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Original Articles

'Young Carers' and Disabled Parents: Time for a change of direction?

Pages 613-625 | Published online: 01 Jul 2010

Keep up to date with the latest research on this topic with citation updates for this article.

Read on this site (12)

Madeleine Stevens & Nicola Brimblecombe. (2022) What can the experiences of young adult carers tell us about what can make services more helpful for them and their families?. Journal of Youth Studies 25:9, pages 1182-1198.
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Dipak Choudhury & Huw Williams. (2020) Strengthening the educational inclusion of young carers with additional needs: an eco-systemic understanding. Educational Psychology in Practice 36:3, pages 241-256.
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Gemma Gough & Anthea Gulliford. (2020) Resilience amongst young carers: investigating protective factors and benefit-finding as perceived by young carers. Educational Psychology in Practice 36:2, pages 149-169.
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Vivian Stamatopoulos. (2016) Supporting young carers: a qualitative review of young carer services in Canada. International Journal of Adolescence and Youth 21:2, pages 178-194.
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Carmit-Noa Shpigelman. (2015) How to support the needs of mothers with physical disabilities?. Disability and Rehabilitation 37:11, pages 928-935.
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L. O’Dell, S. Crafter, G. de Abreu & T. Cline. (2010) Constructing ‘normal childhoods’: young people talk about young carers. Disability & Society 25:6, pages 643-655.
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JuliaA. Rivera Drew. (2009) Disability and the Self-Reliant Family: Revisiting the Literature on Parents with Disabilities. Marriage & Family Review 45:5, pages 431-447.
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Tony Cline, Sarah Crafter, Guida de Abreu & Lindsay O’Dell. (2009) Changing families, changing childhoods: changing schools?. Pastoral Care in Education 27:1, pages 29-39.
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Articles from other publishers (40)

