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Articles

Day-to-day living with severe chronic obstructive pulmonary disease: Towards a family-based approach to the illness impacts

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Pages 967-983 | Received 18 Sep 2013, Accepted 04 Mar 2014, Published online: 03 Apr 2014

Keep up to date with the latest research on this topic with citation updates for this article.

Read on this site (6)

Camilla F Christiansen, Anders Løkke, Vibeke Bregnballe, Thomas Skovhus Prior & Ingeborg Farver-Vestergaard. (2023) COPD-Related Anxiety: A Systematic Review of Patient Perspectives. International Journal of Chronic Obstructive Pulmonary Disease 18, pages 1031-1046.
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Anne-Marie Selzler, Dina Brooks, Alda Marques, Sara Souto-Miranda, Roger Goldstein & Joana Cruz. (2023) Assessing caregiving experience in COPD: content validity of the Zarit Burden Interview in Canadian and Portuguese caregivers. Disability and Rehabilitation 45:17, pages 2826-2836.
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Louise Sharpe, M. Michalowski, B. Richmond, R.E. Menzies & J. Shaw. (2023) Fear of progression in chronic illnesses other than cancer: a systematic review and meta-analysis of a transdiagnostic construct. Health Psychology Review 17:2, pages 301-320.
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Nádia Hipólito, Adriana Ruivo, Sara Martins, Beatriz Dinis, Sofia Flora, Alda Marques, Dina Brooks, Cândida G. Silva, Filipa Januário, Sónia Silva & Joana Cruz. (2020) Relationship between Distress Related to Caregiver Burden and Physical Activity in Informal Caregivers of Patients with COPD. COPD: Journal of Chronic Obstructive Pulmonary Disease 17:5, pages 562-567.
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M. Rebecca Genoe & Chantelle Zimmer. (2017) Breathing Easier? The Contradictory Experience of Leisure Among People Living with COPD. Activities, Adaptation & Aging 41:2, pages 138-160.
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Ad A Kaptein, Maarten J Fischer & Margreet Scharloo. (2014) Self-management in patients with COPD: theoretical context, content, outcomes, and integration into clinical care. International Journal of Chronic Obstructive Pulmonary Disease 9, pages 907-917.
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Nan Zhang, Zheng Tian, Xinyi Liu, Xi Yu & Lan Wang. (2023) Burden, coping and resilience among caregivers for patients with chronic obstructive pulmonary disease: An integrative review. Journal of Clinical Nursing.
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Susan A Carlson, Anne G Wheaton, Yong Liu, Latetia V Moore, Paul I Eke, Janet B Croft, Kurt J Greenlund & Craig W Thomas. (2021) Associations of self-reported chronic obstructive pulmonary disease with indicators of economic instability and stress – 16 states, 2017. Chronic Illness 19:2, pages 327-338.
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Carissa D’Aniello & Rachel Tambling. (2022) Caregiver Perception of SUD Treatment Productiveness. The Family Journal 31:1, pages 147-156.
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Diana Ferreira, Slavica Kochovska, Aaron Honson, Jane Phillips & David Currow. (2022) Patients’ and their caregivers’ experiences with regular, low-dose, sustained-release morphine for chronic breathlessness associated with COPD: a qualitative study. BMJ Open Respiratory Research 9:1, pages e001210.
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Louise Elizabeth Bolton, Jane Seymour & Clare Gardiner. (2022) Existential suffering in the day to day lives of those living with palliative care needs arising from chronic obstructive pulmonary disease (COPD): A systematic integrative literature review. Palliative Medicine 36:4, pages 567-580.
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Seyyed Abolfazl Vagharseyyedin, Mahdi Arbabi, Hossein Rahimi & Sayyed Gholamreza Mortazavi Moghaddam. (2022) Effects of a Caregiver Educational Program on Interactions between Family Caregivers and Patients with Advanced COPD. Home Healthcare Now 40:2, pages 75-81.
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Roberta Frontini, Helena Sousa, Óscar Ribeiro & Daniela Figueiredo. (2020) “What do we fear the most?”: Exploring fears and concerns of patients, family members and dyads in end‐stage renal disease. Scandinavian Journal of Caring Sciences 35:4, pages 1216-1225.
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Jiaxin Gu, Chaojuan Yang, Ke Zhang & Qi Zhang. (2021) Mediating role of psychological capital in the relationship between social support and treatment burden among older patients with chronic obstructive pulmonary disease. Geriatric Nursing 42:5, pages 1172-1177.
