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Articles

Schooling of Children with Rare Diseases and Disability in Europe

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Hamza Alshoura. (2023) Critical Review of Special Needs Education Provision in Malaysia: Discussing Significant Issues and Challenges Faced. International Journal of Disability, Development and Education 70:5, pages 869-884.
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Gry Velvin, Vigdis Johnsen, Ingeborg Beate Lidal & Ellen Berg. (2023) Parental Intervention Program for Preschool children with Rare Diseases – a mixed methods evaluation of parents’ experiences and utility. Orphanet Journal of Rare Diseases 18:1.
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Zuriñe Gaintza & Leire Darretxe. 2023. Research for Inclusive Quality Education. Research for Inclusive Quality Education 149 162 .
Gunilla Jaeger, AnnCatrin Röjvik, Erland Hjelmquist, André Hansla & Kerstin W. Falkman. (2022) Consequences of rare diagnoses for education and daily life: development of an observation instrument. Orphanet Journal of Rare Diseases 17:1.
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Jill Carlton & Philip A. Powell. (2022) Measuring carer quality of life in Duchenne muscular dystrophy: a systematic review of the reliability and validity of self-report instruments using COSMIN. Health and Quality of Life Outcomes 20:1.
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Ramón García-Perales, Ascensión Palomares-Ruiz, Andrea Gracia-Zomeño & Eduardo García-Toledano. (2022) Contextual Variables with an Impact on the Educational Inclusion of Students with Rare Diseases. International Journal of Environmental Research and Public Health 19:21, pages 14103.
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Nikola Ebenbeck, Jakob Rieser, Jana Jungjohann & Markus Gebhardt. (2022) How the existence of special schools affects the placement of students with special needs in inclusive primary schools. Journal of Research in Special Educational Needs 22:3, pages 274-287.
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Odet Moliner & Auxiliadora Sales. (2022) La voix des jeunes atteints de maladies rares ou peu fréquentes : un récit croisé de leur parcours scolaire. Enfance en difficulté 9, pages 57-77.
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