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Articles

The psychological impact of facial changes in scleroderma

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Pages 304-312 | Received 05 Jun 2010, Accepted 11 Nov 2010, Published online: 11 Apr 2011

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Tyler J Mills, Elizabeth Price, Vishal R Aggarwal, Francesco Del Galdo & Liz Walker. (2023) Clinician and patient experiences of managing and living with oral and dental manifestations of scleroderma: A scoping review. Journal of Scleroderma and Related Disorders.
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Sreyleak Luch, Pauravy Men, Gwenyth Fischer & Andrew Wu. (2023) Diagnosing and Managing Linear Scleroderma in a Low-Resource Setting. Case Reports in Pediatrics 2023, pages 1-4.
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Marvin L. Frommer, Benjamin J. Langridge, Laura Awad, Sara Jasionowska, Christopher P. Denton, David J. Abraham, Jeries Abu-Hanna & Peter E. M. Butler. (2023) Single-Cell Analysis of ADSC Interactions with Fibroblasts and Endothelial Cells in Scleroderma Skin. Cells 12:13, pages 1784.
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Susan L Murphy, Yen T Chen, Yvonne C Lee, Mary Carns, Kathleen Aren, Benjamin Korman, Monique Hinchcliff & John Varga. (2023) Differences in symptom experience among patients with systemic sclerosis: a cluster analytic approach to identifying subgroups. Rheumatology 62:SI, pages SI64-SI73.
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Khadija El Aoufy, Arianna Pezzutto, Alessandra Pollina, Laura Rasero, Stefano Bambi, Silvia Bellando-Randone, Serena Guiducci, Susanna Maddali-Bongi & Marco Matucci Cerinic. (2023) Systemic Sclerosis Patients Experiencing Mindfulness-Based Stress Reduction Program: The Beneficial Effect on Their Psychological Status and Quality of Life. International Journal of Environmental Research and Public Health 20:3, pages 2512.
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Myrianne-Fleur Le Ralle, Camille Daste, François Rannou, Linda Kwakkenbos, Marie-Eve Carrier, Marie-Martine Lefèvre-Colau, Alexandra Roren, Brett D. Thombs, Luc Mouthon & Christelle Nguyen. (2022) Patient Acceptable Symptom State for Burden From Appearance Changes in People With Systemic Sclerosis: A Cross-sectional Survey. The Journal of Rheumatology 49:8, pages 903-907.
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Sarah Dubourg, Olivier Huck & Sophie Jung. (2022) Implant-based Oral Rehabilitation in Systemic Sclerosis Patients: A Systematic Review. Journal of Oral Implantology 48:3, pages 251-260.
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Henrik Pettersson, Helene Alexanderson, Janet L. Poole, Janos Varga, Malin Regardt, Anne-Marie Russell, Yasser Salam, Kelly Jensen, Jennifer Mansour, Tracy Frech, Carol Feghali-Bostwick, Cecília Varjú, Nancy Baldwin, Matty Heenan, Kim Fligelstone, Monica Holmner, Matthew R. Lammi, Mary Beth Scholand, Lee Shapiro, Elizabeth R. Volkmann & Lesley Ann Saketkoo. (2021) Exercise as a multi-modal disease-modifying medicine in systemic sclerosis: An introduction by The Global Fellowship on Rehabilitation and Exercise in Systemic Sclerosis (G-FoRSS). Best Practice & Research Clinical Rheumatology 35:3, pages 101695.
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Enas A. Elattar, Mona G. Balata & Reem El Mallah. (2020) The reliability and validity of the Arabic version of the Mouth Handicap in Systemic Sclerosis (MHISS) Questionnaire in Arabian systemic sclerosis patients. Egyptian Rheumatology and Rehabilitation 47:1.
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Annalisa Cogliandro, Mauro Barone, Silvia Ciarrocchi, Rosa Salzillo, Timothy Moss, Vittoradolfo Tambone & Paolo Persichetti. (2020) A systematic review on the Derriford Appearance Scale (DAS) questionnaire in surgical research. European Journal of Plastic Surgery 43:6, pages 795-808.
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M.-S. Doutre, D. Godard, M. Benani & C. Taieb. (2020) Création et validation d’un outil d’évaluation du handicap lié à l’atteinte du visage de la sclérodermie systémique. Annales de Dermatologie et de Vénéréologie 147:10, pages 595-601.
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Nina M. van Leeuwen, Maaike Boonstra, Tom W.J. Huizinga, Ad A. Kaptein & Jeska K. de Vries‐Bouwstra. (2020) Illness perceptions, risk perceptions and worries in patients with early systemic sclerosis: A focus group study. Musculoskeletal Care 18:2, pages 177-186.
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Faith Hyun Kyung Jeon, Michelle Griffin, Christopher Paul Denton & Peter Edward Michael Butler. (2020) Feasibility study of stem-cell enriched autologous lipotransfer to treat oro-facial fibrosis in systemic sclerosis (Sys-Stem): Protocol for open-label randomised controlled trial. International Journal of Surgery Protocols 23, pages 6-10.
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İpek Türk, Nihan Cüzdan, Volkan Çiftçi, Didem Arslan, Muharrem Cem Doğan & İlker Unal. (2019) Malnutrition, associated clinical factors, and depression in systemic sclerosis: a cross-sectional study. Clinical Rheumatology 39:1, pages 57-67.
