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Original Articles

Recognising the agency of people with dementia

Pages 1130-1144 | Received 02 Aug 2013, Accepted 26 Mar 2014, Published online: 12 May 2014

Keep up to date with the latest research on this topic with citation updates for this article.

Read on this site (17)

Louise Nygard, Ann-Charlotte Nedlund, Anna Mäki Petäjä Leinonen, Arlene Astell, Jennifer Boger, Mervi Issakainen, Ann-Louise Engvall, Birgit Heuchemer, Lena Rosenberg & Charlotta Ryd. (2023) What happens when people develop dementia whilst working? An exploratory multiple case study. International Journal of Qualitative Studies on Health and Well-being 18:1.
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Khanh That Ton, J. C. Gaillard, Carole Adamson, Caglar Akgungor & Ha Thanh Ho. (2023) A critical realist explanation for the capabilities of people with disabilities in dealing with disasters. International Journal of Social Research Methodology 26:3, pages 233-247.
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Marianne Sund, Kirsten Jaeger Fjetland & Halvor Hanisch. (2023) Within moments of becoming—everyday citizenship in nursing homes. Scandinavian Journal of Occupational Therapy 30:2, pages 239-250.
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Ruth Bartlett. (2022) Inclusive (social) citizenship and persons with dementia. Disability & Society 37:7, pages 1129-1145.
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Kirstin Broders & Elaine C. Wiersma. (2022) Creating change: the experiences of women living with young onset dementia. Disability & Society 37:5, pages 787-808.
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Rossio Motta-Ochoa, Natalia Incio Serra, Allison Frantz & Stefanie Blain-Moraes. (2022) Enacting agency: movement, dementia, and interaction. Arts & Health 14:2, pages 133-148.
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Khanh That Ton, J. C. Gaillard, Carole Adamson & Caglar Akgungor. (2021) Researching the capabilities of people with disabilities: would a critical realist methodology help?. Journal of Critical Realism 20:2, pages 181-200.
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Sylwia M. Górska, Donald Maciver & Kirsty Forsyth. (2021) Participation as means for adaptation in dementia: a conceptual model. Aging & Mental Health 25:3, pages 499-511.
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Elias Ingebrand, Christina Samuelsson & Lars-Christer Hydén. (2021) People with dementia positioning themselves as learners. Educational Gerontology 47:2, pages 47-62.
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Jong-Min Jeong. (2021) Co-creative Affordance: Rethinking “Beyond Loss” in Dementia through Co-dwelling. Medical Anthropology 40:1, pages 35-49.
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Lottie Giertz, Ulla Melin Emilsson & Emme-Li Vingare. (2019) Family caregivers and decision-making for older people with dementia. Journal of Social Welfare and Family Law 41:3, pages 321-338.
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Katherine Wayne. (2019) How Can Ethics Support Innovative Health Care for an Aging Population?. Ethics & Behavior 29:3, pages 227-253.
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Sarah E. Keyes, Charlotte L. Clarke & Catherine E. Gibb. (2019) Living with dementia, interdependence and citizenship: narratives of everyday decision-making. Disability & Society 34:2, pages 296-319.
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Carol Thomas & Christine Milligan. (2018) Dementia, disability rights and disablism: understanding the social position of people living with dementia. Disability & Society 33:1, pages 115-131.
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Rakel Berenbaum, Chariklia Tziraki & Jiska Cohen-Mansfield. (2017) The right to mourn in dementia: To tell or not to tell when someone dies in dementia day care. Death Studies 41:6, pages 353-359.
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Articles from other publishers (57)

