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Research Article

A study of the health and social needs of carers of traumatically brain injured individuals served by one community rehabilitation team

Pages 983-993 | Published online: 03 Jul 2009

Keep up to date with the latest research on this topic with citation updates for this article.

Read on this site (18)

Lynn Grayson, Marian C. Brady, Leanne Togher & Myzoon Ali. (2021) The impact of cognitive-communication difficulties following traumatic brain injury on the family; a qualitative, focus group study. Brain Injury 35:1, pages 15-25.
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Cecilie Røe, Audny Anke, Juan Carlos Arango-Lasprilla, Nada Andelic, Alfonso Caracuel, Diego Rivera & Anne Norup. (2020) The Family Needs Questionnaire-Revised: a Rasch analysis of measurement properties in the chronic phase after traumatic brain injury. Brain Injury 34:10, pages 1375-1383.
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Audny Anke, Cecilie Røe, Solrun Sigurdardottir, Anne Norup, Helene L. Soberg, Juan Carlos Arango-Lasprilla & Unn Sollid Manskow. (2020) Family needs at one and two years after severe traumatic brain injury: a prospective study of changes and predictors. Brain Injury 34:1, pages 89-97.
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Caron Gan & F. Virginia Wright. (2019) Development of the family needs questionnaire – pediatric version [FNQ-P] – phase I. Brain Injury 33:5, pages 623-632.
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Zulay Lugo, Fréderic Pellas, Veronique Blandin, Steven Laureys & Olivia Gosseries. (2017) Assessment of needs, psychological impact and quality of life in families of patients with locked-in syndrome. Brain Injury 31:12, pages 1590-1596.
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Anne Norup, Karin Spangsberg Kristensen, Ingrid Poulsen & Erik Lykke Mortensen. (2017) Evaluating clinically significant changes in health-related quality of life: A sample of relatives of patients with severe traumatic brain injury. Neuropsychological Rehabilitation 27:2, pages 196-215.
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Bonnie Swaine, Clément Dassa, Anna Koné, Élisabeth Dutil, Louise Demers & Claire Trempe. (2017) The PQRS-Montreal: a measure of patients’ perceptions of the quality of rehabilitation services for persons with a traumatic brain injury. Disability and Rehabilitation 39:1, pages 59-72.
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Karoline Doser & Anne Norup. (2014) Family needs in the chronic phase after severe brain injury in Denmark. Brain Injury 28:10, pages 1230-1237.
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Sarah T. Doyle, Paul B. Perrin, Dulce María Díaz Sosa, Irma Guadalupe Espinosa Jove, Gloria K. Lee & Juan Carlos Arango-Lasprilla. (2013) Connecting family needs and TBI caregiver mental health in Mexico City, Mexico. Brain Injury 27:12, pages 1441-1449.
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Camilla W. Nonterah, Bryan J. Jensen, Paul B. Perrin, Lillian Flores Stevens, Teresita Villaseñor Cabrera, Miriam Jiménez-Maldonado & Juan Carlos Arango-Lasprilla. (2013) The influence of TBI impairments on family caregiver mental health in Mexico. Brain Injury 27:11, pages 1287-1293.
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Juan Carlos Arango-Lasprilla, Maria Cristina Quijano, Monica Aponte, Maria Teresa Cuervo, Elizabeth Nicholls, Heather Lynn Rogers & Jeffrey Kreutzer. (2010) Family needs in caregivers of individuals with traumatic brain injury from Colombia, South America. Brain Injury 24:7-8, pages 1017-1026.
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Julie M. Turner-Cobb, Jenny Palmer, D. Aronson, Louise Russell, Stephanie Purnell, Michael Osborn & David S. Jessop. (2010) Diurnal cortisol and coping responses in close relatives of persons with acquired brain injury: A longitudinal mixed methods study. Brain Injury 24:6, pages 893-903.
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Hannah Blair, Lindsay Wilson, Jo Gouick & Douglas Gentleman. (2010) Individualized vs. global assessments of quality of life after head injury and their susceptibility to response shift. Brain Injury 24:6, pages 833-843.
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Anne Norup, Lars Siert & Erik Lykke Mortensen. (2010) Emotional distress and quality of life in relatives of patients with severe brain injury: The first month after injury. Brain Injury 24:2, pages 81-88.
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Jeffrey S. Kreutzer, Taryn M. Stejskal, Jessica M. Ketchum, Jennifer H. Marwitz, Laura A. Taylor & Jennifer C. Menzel. (2009) A preliminary investigation of the brain injury family intervention: Impact on family members. Brain Injury 23:6, pages 535-547.
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Michael Fraas, Magdalen Balz & William DeGrauw. (2007) Meeting the long-term needs of adults with acquired brain injury through community-based programming. Brain Injury 21:12, pages 1267-1281.
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Heather M. Murray, George W. Maslany & Bonnie Jeffery. (2006) Assessment of family needs following acquired brain injury in Saskatchewan. Brain Injury 20:6, pages 575-585.
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Indrani Sinnakaruppan, Denise M. Williams. (2001) Family carers and the adult head-injured: a critical review of carers' needs. Brain Injury 15:8, pages 653-672.
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Articles from other publishers (21)

