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Original Article

Does enhanced information at cancer genetic counseling improve counselees’ knowledge, risk perception, satisfaction and negotiation of information to at-risk relatives? – a randomized study

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Pages 999-1009 | Received 08 Mar 2009, Published online: 08 Oct 2009

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Karin Nordin, Afsaneh Roshanai, Cathrine Bjorvatn, Katharina Wollf, Ellen M. Mikkelsen, Ingvar Bjelland & Gerd Kvale. (2011) Is genetic counseling a stressful event?. Acta Oncologica 50:7, pages 1089-1097.
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Sussanne Börjeson, Ann Langius-Eklöf & Carol Tishelman. (2010) State of Science Conference in Cancer Care – identification of front line research topics. Acta Oncologica 49:2, pages 134-135.
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Articles from other publishers (36)

Deborah L. Cragun, Paige Phillips Hunt, Marleah Dean, Anne Weidner, Andrea K. Shields, Ann Tezak & Tuya Pal. (2023) Applying the framework for developing and evaluating complex interventions to increase family communication about hereditary cancer. PEC Innovation 2, pages 100133.
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Lisa Marie Ballard, Rebecca Band & Anneke M. Lucassen. (2023) Interventions to support patients with sharing genetic test results with at-risk relatives: a synthesis without meta-analysis (SWiM). European Journal of Human Genetics.
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Jessica Feldman, Chinmayee Bhimarao Nagaraj, Kathleen Collins, Emily Wakefield, Hua He, Melanie Myers & Katie Wusik. (2023) Comparison of genetic testing documentation between genetic counselors and non‐genetic counselors . Journal of Genetic Counseling 32:3, pages 635-645.
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Alison Luk Young, Aalya Imran, Michael J. Spoelma, Rachel Williams, Katherine M. Tucker, Jane Halliday, Laura E. Forrest, Claire E. Wakefield & Phyllis N. Butow. (2022) Proband-mediated interventions to increase disclosure of genetic risk in families with a BRCA or Lynch syndrome condition: a systematic review. European Journal of Human Genetics 31:1, pages 18-34.
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Jingsong Zhao, Yue Guan & Colleen M. McBride. (2022) A systematic review of theory-informed strategies used in interventions fostering family genetic risk communication. Patient Education and Counseling 105:7, pages 1953-1962.
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Henri Setiawan, Yudisa Diaz Lutfi Sandi, Esti Andarini, Rudi Kurniawan, Selvia David Richard & Heri Ariyanto. (2021) The effect of genetic counseling on depression, anxiety, and knowledge level among diabetes mellitus patients. Kontakt 23:4, pages 330-337.
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Vasiliki Baroutsou, Meghan L. Underhill-Blazey, Christian Appenzeller-Herzog & Maria C. Katapodi. (2021) Interventions Facilitating Family Communication of Genetic Testing Results and Cascade Screening in Hereditary Breast/Ovarian Cancer or Lynch Syndrome: A Systematic Review and Meta-Analysis. Cancers 13:4, pages 925.
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Lisa M. Ballard, Rachel H. Horton, Angela Fenwick & Anneke M. Lucassen. (2019) Genome sequencing in healthcare: understanding the UK general public’s views and implications for clinical practice. European Journal of Human Genetics 28:2, pages 155-164.
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L.M. Heuvel, E.M.A. Smets, J.P. Tintelen & I. Christiaans. (2019) How to inform relatives at risk of hereditary diseases? A mixed‐methods systematic review on patient attitudes. Journal of Genetic Counseling 28:5, pages 1042-1058.
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Heidi D. Nelson, Miranda Pappas, Amy Cantor, Elizabeth Haney & Rebecca Holmes. (2019) Risk Assessment, Genetic Counseling, and Genetic Testing for BRCA- Related Cancer in Women . JAMA 322:7, pages 666.
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Douglas K. Owens, Karina W. Davidson, Alex H. Krist, Michael J. Barry, Michael Cabana, Aaron B. Caughey, Chyke A. Doubeni, John W. EplingJrJr, Martha Kubik, C. Seth Landefeld, Carol M. Mangione, Lori Pbert, Michael Silverstein, Melissa A. Simon, Chien-Wen Tseng & John B. Wong. (2019) Risk Assessment, Genetic Counseling, and Genetic Testing for BRCA -Related Cancer . JAMA 322:7, pages 652.
