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Original Articles

The experience of attending a lay-led, chronic disease self-management programme from the perspective of participants with multiple sclerosis

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Pages 1167-1180 | Received 05 Dec 2007, Accepted 06 Mar 2008, Published online: 31 Oct 2008

Keep up to date with the latest research on this topic with citation updates for this article.

Read on this site (7)

Sorayya Askari, Carly Pappas, Caitlin De Smit, Emma Jackson, Elaina King, Dorothy Kessler & Marcia Finlayson. (2023) Comparison of goals set by people with multiple sclerosis during two fatigue management interventions. Scandinavian Journal of Occupational Therapy 30:5, pages 684-692.
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Hagit Harel-Katz, Tamar Adar, Uzi Milman & Eli Carmeli. (2021) Relationship between Occupational Identity Post-Stroke and Outcomes of a Self-Management Participation-Focused Intervention: A Preliminary Investigation. Occupational Therapy In Health Care 35:2, pages 198-216.
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Stephen Hughes, Sophie Lewis, Karen Willis, Anne Rogers, Sally Wyke & Lorraine Smith. (2020) Goal setting in group programmes for long-term condition self-management support: experiences of patients and healthcare professionals. Psychology & Health 35:1, pages 70-86.
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Joanna K. Anderson, Andy Turner & Wendy Clyne. (2017) Development and feasibility of the Help to Overcome Problems Effectively (HOPE) self-management intervention for people living with multiple sclerosis. Disability and Rehabilitation 39:11, pages 1114-1121.
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Stephanie A. Lenzen, Ramon Daniëls, Marloes A. van Bokhoven, Trudy van der Weijden & Anna Beurskens. (2015) Setting goals in chronic care: Shared decision making as self-management support by the family physician. European Journal of General Practice 21:2, pages 1-7.
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Laura Dennison, Rona Moss-Morris, Lucy Yardley, Sarah Kirby & Trudie Chalder. (2013) Change and processes of change within interventions to promote adjustment to multiple sclerosis: Learning from patient experiences. Psychology & Health 28:9, pages 973-992.
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Robert C. Hirsche, Beverly Williams, Allyson Jones & Patricia Manns. (2011) Chronic disease self-management for individuals with stroke, multiple sclerosis and spinal cord injury. Disability and Rehabilitation 33:13-14, pages 1136-1146.
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Articles from other publishers (25)

