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Disability & Society Volume 15, 2000 - Issue 2
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Original Articles

Refocusing on the Parent: What are the social issues of concern for parents of disabled children?

Stephen Case
Pages 271-292 | Published online: 01 Jul 2010

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Read on this site (23)

Sally Lindsay, Elaine Cagliostro, Mikhaela Albarico, Neda Mortaji & Dilakshan Srikanthan. (2019) Gender matters in the transition to employment for young adults with physical disabilities. Disability and Rehabilitation 41:3, pages 319-332.
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Kate Anderson, Susan Balandin & Roger Stancliffe. (2014) Australian parents’ experiences of speech generating device (SGD) service delivery. Developmental Neurorehabilitation 17:2, pages 75-83.
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kylie valentine, Bridget Jenkins, Deborah Brennan & Bettina Cass. (2013) Information Provision to Grandparent Kinship Carers: Responding to Their Unique Needs. Australian Social Work 66:3, pages 425-439.
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Sharon Issurdatt & Tracy Whitaker. (2013) Keeping Parents in the Driver's Seat. Journal of Human Behavior in the Social Environment 23:2, pages 118-125.
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Gillian A. King, Michelle Servais, Linda Bolack, Tracy A. Shepherd & Colleen Willoughby. (2012) Development of a measure to assess effective listening and interactive communication skills in the delivery of children’s rehabilitation services. Disability and Rehabilitation 34:6, pages 459-469.
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Andrew Lovell & Tom Mason. (2012) Caring for a child with a learning disability born into the family unit: women's recollections over time. Scandinavian Journal of Disability Research 14:1, pages 15-29.
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Katerina Antonopoulou, Konstantina Koutrouba & Thomas Babalis. (2011) Parental involvement in secondary education schools: the views of parents in Greece. Educational Studies 37:3, pages 333-344.
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Gillian King. (2009) A Relational Goal-Oriented Model of Optimal Service Delivery to Children and Families. Physical & Occupational Therapy In Pediatrics 29:4, pages 384-408.
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Hege Lundeby & Jan T⊘ssebro. (2008) Exploring the Experiences of “Not Being Listened To” from the Perspective of Parents with Disabled Children. Scandinavian Journal of Disability Research 10:4, pages 258-274.
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Nick Hodge & Katherine Runswick‐Cole. (2008) Problematising parent–professional partnerships in education. Disability & Society 23:6, pages 637-647.
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Dimitra Hartas. (2008) Practices of parental participation: a case study. Educational Psychology in Practice 24:2, pages 139-153.
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Wendy McCracken, Aarthy Ravichandran & Siobhán Laoide-Kemp. (2008) Audiological Certainty in Deaf Children with Learning Disabilities: An Imperative for Inter-agency Working. Deafness & Education International 10:1, pages 4-21.
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Suellen Murray. (2007) FAMILIES’ CARE OF THEIR CHILDREN WITH SEVERE DISABILITIES IN AUSTRALIA. Community, Work & Family 10:2, pages 215-230.
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Katherine Runswick‐Cole. (2007) ‘The Tribunal was the most stressful thing: more stressful than my son’s diagnosis or behaviour’: the experiences of families who go to the Special Educational Needs and Disability Tribunal (SENDisT). Disability & Society 22:3, pages 315-328.
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Reena Sen & Juliet Goldbart. (2005) Partnership in Action: Introducing family‐based intervention for children with disability in urban slums of Kolkata, India. International Journal of Disability, Development and Education 52:4, pages 275-311.
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Helen Hingley‐Jones. (2005) AN EXPLORATION OF THE ISSUES RAISED BY LIVING WITH A CHILD WITH AUTISTIC SPECTRUM DISORDER AND A PROFESSIONAL'S ATTEMPT TO MOVE BEYOND PITY AND BLAME. Journal of Social Work Practice 19:2, pages 115-129.
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BELINDA GARTH & ROSALIE ARONI. (2003) 'I Value What You have to Say'. Seeking the Perspective of Children with a Disability, Not Just their Parents. Disability & Society 18:5, pages 561-576.
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NEIL DUNCAN. (2003) Awkward Customers? Parents and Provision for Special Educational Needs. Disability & Society 18:3, pages 341-356.
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Jane Brett. (2002) The Experience of Disability from the Perspective of Parents of Children with Profound Impairment: Is it time for an alternative model of disability?. Disability & Society 17:7, pages 825-843.
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S. Band, G. Lindsay, J. Law, N. Soloff, N. Peacey, M. Gascoigne & J. Radford. (2002) Are Health and Education talking to each other? Perceptions of parents of children with speech and language needs. European Journal of Special Needs Education 17:3, pages 211-227.
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Donna Kam Pun Wong. (2002) Struggling in the Mainstream: The case of Hong Kong. International Journal of Disability, Development and Education 49:1, pages 79-94.
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Stephen Case. (2001) Learning to Partner, Disabling Conflict: Early indications of an improving relationship between parents and professionals with regard to service provision for children with learning disabilities. Disability & Society 16:6, pages 837-854.
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Cara Aitchison. (2000) Young Disabled People, Leisure and Everyday Life: Reviewing Conventional Definitions for Leisure Studies. Annals of Leisure Research 3:1, pages 1-20.
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Articles from other publishers (41)

