- ACHARA , S. and COLLEAGUES IN THE COCHRANE INJURIES GROUP DRIVERS EDUCATION REVIEWERS . 2001 . Evidence based road safety: the Driving Standards Agency's schools programme . Lancet , 358 : 230 – 2 .
- ALDRIDGE , J. and BECKER , S. 1993 . Children who care: inside the world of young carers , Loughborough University, Department of Social Sciences .
- ALDRIDGE , J. and BECKER , S. 1996 . Disability rights and the denial of young carers: the dangers of zero-sum arguments . Critical Social Policy , 16 : 55 – 76 .
- ALDRIDGE , J. and BECKER , S. 1998 . The National Handbook of Young Carers Projects , London : Carers National Association .
- ALTSCHULER , J. 1997 . Family relationships during serious illness . Nursing Times , 93 : 48 – 49 .
- ASTIL , D. 1998 . Young carers research 'YouCare 98' . Journal of Young Carers Work , 1 : 31 – 32 .
- ATKINSON , N. and CRAWFORTH , M. 1995 . AU in the Family: siblings and disability , London : NCH Action for Children .
- BANKS , P. , COOGAN , N. , DEELEY , S. , HILL , M. , RIDDELL , S. and TISDALL , K. 2001 . Seeing the invisible children and young people affected by disability . Disability & Society , 16 : 797 – 814 .
- BEARDSLEE , W.R. , KELLER , M.B. , LAVORI , P.W. , STALEY , J. and SACKS , N. 1993 . The impact of parental affective disorder on depression in off-spring: a longitudinal follow-up in a nonreferred sample . Journal of the American Academy for Child and Adolescent Psychiatry , 32 : 723 – 730 .
- BlBBY , A. and BECKER , S. , eds. 2000 . Young Carers in their Own Words , London : Calouste Gulbenkian Foundation .
- BECKER , S. , ALDRIDGE , J. and DEARDEN , C. 1998 . Young Carers and their Families , Oxford : Blackwell Science Ltd .
- BECKER , S. , DEARDEN , C. and ALDRIDGE , J. 2000 . Young carers in the UK: research, policy and practice, Research . Policy and Planning , 18 : 13 – 22 .
- BlLSBORROW , S. 1992 . 'You Grow up Fast as Well …' Young Carers on Merseyside , Ilford : Barnardo's .
- BLACKFORD , K.A. 1999 . A child growing up with a parent who has multiple sclerosis: theories and experiences . Disability and Society , 14 : 673 – 685 .
- BROWN , G. and HARRIS , J. 1978 . Social Origins of Depression , London : Tavistock .
- BUCHANAN , A. and TEN BRINKE , J. 1998 . 'Recovery' from Emotional and Behavioural Problems , Oxford : University of Oxford/NHS Executive Anglia and Oxford .
- BUCK , P.M. 1983 . Parental disability and children's adjustment . Annual Review of Rehabilitation , 3 : 203 – 241 .
- BURK , J. and SHER , K. 1990 . Labelling the child of an alcoholic: negative stereotyping by mental health professionals and peers . Journal of Studies on Alcohol , 51 : 156 – 163 .
- BURKE , P. and MONTGOMERY , S. 2001 . Brothers and sisters: supporting the siblings of children with disabilities . Practice , 13 : 27 – 38 .
- BURTON , S.L. and PARKS , A.L. 1994 . Self-esteem, locus of control and career aspirations of college-age siblings of individuals with disabilities . Social Work Research , 18 : 178 – 185 .
- COATES , D.L. , VIETZE , P.M. and GRAY , D.B. 1985 . “ Methodological issues in studying children of disabled parents ” . In Children of Handicapped Parents: research and clinical perspectives , Edited by: THURMAN , S.K. New York : Academic Press .
- CRABTREE , H. and WARNER , L. 1999 . Too Much to Take On: a report on young carers and buttying , London : Princess Royal Trust for Carers .
- CRAFT , M.J. , LAKIN , J.A. , OPFUGER , R.A. , CLANCY , G.M. and VANDERLINDEN , D.W. 1990 . Siblings as change agents for promoting the functional status of children with cerebral palsy . Developmental Medicine and Child Neurology , 32 : 1049 – 1057 .
