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AIDS Care
Psychological and Socio-medical Aspects of AIDS/HIV
Volume 14, 2002 - Issue 4
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ORIGINAL ARTICLES

The paradox of public HIV disclosure

Pages 559-567 | Published online: 23 Sep 2008

Keep up to date with the latest research on this topic with citation updates for this article.

Read on this site (42)

Nathanael Wells, Dean Murphy, Jeanne Ellard, Steven Philpot & Garrett Prestage. (2023) Experiences of, and motivations for, disclosing HIV to social and familial networks: considering the social and relational domains of HIV disclosure. Culture, Health & Sexuality 25:11, pages 1483-1497.
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T. de Groot, R. Peters, W. Jacquet, S. Mesaki & P. Meurs. (2023) An act of agency: people with albinism in Tanzania creating change. Disability & Society 0:0, pages 1-18.
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Constance R. S Mackworth-Young, Virginia Bond & Alison Wringe. (2020) Secrets and Silence: Agency of Young Women Managing HIV Disclosure. Medical Anthropology 39:8, pages 720-734.
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Philani Mlilo, Cowen Dziva, Vuyisile Precious Moyo, Nonhlanhla Lindelwe Ndondo, Zanele Ndlovu & Nkosinathi Muyambo. (2020) “Growing up and growing old with HIV”: HIV+ adolescents’ experiences of disclosing statuses to romantic partners in Bulawayo, Zimbabwe. African Journal of AIDS Research 19:4, pages 312-322.
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Yuan-Yuan Wang, Min Dong, Qinge Zhang, Dan-Dan Xu, Jin Zhao, Chee H. Ng, Gabor S. Ungvari, Fu-Jun Jia & Yu-Tao Xiang. (2019) Suicidality and clinical correlates in Chinese men who have sex with men (MSM) with HIV infection. Psychology, Health & Medicine 24:2, pages 137-143.
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Yuan-Yuan Wang, Jin Zhao, Qinge Zhang, Yan Zhang, Baolian Bai, Chee H. Ng, Gabor S. Ungvari, Fu-Jun Jia & Yu-Tao Xiang. (2018) Prevalence of depressive syndrome and their association with demographic and clinical characteristics in Chinese HIV patients. AIDS Care 30:11, pages 1388-1392.
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Aparecida de Fatima Cordeiro Dutra, Wilma Cordova & Freddie Avant. (2018) Services, Stigma, and Discrimination: Perceptions of African Descendant Men Living with HIV/AIDS in Brazil and in the United States. Social Work in Public Health 33:4, pages 226-236.
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Smart Z Mabweazara, Clemens Ley & Lloyd L Leach. (2018) Physical activity, social support and socio-economic status amongst persons living with HIV and AIDS: a review. African Journal of AIDS Research 17:2, pages 203-212.
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Kate Cockrill & Antonia Biggs. (2018) Can stories reduce abortion stigma? Findings from a longitudinal cohort study. Culture, Health & Sexuality 20:3, pages 335-350.
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Jo Hunter-Adams, Allison Zerbe, Tamsin Philips, Zanele Rini, Landon Myer, Greg Petro & Elaine Abrams. (2017) The dimensionality of disclosure of HIV status amongst post-partum women in Cape Town, South Africa. African Journal of AIDS Research 16:2, pages 101-107.
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Heleen French, Minrie Greeff, Martha J. Watson & Colleen M. Doak. (2015) HIV stigma and disclosure experiences of people living with HIV in an urban and a rural setting. AIDS Care 27:8, pages 1042-1046.
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Njeri Kagotho & Stavroula Kyriakakis. (2015) Disclosure of HIV Serostatus and Household Well-Being in Kenya. Journal of HIV/AIDS & Social Services 14:3, pages 294-307.
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Pamela J. Surkan, Elena T. Broaddus, Abina Shrestha & Lily Thapa. (2015) Non-disclosure of widowhood in Nepal: Implications for women and their children. Global Public Health 10:3, pages 379-390.
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Loren Brener, Denton Callander, Sean Slavin & John de Wit. (2013) Experiences of HIV stigma: The role of visible symptoms, HIV centrality and community attachment for people living with HIV. AIDS Care 25:9, pages 1166-1173.
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Pride Linda. (2013) To tell or not to tell: Negotiating disclosure for people living with HIV on antiretroviral treatment in a South African setting. SAHARA-J: Journal of Social Aspects of HIV/AIDS 10:sup1, pages S17-S27.
