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Annals of Medicine Volume 53, 2021 - Issue 1
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Psychiatry

The reported effects of the COVID-19 pandemic on people with intellectual disability and their carers: a scoping review

Owen Doodya Department of Nursing and Midwifery, Health Research Institute, University of Limerick, Limerick, IrelandCorrespondence[email protected]
&
Paul M. Keenanb School of Nursing and Midwifery, Trinity College Dublin, Dublin, Ireland
Pages 786-804 | Received 29 Jan 2021, Accepted 23 Apr 2021, Published online: 10 Jun 2021

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Sarah Lawrason, Zach Manley, Arielle Lomness & Rachelle Hole. (2023) Remote support for individuals with intellectual disabilities living independently: a scoping review. International Journal of Developmental Disabilities 0:0, pages 1-18.
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Paul Michael Keenan & Owen Doody. (2023) An update of the reported effects of the COVID-19 pandemic on person with intellectual disability and their carers: a scoping review. Annals of Medicine 55:1.
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Moniek A. C. Voermans, Maria C. den Boer, Ton Wilthagen & Petri J. C. M. Embregts. (2023) Long-term social restrictions and lack of work activities during the COVID-19 pandemic: impact on the daily lives of people with intellectual disabilities. Disability and Rehabilitation 45:24, pages 4122-4132.
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M. C. den Boer, M. A. C. Voermans & P. J. C. M. Embregts. (2023) Vulnerable but stronger together: An interpretative phenomenological analysis of the experiences of mothers of young adults with profound intellectual and multiple disabilities during the COVID-19 pandemic. Journal of Intellectual & Developmental Disability 48:2, pages 215-223.
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Chi Kin Kwan, Michelle Hei Yan Shum, Frankie Kwan Yin Tsui, Jialiang Cui, Vincent Qi Ming Hu & Rosetti Mei Ling To. (2023) Challenges facing Hong Kong’s intellectually disabled people in using public services during the COVID-19 pandemic. Disability & Society 0:0, pages 1-21.
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Jaehee Yi, Min Ah Kim, Jina Sang & Kwynn M. Gonzalez-Pons. Caregiving Stress Experienced by Parents of Adult Children with Intellectual Disabilities During COVID-19 in Korea. Social Work in Public Health 0:0, pages 1-13.
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Articles from other publishers (36)

