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Articles

Understanding haemophilia caregiver burden: does appraisal buffer the impact of haemophilia on caregivers over time?

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Pages 1516-1530 | Received 12 Nov 2019, Accepted 24 Apr 2020, Published online: 01 Jun 2020

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Carolyn E. Schwartz, Brian D. Stucky & Roland B. Stark. (2021) Expanding the purview of wellness indicators: validating a new measure that includes attitudes, behaviors, and perspectives. Health Psychology and Behavioral Medicine 9:1, pages 1031-1052.
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Valérie Chamouard, Julie Freyssenge, Gaetan Duport, Fabienne Volot, Rémi Varin, Nicolas Giraud, Yesim Dargaud & Laurie Fraticelli. (2023) Evaluation of the care pathway in the context of the dispensing of emicizumab (Hemlibra) in community and hospital pharmacies in France: A patient satisfaction survey. Haemophilia 29:6, pages 1490-1498.
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Carolyn E. Schwartz, Roland B. Stark, Katrina Borowiec & Bruce D. Rapkin. (2022) Drivers of caregiver impact in Duchenne muscular dystrophy: a cohort study. Journal of Patient-Reported Outcomes 6:1.
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