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Disability and Rehabilitation Volume 43, 2021 - Issue 19
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Perspectives in Rehabilitation

Strategies used to engage hard-to-reach populations in childhood disability research: a scoping review

Miriam Gonzaleza Department of Physical and Occupational Therapy, McGill University, Montréal, Canada;b Research Institute of the McGill University Health Centre, McGill University, Montréal, CanadaCorrespondence[email protected]
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,
Michelle Phoenixc School of Rehabilitation Science and CanChild, McMaster University, Hamilton, Canada;d Bloorview Research Institute, Holland Bloorview Kids Rehabilitation Hospital, Toronto, CanadaView further author information
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Shikha Saxenae Department of Human Kinetics, University of Ottawa, Ottawa, CanadaView further author information
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Roberta Cardosob Research Institute of the McGill University Health Centre, McGill University, Montréal, CanadaView further author information
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Michelle Canac-Marquisf Centre for Innovative Medicine, Research Institute of the McGill University Health Centre, Montréal, CanadaView further author information
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Lindsay Halesg McConnell Resource Centre, McGill University Health Centre, Montréal, CanadaView further author information
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Connie Puttermanh CHILDBRIGHT Knowledge Translation Committee, CHILD-BRIGHT Network, Montréal, Canada;i Canada-Israel Autism Research Initiative, Toronto, CanadaView further author information
&
Keiko Shikako-Thomasa Department of Physical and Occupational Therapy, McGill University, Montréal, Canada;b Research Institute of the McGill University Health Centre, McGill University, Montréal, Canada;j Canada Research Chair in Childhood Disability: Participation and Knowledge Translation, McGill University, Montréal, CanadaORCID Iconhttps://orcid.org/0000-0002-4447-5812View further author information
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Pages 2815-2827 | Received 17 Jul 2019, Accepted 14 Jan 2020, Published online: 30 Jan 2020

Citations (10)

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Read on this site (3)

Elaine Kwok, Jael Bootsma, Peter Cahill & Peter Rosenbaum. (2022) A scoping review of qualitative studies on parents’ perspectives on speech, language, and communication interventions. Disability and Rehabilitation 44:25, pages 8084-8093.
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N. Vänskä, S. Sipari, I. Jeglinsky, K. Lehtonen & A. Kinnunen. (2022) Co-development of the CMAP Book: a tool to enhance children’s participation in pediatric rehabilitation. Disability and Rehabilitation 44:9, pages 1709-1719.
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Michelle Phoenix, Lisa Chiarello, Madhu Pinto & Gillian King. (2020) Recruitment in Pediatric Rehabilitation Research: Challenges, Strategies, Impact on Evidence-Informed Care, and a Call to Action. Physical & Occupational Therapy In Pediatrics 40:4, pages 365-370.
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Articles from other publishers (7)

Roy McConkey, Pauline O’Hagan & Joanne Corcoran. (2023) Parental Perceptions of Family-Centred Supports for Children with Developmental Disabilities. International Journal of Environmental Research and Public Health 20:5, pages 4205.
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Lucy Wang, Samantha K. Micsinszki, Michelle Goulet‐Barteaux, Christina Gilman & Michelle Phoenix. (2022) Youth and family engagement in childhood disability evidence syntheses: A scoping review. Child: Care, Health and Development 49:1, pages 20-35.
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Linda Nguyen, Bente van Oort, Hanae Davis, Eline van der Meulen, Claire Dawe-McCord, Anita Franklin, Jan Willem Gorter, Christopher Morris & Marjolijn Ketelaar. (2022) Exploring the “how” in research partnerships with young partners by experience: lessons learned in six projects from Canada, the Netherlands, and the United Kingdom. Research Involvement and Engagement 8:1.
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Miriam Gonzalez, Shikha Saxena, Farhin Chowdhury, Sasha Dyck Holzinger, Rachel Martens, Maryam Oskoui & Keiko Shikako‐Thomas. (2021) Informing the development of the Canadian Neurodiversity Platform: What is important to parents of children with neurodevelopmental disabilities?. Child: Care, Health and Development 48:1, pages 88-98.
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Kinga Pozniak, Francine Buchanan, Andrea Cross, Jennifer Crowson, Barb Galuppi, Danijela Grahovac, Jan Willem Gorter, Oksana Hlyva, Marjolijn Ketelaar, Olaf Kraus de Camargo, Manda Krpan Mesic, Rachel Martens, Dayle McCauley, Linda Nguyen, Robert J. Palisano, Michelle Phoenix, Connie Putterman, Peter Rosenbaum, Jennifer Sprung, Sonya Strohm, Rachel Teplicky, Donna Thomson & Marilyn Wright. (2021) Building a culture of engagement at a research centre for childhood disability. Research Involvement and Engagement 7:1.
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Ashfaq Chauhan, Jessica Leefe, Éidín Ní Shé & Reema Harrison. (2021) Optimising co-design with ethnic minority consumers. International Journal for Equity in Health 20:1.
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Sandra Moll, Michelle Wyndham-West, Gillian Mulvale, Sean Park, Alexis Buettgen, Michelle Phoenix, Robert Fleisig & Emma Bruce. (2020) Are you really doing ‘codesign’? Critical reflections when working with vulnerable populations. BMJ Open 10:11, pages e038339.
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