Mubashir Gull & Navneet Kaur. (2023) Mental Health Problems Among Caregivers of Differently-Abled Children: A Bibliometric Study. Journal of Psychosocial Rehabilitation and Mental Health 10:4, pages 495-507.
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Alice M. Buchanan & A. Higgins. (2023) "It gives her a sense of accomplishment": What parents say when children with disabilities ride.. European Journal of Adapted Physical Activity 16, pages 3-3.
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Jelena PetrovićR.R., Jelena ZorićM.M. & Mirjana Petrović-LazićD.D.. (2023) The relationship of sensory processing of children with developmental dysphasia with burnout and self-esteem of parents. Specijalna edukacija i rehabilitacija 22:3, pages 221-242.
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Ariella Meltzer, Leanne Dowse, Louisa Smith & Angela Dew. (2020) A framework for interconnected benefits of peer support for family members of people with disability. Australian Journal of Social Issues 56:4, pages 579-595.
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Brittan A. Barker, Kristina M. ScharpKelsey L. Chandler & Emma B. Bowman. (2021) Exploring the Types of Stories Hearing Parents Tell About Rearing their Children Who Use Cochlear Implants. Ear & Hearing 42:5, pages 1284-1294.
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Elise J. Matthews, Jan Gelech, Raissa Graumans, Michel Desjardins & Isabelle Gélinas. (2020) Mediating a Fragmented System: Partnership Experiences of Parents of Children with Neurodevelopmental and Neuromuscular Disabilities. Journal of Developmental and Physical Disabilities 33:2, pages 311-330.
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Emine YİĞİTOĞLU & Serhat ODLUYURT. (2021) Otizm Spektrum Bozukluğu Tanısı Koyan Doktorların Tıbbi Tanılama Sürecine İlişkin Görüşlerinin İncelenmesi. Ankara Üniversitesi Eğitim Bilimleri Fakültesi Özel Eğitim Dergisi 22:1, pages 1-29.
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Louise Bøttcher. (2020) Creating relevant and supportive developmental conditions for children and youth with disabilities. Learning, Culture and Social Interaction 26, pages 100228.
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Rajani Ramachandran. (2020) A qualitative study on perspective of parents of children with autism on the nature of parent–professional relationship in Kerala, India. Autism 24:6, pages 1521-1530.
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Susan C. Philpott & Nithi Muthukrishna. (2019) The practice of partnerships: A case study of the Disabled Children’s Action Group, South Africa. South African Journal of Childhood Education 9:1.
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Angela Dew, Susan Collings, Leanne Dowse, Ariella Meltzer & Louisa Smith. (2019) ‘I don’t feel like I’m in this on my own’: Peer support for mothers of children with intellectual disability and challenging behaviour. Journal of Intellectual Disabilities 23:3, pages 344-358.
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Florence A. Aeschlimann & André G. Aeschlimann. (2019) Sprechstunde mit chronisch kranken Kindern. Praxis 108:4, pages 235-235.
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Selina Klingler, Beth Padden, Karen A. Horridge, Hubertus J.A. van Hedel & Andreas Meyer-Heim. (2019) Verbesserung der Sprechstunde mit chronisch kranken Kindern: Gesundheits-, Funktions- und Wohlergehensampel. Praxis 108:4, pages 249-255.
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Karen E. Broomhead. (2019) Perceived responsibility for developing and maintaining home–school partnerships: the experiences of parents and practitioners. British Journal of Special Education 45:4, pages 435-453.
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John Holland & Gabrielle Pell. (2019) Children with SEND and the emotional impact on parents. British Journal of Special Education 45:4, pages 392-411.
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Gamze Ülker Tümlü, Ramazan Akdoğan & Ayşe Sibel Türküm. (2017) The Process of Group Counseling Based on Reality Therapy Applied to the Parents of Disabled Children with Disabilities. International Journal of Early Childhood Special Education, pages 81-97.
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Peter Ireland & Karen A Horridge. (2017) The Health, Functioning and Wellbeing Summary Traffic Light Communication Tool: a survey of families’ views. Developmental Medicine & Child Neurology 59:6, pages 661-664.