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Hannele Siltanen, Tiina Aine, Heini Huhtala, Marja Kaunonen & Eija Paavilainen. (2021) The information needs of people with COPD—The holistic approach with special reference to gender and time since diagnosis. Nursing Open 8:5, pages 2498-2508.
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Annamaria Bagnasco, Francesca Rosa, Nicoletta Dasso, Giuseppe Aleo, Gianluca Catania, Milko Zanini, Gennaro Rocco, Carlo Turci, Luca Ghirotto, Mark Hayter & Loredana Sasso. (2021) Caring for patients at home after acute exacerbation of chronic obstructive pulmonary disease: A phenomenological study of family caregivers’ experiences. Journal of Clinical Nursing 30:15-16, pages 2246-2257.
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Mahdi Arbabi, Hossein Rahimi, Nasim Mehrpooya, Seyyed Abolfazl Vagharseyyedin & Sayyed Gholamreza Mortazavi Moghaddam. (2021) The Effects of a Multidisciplinary Supportive Program on Caregiver Burden among the Family Caregivers of Patients with Advanced Chronic Obstructive Pulmonary Disease: A Randomized Controlled Field Trial. Journal of Advances in Medical and Biomedical Research 29:135, pages 206-214.
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Helena Sousa, Oscar Ribeiro & Daniela Figueiredo. (2021) End‐stage renal disease is not yours, is not mine, is OURS : Exploring couples lived experiences through dyadic interviews . Hemodialysis International 25:3, pages 361-371.
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Anand S. Iyer & Dina Khateeb. 2021. Palliative Care in Lung Disease. Palliative Care in Lung Disease 165 187 .
Diana H. Ferreira, Slavica Kochovska, Aaron Honson, Jane L. Phillips & David C. Currow. (2020) Two faces of the same coin: a qualitative study of patients’ and carers’ coexistence with chronic breathlessness associated with chronic obstructive pulmonary disease (COPD). BMC Palliative Care 19:1.
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Kerry Micklewright & Morag Farquhar. (2020) Does the carer support needs assessment tool cover the established support needs of carers of patients with chronic obstructive pulmonary disease? A systematic literature search and narrative review. Palliative Medicine 34:10, pages 1305-1315.
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Claudia Liliana Valencia-Rico & Consuelo Burbano-López. (2020) Vivir con una enfermedad pulmonar obstructiva crónica: una historia condicionada por los síntomas. Enfermería Clínica 30:5, pages 309-316.
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David C. Currow, Sungwon Chang, Helen K. Reddel, Slavica Kochovska, Diana Ferreira, Irina Kinchin, Miriam Johnson & Magnus Ekström. (2020) Breathlessness, Anxiety, Depression, and Function–The BAD-F Study: A Cross-Sectional and Population Prevalence Study in Adults. Journal of Pain and Symptom Management 59:2, pages 197-205.e2.
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Pablo Sánchez-García, David Conde-Caballero, Carmen Cipriano-Crespo & Lorenzo Mariano-Juárez. 2020. Noninvasive Ventilation Technologies and Healthcare for Geriatric Patients. Noninvasive Ventilation Technologies and Healthcare for Geriatric Patients 154 179 .
Anne Dreyer & Anita Strom. (2019) Involving relatives in consultations for patients with long-term illnesses: Nurses and physicians’ experiences. Nursing Ethics 26:7-8, pages 2124-2134.
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Hannele Siltanen, Virpi Jylhä, Arja Holopainen & Eija Paavilainen. (2019) Family members’ experiences and expectations of self-management counseling while caring for a person with chronic obstructive pulmonary disease: a systematic review of qualitative evidence. JBI Database of Systematic Reviews and Implementation Reports 17:11, pages 2214-2247.
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Tania Aase Dræbel, Bettan Bagger, Kitt Vestergaard & Kathrine Krageskov Eriksen. (2019) Ulige muligheder for håndtering af KOL i hverdagen. Tidsskrift for velferdsforskning 22:1, pages 43-58.
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Nienke Nakken, Martijn A. Spruit, Esther H. A. van den Bogaart, Rik Crutzen, Jean W. M. Muris, Emiel F. M. Wouters & Daisy J. A. Janssen. (2019) Identifying causes of perceptual differences in problematic activities of daily life between patients with COPD and proxies: A qualitative study. Australian Occupational Therapy Journal 66:1, pages 44-51.
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Arjun Bhadhuri, Hareth Al-Janabi, Sue Jowett & Kate Jolly. (2019) Incorporating Household Spillovers in Cost Utility Analysis: A Case Study Using Behavior Change in COPD. International Journal of Technology Assessment in Health Care 35:03, pages 212-220.
