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Original Articles

Family Quality of Life: A Framework for Policy and Social Service Provisions to Support Families of Children With Disabilities

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Pages 144-167 | Published online: 08 May 2009

Keep up to date with the latest research on this topic with citation updates for this article.

Read on this site (6)

Siméon T. A. Lahaije, Jorien Luijkx, Aly Waninge & Annette A. J. van der Putten. (2023) Support needs of families with a child with profound intellectual and multiple disabilities. International Journal of Developmental Disabilities 0:0, pages 1-14.
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Guo Ling, Petra Potměšilová & Milon Potměšil. (2022) Families who have a child with a disability: a literature review of quality of life issues from a Chinese perspective. Journal of Family Social Work 25:2-3, pages 67-87.
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Alma Dizdarevic, Haris Memisevic, Armin Osmanovic & Amila Mujezinovic. (2022) Family quality of life: perceptions of parents of children with developmental disabilities in Bosnia and Herzegovina. International Journal of Developmental Disabilities 68:3, pages 274-280.
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Carl Algood & Amber M. Davis. (2019) Inequities in Family Quality of Life for African-American Families Raising Children with Disabilities. Social Work in Public Health 34:1, pages 102-112.
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Shirli Werner. (2015) Athletes’, parents’, and siblings’ experiences from the Special Olympics World Games. Journal of Intellectual & Developmental Disability 40:2, pages 167-178.
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Dorcas Yap, Lily Lau, Nasriah Nasir, Christine Cameron, Jan Matthews, Hui Nee Tang & Dennis W. Moore. (2014) Evaluation of a parenting program for children with behavioural problems: Signposts in Singapore. Journal of Intellectual & Developmental Disability 39:2, pages 214-221.
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Articles from other publishers (44)