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Triona Collins & Barry Coughlan. (2016) Experiences of Mothers in Romania after Hearing from Medical Professionals That Their Child Has a Disability. Journal of Policy and Practice in Intellectual Disabilities 13:1, pages 4-14.
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Grete Barlindhaug, Eric Umar, Margaret Wazakili & Nina Emaus. (2016) Living with disabled children in Malawi: Challenges and rewards. African Journal of Disability 5:1.
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Lindsay O’Dell & Charlotte Brownlow. 2015. The Palgrave Handbook of Child Mental Health. The Palgrave Handbook of Child Mental Health 296 309 .
Mohaned Ghazi Abed. (2014) Challenges to the Concept �Partnership with Parents� in Special Needs Education. i-manager’s Journal on Educational Psychology 7:4, pages 1-11.
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J. K. Gona, C. R. Newton, S. Hartley & K. Bunning. (2013) A home‐based intervention using augmentative and alternative communication ( AAC ) techniques in rural K enya: what are the caregivers' experiences? . Child: Care, Health and Development 40:1, pages 29-41.
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Margaret Mclean, Gerlinde Andraschko, Elizabeth Elsworth, Judith Harris, Judith Selvaraj & Colin Webster. 2014. Tales from School. Tales from School 149 163 .
P. Nelson, A.‐M. Glenny, S. Kirk & A.‐L. Caress. (2011) Parents' experiences of caring for a child with a cleft lip and/or palate: a review of the literature. Child: Care, Health and Development 38:1, pages 6-20.
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Xiaoyuan Shang, Karen R. Fisher & Jiawen Xie. (2011) Discrimination against children with disability in China. International Journal of Social Welfare 20:3, pages 298-308.
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Sasha Scambler & Paul Newton. (2011) Capital transactions, disruptions and the emergence of personal capital in a lifeworld under attack. Social Theory & Health 9:2, pages 130-146.
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Bernie Carter & Megan Thomas. (2011) Key Working for Families with Young Disabled Children. Nursing Research and Practice 2011, pages 1-7.
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Tonje Gundersen. (2010) ‘One wants to know what a chromosome is’: the internet as a coping resource when adjusting to life parenting a child with a rare genetic disorder. Sociology of Health & Illness 33:1, pages 81-95.
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Jennifer Fereday, Candice Oster & Philip Darbyshire. (2010) Partnership in practice: what parents of a disabled child want from a generic health professional in Australia. Health & Social Care in the Community 18:6, pages 624-632.
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Sasha Scambler & Paul Newton. 2010. New Directions in the Sociology of Chronic and Disabling Conditions. New Directions in the Sociology of Chronic and Disabling Conditions 77 105 .
Heinrich Heidinger. (2009) Student nurses supporting children with learning disabilities. The Journal of Practice Teaching and Learning 9:1, pages 113-131.
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Cath Jackson, Francine M. Cheater & Innes Reid. (2008) A systematic review of decision support needs of parents making child health decisions. Health Expectations 11:3, pages 232-251.
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Gemma Unwin, Nick LeMesurier, Niyati Bathia & Shoumitro Deb. (2008) Transition for adolescents and young adults with learning disabilities and mental health problems/challenging behaviours: the parent carers' views. Advances in Mental Health and Learning Disabilities 2:1, pages 22-28.
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Wendy McCracken, Aarthy Ravichandran & Siobhán Laoide-Kemp. (2008) Audiological certainty in deaf children with learning disabilities: an imperative for inter-agency working. Deafness & Education International 10:1, pages 4-21.
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Bernie Carter, Julie Cummings & Lorraine Cooper. (2007) An exploration of best practice in multi-agency working and the experiences of families of children with complex health needs. What works well and what needs to be done to improve practice for the future?. Journal of Clinical Nursing 16:3, pages 527-539.
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François Larose, Bernard Terrisse, Johanne Bédard & Yves Couturier. (2006) Les attentes des parents d'enfants d'âge préscolaire au regard des attitudes et des conduites éducatives des intervenants socio-éducatifs. Enfances, Familles, Générations:4, pages 1-17.
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