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Accountability in Research
Ethics, Integrity and Policy
Volume 23, 2016 - Issue 2
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Articles

Anticipated Ethics and Regulatory Challenges in PCORnet: The National Patient-Centered Clinical Research Network

, J.D., , M.D. & , M.D., M.P.H., M.A.

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Claire Hamasu, Catherine M. Burroughs, Emily Glenn & Andrea L. Ball. (2017) Mining Data in Electronic Health Record Systems: Opportunities for Librarians. Journal of Hospital Librarianship 17:4, pages 282-291.
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Tabassum Majid, Nicholas Heath, John Kim, Suzanne L. West & Susan dosReis. (2021) Integrating the patient voice into pharmacoepidemiology research on the benefits and harms of medication. Journal of Public Health 30:12, pages 2963-2969.
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Nikolas Koscielniak, Diane Jenkins, Sahar Hassani, Cathleen Buckon, Joshua S. Tucker, Susan Sienko & Carole A. Tucker. (2022) The SHOnet learning health system: Infrastructure for continuous learning in pediatric rehabilitation . Learning Health Systems 6:3.
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James Scheibner, Joanna Sleigh, Marcello Ienca & Effy Vayena. (2021) Benefits, challenges, and contributors to success for national eHealth systems implementation: a scoping review. Journal of the American Medical Informatics Association 28:9, pages 2039-2049.
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Christian Ohmann, David Moher, Maximilian Siebert, Edith Motschall & Florian Naudet. (2021) Status, use and impact of sharing individual participant data from clinical trials: a scoping review. BMJ Open 11:8, pages e049228.
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Catherine A. Panozzo. 2021. Pragmatic Randomized Clinical Trials. Pragmatic Randomized Clinical Trials 237 256 .
Caitlin E. King, Elizabeth J. Thompson, Henry P. Foote, Kanecia O. Zimmerman, Kevin D. Hill, Reid Chamberlain & Christoph P. Hornik. (2020) An evidence-based review of the use of vasoactive and inotropic medications in post-operative paediatric patients after cardiac surgery with cardiopulmonary bypass from 2000 to 2020. Cardiology in the Young 30:12, pages 1757-1771.
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Annabelle Cumyn, Adrien Barton, Roxanne Dault, Anne‐Marie Cloutier, Rosalie Jalbert & Jean‐François Ethier. (2020) Informed consent within a learning health system: A scoping review. Learning Health Systems 4:2.
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Laura M. DemberEduardo LacsonSteven M. BrunelliJesse Y. Hsu, Alfred K. CheungJohn T. DaugirdasTom GreeneCsaba P. Kovesdy, Dana C. MiskulinRavi I. ThadhaniWolfgang C. WinkelmayerSusan S. Ellenberg, Denise CifelliRosemary MadiganAmy YoungMichael AngelettiRebecca L. WingardChristina KahnAllen R. Nissenson, Franklin W. MadduxKevin C. Abbott & J. Richard Landis. (2019) The TiME Trial: A Fully Embedded, Cluster-Randomized, Pragmatic Trial of Hemodialysis Session Duration. Journal of the American Society of Nephrology 30:5, pages 890-903.
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Stuart G. Nicholls, Kelly Carroll, Jamie Brehaut, Charles Weijer, Spencer Phillips Hey, Cory E. Goldstein, Merrick Zwarenstein, Ian D. Graham, Joanne E. McKenzie, Lauralyn McIntyre, Vipul Jairath, Marion K. Campbell, Jeremy M. Grimshaw, Dean A. Fergusson & Monica Taljaard. (2018) Stakeholder views regarding ethical issues in the design and conduct of pragmatic trials: study protocol. BMC Medical Ethics 19:1.
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Luke GelinasJoel S. WeissmanHolly Fernandez LynchAvni GuptaRonen RozenblumEmily A. LargentI. Glenn Cohen. (2018) Oversight of Patient-Centered Outcomes Research: Recommendations From a Delphi Panel. Annals of Internal Medicine 169:8, pages 559.
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Joel S. Weissman, Eric G. Campbell, I. Glenn Cohen, Holly Fernandez Lynch, Emily A. Largent, Avni Gupta, Ronen Rozenblum, Melissa Abraham, Karen Spikes, Maureen Fagan & Martie Carnie. (2018) IRB Oversight of Patient-Centered Outcomes Research: A National Survey of IRB Chairpersons. Journal of Empirical Research on Human Research Ethics 13:4, pages 421-431.
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Shona Kalkman, Ghislaine J. M. W. van Thiel, Diederick E. Grobbee, Anna-Katharina Meinecke, Mira G. P. Zuidgeest & Johannes J. M. van Delden. (2016) Stakeholders’ views on the ethical challenges of pragmatic trials investigating pharmaceutical drugs. Trials 17:1.
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