Ghaleb H. Alnahdi, Arwa Alwadei, Flora Woltran & Susanne Schwab. (2022) Measuring Family Quality of Life: Scoping Review of the Available Scales and Future Directions. International Journal of Environmental Research and Public Health 19:23, pages 15473.
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Julia Jansen-van Vuuren, Reshma Parvin Nuri, Ansha Nega, Beata Batorowicz, Rosemary Lysaght & Heather Michelle Aldersey. (2021) Family quality of life for families of children with disabilities in African contexts: a scoping review. Quality of Life Research 31:5, pages 1289-1307.
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Preethy S. Samuel, Kathryn Wright, Christina Marsack-Topolewski & Rosanne DiZazzo-Miller. (2021) When More Is Too Much: Compound Caregiving, Barriers to Services, and Service Support for Older Families of People With Disabilities. Families in Society: The Journal of Contemporary Social Services 103:2, pages 180-193.
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Kristin Litzelman & Autumn Harnish. (2020) Caregiver Eligibility for Support Services: Correlates and Consequences for Resource Utilization. Journal of Applied Gerontology 41:2, pages 515-525.
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Roy I. Brown & Ivan Brown. 2020. Encyclopedia of Quality of Life and Well-Being Research. Encyclopedia of Quality of Life and Well-Being Research 1 7 .
Christina N. Marsack‐Topolewski, Tam E. Perry & Keith T. Chan. (2020) “I'm Glad She Chose Me as Her Parent”: Rewards of Caregiving for Adults With Autism. Family Relations 70:5, pages 1465-1476.
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Julia Jansen-van Vuuren, Rosemary Lysaght, Beata Batorowicz, Solomon Dawud & Heather Michelle Aldersey. (2021) Family Quality of Life and Support: Perceptions of Family Members of Children with Disabilities in Ethiopia. Disabilities 1:3, pages 233-256.
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N. Luitwieler, J. Luijkx, M. Salavati, C.P. Van der Schans, A.J. Van der Putten & A. Waninge. (2021) Variables related to the quality of life of families that have a child with severe to profound intellectual disabilities: A systematic review. Heliyon 7:7, pages e07372.
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Pau García-Grau, R. A. McWilliam, Gabriel Martínez-Rico & Catalina P. Morales-Murillo. (2019) Rasch Analysis of the Families in Early Intervention Quality of Life (FEIQoL) Scale. Applied Research in Quality of Life 16:1, pages 383-399.
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Chang Su, Nazilla Khanlou & Nida Mustafa. (2018) Chinese Immigrant Mothers of Children with Developmental Disabilities: Stressors and Social Support. International Journal of Mental Health and Addiction 19:1, pages 1-18.
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Roy I. Brown & Cliff Cunningham. 2020. Encyclopedia of Quality of Life and Well-Being Research. Encyclopedia of Quality of Life and Well-Being Research 1 6 .
Heather M. Aldersey, Ansha N. Ahmed, Haben N. Tesfamichael & Natasha Lotoski. (2020) Needs of families of children with intellectual and developmental disabilities in Addis Ababa. African Journal of Disability 9.
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Reshma Parvin Nuri, Beata Batorowicz & Heather Michelle Aldersey. (2019) Family support and family and child-related outcomes among families impacted by disability in low- and middle-income countries: A scoping review. Journal of Child Health Care 24:4, pages 637-654.
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Anna Balcells-Balcells, Joana M. Mas, Natasha Baqués, Cecilia Simón & Simón García-Ventura. (2020) The Spanish Family Quality of Life Scales under and over 18 Years Old: Psychometric Properties and Families’ Perceptions. International Journal of Environmental Research and Public Health 17:21, pages 7808.
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Renee A. Hepperlen, Paula Rabaey & Mary O. Hearst. (2020) Evaluating the cross‐cultural validity of three family quality of life sub‐scales. Journal of Applied Research in Intellectual Disabilities 33:5, pages 1049-1058.
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Lien Vanderkerken, Mieke Heyvaert, Patrick Onghena & Bea Maes. (2019) The Relation Between Family Quality of Life and the Family‐Centered Approach in Families With Children With an Intellectual Disability. Journal of Policy and Practice in Intellectual Disabilities 16:4, pages 296-311.
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Christina N. Marsack-TopolewskiHeather L. Church. (2019) Impact of Caregiver Burden on Quality of Life for Parents of Adult Children With Autism Spectrum Disorder. American Journal on Intellectual and Developmental Disabilities 124:2, pages 145-156.
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Pau García-Grau, R. A. McWilliam, Gabriel Martínez-Rico & Catalina P. Morales-Murillo. (2018) Child, Family, and Early Intervention Characteristics Related to Family Quality of Life in Spain. Journal of Early Intervention 41:1, pages 44-61.
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Callista Kahonde & Judith McKenzie. 2019. The Palgrave Handbook of Disability and Citizenship in the Global South. The Palgrave Handbook of Disability and Citizenship in the Global South 105 118 .
Christina N. Marsack & Tam E. Perry. (2017) Aging in Place in Every Community: Social Exclusion Experiences of Parents of Adult children With Autism Spectrum Disorder. Research on Aging 40:6, pages 535-557.
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Christina N. Marsack & Preethy S. Samuel. (2017) Mediating Effects of Social Support on Quality of Life for Parents of Adults with Autism. Journal of Autism and Developmental Disorders 47:8, pages 2378-2389.
