aphasia Awareness Survey (IAAS): an online questionnaire about the public knowledge of aphasia in Italy, informative findings. Aphasiology 36:5, pages 599-617.
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Megan E. Schliep, Victoria Tilton-Bolowsky & Sofia Vallila-Rohter. (2022) Cue responsiveness as a measure of emerging language ability in aphasia. Topics in Stroke Rehabilitation 29:2, pages 133-145.
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Katharyn Mumby & Hazel Roddam. (2021) Aphasia and Spirituality: the feasibility of assessment and intervention using WELLHEAD and SHALOM. Aphasiology 35:7, pages 925-949.
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Aimee Dietz, Chitrali R. Mamlekar, Katrina L. Bakas, Michael J. McCarthy, Dana Harley & Tamilyn Bakas. (2021) A scoping review of PhotoVoice for people with post-stroke aphasia. Topics in Stroke Rehabilitation 28:3, pages 219-235.
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Sue Sherratt & Linda Worrall. (2021) Posttraumatic growth following aphasia: a prospective cohort study of the first year post-stroke. Aphasiology 35:3, pages 291-313.
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Caroline Baker, Linda Worrall, Miranda Rose & Brooke Ryan. (2020) ‘It was really dark’: the experiences and preferences of people with aphasia to manage mood changes and depression. Aphasiology 34:1, pages 19-46.
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Ciara Shiggins, Varda Soskolne, Dafna Olenik, Gill Pearl, Line Haaland-Johansen, Jytte Isaksen, Caroline Jagoe, Ruth McMenamin & Simon Horton. (2020) Towards an asset-based approach to promoting and sustaining well-being for people with aphasia and their families: an international exploratory study. Aphasiology 34:1, pages 70-101.
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Linda Worrall. (2019) The seven habits of highly effective aphasia therapists: The perspective of people living with aphasia. International Journal of Speech-Language Pathology 21:5, pages 438-447.
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Sarah J. Wallace, Caroline Baker, Caitlin Brandenburg, Lucy Bryant, Guylaine Le Dorze, Emma Power, Madeleine Pritchard, Miranda L. Rose, Tanya Rose, Brooke Ryan, Kirstine Shrubsole, Nina Simmons-Mackie, Leanne Togher & Megan Trebilcock. (2019) A how-to guide to aphasia services: celebrating Professor Linda Worrall’s contribution to the field. Aphasiology 33:7, pages 888-902.
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Julie M. H. Plourde, Suzanne C. Purdy, Celia Moore, Philippa Friary, Roger Brown & Clare M. McCann. (2019) Gavel Club for people with aphasia: communication confidence and quality of communication life. Aphasiology 33:1, pages 73-93.
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Michelle Lawton, Gillian Haddock, Paul Conroy, Laura Serrant & Karen Sage. (2018) People with aphasia’s perception of the therapeutic alliance in aphasia rehabilitation post stroke: a thematic analysis. Aphasiology 32:12, pages 1397-1417.
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Yiting Emily Guo, Leanne Togher, Emma Power & Rob Heard. (2017) Validation of the assessment of living with aphasia in Singapore. Aphasiology 31:9, pages 981-998.
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Yiting Emily Guo, Leanne Togher, Emma Power, Rob Heard, Nan Luo, Philip Yap & Gerald C. H. Koh. (2017) Sensitivity to change and responsiveness of the Stroke and Aphasia Quality-of-Life Scale (SAQOL) in a Singapore stroke population. Aphasiology 31:4, pages 427-446.
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Helen Kelly, Fiona Kennedy, Hannah Britton, Graham McGuire & James Law. (2016) Narrowing the “digital divide”—facilitating access to computer technology to enhance the lives of those with aphasia: a feasibility study. Aphasiology 30:2-3, pages 133-163.
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Reem S. W. Alyahya. The public awareness and knowledge of aphasia in Saudi Arabia. Aphasiology 0:0, pages 1-13.