- DEARDEN , C. and BECKER , S. 1995 . The National Directory of Young Carers Projects and Initiatives , Loughborough University Young Carers Research Group in association with Carers National Association .
- DEARDEN , C. and BECKER , S. 1997 . Protecting young carers: legislative tensions and opportunities in Britain . Journal of Social Welfare and Family Law , 19 : 123 – 138 .
- DEARDEN , C. and BECKER , S. 2001 . “ Young carers: needs, rights and assessments ” . In The Child's World: assessing children in need , Edited by: HORWATH , J. London : Jessica Kingsley .
- EARLY , T.J. and GLENMAYE , L.F. 2000 . Valuing families: social work practice with families from a strengths perspective . Social Work , 45 : 118 – 130 .
- ELDER , G. and CASPI , A. 1987 . Human Development and Social Change: an emerging perspective on the life course , Harvard University .
- EMERY , R. , WEINTRAUB , S. and NEALE , J. 1982 . Effects of marital discord on the school behavior of children of schizophrenic, affectively disordered and normal patents . Journal of Abnormal Child Psychology , 10 : 215 – 228 .
- ENGEL , M. 1967 . Children who work . Archives of General Psychiatry , 17 : 291 – 297 .
- FERRARI , M. 1984 . Chronic illness: psychosocial effects on siblings-1. Chronically ill boys . Journal of Child Psychology and Psychiatry , 25 : 459 – 476 .
- FRANK , J. , TATUM , C. and TUCKER , S. 1999 . On Smatt Shoulders: learning from the experiences of former young carers , London : Children's Society .
- FRANK , N. 1996 . “ Helping families support siblings ” . In Strategies for Working with Families of Young Children with Disabilities , Edited by: BECKMAN , P. Baltimore, MD : Brookes Publishing .
- FREEDMAN , B. and WEIJER , C. , eds. 1999 . Duty and Healing: foundations of a Jewish bioethic , New York : Routledge .
- GALLO , A.M. , BRETTMAYER , B.J. , KNAFL , K.A. and ZOELLER , L.H. 1992 . Well siblings of children with chronic illness: parents' reports of their psychological adjustment . Pediatric Nursing , 18 : 23 – 27 .
- GATES , M.F. and LACKEY , N.R. 1998 . Youngsters caring for adults with cancer . Image: Journal of Nursing Scholarship , 30 : 11 – 15 .
- GOODINGE , S. 2000 . A Jigsaw of Services: inspection of services to support disabled parents in their parenting role , London : Department of Health .
- GOODMAN , S.H. , BROGAN , D. , LYNCH , M.E. and FIELDING , B. 1993 . Social and emotional competence in children of depressed mothers . Child Development , 64 : 516 – 531 .
- GOPFERT , M. , WEBSTER , J. and SEEMAN , M. 1996 . Parental Psychiatric Disorder: distressed parents and their families , Cambridge : Cambridge University Press .
- GREER , B.G. 1985 . “ Children of physically disabled parents: some thoughts, facts and hypotheses ” . In Children of Handicapped Parents: research and clinical perspectives , Edited by: THURMAN , S.K. New York : Academic Press .
- HALL , A. 1996 . “ Parental disorder and the developing child ” . In Parental Psychiatric Disorder: distressed parents and their families , Edited by: GOPFERT , M. , WEBSTER , J. and SEEMAN , M. Cambridge : Cambridge University Press .
- HETHERINGTON , E.M. 1989 . Coping with family transitions: winners, losers and survivors . Child Development , 60 : 1 – 14 .
- HIRSCH , B.J. , Moos , R.H. and REISCHL , T.M. 1985 . Psychosocial adjustment of adolescent children of a depressed, arthritic or normal parent . Journal of Abnormal Psychology , 94 : 154 – 164 .
- JENKINS , S. and WINGATE , C. 1994 . Who cares for young carers? . British Medical Journal , 308 : 733 – 734 .