Andrea Marjorie Stennett, Lorraine H. De Souza & Meriel Norris. (2021) Flipping the ICF: Exploring the Interplay of Theory and the Lived Experience to Reconsider Physical Activity in Community-Dwelling People With Multiple Sclerosis. Frontiers in Rehabilitation Sciences 2.
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Míde Power, Nora Arafa, Anke Wenz & Geraldine Foley. (2021) Perceptions of fatigue and fatigue management interventions among people with multiple sclerosis: a systematic literature review and narrative synthesis. International Journal of Therapy and Rehabilitation 28:6, pages 1-21.
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Rosario B. Jaime-Lara, Brittany C. Koons, Lea Ann Matura, Nancy A. Hodgson & Barbara Riegel. (2020) A Qualitative Metasynthesis of the Experience of Fatigue Across Five Chronic Conditions. Journal of Pain and Symptom Management 59:6, pages 1320-1343.
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Marian Wilson & Michele R. Shaw. 2020. Alternative Pain Management. Alternative Pain Management 146 167 .
A Lorthios-Guilledroit, J Filiatrault & L Richard. (2019) What are the factors associated with the implementation of a peer-led health promotion program? Insights from a multiple-case study. Health Education Research 34:6, pages 578-591.
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Hilda Mulligan, Amanda Wilkinson, Diana Chen, Carlijn Nijhof, Nicole Kwan, Ash Lindup & Sean Dalton. (2019) Components of community rehabilitation programme for adults with chronic conditions: A systematic review. International Journal of Nursing Studies 97, pages 114-129.
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Linda Clare, Julia C. Teale, Gill Toms, Aleksandra Kudlicka, Isobel Evans, Sharon Abrahams, Laura H. Goldstein, John V. Hindle, Aileen K. Ho, Marjan Jahanshahi, Dawn Langdon, Robin Morris, Julie S. Snowden, Rhys Davies, Ivana Markova, Monica Busse & Jo Thompson-Coon. (2019) Cognitive rehabilitation, self-management, psychotherapeutic and caregiver support interventions in progressive neurodegenerative conditions: A scoping review. NeuroRehabilitation 43:4, pages 443-471.
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Agathe Lorthios-Guilledroit, Lucie Richard & Johanne Filiatrault. (2018) Factors associated with the implementation of community-based peer-led health promotion programs: A scoping review. Evaluation and Program Planning 68, pages 19-33.
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Stephanie Anna Lenzen, Ramon Daniëls, Marloes Amantia van Bokhoven, Trudy van der Weijden & Anna Beurskens. (2017) Disentangling self-management goal setting and action planning: A scoping review. PLOS ONE 12:11, pages e0188822.
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Marian Wilson & Michele R. Shaw. (2017) Participant Perspectives on Benefits and Challenges of Engaging in an Online Pain Self-Management Program. International Journal of Healthcare Information Systems and Informatics 12:4, pages 52-67.
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Dagmara Bossy, Ingrid Ruud Knutsen, Anne Rogers & Christina Foss. (2017) Group affiliation in self-management: support or threat to identity?. Health Expectations 20:1, pages 159-170.
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Una Stenberg, Mette Haaland-Øverby, Kari Fredriksen, Karl Fredrik Westermann & Toril Kvisvik. (2016) A scoping review of the literature on benefits and challenges of participating in patient education programs aimed at promoting self-management for people living with chronic illness. Patient Education and Counseling 99:11, pages 1759-1771.
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Kate Young. (2016) Travelling with a stoma: a literature review. Gastrointestinal Nursing 14:8, pages 21-28.
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Elizabeth M. Wallack, Hailey D. Wiseman & Michelle Ploughman. (2016) Healthy Aging from the Perspectives of 683 Older People with Multiple Sclerosis. Multiple Sclerosis International 2016, pages 1-10.
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Paul Galdas, Zoe Darwin, Jennifer Fell, Lisa Kidd, Peter Bower, Christian Blickem, Kerri McPherson, Kate Hunt, Simon Gilbody & Gerry Richardson. (2015) A systematic review and metaethnography to identify how effective, cost-effective, accessible and acceptable self-management support interventions are for men with long-term conditions (SELF-MAN). Health Services and Delivery Research 3:34, pages 1-302.
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Masomeh Hemmati Maslakpak & Zahra Raiesi. (2014) Effect of a Self-Management and Follow-Up Program on Self-Efficacy in Patients With Multiple Sclerosis: A Randomized Clinical Trial. Nursing and Midwifery Studies 3:4.
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Paul Galdas, Zoe Darwin, Lisa Kidd, Christian Blickem, Kerri McPherson, Kate Hunt, Peter Bower, Simon Gilbody & Gerry Richardson. (2014) The accessibility and acceptability of self-management support interventions for men with long term conditions: a systematic review and meta-synthesis of qualitative studies. BMC Public Health 14:1.
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Åsa Audulv, Tanya Packer & Joan Versnel. (2014) Identifying gaps in knowledge: A map of the qualitative literature concerning life with a neurological condition. Chronic Illness 10:3, pages 192-243.
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Lotte Nygaard Andersen, Maria Kohberg, Lene Gram Herborg, Karen Søgaard & Kirsten Kaya Roessler. (2014) “Here we're all in the same boat” - a qualitative study of group based rehabilitation for sick-listed citizens with chronic pain. Scandinavian Journal of Psychology 55:4, pages 333-342.
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Setareh Ghahari, Lana S. Khoshbin & Susan J. Forwell. (2014) The Multiple Sclerosis Self-Management Scale. International Journal of MS Care 16:2, pages 61-67.
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Sue LillymanNatalie Farquharson. (2013) Self-care management education models in primary care. British Journal of Community Nursing 18:11, pages 556-560.
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Gayathri Embuldeniya, Paula Veinot, Emma Bell, Mary Bell, Joyce Nyhof-Young, Joanna E.M. Sale & Nicky Britten. (2013) The experience and impact of chronic disease peer support interventions: A qualitative synthesis. Patient Education and Counseling 92:1, pages 3-12.
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Hema Chaplin, Jill Hazan & Patricia Wilson. (2012) Self-management for people with long-term neurological conditions. British Journal of Community Nursing 17:6, pages 250-257.
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Justin B. Dickerson, Matthew Lee Smith, Diane M. Dowdy, Ashley McKinley, SangNam Ahn & Marcia G. Ory. (2011) Advanced Practice Nurses' Perspectives on the Use of Health Optimization Strategies for Managing Chronic Disease Among Older Adults in Different Care Settings: Pushing the Boundaries of Self-Management Programs. Geriatric Nursing 32:6, pages 429-438.
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Hilda Mulligan, Gregory Arps, Natasha Bancroft, Rosanne Mountfort & Amanda Polkinghorne. (2011) ‘Living Well with Parkinson’s’: evaluation of a programme to promote self-management. Journal of Nursing and Healthcare of Chronic Illness 3:3, pages 222-233.
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