Marianne Saragosa, Shoshana Hahn-Goldberg, Yona Lunsky, Jill I Cameron, Isabelle Caven, Susan Bookey-Bassett, Kristine Newman & Karen Okrainec. (2023) Young carers’ perspectives on navigating the healthcare system and co-designing support for their caring roles: a mixed-methods qualitative study. BMJ Open 13:12, pages e075804.
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Basilie Chevrier, Géraldine Dorard, Eléonore Jarrige, Stephen Joseph, Saul Becker, Agnes Leu & Aurélie Untas. (2022) Assessing caring activities in French adolescents and young adults: Relevance of the M ultidimension A ssessment of C aring A ctivities for Y oung C arers (MACA‐YC18) . Child: Care, Health and Development 48:5, pages 788-799.
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Aurélie Untas, Eléonore Jarrige, Christel Vioulac & Géraldine Dorard. (2022) Prevalence and characteristics of adolescent young carers in France: The challenge of identification. Journal of Advanced Nursing 78:8, pages 2367-2382.
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Pauline Justin, Géraldine Dorard, Christel Vioulac, Agnes Leu & Aurélie Untas. (2021) What do French school staff know about young carers? A qualitative study about their perceptions. Psychology in the Schools 58:8, pages 1531-1544.
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Anne Sofie Borsch, Kathrine Vitus & Morten Skovdal. (2021) School caringscapes: Understanding how time and space shape refugee and immigrant adolescents’ caring practices and wellbeing in Danish schools. Wellbeing, Space and Society 2, pages 100001.
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Henk Herman Nap, Renske Hoefman, Nynke de Jong, Lieke Lovink, Ludo Glimmerveen, Feylyn Lewis, Sara Santini, Barbara D’Amen, Marco Socci, Licia Boccaletti, Giulia Casu, Alessandra Manattini, Rosita Brolin, Karina Sirk, Valentina Hlebec, Tatjana Rakar, Tjasa Hudobivnik, Agnes Leu, Fabian Berger, Lennart Magnusson & Elizabeth Hanson. (2020) The awareness, visibility and support for young carers across Europe: a Delphi study. BMC Health Services Research 20:1.
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Marjorie Silverman, Shari Brotman, Marc Molgat & Elizabeth Gagnon. (2020) “I’ve always been the one who drops everything”: the lived experiences and life-course impacts of young adult women carers. International Journal of Care and Caring 4:3, pages 331-348.
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E. Jarrige, G. Dorard & A. Untas. (2020) Revue de la littérature sur les jeunes aidants : qui sont-ils et comment les aider ?. Pratiques Psychologiques 26:3, pages 215-229.
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Stephen Joseph, Joe Sempik, Agnes Leu & Saul Becker. (2019) Young Carers Research, Practice and Policy: An Overview and Critical Perspective on Possible Future Directions. Adolescent Research Review 5:1, pages 77-89.
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Başak Akkan. (2018) Contested Agency of Young Carers Within Generational Order: Older Daughters and Sibling Care in Istanbul. Child Indicators Research 12:4, pages 1435-1447.
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MM Sohail, MG Yasin & S Ahmad. (2017) A phenomenological account of social sources, coping effects and relational role of social support in nursing among chronic patients with hepatitis. Journal of Research in Nursing 23:1, pages 23-39.
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김사현 & 김소진. (2016) A study on factors influencing the change of children’s psycho - social development raised by disabled parents: focused on the influence of parent’s social engagement and future forecast. Korean Journal of Family Social Work null:53, pages 199-234.
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강승원. (2016) Qualitative Case Study on Life of non - disabled Adolescent of Parents with Intellectual Disability. Korean Journal of Social Welfare 68:3, pages 73-103.
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Lisa I. Iezzoni, Amy J. Wint, Karen A. Kuhlthau & Alexy Arauz Boudreau. (2016) Adults' recollections and perceptions of childhood caregiving to a parent with significant physical disability. Disability and Health Journal 9:2, pages 208-217.
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Melinda S. Kavanaugh, Vivian Stamatopoulos, Donna Cohen & Lixia Zhang. (2015) Unacknowledged Caregivers: A Scoping Review of Research on Caregiving Youth in the United States. Adolescent Research Review 1:1, pages 29-49.
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Ruth Evans & Morten Skovdal. 2016. Politics, Citizenship and Rights. Politics, Citizenship and Rights 3 20 .
고미선 & 신나래. (2015) Study on Service Utilization for Household and Child Care among Mothers with Disabilities. Korean Journal of Social Welfare Studies 46:1, pages 371-396.
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Ruth Evans & Morten Skovdal. 2015. Politics, Citizenship and Rights. Politics, Citizenship and Rights 1 14 .
Martin Nagl-Cupal, Maria Daniel, Martina Maria Koller & Hanna Mayer. (2014) Prevalence and effects of caregiving on children. Journal of Advanced Nursing 70:10, pages 2314-2325.
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Tony Cassidy, Melanie Giles & Marian McLaughlin. (2014) Benefit finding and resilience in child caregivers. British Journal of Health Psychology 19:3, pages 606-618.
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Ruth Evans. 2014. Handbook of Child Well-Being. Handbook of Child Well-Being 1893 1916 .
Paula NicolsonPaula Nicolson. 2014. A Critical Approach to Human Growth and Development. A Critical Approach to Human Growth and Development 158 175 .
Georgina Doutre, Rob Green & Anne Knight-Elliott. (2013) Listening to the voices of young carers using Interpretative Phenomenological Analysis and a strengths-based perspective. Educational and Child Psychology 30:4, pages 30-43.
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Anna Heyman. (2013) Partnership working between young carers project and social services. Social Work and Social Sciences Review 16:3, pages 50-64.
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Dominik Sebastian Sieh, Johanna Maria Augusta Visser-Meily, Frans Jeroen Oort & Anne Marie Meijer. (2012) Risk factors for problem behavior in adolescents of parents with a chronic medical condition. European Child & Adolescent Psychiatry 21:8, pages 459-471.
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Dominik S. Sieh, Johanna M.A. Visser-Meily, Frans J. Oort & Anne Marie Meijer. (2012) The diurnal salivary cortisol pattern of adolescents from families with single, ill and healthy parents. Journal of Psychosomatic Research 72:4, pages 288-292.
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최복천. (2011) A Qualitative Study on the Difficulties Perceived by Disabled Women: Pregnancy, Childbirth and Mothering. Korean Journal of Physical, Multiple, & Health Disabilities 54:4, pages 323-347.
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Ruth Evans. (2011) Young caregiving and HIV in the UK: caring relationships and mobilities in African migrant families. Population, Space and Place 17:4, pages 338-360.
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Ciara Smyth, Bettina Cass & Trish Hill. (2011) Children and young people as active agents in care-giving: Agency and constraint. Children and Youth Services Review 33:4, pages 509-514.
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Dominik Sieh, Anne Visser-Meily & Anne Marie Meijer. (2011) Jonge mantelzorger heeft behoefte aan aandacht. Jeugd en Co Kennis 5:1, pages 18-26.
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Laura Watson & Adrian Parke. (2009) Experience of Recovery for Female Heroin Addicts: An Interpretative Phenomenological Analysis. International Journal of Mental Health and Addiction 9:1, pages 102-117.
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Rojalini Sahoo & Damodar Suar. (2010) Influence of Social Environment on Young Carers, Assistance and Consequences of Caregiving. Psychological Studies 55:4, pages 323-329.
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D. S. Sieh, A. M. Meijer, F. J. Oort, J. M. A. Visser-Meily & D. A. V. Van der Leij. (2010) Problem Behavior in Children of Chronically Ill Parents: A Meta-Analysis. Clinical Child and Family Psychology Review 13:4, pages 384-397.
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Ruth Evans. (2010) Children’s Caring Roles and Responsibilities within the Family in Africa. Geography Compass 4:10, pages 1477-1496.
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Rojalini SahooDamodar Suar. (2009) Do Young Carers Deserve Justice? Young Caring in the Context of Illness. Psychology and Developing Societies 21:1, pages 133-150.
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Saul Becker. (2016) Global Perspectives on Children’s Unpaid Caregiving in the Family. Global Social Policy 7:1, pages 23-50.
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Kenneth I. Pakenham, Jessica Chiu, Samantha Bursnall & Toni Cannon. (2016) Relations between Social Support, Appraisal and Coping and Both Positive and Negative Outcomes in Young Carers. Journal of Health Psychology 12:1, pages 89-102.
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Kenneth I. Pakenham, Samantha Bursnall, Jessica Chiu, Toni Cannon & Miwa Okochi. (2006) The psychosocial impact of caregiving on young people who have a parent with an illness or disability: Comparisons between young caregivers and noncaregivers.. Rehabilitation Psychology 51:2, pages 113-126.
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Amy Mullin. 2012. Reconceiving Pregnancy and Childcare. Reconceiving Pregnancy and Childcare.
Bettina Cass, Clara Smith, Trish Hill, Megan Blaxland & Myra Hamilton. (2009) Young Carers in Australia:Understanding the Advantages and Disadvantages of Their Care Giving. SSRN Electronic Journal.
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