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Magdalena M. Witt & Katarzyna A. Jankowska. (2018) Breaking bad news in genetic counseling—problems and communication tools. Journal of Applied Genetics 59:4, pages 449-452.
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Willem Eijzenga, Eveline de Geus, Cora M. Aalfs, Fred H. Menko, Rolf H. Sijmons, Hanneke C.J.M. de Haes & Ellen M.A. Smets. (2018) How to support cancer genetics counselees in informing at-risk relatives? Lessons from a randomized controlled trial. Patient Education and Counseling 101:9, pages 1611-1619.
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Wenche Listøl, Hildegunn Høberg-Vetti, Geir Egil Eide & Cathrine Bjorvatn. (2017) Anxiety and depression symptoms among women attending group-based patient education courses for hereditary breast and ovarian cancer. Hereditary Cancer in Clinical Practice 15:1.
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Barbara A. Athens, Samantha L. Caldwell, Kendall L. Umstead, Philip D. Connors, Ethan Brenna & Barbara B. Biesecker. (2017) A Systematic Review of Randomized Controlled Trials to Assess Outcomes of Genetic Counseling. Journal of Genetic Counseling 26:5, pages 902-933.
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Anne Brédart, Jean-Luc Kop, Antoine De Pauw, Olivier Caron, Anne Fajac, Catherine Noguès, Dominique Stoppa-Lyonnet & Sylvie Dolbeault. (2017) Effect on perceived control and psychological distress of genetic knowledge in women with breast cancer receiving a BRCA1/2 test result. The Breast 31, pages 121-127.
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Daniel David, Amfiana Gherman, Ioana Podina, Cristina Mogoaşe, Mădălina Sucală & Bogdan Voinescu. (2016) The Added Value of CBT in the Genetic Counseling Process: Concept Development, State of the Art and New Directions. Journal of Rational-Emotive & Cognitive-Behavior Therapy 34:4, pages 310-331.
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Eveline de Geus, Willem Eijzenga, Fred H. Menko, Rolf H. Sijmons, Hanneke C. J. M. de Haes, Cora M. Aalfs & Ellen M. A. Smets. (2016) Design and Feasibility of an Intervention to Support Cancer Genetic Counselees in Informing their At-Risk Relatives. Journal of Genetic Counseling 25:6, pages 1179-1187.
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Vigdis Stefansdottir, Oskar Th. Johannsson, Heather Skirton & Jon J. Jonsson. (2016) Counsellee’s experience of cancer genetic counselling with pedigrees that automatically incorporate genealogical and cancer database information. Journal of Community Genetics 7:3, pages 229-235.
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Álvaro Mendes, Milena Paneque, Liliana Sousa, Angus Clarke & Jorge Sequeiros. (2015) How communication of genetic information within the family is addressed in genetic counselling: a systematic review of research evidence. European Journal of Human Genetics 24:3, pages 315-325.
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Laura Senier, Michael Shields, Rachael Lee, Lauren Nicoll, Danielle Falzon & Elyssa Wiecek. (2015) Community-Based Family Health History Education: The Role of State Health Agencies in Engaging Medically Underserved Populations in Understanding Genomics and Risk of Chronic Disease. Healthcare 3:4, pages 995-1017.
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Cristina Rossi Giacomazzi, Juliana Giacomazzi, Cristina B.O. Netto, Patricia Santos-Silva, Simone Geiger Selistre, Ana Luiza Maia, Viviane Ziebell de Oliveira, Suzi Alves Camey, José Roberto Goldim & Patricia Ashton-Prolla. (2015) Pediatric cancer and Li-Fraumeni/Li-Fraumeni-like syndromes: a review for the pediatrician. Revista da Associação Médica Brasileira 61:3, pages 282-289.
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Chris Jacobs, Caroline Dancyger, Jonathan A Smith & Susan Michie. (2014) Accuracy of recall of information about a cancer-predisposing BRCA1/2 gene mutation among patients and relatives. European Journal of Human Genetics 23:2, pages 147-151.