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Eun Hye Park, Vibeke Strand, Yoon Jeong Oh, Yeong Wook Song & Eun Bong Lee. (2019) Health-related quality of life in systemic sclerosis compared with other rheumatic diseases: a cross-sectional study. Arthritis Research & Therapy 21:1.
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Aurora Almadori, Michelle Griffin, Caroline M. Ryan, Debbie F. Hunt, Esther Hansen, Ravi Kumar, David J. Abraham, Christopher P. Denton & Peter E. M. Butler. (2019) Stem cell enriched lipotransfer reverses the effects of fibrosis in systemic sclerosis. PLOS ONE 14:7, pages e0218068.
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Fabio Basta, Domenico Paolo Emanuele Margiotta, Carmen Mazzuca, Veronica Batani, Giulio Dolcini, Patrizio Moras, Marta Vadacca & Antonella Afeltra. (2018) Factors related to alexithymia in patients with systemic sclerosis: a tight relationship with facial image dissatisfaction. Rheumatology International 39:3, pages 461-467.
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Nicola L. Bragazzi, Abdulla Watad, Alex Gizunterman, Dennis McGonagle, Hussein Mahagna, Doron Comaneshter, Howard Amital, Arnon D. Cohen & Daniela Amital. (2019) The burden of depression in systemic sclerosis patients: a nationwide population-based study. Journal of Affective Disorders 243, pages 427-431.
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Gaetano Isola, Ray C. Williams, Alberto Lo Gullo, Luca Ramaglia, Marco Matarese, Vincenzo Iorio-Siciliano, Claudio Cosio & Giovanni Matarese. (2017) Risk association between scleroderma disease characteristics, periodontitis, and tooth loss. Clinical Rheumatology 36:12, pages 2733-2741.
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Gaetano Isola & Giovanni Matarese. (2017) New challenge in the systemic sclerosis disease management: A call to action. Oral Diseases 23:7, pages 1011-1012.
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S Jung, T Martin, M Schmittbuhl & O Huck. (2016) The spectrum of orofacial manifestations in systemic sclerosis: a challenging management. Oral Diseases 23:4, pages 424-439.
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Shadi Gholizadeh, Rina S. Fox, Sarah D. Mills, Lisa R. Jewett, Brett D. Thombs & Vanessa L. Malcarne. 2017. Scleroderma. Scleroderma 713 721 .
Lisa R. Jewett, Linda Kwakkenbos, Vanessa C. Delisle, Brooke Levis & Brett D. Thombs. 2017. Scleroderma. Scleroderma 615 621 .
Lisa R. Jewett, Vanessa L. Malcarne, Linda Kwakkenbos, Diana Harcourt, Nichola Rumsey, Annett Körner, Russell J. Steele, Marie Hudson, Murray Baron, Jennifer A. Haythornthwaite, Leslie Heinberg, Fredrick M. Wigley & Brett D. Thombs. (2016) Development and Validation of the Body Concealment Scale for Scleroderma. Arthritis Care & Research 68:8, pages 1158-1165.
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Imane Bennani, Raphael Lopez, Delphine Bonnet, Gregoire Prevot, Arnaud Constantin, Dominique Chauveau, Carle Paul & Cristina Bulai Livideanu. (2016) Improvement of Microstomia in Scleroderma after Carbon Dioxide Laser Treatment. Case Reports in Dermatology 8:2, pages 142-150.
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Stephanie T. Gumuchian, Sandra Peláez, Vanessa C. Delisle, Marie-Eve Carrier, Lisa R. Jewett, Ghassan El-Baalbaki, Catherine Fortune, Marie Hudson, Ann Impens, Annett Körner, Jennifer Persmann, Linda Kwakkenbos, Susan J. Bartlett & Brett D. Thombs. (2016) Exploring Sources of Emotional Distress among People Living with Scleroderma: A Focus Group Study. PLOS ONE 11:3, pages e0152419.
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Linda Kwakkenbos, Vanessa C. Delisle, Rina S. Fox, Shadi Gholizadeh, Lisa R. Jewett, Brooke Levis, Katherine Milette, Sarah D. Mills, Vanessa L. Malcarne & Brett D. Thombs. (2015) Psychosocial Aspects of Scleroderma. Rheumatic Disease Clinics of North America 41:3, pages 519-528.
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Mohsen Ramazani, Nafiseh Zarenejad & Mohammad Ebrahimi Saravi. (2015) The Help of Hypnodontics to a Patient With Scleroderma ‒ Case Report. Iranian Journal of Psychiatry and Behavioral Sciences 9:1.
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A. Del Rosso & S. Maddali-Bongi. (2014) Oral health in patients with systemic sclerosis. Rheumatology 53:8, pages 1355-1356.
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Vanessa L. Malcarne, Rina S. Fox, Sarah D. Mills & Shadi Gholizadeh. (2013) Psychosocial aspects of systemic sclerosis. Current Opinion in Rheumatology 25:6, pages 707-713.
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Agnes Kocher, Sabine Adler & Elisabeth Spichiger. (2013) Skin and Mucosa Care in Systemic Sclerosis – Patients' and Family Caregivers' Experiences and Expectations of a Specific Education Programme: A Qualitative Study. Musculoskeletal Care 11:3, pages 168-178.
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Ami A. Shah & Fredrick M. Wigley. (2013) My Approach to the Treatment of Scleroderma. Mayo Clinic Proceedings 88:4, pages 377-393.
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Lisa R. Jewett, Marie Hudson, Vanessa L. Malcarne, Murray Baron & Brett D. Thombs. (2012) Sociodemographic and Disease Correlates of Body Image Distress among Patients with Systemic Sclerosis. PLoS ONE 7:3, pages e33281.
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