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Ayelet Gur, Michal Soffer, Peter D. Blanck, Gerard Quinn & Arie Rimmerman. (2023) Pre- and Post-COVID-19 Outcomes for Israelis With Intellectual and Developmental Disabilities in the Community. Intellectual and Developmental Disabilities 61:6, pages 454-467.
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Michelle Hei Yan Shum, Chi Kin Kwan, Maggie Pin Mui Yeung, Kwok Kin Fung & Joshua Chi Lam Ching. (2023) Living in a segregated community? Interaction between families and service organizations supporting people with intellectual disabilities during the COVID-19 pandemic. Journal of Social Work 23:5, pages 876-897.
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Miriam Zaagsma, Mark H. M. Koning, Karin M. Volkers, Alice P. Schippers & Geert van Hove. (2022) Supporting independently living people with intellectual disabilities: A qualitative study into professional remote support practices. British Journal of Learning Disabilities 51:3, pages 379-388.
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Xing Yu Leung, Anne Marie Kavanagh, Que Tien Quang, Marissa Shields & Zoe Aitken. (2023) A systematic review of the impact of the COVID-19 pandemic on the mental health of adolescents and young people with disabilities aged 15–29 years. BMC Public Health 23:1.
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Ciara Nestor, Pooja Sonikar, Amber Eberhardt, Aderonke S. Ajiboye, Sarah Tinker & Katie K. Green. (2023) Exploring parent-engaged developmental monitoring of young children before and during the COVID-19 pandemic, Porter Novelli Styles 2019 and 2021. Disability and Health Journal 16:3, pages 101474.
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Marion Kersten, Noud Frielink, Mathieu Weggeman & Petri Embregts. (2023) Contextual factors influencing knowledge sharing and application in the care and support for people with intellectual disabilities during the COVID ‐19 pandemic . Knowledge and Process Management 30:3, pages 229-240.
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Andrew E. Lincoln, Alicia M. Dixon-Ibarra, John P. Hanley, Ashlyn L. Smith, Kiki Martin & Alicia Bazzano. (2023) Global report on COVID-19 vaccination and reasons not to vaccinate among adults with intellectual disabilities: Results from secondary analyses of Special Olympics’ program planning. PLOS Global Public Health 3:6, pages e0001367.
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Nathaniel Scherer, Roger Banks, Melita Murko & Daniel Chisholm. (2022) Better Health, Better Lives? 10-Years on From the World Health Organization’s Declaration on the Health of Children With Intellectual Disabilities. Journal of Intellectual Disabilities 27:2, pages 501-515.
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Hannah Casey, Deirdre Desmond & Laura Coffey. (2023) Professional and Family Carers’ Perspectives on the COVID-19 Pandemic and Its Impact on Supported Decision-Making with Adults with Intellectual Disabilities: A Qualitative Online Survey. Disabilities 3:2, pages 206-216.
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Erica De La Garza, Ashley Scott, Hampus Hillerstrom, James Hendrix & Eric Rubenstein. (2023) Caregivers' concerns and supports needed to care for adults with Down syndrome. American Journal of Medical Genetics Part C: Seminars in Medical Genetics.
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F Bösebeck, H Worthmann, C Möller & C Konrad. (2023) The social, psychological, and physical impact of COVID-19 restrictions for institutionalized adults with intellectual and developmental disabilities. Journal of Intellectual Disabilities, pages 174462952311682.
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Gregg H. Rawlings & Nigel Beail. (2022) Long‐COVID in people with intellectual disabilities: A call for research of a neglected area. British Journal of Learning Disabilities 51:1, pages 91-98.
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Andrew Wormald, Eimear McGlinchey, Maureen D’Eath, Iracema Leroi, Brian Lawlor, Philip McCallion, Mary McCarron, Roger O’Sullivan & Yaohua Chen. (2023) Impact of COVID-19 Pandemic on Caregivers of People with an Intellectual Disability, in Comparison to Carers of Those with Other Disabilities and with Mental Health Issues: A Multicountry Study. International Journal of Environmental Research and Public Health 20:4, pages 3256.
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Giona Di Poi, Daniel Dukes, Ben Meuleman, Pamela Banta Lavenex, Pierre Lavenex, Anouk Papon, Michel Tran, Lina Stallmann, Noémie Treichel & Andrea C. Samson. (2023) Anxiety in families of individuals with neurodevelopmental conditions in the early months of the COVID-19 pandemic in Switzerland. Frontiers in Education 8.
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Haruo Fujino & Minori Itai. (2022) Disinfection behavior for COVID-19 in individuals with Down syndrome and caregivers’ distress in Japan: a cross-sectional retrospective study. Journal of Developmental and Physical Disabilities 35:1, pages 81-96.
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Laura Vromans, Maria C. den Boer, Noud Frielink & Petri J. C. M. Embregts. (2023) The Experiences of Outreach Support Staff Working with People with Mild Intellectual Disabilities during Different Stages of the COVID-19 Pandemic in the Netherlands: A Qualitative Study. International Journal of Environmental Research and Public Health 20:2, pages 1515.
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Victoria L. Boggiano & Timothy P. Daaleman. 2023. Chronic Illness Care. Chronic Illness Care 321 334 .
Jordan B. Wagner, Marc J. Tassé & Gili Ornan. (2022) Implementation of remote support services: Pre‐COVID ‐19 . Journal of Policy and Practice in Intellectual Disabilities 19:4, pages 340-349.
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S. Amatori, D. Sisti, F. Perroni, G. Brandi, M. B. L. Rocchi & E. Gobbi. (2022) Physical activity, sedentary behaviour and screen time among youths with Down syndrome during the COVID‐19 pandemic. Journal of Intellectual Disability Research 66:12, pages 903-912.
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Miriam Zaagsma, Mark H. M. Koning, Karin M. Volkers, Alice P. Schippers & Geert van Hove. (2022) ‘It really is quite a different ballgame’. A qualitative study into the work experiences of remote support professionals. Journal of Applied Research in Intellectual Disabilities 35:5, pages 1153-1161.
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J. K. Lake, T. Volpe, L. St. John, A. Thakur, L. Steel, A. Baskin, A. Durbin, M. A. Chacra & Y. Lunsky. (2022) Mental health and COVID‐19: The impact of a virtual course for family caregivers of adults with intellectual and developmental disabilities. Journal of Intellectual Disability Research 66:8-9, pages 677-689.
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