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Tanja Sofie Hansen, Vibeke Nørholm & Anne Brødsgaard. (2018) Ensomt ansvar for pårørende til patientermed KOL. Klinisk Sygepleje 32:4, pages 311-324.
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Ellen Ingrid Schafheutle, Tom Fegan & Darren M. Ashcroft. (2018) Exploring medicines management by COPD patients and their social networks after hospital discharge. International Journal of Clinical Pharmacy 40:5, pages 1019-1029.
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Sarah Houben-Wilke, Ingrid M. Augustin, Jan H. Vercoulen, Dirk van Ranst, Eline bij de Vaate, Johan B. Wempe, Martijn A. Spruit, Emiel F.M. Wouters & Frits M.E. Franssen. (2018) COPD stands for complex obstructive pulmonary disease. European Respiratory Review 27:148, pages 180027.
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Miriam J. Johnson & David Gozal. (2018) Vicarious breathlessness: an inferential perceptual learned transposition process that may not be inconsequential to either patient or caregiver. European Respiratory Journal 51:4, pages 1800306.
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Ann Hutchinson, Natalie Barclay-Klingle, Kathleen Galvin & Miriam J. Johnson. (2018) Living with breathlessness: a systematic literature review and qualitative synthesis. European Respiratory Journal 51:2, pages 1701477.
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Morag Farquhar. (2017) Assessing carer needs in chronic obstructive pulmonary disease. Chronic Respiratory Disease 15:1, pages 26-35.
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Ingrid Charlotte Andersen, Thora Grothe Thomsen, Poul Bruun, Uffe Bødtger & Lise Hounsgaard. (2017) Patients' and their family members' experiences of participation in care following an acute exacerbation in chronic obstructive pulmonary disease: A phenomenological-hermeneutic study. Journal of Clinical Nursing 26:23-24, pages 4877-4889.
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Joana Cruz, Alda Marques, Ana Machado, Sachi O'Hoski, Roger Goldstein & Dina Brooks. (2017) Informal caregiving in COPD: A systematic review of instruments and their measurement properties. Respiratory Medicine 128, pages 13-27.
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Ross Thomson, Jennifer L Martin & Sarah Sharples. (2015) The experience of couples being given an oxygen concentrator to use at home: A longitudinal interpretative phenomenological analysis. Journal of Health Psychology 22:6, pages 798-810.
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Francesca Rosa, Annamaria Bagnasco, Giuseppe Aleo, Sally Kendall & Loredana Sasso. (2017) Resilience as a concept for understanding family caregiving of adults with Chronic Obstructive Pulmonary Disease (COPD): an integrative review. Nursing Open 4:2, pages 61-75.
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Joana Cruz, Alda Marques & Daniela Figueiredo. (2017) Impacts of COPD on family carers and supportive interventions: a narrative review. Health & Social Care in the Community 25:1, pages 11-25.
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Marco Pereira, Ana Margarida Almeida & Helder Caixinha. (2016) Exercit@rt mobile: Monitoring of pulmonar rehabilitation in COPD. Exercit@rt mobile: Monitoring of pulmonar rehabilitation in COPD.
Morag Farquhar. 2016. Palliative Care in Respiratory Disease. Palliative Care in Respiratory Disease 51 69 .
Malin Axelsson, Lena Persson & Birgitta Höglund-Nielsen. (2016) Living in the Wake of Chronic Obstructive Pulmonary Disease and Long-Term Oxygen Therapy. Open Journal of Nursing 06:05, pages 376-385.
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Ana Margarida Pisco Almeida, Alda Marques, Hélder Caixinha, Daniela Figueiredo, Sílvio Dias, Paulo Lopes, Joana Cruz, Cristina Jácome & Raquel Gabriel. 2016. Encyclopedia of E-Health and Telemedicine. Encyclopedia of E-Health and Telemedicine 179 192 .
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Nienke Nakken, Daisy J.A. Janssen, Esther H.A. van den Bogaart, Emiel F.M. Wouters, Frits M.E. Franssen, Jan H. Vercoulen & Martijn A. Spruit. (2015) Informal caregivers of patients with COPD: Home Sweet Home?. European Respiratory Review 24:137, pages 498-504.
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Joaquín Salvador Lima-Rodríguez, Marta Lima-Serrano & Isabel Domínguez-Sánchez. (2015) Psychometric properties of an instrument to measure family disease management. International Journal of Clinical and Health Psychology 15:3, pages 253-264.
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Alda Marques, Cristina Jácome, Joana Cruz, Raquel Gabriel, Dina Brooks & Daniela Figueiredo. (2015) Family-Based Psychosocial Support and Education as Part of Pulmonary Rehabilitation in COPD. Chest 147:3, pages 662-672.
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