- JOHNSON , J.L. and LEFF , M. 1999 . Children of substance abusers: overview of research findings . Pediatrics , 103 : 1085 – 1099 .
- JURKOVIC , G.J. 1997 . Lost Childhoods: the plight of the parentified child , New York : Brunner/ Mazel .
- KETTH , L and MORRIS , J. 1995 . Easy targets: a disability rights perspective on the 'children as carers' debate . Critical Social Policy , 44/45 Autumn : 36 – 57 .
- KIRBY , L. and FRASER , M. 1998 . “ Risk and resilience in childhood ” . In Risk and Resilience in Childhood: an ecological perspective , Edited by: FRASER , M. Washington, DC : NASW Press .
- LAROCHE , C. 1989 . Children of parents with major affective disorders: a review of the past 5 years . Psychiatric Clinics of North America , 12 : 919 – 932 .
- LAVIGUEUR , J.V. and RYAN , M. 1979 . Psychological adjustment of siblings of children with chronic illness . Pediatrics , 63 : 616 – 627 .
- LEFLEY , H.P. 1996 . Family Caregiving in Mental Illness , Family Caregiver Applications Series Vol. 7 , Thousand Oaks, CA : Sage .
- LEONARD , B. 1991 . Siblings of chronically ill children: a question of vulnerability versus resilience . Pediatric Annals , 20 : 501 – 502 . 505 – 506 .
- LOBATO , D. 1983 . Siblings of handicapped children: a renew . Journal of Autism and Development Disorder , 13 : 347 – 364 .
- MCCORD , J. 1978 . A thirty year follow-up of treatment effects . American Psychologist , 33 : 284 – 289 .
- MCHALE , S. and HARRIS , V. 1992 . “ Children's experiences with disabled and nondisabled siblings: links with personal adjustment and relationship evaluations ” . In Children's Sibling Relationships: developmental and clinical issues , Edited by: BOER , F. and DUNN , J. Hillsdale, NJ : Laurence Erlbaum .
- McHUGH , M. 1999 . Special Siblings: growing up with someone with a disability , New York : Hyperion .
- MENTAL HEALTH FOUNDATION . 1999 . Bright Futures: promoting children and young people's mental health , London : Mental Health Foundation .
- MEYER , D. , ed. 1997 . Views from our Shoes: growing up with a brother or sister with special needs , Bethesda, MD : Woodbine House .
- MORRIS , J. 1997 . A response to Aldridge & Becker-disability rights and the denial of young carers: the dangers of zero-sum arguments . Critical Social Policy , 17 : 133 – 135 .
- MORTIMER , J. and FINCH , M. 1996 . “ Work, family and adolescent development ” . In Adolescents, Work and Family: an inter-generational developmental analysis , Edited by: MORTIMER , J. and FINCH , M. Thousand Oaks, CA : Sage .
- NEFF , J.A. 1994 . Adult children of alcoholic or mentally ill parents: alcohol consumption and psychological distress in a tri-ethnic community study . Addictive Behaviours , 19 : 185 – 197 .
- NEWMAN , T. 2001 . “ Ties that Bind: the impact of care giving on the health and well-being of children ” . University of Exeter . (PhD Thesis,, unpublished)
- OLSEN , O. and GOTZSCHE , P. 2001 . Cochrane review on screening for breast cancer with mammography . Lancet , 358 : 1340 – 1342 .
- OLSEN , R. 1996 . Young carers: challenging the facts and politics of research into children and caring . Disability and Society , 11 : 41 – 54 .
- O'NEILL , A. 1988 . Young Carers: the Tameside research , Tameside : Tameside Metropolitan Borough Council .
- PARKER , G. and OLSEN , R. A Sideways Glance at Young Carers . paper presented at a Social Services Inspectorate Conference . June 27 1995 , Leicester.
- PURDEY , L.M. 1994 . Why children shouldn't have equal rights . International Journal of Children's Rights , 2 : 223 – 241 .
- RENDE , R. and PLOMIN , R. 1993 . Families at risk from psychopathology: who becomes affected and why? . Development and Psychopathology , 5 : 529 – 540 .
