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Psychology, Health & Medicine Volume 9, 2004 - Issue 3
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Original Articles

Adaptation to being at-risk for Huntington's Disease and the availability of genetic testing: application of a stress and coping model

KI Pakenham School of Psychology, The University of Queensland, AustraliaCorrespondence[email protected]
,
VA Goodwin School of Psychology, The University of Queensland, Australia
&
JC MacMillan Queensland Clinical Genetics Service, Royal Children's Hospital, Brisbane, Australia
Pages 380-397 | Published online: 23 Jan 2007

Citations (13)

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Read on this site (3)

A.M. Buckmaster & P. Gallagher. (2010) Experiences of and perspectives on genetic testing for breast/ovarian cancer in and outside of the customary clinical setting. Psychology & Health 25:9, pages 1041-1059.
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Alberto Coustasse, Alicia Pekar, Andrew Sikula & Sue Lurie. (2009) Ethical Considerations of Genetic Presymptomatic Testing for Huntington's Disease. Journal of Hospital Marketing & Public Relations 19:2, pages 129-141.
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VeronicaJ. Smith, TracieL. Stewart, AshleyC. Myers & IoanaM. Latu. (2008) Implicit Coping Responses to Racism Predict African Americans' Level of Psychological Distress. Basic and Applied Social Psychology 30:3, pages 264-277.
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Articles from other publishers (10)

Susanne Lundin, Eva Torkelson & Marsanna Petersen. (2016) “With This Disease, You Take Whatever Chances There Are”—A Study on Socio-Cultural and Psychological Aspects of Experiments Regarding Huntington’s Disease. Open Journal of Medical Psychology 05:04, pages 72-87.
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Kate Greenwell, William K. Gray, Anna van Wersch, Paul van Schaik & Richard Walker. (2015) Predictors of the psychosocial impact of being a carer of people living with Parkinson's disease: A systematic review. Parkinsonism & Related Disorders 21:1, pages 1-11.
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Tracey M. Scuffham & John C. MacMillan. (2014) Huntington Disease: Who Seeks Presymptomatic Genetic Testing, Why and What are the Outcomes?. Journal of Genetic Counseling 23:5, pages 754-761.
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Louise Heiniger, Phyllis N. Butow, Melanie A. Price & Margaret Charles. (2013) Distress in unaffected individuals who decline, delay or remain ineligible for genetic testing for hereditary diseases: a systematic review. Psycho-Oncology 22:9, pages 1930-1945.
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Nancy R. Downing, Janet K. Williams, Anne L. Leserman & Jane S. Paulsen. (2012) Couples’ Coping in Prodromal Huntington Disease: A Mixed Methods Study. Journal of Genetic Counseling 21:5, pages 662-670.
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Janet K. WilliamsCheryl ErwinAndrew JuhlJames MillsBradley BrossmanJane S. Paulsen. (2010) Personal Factors Associated with Reported Benefits of Huntington Disease Family History or Genetic Testing. Genetic Testing and Molecular Biomarkers 14:5, pages 629-636.
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Eleanor Wilson, Kristian Pollock & Aimee Aubeeluck. (2010) Gaining and maintaining consent when capacity can be an issue: a research study with people with Huntington's disease. Clinical Ethics 5:3, pages 142-147.
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Holly Etchegary. (2009) Coping with Genetic Risk: Living with Huntington Disease (HD). Current Psychology 28:4, pages 284-301.
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Neil S. Coulson, Heather Buchanan & Aimee Aubeeluck. (2007) Social support in cyberspace: A content analysis of communication within a Huntington's disease online support group. Patient Education and Counseling 68:2, pages 173-178.
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RJ Tassicker, PK Marshall, TA Liebeck, MA Keville, BM Singaram & FH Richards. (2006) Predictive and pre-natal testing for Huntington Disease in Australia: results and challenges encountered during a 10-year period (1994-2003). Clinical Genetics 70:6, pages 480-489.
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