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Liezl Schlebusch, Shakila Dada & Alecia E. Samuels. (2017) Family Quality of Life of South African Families Raising Children with Autism Spectrum Disorder. Journal of Autism and Developmental Disorders 47:7, pages 1966-1977.
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Anja Kovac Misura & Haris Memisevic. (2017) Quality of Life of Parents of Children with Intellectual Disabilities in Croatia. Journal of Educational and Social Research 7:2, pages 43-48.
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Nazilla Khanlou, Nasim Haque, Nida Mustafa, Luz Maria Vazquez, Anne Mantini & Jonathan Weiss. (2017) Access Barriers to Services by Immigrant Mothers of Children with Autism in Canada. International Journal of Mental Health and Addiction 15:2, pages 239-259.
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Kyeonga Yoon. (2017) Effects of Caregiving Burden on Gain and Family Quality of Life Among Dementia Family Caregivers: The Moderating Role of Coping Strategies. Korean Journal of Gerontological Social Welfare 72:1, pages 257-282.
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Jan Schmidt, Majda Schmidt & Ivan Brown. (2017) Quality of Life Among Families of Children With Intellectual Disabilities: A Slovene Study. Journal of Policy and Practice in Intellectual Disabilities 14:1, pages 87-102.
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Clarissa Altina Cunha de Araújo, Berta Paz-Lourido & Sebastià Verger Gelabert. (2016) Tipos de apoyo a las familias con hijos con discapacidad y su influencia en la calidad de vida familiar. Ciência & Saúde Coletiva 21:10, pages 3121-3130.
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Efi Parpa, Nick Katsantonis, Eleni Tsilika, Antonis Galanos, Maria Sassari & Kyriaki Mystakidou. (2016) Psychometric Properties of the Family Quality of Life Scale in Greek Families with Intellectual Disabilities. Journal of Developmental and Physical Disabilities 28:3, pages 393-405.
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L. Schlebusch, A. E. Samuels & S. Dada. (2016) South African families raising children with autism spectrum disorders: relationship between family routines, cognitive appraisal and family quality of life. Journal of Intellectual Disability Research 60:5, pages 412-423.
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Kyeonga Yoon, 조주연 & 손의성. (2016) Development and Validation of the Family Quality of Life in Dementia (FQOL-D) Scale For Korean Sample. Health and Social Welfare Review 36:1, pages 206-232.
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Joana M. Mas, Natasha Baqués, Anna Balcells-Balcells, Mariona Dalmau, Climent Giné, Marta Gràcia & Rosa Vilaseca. (2016) Family Quality of Life for Families in Early Intervention in Spain. Journal of Early Intervention 38:1, pages 59-74.
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Roy I. Brown, Margaret R. Kyrkou & Preethy S. Samuel. 2016. Health Care for People with Intellectual and Developmental Disabilities across the Lifespan. Health Care for People with Intellectual and Developmental Disabilities across the Lifespan 2065 2082 .
Bianca Miguel Jorge, Cilmara Cristina Alves da Costa Levy & Lídio Granato. (2015) Adaptação Cultural da Escala de Qualidade de Vida Familiar (Family Quality of Life Scale) para o Português Brasileiro. CoDAS 27:6, pages 534-540.
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Nazilla Khanlou, Nida Mustafa, Luz Maria Vazquez, Nasim Haque & Karen Yoshida. (2015) Stressors and Barriers to Services for Immigrant Fathers Raising Children with Developmental Disabilities. International Journal of Mental Health and Addiction 13:6, pages 659-674.
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George H. S. SingerMian Wang. (2014) On a Few of Ann and Rud Turnbull's Many Contributions as Public Intellectuals. Inclusion 2:3, pages 212-226.
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Pauline F. Applefield. 2013. Encyclopedia of Special Education. Encyclopedia of Special Education.
Karen Edwards, Patricia O. Towle & Barbara Levitz. (2013) Incorporating Life Course Theory and Social Determinants of Health into the LEND Curriculum. Maternal and Child Health Journal 18:2, pages 431-442.
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Roy Brown. (2012) Development of a Quality of Life Approach: Issues Across the Lifespan. Journal of Special Education and Rehabilitation 13:1-2.
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X. Hu, M. Wang & X. Fei. (2012) Family quality of life of Chinese families of children with intellectual disabilities. Journal of Intellectual Disability Research 56:1, pages 30-44.
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M. Wang & R. Kober. (2011) Embracing an era of rising family quality of life research. Journal of Intellectual Disability Research 55:12, pages 1093-1097.
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S. Neikrug, D. Roth & J. Judes. (2011) Lives of quality in the face of challenge in Israel. Journal of Intellectual Disability Research 55:12, pages 1176-1184.
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X. Hu, J. A. Summers, A. Turnbull & N. Zuna. (2011) The quantitative measurement of family quality of life: a review of available instruments. Journal of Intellectual Disability Research 55:12, pages 1098-1114.
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R. I. Brown, S. Geider, A. Primrose & N. S. Jokinen. (2011) Family life and the impact of previous and present residential and day care support for children with major cognitive and behavioural challenges: a dilemma for services and policy. Journal of Intellectual Disability Research 55:9, pages 904-917.
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Roy I. Brown, Keumja Hong, Joanne Shearer, Mian Wang & Shin-yi Wang. 2011. Enhancing the Quality of Life of People with Intellectual Disabilities. Enhancing the Quality of Life of People with Intellectual Disabilities 377 398 .

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