- ROCHE , J. 1995 . Children's rights: in the name of the child . Journal of Social Welfare and Family Law , 17 : 281 – 300 .
- ROY , R. 1991 . Consequences of parental illness on children: a review . Social Work and Social Science Review , 2 : 109 – 121 .
- RUTTER , M. 1985 . Resilience in the face of adversity: protective factors and resistance to psychiatric disorders . British Journal of Psychiatry , 147 : 589 – 611 .
- RUTTER , M. and QUINTON , D. 1984 . Parental psychiatric disorder: effects on children . Psychological Medicine , 14 : 853 – 880 .
- RUTTER , M. and SMITH , D. , eds. 1995 . Psychosocial Disorders in Young People , Chichester : John Wiley .
- SALEEBEY , D. 1996 . The strengths perspective in social work practice: extensions and cautions . Social Work , 41 : 296 – 305 .
- SCARR , S. and MCCARTNEY , K. 1983 . How people make their own environments: a theory of genotype environmental effects . Child Development , 54 : 424 – 435 .
- SCHULZ , K.F. , CHALMERS , I. , HAYES , R. and ALTMAN , D.G. 1995 . Empirical evidence of bias: dimensions of methodological quality associated with estimates of treatment effects in controlled trials . Journal of American Medical Association , 273 : 408 – 412 .
- SEDDON , D. , JONES , K. , HILL , J. and ROBINSON , C. 2001 . A Study of Young Carers in Wales , Bangor : Report to the Wales Office of Research and Development .
- STABLES , J. and SMITH , F. 1999 . “ 'Caught in the Cinderella trap': narratives of disabled parents and young carers ” . In Mind and Body Spaces: geographies of illness, impairment and disability , Edited by: BUTLER , R. and PARR , H. London : Routledge .
- STAWSKI , M. , AUERBACH , J.G. , BARASCH , M. , LERNER , Y. and ZIMIN , R . 1997 . Behavioural problems of children with chronic physical illness and their siblings . European Chad and Adolescent Psychiatry , 6 : 20 – 25 .
- TAGGART , L. 1999 . An examination of the effectiveness of an education programme in addressing the psychological needs of young carers in Northern Ireland , Jordanstown : University of Ulster, Department of Applied Psychology . unpublished BSc dissertation)
- TAYLOR , V. , FUGGLE , P. and CHARMAN , T. 2001 . Well sibling psychological adjustment to chronic physical disorder in a sibling: how important is maternal awareness of their illness attitudes and perceptions? . Journal of Chad Psychology and Psychiatry , 44 : 953 – 962 .
- THOMAS , N. , STAINTON , T. , DOUBTFIRE , S. and WEBB , A. 2001 . A Study of Young Carers in Wales: perspectives of children and young people , Report to Wales Office of Research and Development Swansea
- WALKER , A. 1996 . Young Carers and their Families , London : Stationery Office .
- WATES , M. 2001 . “ 'Young Carers': disabled parents' perspective ” . Available at: http://www. disabledparentsnetwork.org.uk/html/young carers.html
- WEINROTT , M.R. 1974 . A training programme in behavior modification for siblings of the retarded . American Journal of Orthopsychiatry , 44 : 362 – 375 .
- WILLIAMS , A.S. 1998 . A group for the adult daughters of mentally ill mothers: looking backwards and forwards . British Journal of Medical Psychology , 71 : 73 – 83 .
- WILLIAMS , P.D. , HANSON , S. , KARLIN , R. , RIDDER , L. , LIEBERGEN , A. , OLSON , J. , BARNARD , M.U. and TOBIN-ROMMELHART , S. 1997 . Outcomes of a nursing intervention for siblings of chronically sick children: a pilot study . Journal of the Society of Pediatric Nurses , 2 : 127 – 137 .
- WILSON , R.S. 1985 . Risk and resilience in early mental development . Development Psychology , 21 : 795 – 805 .
- WORSHAM , N.L. , COMPAS , B.E. and EY , S. 1997 . “ Children's coping with parental illness ” . In Handbook of Children's Coping: linking theory and intervention , Edited by: WOLCHK , S. A. and SANDLER , I. N. New York : Plenum Press .
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