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Articles from other publishers (28)

Katherine Broomfield, Simon Judge, Karen Sage, Georgina L. Jones & Deborah James. (2023) Using longitudinal qualitative research to explore the experience of receiving and using augmentative and alternative communication. International Journal of Language & Communication Disorders 59:3, pages 1043-1065.
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Caroline Baker, Brooke Ryan, Miranda L. Rose, Ian Kneebone, Shirley Thomas, Dana Wong & Sarah J. Wallace. (2024) Developing consensus-based clinical competencies to guide stroke clinicians in the implementation of psychological care in aphasia rehabilitation. Brain Impairment 25:1.
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Brent Archer, Jamie H. Azios, Natalie F. Douglas, Katie A. Strong, Linda Worrall & Nina Simmons-Mackie. (2024) “I Could Not Talk . . . She Did Everything . . . She's Now My Sister”: People With Aphasia's Perspectives on Friends Who Stuck Around. American Journal of Speech-Language Pathology 33:1, pages 349-368.
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Brooke Ryan, Ian Kneebone, Miranda L. Rose, Leanne Togher, Emma Power, Tammy Hoffmann, Asaduzzaman Khan, Nina Simmons-Mackie, Marcella Carragher & Linda Worrall. (2023) Preventing depression in aphasia: A cluster randomized control trial of the Aphasia Action Success Knowledge (ASK) program. International Journal of Stroke 18:8, pages 996-1004.
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Hanan Abu Saydah, Ruqayyah Turabi, Catherine Sackley & Fiona Moffatt. (2023) Stroke Survivor’s Satisfaction and Experience with Rehabilitation Services: A Qualitative Systematic Review. Journal of Clinical Medicine 12:16, pages 5413.
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Alejandra Heredia-Callejón, Patricia García-Pérez, Juan Antonio Armenta-Peinado, Miguel Ángel Infantes-Rosales & María Carmen Rodríguez-Martínez. (2023) Influence of the Therapeutic Alliance on the Rehabilitation of Stroke: A Systematic Review of Qualitative Studies. Journal of Clinical Medicine 12:13, pages 4266.
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Leanne Ruggero, Karen Croot & Lyndsey Nickels. (2023) Quality of Life Ratings and Proxy Bias in Primary Progressive Aphasia: Two Sides to the Story?. American Journal of Alzheimer's Disease & Other Dementias® 38.
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Lindsey Thiel & Paul Conroy. (2022) ‘I think writing is everything’: An exploration of the writing experiences of people with aphasia. International Journal of Language & Communication Disorders 57:6, pages 1381-1398.
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Sheena Ramazanu, Master R. O. Chisale, Priya Baby, Vivien Xi Wu & Balwani C. Mbakaya. (2022) Meta‐synthesis of family communication patterns during post‐stroke vascular aphasia: Evidence to guide practice . Worldviews on Evidence-Based Nursing 19:4, pages 282-296.
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Rebecca Hunting Pompon & Helen Mach. (2022) Characterizations of Resilience in Poststroke Aphasia. Topics in Language Disorders 42:3, pages 236-251.
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Molly Manning, Anne MacFarlane, Anne Hickey, Rose Galvin & Sue Franklin. (2022) Regulating emotional responses to aphasia to re‐engage in life: a qualitative interview study. International Journal of Language & Communication Disorders 57:2, pages 352-365.
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Joel Vos. (2021) Cardiovascular disease and meaning in life: A systematic literature review and conceptual model. Palliative and Supportive Care 19:3, pages 367-376.
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Becky Moss, Sarah Northcott, Nicholas Behn, Katie Monnelly, Jane Marshall, Shirley Thomas, Alan Simpson, Kimberley Goldsmith, Sally McVicker, Chris Flood & Katerina Hilari. (2021) ‘Emotion is of the essence. … Number one priority’: A nested qualitative study exploring psychosocial adjustment to stroke and aphasia. International Journal of Language & Communication Disorders 56:3, pages 594-608.
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Felicity A.S. Bright, Clare M. McCann & Nicola M. Kayes. (2019) Recalibrating hope: A longitudinal study of the experiences of people with aphasia after stroke. Scandinavian Journal of Caring Sciences 34:2, pages 428-435.
