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Original Articles

AwareCare: Development and validation of an observational measure of awareness in people with severe dementia

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Pages 113-133 | Received 01 Apr 2011, Published online: 20 Jan 2012

Keep up to date with the latest research on this topic with citation updates for this article.

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Yanan Sun, Amee Baird, Rebecca Gelding, Bianca de Wit & William Forde Thompson. (2021) Can music enhance awareness in unresponsive people with severe dementia? An exploratory case series using behavioral, physiological and neurophysiological measures. Neurocase 27:4, pages 354-365.
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N. J. O’Shaughnessy, J. E. Chan, R. Bhome, P. Gallagher, H. Zhang, L. Clare, E. L. Sampson, P. Stone & J. Huntley. (2021) Awareness in severe Alzheimer’s disease: a systematic review. Aging & Mental Health 25:4, pages 602-612.
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Articles from other publishers (21)

Kristine Gustavsen Madsø, Elisabeth Flo-Groeneboom, Nancy A. Pachana & Inger Hilde Nordhus. (2021) Assessing Momentary Well-Being in People Living With Dementia: A Systematic Review of Observational Instruments. Frontiers in Psychology 12.
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Catherine M. Alexander, Anthony Martyr, Sharon A. Savage, Robin G. Morris & Linda Clare. (2020) Measuring Awareness in People With Dementia: Results of a Systematic Scoping Review. Journal of Geriatric Psychiatry and Neurology 34:5, pages 335-348.
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Naomi S. Ruijter, Anne M.G. Schoonbrood, Björn Twillert & Erik I. Hoff. (2020) Anosognosia in dementia: A review of current assessment instruments. Alzheimer's & Dementia: Diagnosis, Assessment & Disease Monitoring 12:1.
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Catherine M. Alexander, Anthony Martyr, Sharon A. Savage & Linda Clare. (2019) Measuring awareness in people with dementia: protocol for a scoping review. Systematic Reviews 8:1.
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H. Rice, R. Howard & J. Huntley. (2019) Professional caregivers’ knowledge, beliefs and attitudes about awareness in advanced dementia: a systematic review of qualitative studies. International Psychogeriatrics 31:11, pages 1599-1609.
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Amandine Mayelle, Mohamad El Haj & Pascal Antoine. (2019) Awareness of Self and Disease Assessment: Development and Validation of a Subjective Measure in People with Alzheimer’s Disease. Journal of Alzheimer's Disease 71:3, pages 841-850.
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Sian Hughes, Bob Woods, Katherine Algar-Skaife & Catrin Hedd Jones. (2019) Understanding quality of life and well-being for people living with advanced dementia. Nursing Older People 31:2, pages 18-24.
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Siobhán Fox, Carol FitzGerald, Karen Harrison Dening, Kate Irving, W. George Kernohan, Adrian Treloar, David Oliver, Suzanne Guerin & Suzanne Timmons. (2017) Better palliative care for people with a dementia: summary of interdisciplinary workshop highlighting current gaps and recommendations for future research. BMC Palliative Care 17:1.
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Barbora Silarova, Sharon M. Nelis, Rosalie M. Ashworth, Clive Ballard, Marta Bieńkiewicz, Catherine Henderson, Alexandra Hillman, John V. Hindle, Julian C. Hughes, Ruth A. Lamont, Rachael Litherland, Ian R. Jones, Roy W. Jones, Martin Knapp, Piers Kotting, Anthony Martyr, Fiona E. Matthews, Robin G. Morris, Catherine Quinn, Jemma Regan, Jennifer M. Rusted, Eleanor Ann van den Heuvel, Christina R. Victor, Yu-Tzu Wu & Linda Clare. (2018) Protocol for the IDEAL-2 longitudinal study: following the experiences of people with dementia and their primary carers to understand what contributes to living well with dementia and enhances active life. BMC Public Health 18:1.
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Graham Mann & Giles Oatley. (2017) Positive design of smart interactive fabric artifacts for people with dementia. Positive design of smart interactive fabric artifacts for people with dementia.
Teresa Parrao, Simone Brockman, Romola S. Bucks, David G. Bruce, Wendy A. Davis, Katherine K. Hatch, Tammy L. Leavy, Christine A.P. Axten & Sergio E. Starkstein. (2016) The Structured Interview for Insight and Judgment in Dementia: Development and validation of a new instrument to assess awareness in patients with dementia. Alzheimer's & Dementia: Diagnosis, Assessment & Disease Monitoring 7:1, pages 24-32.
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Katherine Algar, Robert T Woods & Gill Windle. (2014) Measuring the quality of life and well-being of people with dementia: A review of observational measures. Dementia 15:4, pages 832-857.
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Benedicte Sørensen Strøm, Knut Engedal & Ellen-Karine Grov. (2016) A Psychometric Evaluation of the Threadgold Communication Tool for Persons with Dementia. Dementia and Geriatric Cognitive Disorders Extra 6:1, pages 150-160.
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Abhilash K. Desai, F. Galliano Desai, Susan McFadden & G. T. Grossberg. 2016. Dementia Care. Dementia Care 151 166 .
Gill Toms, Catherine Lawrence & Linda Clare. 2015. Psychosocial Studies of the Individual's Changing Perspectives in Alzheimer's Disease. Psychosocial Studies of the Individual's Changing Perspectives in Alzheimer's Disease 132 158 .
Linda Clare, Catherine Quinn, Zoe Hoare, Rhiannon Whitaker & Robert T Woods. (2014) Care staff and family member perspectives on quality of life in people with very severe dementia in long-term care: a cross-sectional study. Health and Quality of Life Outcomes 12:1.
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Linda Clare, Sharon M Nelis, Catherine Quinn, Anthony Martyr, Catherine Henderson, John V Hindle, Ian R Jones, Roy W Jones, Martin Knapp, Michael D Kopelman, Robin G Morris, James A Pickett, Jennifer M Rusted, Nada M Savitch, Jeanette M Thom & Christina R Victor. (2014) Improving the experience of dementia and enhancing active life - living well with dementia: study protocol for the IDEAL study. Health and Quality of Life Outcomes 12:1.
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Murna Downs. (2013) Embodiment: The implications for living well with dementia. Dementia 12:3, pages 368-374.
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Joana Cruz, Alda Marques, Ana Barbosa, Daniela Figueiredo & Liliana X. Sousa. (2013) Making Sense(s) in Dementia. American Journal of Alzheimer's Disease & Other Dementiasr 28:2, pages 137-146.
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Linda Clare, Rhiannon Whitaker, Robert T Woods, Catherine Quinn, Hannah Jelley, Zoe Hoare, Joan Woods, Murna Downs & Barbara A. Wilson. (2012) AwareCare: a pilot randomized controlled trial of an awareness-based staff training intervention to improve quality of life for residents with severe dementia in long-term care settings. International Psychogeriatrics 25:1, pages 128-139.
Crossref
Bob Woods. (2012) Well‐being and dementia – how can it be achieved?. Quality in Ageing and Older Adults 13:3, pages 205-211.
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