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AIDS Care
Psychological and Socio-medical Aspects of AIDS/HIV
Volume 33, 2021 - Issue 7
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Research Article

Power to participants: methodological and ethical reflections from a decade of adolescent advisory groups in South Africa

Lucie Cluvera Department of Social Policy and Intervention, University of Oxford, Oxford, UK;b Department of Psychiatry and Mental Health, University of Cape Town, Cape Town, South AfricaCorrespondence[email protected]
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Jenny Doubta Department of Social Policy and Intervention, University of Oxford, Oxford, UKView further author information
, the Teen Advisory Groups South Africa,
Inge Wesselsa Department of Social Policy and Intervention, University of Oxford, Oxford, UK;c Department of Psychology, University of Cape Town, Cape Town, South AfricaView further author information
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Carine Asnongd Centre for Tropical Medicine and Global Health, Nuffield Department of Medicine, University of Oxford, Oxford, UKView further author information
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Samantha Malungae AIDS and Society Research Unit, University of Cape Town, Cape Town, South AfricaView further author information
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Kerry Mauchlinef Ministry of Education, Western Cape Government, Cape Town, South AfricaView further author information
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Beth Valeg IndependentView further author information
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Sally Medleya Department of Social Policy and Intervention, University of Oxford, Oxford, UKView further author information
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Elona Toskaa Department of Social Policy and Intervention, University of Oxford, Oxford, UK;h Centre for Social Science Research, University of Cape Town, Cape Town, South Africa;i Department of Sociology, University of Cape Town, Cape Town, South AfricaORCID Iconhttps://orcid.org/0000-0002-3800-3173View further author information
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Kate Orkinj Blavatnik School of Government and Centre for the Study of African Economies, University of Oxford, Oxford, UKView further author information
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Yasmin Dunkleyk Positive East, London, UKView further author information
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Franziska Meinckl Optentia Faculty of Health Sciences, North-West University, Potchefstroom, South Africa;m School of Social and Political Science, University of Edinburgh, Edinburgh, UKView further author information
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Noxolo Myeketsin Teen Advisory Group, South AfricaView further author information
,
Samkelo Lasan Teen Advisory Group, South AfricaView further author information
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Caroline Rupertg IndependentView further author information
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Mark Boyeso School of Psychology, Faculty of Health Sciences, Curtin University, Perth, AustraliaORCID Iconhttps://orcid.org/0000-0001-5420-8606View further author information
ORCID Icon,
Marija Pantelica Department of Social Policy and Intervention, University of Oxford, Oxford, UK;p Brighton and Sussex Medical School, University of Sussex, Sussex, UKView further author information
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Lorraine Sherra Department of Social Policy and Intervention, University of Oxford, Oxford, UK;g Independent;q Health Psychology Unit, Institute of Global Health, University College London, London, UKORCID Iconhttps://orcid.org/0000-0002-5902-8011View further author information
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Lesley Gittingsa Department of Social Policy and Intervention, University of Oxford, Oxford, UK;h Centre for Social Science Research, University of Cape Town, Cape Town, South AfricaORCID Iconhttps://orcid.org/0000-0002-0463-0478View further author information
ORCID Icon,
Rebecca Hodese AIDS and Society Research Unit, University of Cape Town, Cape Town, South AfricaView further author information
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Caroline Kuor School of Public Health, Brown University, Providence, RI, USAORCID Iconhttps://orcid.org/0000-0002-9302-0187View further author information
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Angelique N. Chettya Department of Social Policy and Intervention, University of Oxford, Oxford, UK;h Centre for Social Science Research, University of Cape Town, Cape Town, South AfricaView further author information
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Mildred Thabenga Department of Social Policy and Intervention, University of Oxford, Oxford, UK;i Department of Sociology, University of Cape Town, Cape Town, South AfricaView further author information
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Pages 858-866 | Received 02 Apr 2020, Accepted 28 Oct 2020, Published online: 19 Nov 2020

Citations (8)

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Janina Jochim, Lucie Cluver, Lulama Sidloyi, Jane Kelly, Abigail Ornellas, Hlokoma Mangqalaza, Chelsea Coakley, Coceka Nogoduka, Managa Pillay, Busisa Nokama, Gavin George, Elona Toska & Teen Advisory Group Eastern Cape. (2023) Improving educational and reproductive outcomes for adolescent mothers in South Africa: A cross-sectional analysis towards realising policy goals. Global Public Health 18:1.
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Lesley Gittings, Yusra Price, Jane Kelly, Natasha Kannemeyer, Angelique Thomas, Sally Medley, Nokubonga Ralayo, Vidalyne Omollo, Lucie Cluver, Carmen H. Logie, Humphres Evalia & Elona Toska. (2022) Health and development-related priorities and challenges of adolescents and young people: findings from South Africa and Kenya prior to and during COVID-19 pandemic. Psychology, Health & Medicine 27:sup1, pages 193-218.
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Lucas Hertzog, Boladé Hamed Banougnin, Heidi Stöckl & Elona Toska. (2022) Accelerating ontological security for South African adolescents living in high HIV-prevalence areas: a longitudinal study. Psychology, Health & Medicine 27:sup1, pages 27-48.
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Articles from other publishers (5)

Anna Delahunt, Sophie Callanan, Sarah Louise Killeen, Ciara M. McDonnell & Fionnuala M. McAuliffe. (2023) Including the child’s voice in research from a longitudinal birth cohort: insights from the ROLO young person’s advisory group. Research Involvement and Engagement 9:1.
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Lucie D Cluver, Lorraine Sherr, Elona Toska, Siyanai Zhou, Claude-Ann Mellins, Olayinka Omigbodun, Xiaoming Li, Samuel Bojo, Tonya Thurman, Wole Ameyan, Chris Desmond, Nicola Willis, Christina Laurenzi, Amahle Nombewu, Mark Tomlinson & Noxolo Myeketsi. (2022) From surviving to thriving: integrating mental health care into HIV, community, and family services for adolescents living with HIV. The Lancet Child & Adolescent Health 6:8, pages 582-592.
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Lesley Gittings, Sally Medley, Carmen H Logie, Nokubonga Ralayo, Lucie Cluver, Nabeel Petersen, Jenny Chen-Charles & Elona Toska. (2022) Art-based reflections from 12 years of adolescent health and development-related research in South Africa. Health Promotion International 37:Supplement_2, pages ii83-ii96.
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Aoife M. Doyle, Chido Dziva Chikwari, Nomathamsanqa Majozi, Musonda Simwinga, Gracious R. Mayingire, Kelvin Simbeye, Stefanie Dringus & Sarah Bernays. (2021) Adolescent Health Series: Engagement with young people as partners in health research: Four case studies from Sub‐Saharan Africa. Tropical Medicine & International Health 27:1, pages 2-12.
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Franziska Meinck, Mark Orkin & Lucie Cluver. (2021) Accelerating Sustainable Development Goals for South African adolescents from high HIV prevalence areas: a longitudinal path analysis. BMC Medicine 19:1.
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