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Eveline de Geus, Cora M Aalfs, Mathilde GE Verdam, Hanneke CJM de Haes & Ellen MA Smets. (2014) Informing relatives about their hereditary or familial cancer risk: study protocol for a randomized controlled trial. Trials 15:1.
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Joann N. BodurthaDonna McClishMaria GyureRosalie CoronaAlexander H. KristVivian M. RodríguezAlisa M. MaibauerJoseph BorzellecaJr.Jr., Deborah J. BowenJohn M. Quillin. (2014) The KinFact Intervention – A Randomized Controlled Trial to Increase Family Communication About Cancer History. Journal of Women's Health 23:10, pages 806-816.
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Jeeyae Choi & Hyeoneui Kim. (2014) Effectiveness of the Interventions Utilized in Genetic Counseling. Advances in Nursing 2014, pages 1-19.
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Mbathio Dieng, Caroline G. Watts, Nadine A. Kasparian, Rachael L. Morton, Graham J. Mann & Anne E. Cust. (2014) Improving subjective perception of personal cancer risk: systematic review and meta-analysis of educational interventions for people with cancer or at high risk of cancer. Psycho-Oncology 23:6, pages 613-625.
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Susan V. Montgomery, Andrea M. Barsevick, Brian L. Egleston, Ruth Bingler, Karen Ruth, Suzanne M. Miller, John Malick, Terrence P. Cescon & Mary B. Daly. (2013) Preparing individuals to communicate genetic test results to their relatives: report of a randomized control trial. Familial Cancer 12:3, pages 537-546.
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Fred H. Menko, Cora M. Aalfs, Lidewij Henneman, Yrrah Stol, Miranda Wijdenes, Ellen Otten, Marleen M. J. Ploegmakers, Johan Legemaate, Ellen M. A. Smets, Guido M. W. R. de Wert & Aad Tibben. (2013) Informing family members of individuals with Lynch syndrome: a guideline for clinical geneticists. Familial Cancer 12:2, pages 319-324.
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Celine Lewis, Heather Skirton & Ray Jones. (2012) Development of an Evidence‐Based Information Booklet to Support Parents of Children Without a Diagnosis. Journal of Genetic Counseling 21:6, pages 854-861.
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Afsaneh Hayat Roshanai, Claudia Lampic, Charlotta Ingvoldstad, Marie Stenmark Askmalm, Chathrine Bjorvatn, Richard Rosenquist & Karin Nordin. (2011) What Information Do Cancer Genetic Counselees Prioritize?. Journal of Genetic Counseling 21:4, pages 510-526.
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Eadaoin O'Shea, Michael Coughlan, Helen Corrigan & Gabrielle McKee. (2012) Evaluation of a nurse-led haemophilia counselling service. British Journal of Nursing 21:14, pages 864-870.
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Kesha J. Buster, Zhiying You, Mona Fouad & Craig Elmets. (2012) Skin cancer risk perceptions: A comparison across ethnicity, age, education, gender, and income. Journal of the American Academy of Dermatology 66:5, pages 771-779.
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Jennifer S Hilgart, Bernadette Coles & Rachel Iredale. (2012) Cancer genetic risk assessment for individuals at risk of familial breast cancer. Cochrane Database of Systematic Reviews 2022:1.
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Marijke R Wevers, Margreet GEM Ausems, Senno Verhoef, Eveline MA Bleiker, Daniela EE Hahn, Frans BL Hogervorst, Rob B van der Luijt, Heiddis B Valdimarsdottir, Richard van Hillegersberg, Emiel JTh Rutgers & Neil K Aaronson. (2011) Behavioral and psychosocial effects of rapid genetic counseling and testing in newly diagnosed breast cancer patients: Design of a multicenter randomized clinical trial. BMC Cancer 11:1.
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Arwen H. Pieterse, Margreet G.E.M. Ausems, Peter Spreeuwenberg & Sandra van Dulmen. (2011) Longer-term influence of breast cancer genetic counseling on cognitions and distress: Smaller benefits for affected versus unaffected women. Patient Education and Counseling 85:3, pages 425-431.
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