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Cynthia Cannon Poindexter, Mark Henrickson, Christa Fouché, Derek Brown & Kay Scott. (2013) “They don't even greet you”: HIV Stigma and Diagnosis Disclosure Experienced by HIV-Positive African Immigrants and Refugees in New Zealand. Journal of HIV/AIDS & Social Services 12:1, pages 99-120.
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Erica D. Bauer. (2013) Enacting support within church communities for people living with HIV or AIDS. Mental Health, Religion & Culture 16:1, pages 100-118.
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Anita Hardon & Deborah Posel. (2012) Secrecy as embodied practice: beyond the confessional imperative. Culture, Health & Sexuality 14:sup1, pages S1-S13.
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Joe Lugalla, Stanley Yoder, Huruma Sigalla & Charles Madihi. (2012) Social context of disclosing HIV test results in Tanzania. Culture, Health & Sexuality 14:sup1, pages S53-S66.
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Wenche Dageid, Kaymarlin Govender & SarahF. Gordon. (2012) Masculinity and HIV disclosure among heterosexual South African men: implications for HIV/AIDS intervention. Culture, Health & Sexuality 14:8, pages 925-940.
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Christopher Tumwine, Annet Nannungi, Eric Ssegujja, Nicolate Nekesa, Sarah Ssali, Lynn Atuyambe, Gery Ryan & Glenn Wagner. (2011) An exploratory study of HIV-prevention advocacy by persons in HIV care in Uganda. African Journal of AIDS Research 10:4, pages 427-433.
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Gloria Thupayagale-Tshweneagae & Susan Benedict. (2011) The Burden of Secrecy Among South African Adolescents Orphaned By HIV And AIDS. Issues in Mental Health Nursing 32:6, pages 355-358.
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BrianD. Zamboni, Beatrice “Bean” E. Robinson & WalterO. Bockting. (2011) HIV Status and Coming Out among African American Gay and Bisexual Men. Journal of Bisexuality 11:1, pages 75-85.
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SarahE. Stutterheim, Iris Shiripinda, ArjanE.R. Bos, JohnB. Pryor, Marijn de Bruin, JeannineF.J.B. Nellen, Gerjo Kok, JanM. Prins & HermanP. Schaalma. (2011) HIV status disclosure among HIV-positive African and Afro-Caribbean people in the Netherlands. AIDS Care 23:2, pages 195-205.
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HannahJ Gillett & Jennifer Parr. (2010) Disclosure among HIV-positive women: the role of HIV/AIDS support groups in rural Kenya. African Journal of AIDS Research 9:4, pages 337-344.
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Adebola A Adedimeji. (2010) To tell or not to tell: Managing HIV/AIDS disclosure in a low-prevalence context. SAHARA-J: Journal of Social Aspects of HIV/AIDS 7:1, pages 16-23.
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Cynthia Cannon Poindexter & R. Andrew Shippy. (2010) HIV Diagnosis Disclosure: Stigma Management and Stigma Resistance. Journal of Gerontological Social Work 53:4, pages 366-381.
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CynthiaD. Fair & Britten Ginsburg. (2010) HIV-Related Stigma, Discrimination, and Knowledge of Legal Rights among Infected Adults. Journal of HIV/AIDS & Social Services 9:1, pages 77-89.
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SheenaG. Sullivan, Jie Xu, Yuji Feng, Su Su, Chen Xu, Xinping Ding, Yun Gao, Zhi Dou, Zunyou Wu & China CIPRA Project 2 Team. (2010) Stigmatizing attitudes and behaviors toward PLHA in rural China. AIDS Care 22:1, pages 104-111.
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Pauline Oosterhoff, Nguyen Thu Anh, Pham Ngoc Yen, Pamela Wright & Anita Hardon. (2009) Recreating Kinship: Coping Options of HIV+ AIDS Widows in Vietnam. Health Care for Women International 31:1, pages 17-36.
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DeAnneK. Hilfinger Messias, Linda Moneyham, Medha Vyavaharkar, Carolyn Murdaugh & KennethD. Phillips. (2009) Embodied Work: Insider Perspectives on the Work of HIV/AIDS Peer Counselors. Health Care for Women International 30:7, pages 570-592.
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Monica Christianson, Ann Lalos & Eva.E. Johansson. (2008) The Law of Communicable Diseases Act and disclosure to sexual partners among HIV-positive youth. Vulnerable Children and Youth Studies 3:3, pages 234-242.
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ArjanE.R. Bos, HermanP. Schaalma & JohnB. Pryor. (2008) Reducing AIDS-related stigma in developing countries: The importance of theory- and evidence-based interventions. Psychology, Health & Medicine 13:4, pages 450-460.
