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International Journal of Disability, Development and Education Volume 66, 2019 - Issue 4
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Articles

Schooling of Children with Rare Diseases and Disability in Europe

Renata LinertováThe Canary Foundation for Health Research (FUNCANIS), El Rosario, Spain;Health Services Research on Chronic Patients Network (REDISSEC), Madrid, Spain;The Biomedic Research Centre of Canary Islands (CIBICAN), Universidad de La Laguna, San Cristóbal de La Laguna, SpainCorrespondence[email protected]
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,
Javier González-GuadarramaClinical Psychology Department, Psychology and Methodology, University of La Laguna, San Cristóbal de La Laguna, SpainView further author information
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Pedro Serrano-AguilarHealth Services Research on Chronic Patients Network (REDISSEC), Madrid, Spain;The Biomedic Research Centre of Canary Islands (CIBICAN), Universidad de La Laguna, San Cristóbal de La Laguna, Spain;The Evaluation Service of the Canary Health Service (SESCS), El Rosario, SpainView further author information
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Manuel Posada-De-la-PazThe Evaluation Service of the Canary Health Service (SESCS), El Rosario, SpainView further author information
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Márta PéntekThe Rare Diseases Research Institute (IIER), SpainRDR and CIBERER, Madrid, SpainView further author information
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Georgi IskrovDepartment of Social Medicine and Public Health, Faculty of Public Health, Medical University of Plovdiv, Bulgaria;Institute for Rare Diseases, BulgariaView further author information
&
Marta BallesterHealth Services Research on Chronic Patients Network (REDISSEC), Madrid, Spain;Institute for Rare Diseases, Bulgaria;Avedis Donabedian Research Institute (FAD), Barcelona, Spain;The Autonomous University of Barcelona (UAB), Barcelona, SpainView further author information
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Pages 362-373 | Published online: 18 Jan 2019

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Read on this site (1)

Hamza Alshoura. (2023) Critical Review of Special Needs Education Provision in Malaysia: Discussing Significant Issues and Challenges Faced. International Journal of Disability, Development and Education 70:5, pages 869-884.
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Articles from other publishers (7)

Gry Velvin, Vigdis Johnsen, Ingeborg Beate Lidal & Ellen Berg. (2023) Parental Intervention Program for Preschool children with Rare Diseases – a mixed methods evaluation of parents’ experiences and utility. Orphanet Journal of Rare Diseases 18:1.
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Zuriñe Gaintza & Leire Darretxe. 2023. Research for Inclusive Quality Education. Research for Inclusive Quality Education 149 162 .
Gunilla Jaeger, AnnCatrin Röjvik, Erland Hjelmquist, André Hansla & Kerstin W. Falkman. (2022) Consequences of rare diagnoses for education and daily life: development of an observation instrument. Orphanet Journal of Rare Diseases 17:1.
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Jill Carlton & Philip A. Powell. (2022) Measuring carer quality of life in Duchenne muscular dystrophy: a systematic review of the reliability and validity of self-report instruments using COSMIN. Health and Quality of Life Outcomes 20:1.
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Ramón García-Perales, Ascensión Palomares-Ruiz, Andrea Gracia-Zomeño & Eduardo García-Toledano. (2022) Contextual Variables with an Impact on the Educational Inclusion of Students with Rare Diseases. International Journal of Environmental Research and Public Health 19:21, pages 14103.
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Nikola Ebenbeck, Jakob Rieser, Jana Jungjohann & Markus Gebhardt. (2022) How the existence of special schools affects the placement of students with special needs in inclusive primary schools. Journal of Research in Special Educational Needs 22:3, pages 274-287.
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Odet Moliner & Auxiliadora Sales. (2022) La voix des jeunes atteints de maladies rares ou peu fréquentes : un récit croisé de leur parcours scolaire. Enfance en difficulté 9, pages 57-77.
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