Jacob A. Finn, Farina A. Klocksieben, Austin N. Smith, John Bernstein, Therese M. O'Neil-Pirozzi, Jeff S. Kreutzer, Angelle M. Sander, Laura E. Dreer, Janet P. Niemeier, Bridget A. Cotner & Risa Nakase-Richardson. (2022) Family Needs After Traumatic Brain Injury: A VA TBI Model Systems Study. Journal of Head Trauma Rehabilitation 37:6, pages 327-337.
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Jeffrey S. Kreutzer, Jennifer H. Marwitz, Daniel W. Klyce, Kathryn P. Wilder Schaaf, Adam P. Sima, Abigail M. Welch & Janet P. Niemeier. (2018) Family Needs on an Inpatient Brain Injury Rehabilitation Unit: A Quantitative Assessment. Journal of Head Trauma Rehabilitation 33:4, pages 228-236.
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Julie Chronister, Eboneé T. Johnson, Fong Chan, Wei-Mo Tu, Yi-Chieh Chung & Gloria K. Lee. (2015) Positive Person–Environment Factors as Mediators of the Relationship Between Perceived Burden and Quality of Life of Caregivers for Individuals With Traumatic Brain Injuries. Rehabilitation Counseling Bulletin 59:4, pages 235-246.
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Andrea Brioschi Guevara, Jean-Francois Demonet, Elena Polejaeva, Kristine M. Knutson, Eric M. Wassermann, Jordan Grafman & Frank Krueger. (2016) Association Between Traumatic Brain Injury-Related Brain Lesions and Long-term Caregiver Burden. Journal of Head Trauma Rehabilitation 31:2, pages E48-E58.
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Anne Norup, Paul B. Perrin, Gustavo Cuberos-Urbano, Audny Anke, Nada Andelic, Sarah T. Doyle, Maria Cristina Quijano, Alfonso Caracuel, Dulce Mar, Irma Guadalupe Espinosa Jove & Juan Carlos Arango-Lasprilla. (2015) Family needs after brain injury: A cross cultural study. NeuroRehabilitation 36:2, pages 203-214.
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Lillian Flores Stevens, Treven C. Pickett, Kathryn P. Wilder Schaaf, Brent C. Taylor, Amy Gravely, Courtney Harold Van Houtven, Greta Friedemann-Sánchez & Joan M. Griffin. (2015) The Relationship between Training and Mental Health among Caregivers of Individuals with Polytrauma. Behavioural Neurology 2015, pages 1-13.
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Mark Holloway. (2014) How is ABI assessed and responded to in non-specialist settings? Is specialist education required for all social care professionals?. Social Care and Neurodisability 5:4, pages 201-213.
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Connie Sung, Paul B. Perrin, Melody Mickens, Teresita Villaseñor Cabrera, Miriam Jimenez-Maldonado, Maria Luisa Martinez-Cortes & Juan Carlos Arango-Lasprilla. (2013) Influence of TBI Impairments and Related Caregiver Stress on Family Needs in Guadalajara, Mexico. The Australian Journal of Rehabilitation Counselling 19:2, pages 100-118.
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Lillian Flores Stevens, Paul B. Perrin, Shaina Gulin, Heather L. Rogers, Teresita Villaseñor Cabrera, Miriam Jiménez-Maldonado & Juan Carlos Arango-Lasprilla. (2013) Examining the Influence of Three Types of Social Support on the Mental Health of Mexican Caregivers of Individuals with Traumatic Brain Injury. American Journal of Physical Medicine & Rehabilitation 92:11, pages 959-967.
