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Original Articles

Application of a stress and coping model to caregiving in multiple sclerosis

Pages 13-27 | Published online: 19 Aug 2010

Keep up to date with the latest research on this topic with citation updates for this article.

Read on this site (8)

Gogem Topcu, Heather Buchanan, Aimee Aubeeluck & Gülcan Garip. (2016) Caregiving in multiple sclerosis and quality of life: A meta-synthesis of qualitative research. Psychology & Health 31:6, pages 693-710.
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Sahdia Parveen, Val Morrison & Catherine A. Robinson. (2014) Does coping mediate the relationship between familism and caregiver outcomes?. Aging & Mental Health 18:2, pages 255-259.
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Sahdia Parveen, Val Morrison & Catherine A. Robinson. (2013) Ethnicity, familism and willingness to care: Important influences on caregiver mood?. Aging & Mental Health 17:1, pages 115-124.
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Pauline Boland, William M. M. Levack, Sheena Hudson & Elliot M. Bell. (2012) Coping with multiple sclerosis as a couple: ‘peaks and troughs’ – an interpretative phenomenological exploration. Disability and Rehabilitation 34:16, pages 1367-1375.
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Kenneth I. Pakenham. (2008) The nature of sense making in caregiving for persons with multiple sclerosis. Disability and Rehabilitation 30:17, pages 1263-1273.
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KellyA. Ryan, LisaJ. Rapport, TanyaE. Sherman, RobinA. Hanks, Robert Lisak & Omar Khan. (2007) Predictors of Subjective Well-being among Individuals with Multiple Sclerosis. The Clinical Neuropsychologist 21:2, pages 239-262.
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Articles from other publishers (50)

