Illness, normality and identity: the experience of heart transplant as a young adult

References

• NHSBT. My life, my gift, n.d. [Internet] [cited 2012 May 04]. Available from: http://www.organdonation.nhs.uk/ukt/campaigns/other_campaigns/detail.asp?id=2016
   Google Scholar
• Rauch JB, Kneen KK. Accepting the gift of life: heart transplant recipients' post-operative adaptive tasks. Soc Work Health Care. 1989;14:47–59.
   PubMed Web of Science ®Google Scholar
• Pals JL. Authoring a second chance in life: emotion and transformational processing within narrative identity. Res Hum Dev. 2006;3:101–120.
   Google Scholar
• Lund LH, Edwards LB, Kucheryavaya AY, et al. The registry of the international society for heart and lung transplantation: twenty-eighth adult heart transplant report. J Heart Lung Transplant. 2013;32:951–964.
   PubMed Web of Science ®Google Scholar
• Bunzel B, Laederach-Hofmann K. Long-term effects of heart transplantation: the gap between physical performance and emotional well-being. Scand J Rehabil Med. 1999;31:214–222.
   PubMedGoogle Scholar
• Baumann LJ, Young CJ, Egan JJ. Living with a heart transplant: long-term adjustment. Transpl Int. 1992;5:1–8.
   PubMed Web of Science ®Google Scholar
• Kugler C, Geyer S, Gottlieb J, et al. Symptom experience after solid organ transplantation. J Psychosom Res. 2009;66:101–110.
   PubMed Web of Science ®Google Scholar
• Achille MA, Ouellette A, Fournier S, et al. Impact of transplant-related stressors and feelings of indebtedness on psychosocial adjustment following kidney transplantation. J Clin Psychol Med S. 2004;11:63–73.
   Web of Science ®Google Scholar
• Dew M, Myaskovsky L, Switzer GE, et al. Profiles and predictors of the course of psychological distress across four years after heart transplantation. Psychol Med. 2005;35:1215–1227.
   PubMed Web of Science ®Google Scholar
• Stukas AA, Dew MA, Switzer GE, et al. PTSD in heart transplant recipients and their primary family caregivers. Psychosomatics. 1999;40:212–221.
   PubMed Web of Science ®Google Scholar
• Stehlik J, Edwards LB, Kucheryavay AM, et al. The registry of the international society for heart and lung transplantation: 29th official adult heart transplant report-2012. J Heart Lung Transplant. 2012;31:1052–1064.
   PubMed Web of Science ®Google Scholar
• Spaderna H, Mendell NR, Zahn D, et al. Social isolation and depression predict 12-month outcomes in the “waiting for a new heart study”. J Heart Lung Transplant. 2010;29:247–254.
   PubMed Web of Science ®Google Scholar
• Rainer JP, Thompson CH, Lambros H. Psychological and psychosocial aspects of the solid organ transplant experience-a practice review. Psychotherapy (Chic). 2010;47:403–412.
   PubMed Web of Science ®Google Scholar
• Baines LS, Joseph JT, Jindal RM. Prospective randomized study of individual and group psychotherapy versus controls in recipients of renal transplants. Kidney Int. 2004;65:1937–1942.
   PubMed Web of Science ®Google Scholar
• Engle D. Psychosocial aspects of the organ transplant experience: what has been established and what we need for the future. J Clin Psychol. 2001;57:521–549.
   PubMed Web of Science ®Google Scholar
• Gross CR, Kreitzer MJ, Thomas W, et al. Mindfulness-based stress reduction for solid organ transplant recipients: a randomized controlled trial. Altern Ther Health Med. 2010;16:30–38.
   PubMed Web of Science ®Google Scholar
• Konstam V. Anger: A neglected group treatment issue with cardiac transplantation recipients and their families. Journal for Specialists in Group Work 1995;20:189–194.
   Google Scholar
• Soos JG. Psychotherapy and counselling with transplant patients. In: Craven J, Rodin, G, editors. Psychiatric aspects of organ transplantation. New York (NY): Oxford University Press; 1992. p. 89–107.
   Google Scholar
• Costanzo MR, Dipchand A, Starling R, et al. The international society of heart and lung transplantation guidelines for the care of heart transplant recipients. J Heart Lung Transplant. 2010;29:914–956.
   PubMed Web of Science ®Google Scholar
• George JF, Taylor DO, Blume ED, et al. Minimizing infection and rejection death: clues acquired from 19 years of multi-institutional cardiac transplantation data. J Heart Lung Transplant. 2011;30:151–157.
   PubMed Web of Science ®Google Scholar
• Canter CE. Outcomes of heart transplantation in young adults-more than a pediatric concern. J Heart Lung Transplant. 2011;30:139–140.
   PubMed Web of Science ®Google Scholar
• Tong A, Morton R, Howard K, et al. Adolescent experiences following organ transplantation: a systematic review of qualitative studies. J Pediatr. 2009;155:542–549.
   PubMed Web of Science ®Google Scholar
• Lawrence K, Stilley CS, Olshansky E, et al. Further exploration: maturity and adherence in adolescent and young adult heart transplant recipients. Prog Transplant. 2008;18:50–54.
   PubMed Web of Science ®Google Scholar
• Pahl E, Grady KL. 2012. Pediatric heart transplantation: transitioning to adult care. ISHLTLinks 3(11): unpaginated; [cited 2016 Jul 5]. Available from: http://www.ishlt.org/ContentDocuments/2012AprLinks_Pahl-Grady.html
   Google Scholar
• Rowland JH. Developmental stage and adaptation: adult model. In Holland JC, Rowland JH, editors. Handbook of psychooncology. New York (NY): Oxford University Press; 1990. p. 25–43.
   Google Scholar
• Olbrisch ME, Benedict SM, Ashe K, et al. Psychological assessment and care of organ transplant patients. J Consult Clin Psychol. 2002;70:771–783.
   PubMed Web of Science ®Google Scholar
• Smith J. Evaluating the contribution of interpretative phenomenological analysis. Health Psychol Rev. 2011;5:9–27.
   Web of Science ®Google Scholar
• Smith J, Flowers P, Larkin M. Interpretative phenomenological analysis: theory, method and research. London: Sage Publications Ltd; 2009.
   Google Scholar
• Murray CD, Wilde DJ. Phenomenology and interpretative phenomenological analysis. In: Cartwright S, Walshe C, Brearley S, editors. Handbook of theory and methods in applied health research. Cheltenham: Edward Elgar; forthcoming.
   Google Scholar
• Elliott R, Fischer CT, Rennie DL. Evolving guidelines for publication of qualitative research studies in psychology and related fields. Br J Clin Psychol. 1999;38:215–229.
   PubMed Web of Science ®Google Scholar
• Spencer L, Ritchie J. In pursuit of quality. In Harper, D, Thompson, AR, editors. Qualitative research methods in mental health and psychotherapy: a guide for students and practitioners. Oxford: Wiley-Blackwell; 2011. 225–242.
   Google Scholar
• Flaxman P, Blackledge J, Bond FW. Acceptance and commitment therapy: the CBT distinctive features series. East Sussex: Routledge; 2011.
   Google Scholar
• Gill P, Lowes L. The kidney transplant failure experience: a longitudinal case study. Prog Transplant. 2009;19:114–121.
   PubMed Web of Science ®Google Scholar
• Hayes SC, Luoma JB, Bond FW, et al. Acceptance and commitment therapy: model, processes and outcomes. Behav Res Ther. 2006;44:1–25.
   PubMed Web of Science ®Google Scholar