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AaronG. Buseh & PatriciaE. Stevens. (2007) Constrained But Not Determined by Stigma: Resistance by African American Women Living with HIV. Women & Health 44:3, pages 1-18.
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S. Skogmar, D. Shakely, M. Lans, J. Danell, R. Andersson, N. Tshandu, A. Odén, S. Roberts & W. D. Francois Venter. (2006) Effect of antiretroviral treatment and counselling on disclosure of HIV-serostatus in Johannesburg, South Africa. AIDS Care 18:7, pages 725-730.
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Nalini Tarakeshwar, Michelle J. Pearce & Kathleen J. Sikkema. (2005) Development and implementation of a spiritual coping group intervention for adults living with HIV/AIDS: A pilot study. Mental Health, Religion & Culture 8:3, pages 179-190.
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JosephKOFI Teye. (2005) Condom use as a means of HIV/AIDS prevention and fertility control among the Krobos of Ghana. Norsk Geografisk Tidsskrift - Norwegian Journal of Geography 59:1, pages 65-73.
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Articles from other publishers (60)

Jem Bhatt, Gianna Kohl, Katrina Scior, Georgina Charlesworth, Majon Muller & Rose-Marie Dröes. (2023) Comparing the stigma experiences and comfort with disclosure in Dutch and English populations of people living with dementia. Dementia.
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Chinomnso N. Okorie, Sarah A. Gutin, Monica Getahun, Sarah A. Lebu, Jaffer Okiring, Torsten B. Neilands, Sarah Ssali, Craig R. Cohen, Irene Maeri, Patrick Eyul, Elizabeth A. Bukusi, Edwin D. Charlebois & Carol S. Camlin. (2023) Sex specific differences in HIV status disclosure and care engagement among people living with HIV in rural communities in Kenya and Uganda. PLOS Global Public Health 3:4, pages e0000556.
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Maurice Nagington & Sydney King. (2022) Support, care and peer support for gay and bi men engaging in chemsex. Health & Social Care in the Community 30:6.
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Steven P. Philpot, Dean Murphy, Garrett Prestage, Nathanael Wells & On behalf of the RISE Study team. (2022) Using social media as a platform to publicly disclose HIV status among people living with HIV: Control, identity, informing public dialogue. Sociology of Health & Illness 44:6, pages 881-898.
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Mary M. MitchellTuo-Yen TsengDulce Cruz-OliverZachary CatanzariteEric HansenAmy R. Knowlton. (2022) Family Conflict Non-negotiation and HIV Disclosure Associated With ART Adherence in a Disadvantaged Population. AIDS Education and Prevention 34:2, pages 158-167.
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Jeffrey I. Campbell, Angella Musiimenta, Sylvia Natukunda, Nir Eyal & Jessica E. Haberer. (2022) “The research assistants kept coming to follow me up; I counted myself as a lucky person”: Social support arising from a longitudinal HIV cohort study in Uganda. PLOS ONE 17:1, pages e0262989.
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Maria Reinius, Galit Zeluf Andersson, Veronica Svedhem, Lena Wettergren, Maria Wiklander & Lars E. Eriksson. (2021) Towards a new understanding of HIV‐related stigma in the era of efficient treatment‐ A qualitative reconceptualization of existing theory. Journal of Advanced Nursing 77:5, pages 2472-2480.
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Rimel N. Mwamba, Saumya S. Sao, Brandon A. Knettel, Linda M. Minja, Haika Osaki, Blandina T. Mmbaga & Melissa H. Watt. (2020) The Disclosure Dilemma: Willingness to Disclose a Positive HIV Status Among Individuals Preparing for HIV Testing During Antenatal Care in Tanzania. AIDS and Behavior 25:3, pages 908-916.
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Jonathan StadlerJonathan Stadler. 2021. Public Secrets and Private Sufferings in the South African AIDS Epidemic. Public Secrets and Private Sufferings in the South African AIDS Epidemic 67 89 .
Gustavo C. Medeiros, Felicia A. Smith, Madhukar H. Trivedi & Scott R. Beach. (2020) Depressive Disorders in HIV/AIDS: A Clinically Focused Narrative Review. Harvard Review of Psychiatry 28:3, pages 146-158.
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Haixia Ma & Alice Yuen Loke. (2019) A qualitative study into female sex workers’ experience of stigma in the health care setting in Hong Kong. International Journal for Equity in Health 18:1.
