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Accountability in Research
Ethics, Integrity and Policy
Volume 18, 2011 - Issue 3: Impact of Genomics Research on Ethical Issues
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Original Articles

A Clinical Perspective on Ethical Issues in Genetic Testing

R. H. Sijmons M.D.Ph.D. Department of Genetics, University Medical Centre Groningen, University of Groningen, Groningen, The NetherlandsCorrespondence[email protected]
,
I. M. Van Langen M.D.Ph.D. Department of Genetics, University Medical Centre Groningen, University of Groningen, Groningen, The Netherlands
&
J. G. Sijmons MM.L.Ph.D.Ph.D. Molengraaff Institute for Private Law, Faculty of Law, Utrecht University, Utrecht, The Netherlands
Pages 148-162 | Published online: 12 May 2011

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Jeantine E. Lunshof & Ruth Chadwick. (2011) Editorial: Genetic and Genomic Research—Changing Patterns of Accountability. Accountability in Research 18:3, pages 121-131.
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Articles from other publishers (15)

Mary E. Velthuizen, Rob B. van der Luijt, Beja J. de Vries, Marco J. Koudijs, Eveline M. A. Bleiker & Margreet G. E. M. Ausems. (2021) Recontacting non-BRCA1/2 breast cancer patients for germline CHEK2 c.1100del pathogenic variant testing: uptake and patient experiences. Hereditary Cancer in Clinical Practice 19:1.
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Elizabeth Quinlan-Jones & Mark D. Kilby. 2018. Noninvasive Prenatal Testing (NIPT). Noninvasive Prenatal Testing (NIPT) 289 305 .
Paola Frati, Vittorio Fineschi, Mariantonia Di Sanzo, Raffaele La Russa, Matteo Scopetti, Filiberto M. Severi & Emanuela Turillazzi. (2017) Preimplantation and prenatal diagnosis, wrongful birth and wrongful life: a global view of bioethical and legal controversies. Human Reproduction Update 23:3, pages 338-357.
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Samantha L.P. Schilit & Arielle Schilit Nitenson. (2016) My Identical Twin Sequenced our Genome. Journal of Genetic Counseling 26:2, pages 276-278.
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Asude Durmaz & Burak Durmaz. 2016. Clinical Applications for Next-Generation Sequencing. Clinical Applications for Next-Generation Sequencing 241 258 .
Ellen Otten, Mirjam Plantinga, Erwin Birnie, Marian A. Verkerk, Anneke M. Lucassen, Adelita V. Ranchor & Irene M. Van Langen. (2014) Is there a duty to recontact in light of new genetic technologies? A systematic review of the literature. Genetics in Medicine 17:8, pages 668-678.
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Stephanie Solomon. 2015. Clinical Genomics. Clinical Genomics 403 434 .
Nathalie Egalite, Iris Jaitovich Groisman & Beatrice Godard. (2014) Genetic Counseling Practice in Next Generation Sequencing Research: Implications for the Ethical Oversight of the Informed Consent Process. Journal of Genetic Counseling 23:4, pages 661-670.
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Cheryl Shuman & Riyana Babul-Hirji. 2014. Paediatric Patient and Family-Centred Care: Ethical and Legal Issues. Paediatric Patient and Family-Centred Care: Ethical and Legal Issues 209 220 .
Carmen Ayuso, José M Millán, Marta Mancheño & Rafael Dal-Ré. (2013) Informed consent for whole-genome sequencing studies in the clinical setting. Proposed recommendations on essential content and process. European Journal of Human Genetics 21:10, pages 1054-1059.
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Gabrielle M. Christenhusz, Koenraad Devriendt & Kris Dierickx. (2013) Disclosing incidental findings in genetics contexts: A review of the empirical ethical research. European Journal of Medical Genetics 56:10, pages 529-540.
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Iris Jaitovich Groisman, Ghislaine Mathieu & Beatrice Godard. (2012) Use of next generation sequencing technologies in research and beyond: are participants with mental health disorders fully protected?. BMC Medical Ethics 13:1.
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Anne Townsend, Shelin Adam, Patricia H. Birch, Zoe Lohn, Francois Rousseau & Jan M. Friedman. (2012) “I want to know what's in Pandora's box”: Comparing stakeholder perspectives on incidental findings in clinical whole genomic sequencing. American Journal of Medical Genetics Part A 158A:10, pages 2519-2525.
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Annalisa Vetro, Katelijne Bouman, Ros Hastings, Dominic J. McMullan, Joris R. Vermeesch, Konstantin Miller, Birgit Sikkema-Raddatz, David H. Ledbetter, Orsetta Zuffardi & Conny M.A. van Ravenswaaij-Arts. (2012) The introduction of arrays in prenatal diagnosis: A special challenge. Human Mutation 33:6, pages 923-929.
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E. J. Langereis, I. E. T. van den Berg, D. J. J. Halley, B. J. H. M. Poorthuis, F. M. Vaz, J. H. J. Wokke & G. E. Linthorst. 2013. JIMD Reports – Case and Research Reports, 2012/6. JIMD Reports – Case and Research Reports, 2012/6 117 120 .

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