D. Veillard, K. Baumstarck, S. Hamonic, A. Ousmen, Z. Hamidou, G. Edan & P. Auquier. (2023) Dyadic coping strategies and quality of care experience: An original study of patients living with multiple sclerosis and their caregivers. Revue Neurologique 179:10, pages 1118-1127.
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Katherine L. Cardwell, Taylor A. Hume, Odessa J. McKenna, Lara A. Pilutti & Afolasade Fakolade. (2023) Symptom Management Among Multiple Sclerosis Care Partners in Canada. International Journal of MS Care 25:6, pages 281-287.
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Xingchao Wang & Wenyuan Wang. (2023) Perceived Economic Stress and Adolescents’ Bullying Victimization: The Roles of Self-Esteem and Student-Student Relationships. The Journal of Early Adolescence, pages 027243162311745.
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Yuka Iwata (Shindo) & Etsuko Tadaka. (2022) Effectiveness of web-based intervention for life-change adaptation in family caregivers of community-dwelling individuals with acquired brain injury: A cluster-randomized controlled trial. PLOS ONE 17:8, pages e0273278.
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Man-Man Peng, Zhiying Ma, She-Ying Chen, Wei Luo, Shi-Hui Hu, Xin Yang, Bo Liu, Cecilia Lai-Wan Chan & Mao-Sheng Ran. (2022) Predictors of family caregiving burden of persons with schizophrenia with and without transition of primary caregivers from 1994 to 2015 in rural China. BJPsych Open 8:3.
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Man-Man Peng, Jianli Xing, Xinfeng Tang, Qinglu Wu, Dannuo Wei & Mao-Sheng Ran. (2022) Disease-Related Risk Factors for Caregiver Burden among Family Caregivers of Persons with Schizophrenia: A Systematic Review and Meta-Analysis. International Journal of Environmental Research and Public Health 19:3, pages 1862.
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Cheng Hui-Lin & Gan Ting. (2022) The experiences, perceptions, and support needs among family caregivers of patients with advanced cancer and eating problems: An integrative review. Palliative Medicine 36:2, pages 219-236.
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Gogem Topcu, Heather Buchanan, Aimee Aubeeluck & Hatice Ülsever. (2020) Informal carers’ experiences of caring for someone with Multiple Sclerosis: A photovoice investigation. British Journal of Health Psychology 26:2, pages 360-384.
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Kristin Corey Magan, Mary K. McCurry, Kristen A. Sethares, Meg Bourbonniere, Salimah H. Meghani & Karen B. Hirschman. (2020) The Post-caregiving Health Model. Advances in Nursing Science 43:4, pages 292-305.
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Yue Yu, John H. McGrew, Kevin L. Rand & Catherine E. Mosher. (2018) Using a model of family adaptation to examine outcomes of caregivers of individuals with autism spectrum disorder transitioning into adulthood. Research in Autism Spectrum Disorders 54, pages 37-50.
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Tamsyn Hawken, Julie Turner-Cobb & Julie Barnett. (2018) Coping and adjustment in caregivers: A systematic review. Health Psychology Open 5:2, pages 205510291881065.
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Kenneth Ian Pakenham & Stephen Cox. (2018) Effects of Benefit Finding, Social Support and Caregiving on Youth Adjustment in a Parental Illness Context. Journal of Child and Family Studies 27:8, pages 2491-2506.
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Mohammad Taghi Mohseni Takalu, Seyed Ali Hosseini & Hamidreza Khankeh. (2017) Effectiveness Solution-Focused Therapy Group, to Reduce Stress, Anxiety and Depression in Caregivers of Patients with Multiple Sclerosis. Modern Care Journal 14:4.
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Hossein Ebrahimi, Hadi Hasankhani, Hossein Namdar, Esmail Khodadadi & Marjaneh Fooladi. (2017) Dealing with Chronic Illness: Experiences of Iranian Families of Persons with Multiple Sclerosis—A Qualitative Study. Multiple Sclerosis International 2017, pages 1-8.
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이인정. (2016) A Phenomenological Approach to the Experience of Spousal Carers of People with Multiple Sclerosis. Health and Social Welfare Review 36:2, pages 151-191.
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Gillian G. Leibach, Marilyn Stern, Adriana Aguayo Arelis, Miguel Angel Macias Islas & Brenda Viridiana Rábago Barajas. (2016) Mental Health and Health-Related Quality of Life in Multiple Sclerosis Caregivers in Mexico. International Journal of MS Care 18:1, pages 19-26.
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Karen Strickland, Allison Worth & Catriona Kennedy. (2015) The experiences of support persons of people newly diagnosed with multiple sclerosis: an interpretative phenomenological study. Journal of Advanced Nursing 71:12, pages 2811-2821.
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Eun-Jeong Lee, Jessica Pieczynski, Samantha DeDios-Stern, Camille Simonetti & Gloria K. Lee. (2015) Gender differences in caregiver strain, needs for support, social support, and quality of life among spousal caregivers of persons with multiple sclerosis. Work 52:4, pages 777-787.
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Sindia Madan & Kenneth I Pakenham. (2013) The stress-buffering effects of hope on changes in adjustment to caregiving in multiple sclerosis. Journal of Health Psychology 20:9, pages 1207-1221.
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Kate Greenwell, William K. Gray, Anna van Wersch, Paul van Schaik & Richard Walker. (2015) Predictors of the psychosocial impact of being a carer of people living with Parkinson's disease: A systematic review. Parkinsonism & Related Disorders 21:1, pages 1-11.
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Raluca Petrican, Morris Moscovitch & Cheryl Grady. (2014) Proficiency in positive vs. negative emotion identification and subjective well-being among long-term married elderly couples. Frontiers in Psychology 5.
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Petr Černý. (2014) Approaching Clients With Multiple Sclerosis in Social Services. Caritas et veritas 4:1, pages 83-92.
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Petr Černý. (2014) Otázka přístupu ke klientům s roztroušenou sklerózou v sociálních službách. Caritas et veritas 4:1, pages 73-82.
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Marc Gelkopf & David Roe. (2014) Evaluating Outcome Domains Assessing Caregivers of Individuals with Mental Illness: A Review. Family Process 53:1, pages 150-174.
