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Disability and Rehabilitation Volume 39, 2017 - Issue 19
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Research Papers

Illness, normality and identity: the experience of heart transplant as a young adult

Rebecca WaldronFaculty of Health & Medicine, Lancaster University, Lancaster, UK;
,
Zoey MalpusUniversity Hospital of South Manchester NHS Foundation Trust, Manchester, UK;
,
Vanessa ShearingPapworth Hospital NHS Foundation Trust, Cambridge, UK;
,
Melissa SanchezRoyal Brompton & Harefield NHS Foundation Trust, Harefield, UK
&
Craig D. MurrayFaculty of Health & Medicine, Lancaster University, Lancaster, UK; Correspondence[email protected]
Pages 1976-1982 | Received 11 Mar 2016, Accepted 13 Jul 2016, Published online: 24 Sep 2016

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Heather L. Voorhees. (2023) “I Was Literally Just Not Myself”: How Chronic Pain Changes Multiple Frames of Identity. Health Communication 38:8, pages 1641-1653.
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James RujimoraAnna SwygertAndrew Walker, Zachary McNieceEunhui YoonMercedes MachadoKenneth MyersEric RichardsonEmilie LenesLindsay HebertEmily MarchiZoe Arthurson-McCollJoanne LagmayAna Puig. (2023) “It Becomes a Family I'm a Part of…We Get to Carry Each Other”: Themes from Qualitative Interview of Patients Enrolled in an Inpatient Palliative Care Support Program for Adolescents and Young Adults. Journal of Palliative Medicine.
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Andrew L. Walker, James RujimoraAnna SwygertZachary McNieceEunhui YoonMercedes MachadoKenneth MyersEric RichardsonEmilie LenesLindsay HebertEmily MarchiZoe Arthurson-McCollJoanne LagmayAna Puig. (2023) A Novel Palliative Care Peer Support Program for Adolescents and Young Adults: Survey and Factor Analytic Study. Journal of Palliative Medicine 26:5, pages 627-636.
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Kelsea LeBeau, Sarah Collins, Gaia Zori, Drew Walker, Emily Marchi, Jamie L. Pomeranz & Mark Hart. (2023) Evaluating a novel hospital-based online health community to address palliative and psychosocial care factors for chronically ill adolescent and young adult patients. Palliative and Supportive Care, pages 1-12.
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Andrew L. Walker, Emily MarchiAna PuigWilliam SlaytonVirginia DoddMegan A. McVayMelvin D. Livingston. (2022) Volunteer-Based Social Support Structures and Program Exposure Outcomes in an Adolescent Young Adult Palliative Care Peer Support Program. Journal of Palliative Medicine 25:8, pages 1186-1196.
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James Tang, Jasmijn Kerklaan, Germaine Wong, Martin Howell, Nicole Scholes-Robertson, Chandana Guha, Ayano Kelly & Allison Tong. (2021) Perspectives of solid organ transplant recipients on medicine-taking: Systematic review of qualitative studies. American Journal of Transplantation 21:10, pages 3369-3387.
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Hye Jin Yoo & Eunyoung E. Suh. (2021) Lived Experiences of Korean Young Adults After Heart Transplantation: A Phenomenological Approach. Asian Nursing Research 15:2, pages 89-95.
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Oana A. Petre, Irina C. Crăciun & Adriana Băban. (2020) The experiences of living with a transplanted kidney from a deceased donor. Journal of Renal Care 47:1, pages 58-67.
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Claire Stubber & Maggie Kirkman. (2020) The experiences of adult heart, lung, and heart-lung transplantation recipients: A systematic review of qualitative research evidence. PLOS ONE 15:11, pages e0241570.
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Catharina Lindberg, Matilda Almgren, Annette Lennerling & Anna Forsberg. (2020) The Meaning of Surviving Three Years after a Heart Transplant—A Transition from Uncertainty to Acceptance through Adaptation. International Journal of Environmental Research and Public Health 17:15, pages 5434.
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Jonathan Journiac, Christel Vioulac, Anne Jacob, Coline Escarnot & Aurélie Untas. (2020) What Do We Know About Young Adult Cardiac Patients' Experience? A Systematic Review. Frontiers in Psychology 11.
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Maddi Olano‐Lizarraga, Amparo Zaragoza‐Salcedo, Jesús Martín‐Martín & Maribel Saracíbar‐Razquin. (2019) Redefining a ‘new normality’: A hermeneutic phenomenological study of the experiences of patients with chronic heart failure. Journal of Advanced Nursing 76:1, pages 275-286.
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Ana M Palmar-Santos, Azucena Pedraz-Marcos, Juan Zarco-Colón, Milagros Ramasco-Gutiérrez, Eva García-Perea & Monserrat Pulido-Fuentes. (2018) The life and death construct in heart transplant patients. European Journal of Cardiovascular Nursing 18:1, pages 48-56.
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