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Chandros Hull, RichardR. Sharp, JeffreyR. Botkin, Mark Brown, Mark Hughes, Jeremy Sugarman, Debra Schwinn, Pamela Sankar, Dragana Bolcic-Jankovic, BrianR. Clarridge & BenjaminS. Wilfond. (2008) Patients' Views on Identifiability of Samples and Informed Consent for Genetic Research. The American Journal of Bioethics 8:10, pages 62-70.
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Jinger G. Hoop. (2008) Ethical Considerations in Psychiatric Genetics. Harvard Review of Psychiatry 16:6, pages 322-338.
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Zeinab Mohammed, Fatma Abdelgawad, Mamoun Ahram, Maha E Ibrahim, Alya Elgamri, Ehsan Gamel, Latifa Adarmouch, Karima El Rhazi, Samar Abd ElHafeez & Henry Silverman. (2023) Opinions and attitudes of research ethics committees in Arab countries in the Middle East and North African region toward ethical issues involving biobank research. Research Ethics.
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María Consuelo Miranda Montoya, Jackeline Bravo Chamorro, Luz Marina Leegstra, Deyanira Duque Ortiz & Lauren Maxwell. (2022) A blank check or a global public good? A qualitative study of how ethics review committee members in Colombia weigh the risks and benefits of broad consent for data and sample sharing during a pandemic. PLOS Global Public Health 2:6, pages e0000364.
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Ghiath AlahmadKris Dierickx. (2018) Ethics of Research Biobanks: Islamic Perspectives. Biopreservation and Biobanking 16:3, pages 179-185.
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Lisa Devereux, Heather Thorne & Stephen B. Fox. 2016. Molecular Pathology in Cancer Research. Molecular Pathology in Cancer Research
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Ruqayyah Abdul-KarimBenjamin E. Berkman, David WendlerAnnette Rid, Javed KhanTom Badgett & Sara Chandros Hull. (2013) Disclosure of Incidental Findings From Next-Generation Sequencing in Pediatric Genomic Research. Pediatrics 131:3, pages 564-571.
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Michael A Igbe & Clement A Adebamowo. (2012) Qualitative study of knowledge and attitudes to biobanking among lay persons in Nigeria. BMC Medical Ethics 13:1.
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Justin Lowenthal, Scott Lipnick, Mahendra Rao & Sara Chandros Hull. (2012) Specimen Collection for Induced Pluripotent Stem Cell Research: Harmonizing the Approach to Informed Consent. Stem Cells Translational Medicine 1:5, pages 409-421.
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Christopher A. Cassa, Sarah K. Savage, Patrick L. Taylor, Robert C. Green, Amy L. McGuire & Kenneth D. Mandl. (2012) Disclosing pathogenic genetic variants to research participants: Quantifying an emerging ethical responsibility. Genome Research 22:3, pages 421-428.
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GEORGE SILBERMAN & KATHERINE L. KAHN. (2011) Burdens on Research Imposed by Institutional Review Boards: The State of the Evidence and Its Implications for Regulatory Reform. Milbank Quarterly 89:4, pages 599-627.
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Lura Abbott & Christine Grady. (2011) A Systematic Review of the Empirical Literature Evaluating IRBs: What We Know and What We Still Need to Learn. Journal of Empirical Research on Human Research Ethics 6:1, pages 3-19.
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Amy A. Lemke, Susan B. Trinidad, Karen L. Edwards, Helene Starks & Georgia L. Wiesner. (2010) Attitudes toward Genetic Research Review: Results from a National Survey of Professionals Involved in Human Subjects Protection. Journal of Empirical Research on Human Research Ethics 5:1, pages 83-91.
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Barry BozemanCatherine SladePaul Hirsch. (2009) Understanding Bureaucracy in Health Science Ethics: Toward a Better Institutional Review Board. American Journal of Public Health 99:9, pages 1549-1556.
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Holly A. Taylor. (2009) Inclusion of Women, Minorities, and Children in Clinical Trials: Opinions of Research Ethics Board Administrators. Journal of Empirical Research on Human Research Ethics 4:2, pages 65-73.
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Jinger G. HoopLaura Weiss RobertsKatherine A. Green Hammond. (2009) Genetic Testing of Stored Biological Samples: Views of 570 U.S. Workers. Genetic Testing and Molecular Biomarkers 13:3, pages 331-337.
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Marshall B. Kapp. (2012) Biobanking Human Biological Materials. Pharmaceutical Medicine 22:2, pages 75-84.
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Catherine A. McCarty, Anuradha Nair, Diane M. Austin & Philip F. Giampietro. (2007) Informed Consent and Subject Motivation to Participate in a Large, Population-Based Genomics Study: The Marshfield Clinic Personalized Medicine Research Project. Community Genetics 10:1, pages 2-9.
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Miguel Ruiz-Canela & Mª Jesús Baena-Molina. (2006) Quality of consent forms in pharmacogenetic studies: a survey of research ethics committees in Spain. Personalized Medicine 3:3, pages 231-237.
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Georgine S. Burke. (2005) Looking into the Institutional Review Board: Observations from Both Sides of the Table. The Journal of Nutrition 135:4, pages 921-924.
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Ellen Wright Clayton. (2021) Informed Consent and Biobanks. Journal of Law, Medicine & Ethics 33:1, pages 15-21.
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Anne Cambon-Thomsen. (2004) The social and ethical issues of post-genomic human biobanks. Nature Reviews Genetics 5:11, pages 866-873.
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Eric M. Meslin & Kimberly A. Quaid. (2004) Ethical issues in the collection, storage, and research use of human biological materials. Journal of Laboratory and Clinical Medicine 144:5, pages 229-234.
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María Consuelo Miranda Montoya, Jackeline Bravo Chamorro, Luz Marina Leegstra, Deyanira Duque Ortiz & Lauren Maxwell. (2021) How Do Ethics Review Committee Members Weigh the Risks and Benefits of Broad Consent for Data and Sample Sharing During a Pandemic? A Cross-Sectional, Qualitative Study in Colombia. SSRN Electronic Journal.
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