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Denise Mercurio-Riley, Gloria K. Lee, Julie Chronister & Elizabeth A. Swigar. (2013) Psychosocial Adjustment of Spousal Caregivers of Patients With Chronic Pain. SAGE Open 3:4, pages 215824401351213.
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Sahdia Parveen & Val Morrison. (2012) Predicting caregiver gains: A longitudinal study. British Journal of Health Psychology 17:4, pages 711-723.
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Daniel W. L. Lai. (2012) Effect of Financial Costs on Caregiving Burden of Family Caregivers of Older Adults. SAGE Open 2:4, pages 215824401247046.
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Christina Mackay & Kenneth I. Pakenham. (2011) A Stress and Coping Model of Adjustment to Caring for an Adult with Mental Illness. Community Mental Health Journal 48:4, pages 450-462.
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Hanoch Livneh & Erin Martz. 2012. The Oxford Handbook of Rehabilitation Psychology. The Oxford Handbook of Rehabilitation Psychology 47 87 .
Amber Fitzell & Kenneth I. Pakenham. (2010) Application of a stress and coping model to positive and negative adjustment outcomes in colorectal cancer caregiving. Psycho-Oncology 19:11, pages 1171-1178.
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Kerry Mutch. (2010) In sickness and in health: experience of caring for a spouse with MS. British Journal of Nursing 19:4, pages 214-219.
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A Bogosian, R Moss-Morris, L Yardley & L Dennison. (2009) Experiences of partners of people in the early stages of multiple sclerosis. Multiple Sclerosis Journal 15:7, pages 876-884.
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Mélanie Dumaisdoctorantedoctorante, Audrey FortinPh.D.Ph.D. & Denise BeaudryM. Ed.M. Ed.. (2010) L’expression musicale en réadaptation. Frontières 22:1-2, pages 93-98.
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Kenneth I. Pakenham & Stephen Cox. (2008) Development of the benefit finding in multiple sclerosis (MS) caregiving scale: A longitudinal study of relations between benefit finding and adjustment. British Journal of Health Psychology 13:4, pages 583-602.
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Kenneth I. Pakenham. (2008) Making Sense of Caregiving for Persons with Multiple Sclerosis (MS): The Dimensional Structure of Sense Making and Relations with Positive and Negative Adjustment. International Journal of Behavioral Medicine 15:3, pages 241-252.
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Olagoke Akintola. (2008) Defying all odds: coping with the challenges of volunteer caregiving for patients with AIDS in South Africa. Journal of Advanced Nursing 63:4, pages 357-365.
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Heleen Maurice‐Stam, Frans J. Oort, Bob F. Last & Martha A. Grootenhuis. (2007) Emotional functioning of parents of children with cancer: the first five years of continuous remission after the end of treatment. Psycho-Oncology 17:5, pages 448-459.
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Wenche DageidFanny Duckert. (2008) Balancing Between Normality and Social Death: Black, Rural, South African Women Coping With HIV/AIDS. Qualitative Health Research 18:2, pages 182-195.
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K.I. Pakenham. (2007) The nature of caregiving in multiple sclerosis: development of the caregiving tasks in multiple sclerosis scale. Multiple Sclerosis Journal 13:7, pages 929-938.
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Te Sherman, Lj Rapport, Ra Hanks, Ka Ryan, Pa Keenan, O Khan & Rp Lisak. (2017) Predictors of well-being among significant others of persons with multiple sclerosis. Multiple Sclerosis Journal 13:2, pages 238-249.
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Kenneth I. Pakenham, Jessica Chiu, Samantha Bursnall & Toni Cannon. (2016) Relations between Social Support, Appraisal and Coping and Both Positive and Negative Outcomes in Young Carers. Journal of Health Psychology 12:1, pages 89-102.
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Kenneth I Pakenham & Samantha Bursnall. (2016) Relations between social support, appraisal and coping and both positive and negative outcomes for children of a parent with multiple sclerosis and comparisons with children of healthy parents. Clinical Rehabilitation 20:8, pages 709-723.
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Debra S. Herman, Duane Bishop, Jennifer L. Anthony, William Chase, Elizabeth Trisvan, Rosalie Lopez & Michael D. Stein. (2006) Feasibility of a Telephone Intervention for HIV Patients and Their Informal Caregivers. Journal of Clinical Psychology in Medical Settings 13:1, pages 78-88.
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Richard Warner, Del Thomas & RosWell Martin. (2005) Improving service delivery for relapse management in multiple sclerosis. British Journal of Nursing 14:14, pages 746-753.
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Kenneth I. Pakenham. (2005) Relations Between Coping and Positive and Negative Outcomes in Carers of Persons with Multiple Sclerosis (MS). Journal of Clinical Psychology in Medical Settings 12:1, pages 25-38.
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Ellen Young, Jane Eddleston, Sarah Ingleby, Janice Streets, Lucy McJanet, Michael Wang & Lesley Glover. (2004) Returning home after intensive care: A comparison of symptoms of anxiety and depression in ICU and elective cardiac surgery patients and their relatives. Intensive Care Medicine 31:1, pages 86-91.
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D A GruenewaldI J Higginson, B Vivat, P Edmonds & R E Burman. (2016) Quality of life measures for the palliative care of people severely affected by multiple sclerosis: a systematic review. Multiple Sclerosis Journal 10:6, pages 690-725.
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L P McKeownA P Porter-Armstrong & G D Baxter. (2016) Caregivers of people with multiple sclerosis: experiences of support. Multiple Sclerosis Journal 10:2, pages 219-230.
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L P McKeown, A P Porter-Armstrong & G D Baxter. (2016) The needs and experiences of caregivers of individuals with multiple sclerosis: a systematic review. Clinical Rehabilitation 17:3, pages 234-248.
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H. W. Kim, J. S. Greenberg, M. M. Seltzer & M. W. Krauss. (2003) The role of coping in maintaining the psychological well‐being of mothers of adults with intellectual disability and mental illness. Journal of Intellectual Disability Research 47:4-5, pages 313-327.
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