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Alicia E Suarez. (2017) Is disclosure a privilege? Race and disclosure patterns of hepatitis C. Journal of Health Psychology 24:12, pages 1646-1657.
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Charlotte Smith, Rachel Cook & Poul Rohleder. (2017) ‘When it comes to HIV, that’s when you find out the genuinity of that love’: The experience of disclosing a HIV+ status to an intimate partner. Journal of Health Psychology 24:8, pages 1011-1022.
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Bridget Dibb. (2018) Assessing Stigma, Disclosure Regret and Posttraumatic Growth in People Living with HIV. AIDS and Behavior 22:12, pages 3916-3923.
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Amary Mey, David Plummer, Shailendra Dukie, Gary D. Rogers, Maree O’Sullivan & Amber Domberelli. (2016) Motivations and Barriers to Treatment Uptake and Adherence Among People Living with HIV in Australia: A Mixed-Methods Systematic Review. AIDS and Behavior 21:2, pages 352-385.
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Keivan Ahmadi, Daniel D. Reidpath, Pascale Allotey & Mohamed Azmi Ahmad Hassali. (2016) A latent trait approach to measuring HIV/AIDS related stigma in healthcare professionals: application of mokken scaling technique. BMC Medical Education 16:1.
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Haochu Li, Xiaoming Li, Lei Zhang & Eric Chow. (2016) Effects of multiple types of stigma on the probability of HIV disclosure to sex partners: a systematic review. Sexual Health 13:6, pages 516.
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MAMADOU CISSÉ, SAMBA DIOP, ALISE ABADIE, EMILIE HENRY, ADELINE BERNIER, LIONEL FUGON, BINTOU DEMBELE, JOANNE OTIS & MARIE PREAU. (2015) FACTORS ASSOCIATED WITH HIV VOLUNTARY DISCLOSURE TO ONE'S STEADY SEXUAL PARTNER IN MALI: RESULTS FROM A COMMUNITY-BASED STUDY. Journal of Biosocial Science 48:1, pages 51-65.
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Syed W. B. Noor, Krystal Rampalli & B. R. Simon Rosser. (2014) Factors Influencing HIV Serodisclosure Among Men Who Have Sex with Men in the US: An Examination of Online Versus Offline Meeting Environments and Risk Behaviors. AIDS and Behavior 18:9, pages 1638-1650.
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Martin Mbonye, Sarah Nakamanya, Josephine Birungi, Rachel King, Janet Seeley & Shabbar Jaffar. (2013) Stigma trajectories among people living with HIV (PLHIV) embarking on a life time journey with antiretroviral drugs in Jinja, Uganda. BMC Public Health 13:1.
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Ann Gillard & Mark F. Roark. (2012) Older Adolescents’ Self-Determined Motivations to Disclose Their HIV Status. Journal of Child and Family Studies 22:5, pages 672-683.
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Sarah E. Stutterheim, Arjan E. R. Bos, Nicole M. C. van Kesteren, Iris Shiripinda, John B. Pryor, Marijn de Bruin & Herman P. Schaalma. (2011) Beliefs Contributing to HIV‐related Stigma in African and Afro‐Caribbean Communities in the Netherlands. Journal of Community & Applied Social Psychology 22:6, pages 470-484.
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Sarah E. Stutterheim, Arjan E. R. Bos, John B. Pryor, Ronald Brands, Maartje Liebregts & Herman P. Schaalma. (2011) Psychological and Social Correlates of HIV Status Disclosure: The Significance of Stigma Visibility. AIDS Education and Prevention 23:4, pages 382-392.
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Medha Vyavaharkar, Linda Moneyham, Sara Corwin, Abbas Tavakoli, Ruth Saunders & Lucy Annang. (2011) HIV-Disclosure, Social Support, and Depression Among HIV-Infected African American Women Living in the Rural Southeastern United States. AIDS Education and Prevention 23:1, pages 78-90.
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P Choi, R Kavasery, M M Desai, S Govindasamy, A Kamarulzaman & F L Altice. (2010) Prevalence and correlates of community re-entry challenges faced by HIV-infected male prisoners in Malaysia. International Journal of STD & AIDS 21:6, pages 416-423.
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C. R. Pearson, M. A. Micek, J. Pfeiffer, P. Montoya, E. Matediane, T. Jonasse, A. Cunguara, D. Rao & S. S. Gloyd. (2009) One Year After ART Initiation: Psychosocial Factors Associated with Stigma Among HIV-Positive Mozambicans. AIDS and Behavior 13:6, pages 1189-1196.
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