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Faye Wray, David Clarke & Anne Forster. (2019) How do stroke survivors with communication difficulties manage life after stroke in the first year? A qualitative study. International Journal of Language & Communication Disorders 54:5, pages 814-827.
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Brooke Ryan, Jaycie Bohan & Ian Kneebone. (2019) Help‐seeking and people with aphasia who have mood problems after stroke: perspectives of speech–language pathologists. International Journal of Language & Communication Disorders 54:5, pages 779-793.
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Katharyn Mumby. (2019) A Single Case Narrative of Spirituality Following Aphasia from Traumatic Brain Injury: Findings about Forgiveness and Freedom Using WELLHEAD and SHALOM. Religions 10:5, pages 301.
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Marcella Carragher, Brooke Ryan, Linda Worrall, Shirley Thomas, Miranda Rose, Nina Simmons-Mackie, Asad Khan, Tammy C Hoffmann, Emma Power, Leanne Togher & Ian Kneebone. (2019) Fidelity protocol for the Action Success Knowledge (ASK) trial: a psychosocial intervention administered by speech and language therapists to prevent depression in people with post-stroke aphasia. BMJ Open 9:5, pages e023560.
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Molly Manning, Anne MacFarlane, Anne Hickey & Sue Franklin. (2019) Perspectives of people with aphasia post-stroke towards personal recovery and living successfully: A systematic review and thematic synthesis. PLOS ONE 14:3, pages e0214200.
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Margaret Pozzebon, Jacinta Douglas & David Ames. (2018) Facing the Challenges of Primary Progressive Aphasia: The Spousal Perspective. Journal of Speech, Language, and Hearing Research 61:9, pages 2292-2312.
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Kirstine Shrubsole, Linda Worrall, Emma Power & Denise A. O'Connor. (2018) Priorities for Closing the Evidence-Practice Gaps in Poststroke Aphasia Rehabilitation: A Scoping Review. Archives of Physical Medicine and Rehabilitation 99:7, pages 1413-1423.e24.
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Katie A. Strong, Mary D. Lagerwey & Barbara B. Shadden. (2018) More Than a Story: My Life Came Back to Life. American Journal of Speech-Language Pathology 27:1S, pages 464-476.
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Brooke Ryan, Kyla Hudson, Linda Worrall, Nina Simmons-Mackie, Emma Thomas, Emma Finch, Kathy Clark & Jennifer Lethlean. (2017) The Aphasia Action, Success, and Knowledge Programme: Results from an Australian Phase I Trial of a Speech-Pathology-Led Intervention for People with Aphasia Early Post Stroke. Brain Impairment 18:3, pages 284-298.
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Faye Wray & David Clarke. (2017) Longer-term needs of stroke survivors with communication difficulties living in the community: a systematic review and thematic synthesis of qualitative studies. BMJ Open 7:10, pages e017944.
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Tami Howe. (2017) Found Opportunities for Social Participation. Topics in Language Disorders 37:1, pages 38-51.
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Thomas W. Sather, Tami Howe, Nickola Wolf Nelson & Mary Lagerwey. (2017) Optimizing the Experience of Flow for Adults With Aphasia. Topics in Language Disorders 37:1, pages 25-37.
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Sarah Northcott, Becky Moss, Kirsty Harrison & Katerina Hilari. (2016) A systematic review of the impact of stroke on social support and social networks: associated factors and patterns of change. Clinical Rehabilitation 30:8, pages 811-831.
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Chris Code, Ilias Papathanasiou, Silvia Rubio‐Bruno, María de la Paz Cabana, Maria Marta Villanueva, Line Haaland‐Johansen, Tatjana Prizl‐Jakovac, Ana Leko, Nada Zemva, Ruth Patterson, Richard Berry, Elizabeth Rochon, Carol Leonard & Amelie Robert. (2015) International patterns of the public awareness of aphasia. International Journal of Language & Communication Disorders 51:3, pages 276-284.
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