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Paul B. Perrin, Lillian F. Stevens, Megan Sutter, Rebecca Hubbard, Dulce María Díaz Sosa, Irma Guadalupe Espinosa Jove & Juan Carlos Arango-Lasprilla. (2013) Exploring the Connections Between Traumatic Brain Injury Caregiver Mental Health and Family Dynamics in Mexico City, Mexico. PM&R 5:10, pages 839-849.
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Anthony E. Coy, Paul B. Perrin, Lillian F. Stevens, Rebecca Hubbard, Dulce María Díaz Sosa, Irma Guadalupe Espinosa Jove & Juan Carlos Arango-Lasprilla. (2013) Moderated Mediation Path Analysis of Mexican Traumatic Brain Injury Patient Social Functioning, Family Functioning, and Caregiver Mental Health. Archives of Physical Medicine and Rehabilitation 94:2, pages 362-368.
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Faith Martin, Karen Rodham, Laura Camfield & Danny Ruta. (2010) Reliability and Validity of the Thai “Global Person Generated Index”, an Individualised Measure of Quality of Life. Applied Research in Quality of Life 5:3, pages 219-232.
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Jeffrey S. Kreutzer, Lisa J. Rapport, Jennifer H. Marwitz, Cynthia Harrison-Felix, Tessa Hart, Mel Glenn & Flora Hammond. (2009) Caregivers' Well-Being After Traumatic Brain Injury: A Multicenter Prospective Investigation. Archives of Physical Medicine and Rehabilitation 90:6, pages 939-946.
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Holly Blake. (2008) Caregiver stress in traumatic brain injury. International Journal of Therapy and Rehabilitation 15:6, pages 263-271.
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Ellen Hämmerling, Claudia LudwigClaudia Wendel. (2008) Lebenszufriedenheit von PartnerInnen chronisch hirngeschädigter Menschen unter besonderer Berücksichtigung von Persönlichkeitsveränderung. Zeitschrift für Neuropsychologie 19:4, pages 223-233.
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Malachy Bishop, Charles Edmund Degeneffe & Melinda Mast. (2015) Family Needs After Traumatic Brain Injury: Implications for Rehabilitation Counselling. The Australian Journal of Rehabilitation Counselling 12:2, pages 73-87.
Crossref
Rory J O'ConnorMeriel BestM Anne Chamberlain. (2006) The community rehabilitation unit in Leeds: A resource for people with long-term conditions. International Journal of Therapy and Rehabilitation 13:3, pages 118-125.
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Michelle A. Meade, Laura A. Taylor, Jeffrey S. Kreutzer, Jennifer H. Marwitz & Vera Thomas. (2004) A Preliminary Study of Acute Family Needs After Spinal Cord Injury: Analysis and Implications.. Rehabilitation Psychology 49:2, pages 150-155.
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Michael P. Barnes & Harriet Radermacher. 2009. Community Rehabilitation in Neurology. Community Rehabilitation in Neurology 170 195 .
George J. Carnevale, Vera Anselmi, Kim Busichio & Scott R. Millis. (2002) Changes in Ratings of Caregiver Burden Following a Community-Based Behavior Management Program for Persons with Traumatic Brain Injury. Journal of Head Trauma Rehabilitation 17:2, pages 83-95.
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Stephanie A. Kolakowsky-Hayner, K. Dawn Miner & Jeffrey S. Kreutzer. (2001) Long-Term Life Quality and Family Needs After Traumatic Brain Injury. Journal of Head Trauma Rehabilitation 16:4, pages 374-385.
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