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Lillian Hung, Karen Lok Yi Wong, Jim Mann, Annette Berndt, Lily Wong, Carly Wang, Deborah Liao, Diane Pan & Haopu Ren. (2023) The Perspective of Nurses and Healthcare Providers on the use of Television Videos with People with Moderate to Severe Dementia. Canadian Journal of Nursing Research.
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Ana Koncul, Christine Kelly, Katie Aubrecht & Ruth Bartlett. (2023) Long-Term Care Homes: Carceral Spaces in Times of Crisis or Perpetually?. Space and Culture 26:3, pages 309-322.
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Naomi Farrington, Alison Richardson & Jackie Bridges. (2023) ‘ A real fine balancing act’: A secondary qualitative analysis of power imbalance in comorbid cancer and dementia in an outpatient treatment setting . Journal of Advanced Nursing 79:8, pages 2980-2991.
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Pippa Collins, Jackie Bridges & Ruth Bartlett. (2023) Gaining access to unspoken narratives of people living with dementia on a hospital ward—A new methodology. International Journal of Geriatric Psychiatry 38:8.
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Lea Graff, Helle Timm & Jette Thuesen. (2023) Organizational narratives in rehabilitation-focused dementia care – Negotiating identities, interventions and personhood. Dementia 22:4, pages 709-726.
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Anna Dunér, Angela Bångsbo & Tina M. Olsson. (2023) TalkingMats as a decision aid to promote involvement in choice and decision-making around home care services for older people with mild to moderate dementia – study protocol for a randomized controlled trial. BMC Geriatrics 23:1.
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Marianne Sund, Halvor Hanisch & Kirsten Jaeger Fjetland. (2023) Activistic citizenship in nursing homes: co-ownership in the mundane. Dementia 22:3, pages 594-609.
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Aikaterini Mentzou, Judith Sixsmith, Maggie P. Ellis & Josephine Ross. (2023) Change in the psychological self in people living with dementia: A scoping review. Clinical Psychology Review 101, pages 102268.
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Outi Jolanki, Päivi Eskola & Mari Aaltonen. (2023) People with memory illnesses and their spouses as actors in the hybrid care model. Journal of Family Research 35, pages 326-344.
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Noreen Orr, Rebecca Abbott, Alison Bethel, Sarah Paviour, Rebecca Whear, Ruth Garside & Joanna Thompson Coon. (2023) What are the effects of animals on the health and wellbeing of residents in care homes? A systematic review of the qualitative and quantitative evidence. BMC Geriatrics 23:1.
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Jana Mali. 2023. Human Rights in Contemporary Society - Challenges From an International Perspective [Working Title]. Human Rights in Contemporary Society - Challenges From an International Perspective [Working Title].
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Marjorie Silverman & Alexandre Baril. (2022) Transer la démence : repenser la contrainte à la continuité biographique en théorisant le cisisme et la cisnormativitéTransing dementia: Rethinking compulsory biographical continuity through the theorization of cisism and cisnormativity. Aequitas: Revue de développement humain, handicap et changement social 28:1, pages 35.
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Elisabeth Muth Andersen. (2021) print newspaper as an interactional affordance in an interaction with a person with dementia. Journal of Interactional Research in Communication Disorders 11:2.
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Robert J Hagan & Sarah Campbell. (2021) Doing their damnedest to seek change: How group identity helps people with dementia confront public stigma and maintain purpose. Dementia 20:7, pages 2362-2379.
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Mari S Aaltonen, Anne Martin-Matthews, Jutta M Pulkki, Päivi Eskola & Outi H Jolanki. (2021) Experiences of people with memory disorders and their spouse carers on influencing formal care: “They ask my wife questions that they should ask me”. Dementia 20:7, pages 2307-2322.
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Anna Dunér & Gerd Gustafsson. (2020) Manoeuvring challenging demands: care managers, the Free Choice System and older users of home care services with reduced decision-making capacity. International Journal of Care and Caring 4:4, pages 479-495.
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Trude Gjernes & Per Måseide. (2020) Maintaining ordinariness in dementia care. Sociology of Health & Illness 42:8, pages 1771-1784.
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Jong-min Jeong. (2019) The Affective Creativity of a Couple in Dementia Care. Culture, Medicine, and Psychiatry 44:3, pages 360-381.
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Robert J. Hagan. (2020) What next? Experiences of social support and signposting after a diagnosis of dementia. Health & Social Care in the Community 28:4, pages 1170-1179.
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Laura Pritchard-Jones. (2019) Exploring the potential and the pitfalls of the United Nations Convention on the Rights of Persons with Disabilities and General Comment no. 1 for people with dementia. International Journal of Law and Psychiatry 66, pages 101467.
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