References
- ANED (Academic Network of European Disability experts). (2011). Inclusive education for young disabled people in Europe: Trends, issues and challenges. Retrieved April, 2016, from https://www.disability-europe.net/downloads/72-aned-2010-task-5-education-final-report-final-2-0
- ARACY (The Australian Research Alliance for Children and Youth). (2013). Inclusive education for students with disability. A review of the best evidence in relation to theory and practice. Retrieved December 6, 2016, from http://www.aracy.org.au/publications-resources/command/download_file/id/246/filename/Inclusive_education_for_students_with_disability_-_A_review_of_the_best_evidence_in_relation_to_theory_and_practice.pdf
- Cassidy, S. B., Schwartz, S., Miller, J. L., & Driscoll, D. (2012). Prader-Willi syndrome. Genetics in Medicine, 14(1), 10–26.
- CEGRD (Commission expert group on rare diseases). (2016). Recommendations to support the incorporation of rare diseases into social services and policies. Retrieved April, 2016, from http://ec.europa.eu/health//sites/health/files/rare_diseases/docs/recommendations_socialservices_policies_en.pdf
- Cornelius, D. J. K., & Balakrishnan, J. (2012). Inclusive education for students with intellectual disability. Disability, CBR and Inclusive Development, 23(2), 81–93.
- Cotton, S., Voudouris, N. J., & Greenwood, K. M. (2001). Intelligence and Duchenne muscular dystrophy: Full-scale, verbal, and performance intelligence quotients. Developmental Medicine & Child Neurology, 43(7), 497–501. PMID: 11463183.
- David, M., de Villemeur Billette, A., Devillard, F., Dieterich, K., Jouk, P. S., & Prado, C. (2015). Schooling and care of mild intellectual disability children. Archives De Pédiatrie, 22(3), 223–234.
- Dolan, P. (1997). Modeling valuations for EuroQol health states. Medical Care, 35, 1095–1108. PMID: 9366889.
- EADSNE (European Agency for Development in Special Needs Education). (2012). The inclusive education in action project. Retrieved May 23, 2013, from https://www.european-agency.org/agencyprojects/iea
- EC (European Commission). (2010). European Disability Strategy (2010–2020): A renewed commitment to a barrier-free Europe. COM(2010) 636 final. Retrieved December 6, 2016, from http://eur-lex.europa.eu/legal-content/EN/TXT/HTML/?uri=URISERV:em0047
- FEDER (Federación Española de Enfermedades Raras). (2009). Estudio sobre situación de necesidades sociosanitarias de las personas con enfermedades raras en España. Estudio ENSERio. Obra Social de Caja Madrid. Retrieved October, 2009, from https://www.enfermedades-raras.org/images/stories/documentos/Estudio_ENSERio.pdf
- Felisari, G., Martinelli, F., Bardoni, A., Sironi, M., Comi, G., & Robotti, M. (2000). Loss of Dp140 dystrophin isoform and intellectual impairment in Duchenne dystrophy. Neurology, 55(4), 559–564. PMID: 10953192.
- Hagerman, R., Hoem, G., & Hagerman, P. (2010). Fragile X and autism: Intertwined at the molecular level leading to targeted treatments. Molecular Autism, 1, 12.
- Hérbert, R., Bravo, G., & Préville, M. (2000). Reliability, validity, and reference values of the Zarit Burden interview for assessing informal caregivers of community-dwelling older persons with dementia. Canadian Journal on Aging, 494–507. doi:10.1017/S0714980800012484.
- Heward, W. L. (2009). Exceptional children. An instruction to special education (9th ed.). New Jersey: Pearson Education.
- López-Bastida, J., Oliva-Moreno, J., Linertová, R., & Serrano-Aguilar, P. (2016, Apr). Social/economic costs and health-related quality of life in patients with rare diseases in Europe. European Journal of Health Economics, 17(Suppl 1), 1–5.
- Muenzer, J. (2011). Overview of the mucopolysaccharidoses. Rheumatology (Oxford), 50, v4–v12.
- Sermier, R., Bless, G., & Morin, D. (2012). Effects of inclusion on the academic achievement and adaptive behaviour of children with intellectual disabilities. Journal of Intellectual Disability Research, 56(6), 579–587.
- Serrano-Aguilar, P., Linertová, R., Posada-de-la-Paz, M., López-Bastida, J., González- Hernández, N., & Taruscio, D.; BURQOL-RD Research Network. (2015). Recruitment procedures for descriptive socio-economic studies in rare diseases. The BURQOL-RD project. Expert Opinion on Orphan Drugs, 3(7), 759–765.
- Shah, S., Vanclay, F., & Cooper, B. (1989). Improving the sensitivity of the barthel index for stroke rehabilitation. Journal of Clinical Epidemiology, 42, 703–709. PMID: 2760661.
- Szumski, G., & Karwowski, M. (2012). School achievement of children with intellectual disability: The role of socioeconomic status, placement and parents’ engagement. Research in Developmental Disabilities, 33(5), 1615–1625.
- Thomas, G., & Loxley, A. (2007). Deconstructing special education. Buckingham, GBR: Open University Press.
- UNCRPD (United Nations Committee on the Rights of Persons with Disabilities). (2015). Committee on the rights of persons with disabilities concluding observations on the initial report of the European. Retrieved December 6, 2016, from http://ec.europa.eu/social/BlobServlet?docId=14429andlangId=en
- UNESCO (United Nations Educational, Scientific and Cultural Organisation). (2009). Policy guidelines on inclusion in education. Retrieved May 23, 2013, form http://www.inclusive-education-inaction.org/iea/dokumente/upload/72074_177849e.pdf