Advanced search
Publication Cover
Psychology, Health & Medicine Volume 17, 2012 - Issue 4
Submit an article Journal homepage
869
Views
19
CrossRef citations to date
0
Altmetric
Articles

Impact of patient suffering on caregiver well-being: The case of amyotrophic lateral sclerosis patients and their caregivers

Kathrin Boerner Research Institute on Aging, Jewish Home Lifecare/Brookdale Department of Geriatrics & Palliative Medicine, Mount Sinai School of Medicine, New York, USACorrespondence[email protected]
&
Steven E. Mock Department of Recreation & Leisure Studies, University of Waterloo, Ontario, Canada
Pages 457-466 | Received 26 Apr 2011, Accepted 09 Aug 2011, Published online: 25 Nov 2011

Citations (19)

Keep up to date with the latest research on this topic with citation updates for this article.

Subscribe to citation updates

Read on this site (3)

Claudia Zanini, Maddalena Fiordelli, Julia Amann, Mirjam Brach, Armin Gemperli & Sara Rubinelli. (2022) Coping strategies of family caregivers in spinal cord injury: a qualitative study. Disability and Rehabilitation 44:2, pages 243-252.
Read now
Francesco Tramonti, Paolo Bongioanni, Rebecca Leotta, Irene Puppi & Bruno Rossi. (2015) Age, gender, kinship and caregiver burden in amyotrophic lateral sclerosis. Psychology, Health & Medicine 20:1, pages 41-46.
Read now
Ralf Stutzki, Markus Weber, Stella Reiter-Theil, Urs Simmen, Gian Domenico Borasio & Ralf J. Jox. (2014) Attitudes towards hastened death in ALS: A prospective study of patients and family caregivers. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 15:1-2, pages 68-76.
Read now

Articles from other publishers (16)

Antonella Mossa, Masako Mayahara, Chuka Emezue & Olimpia Paun. (2023) The Impact of Rapidly Progressing Neurodegenerative Disorders on Caregivers. Journal of Hospice & Palliative Nursing.
Crossref
Davide Gentili, Giovanna Deiana, Vanna Chessa, Annalisa Calabretta, Elisabetta Marras, Costanzo Solinas, Carmelo Gugliotta & Antonio Azara. (2023) Quality of Life in Amyotrophic Lateral Sclerosis Patients and Care Burden of Caregivers in Sardinia during COVID-19 Pandemic. Healthcare 11:11, pages 1641.
Crossref
Ling Lian, Minying Zheng, Ruojie He, Jianing Lin, Weineng Chen, Zhong Pei & Xiaoli Yao. (2022) Analysing the influencing factors on caregivers’ burden among amyotrophic lateral sclerosis patients in China: a cross-sectional study based on data mining. BMJ Open 12:9, pages e066402.
Crossref
Laura Gallego‐Alberto, Rosa Romero‐Moreno, María Márquez‐González, Richard Schulz, Isabel Cabrera, Javier Olazarán‐Rodríguez & Andrés Losada. (2021) Compassion in dementia caregiving: Psychometric properties of the Caregiving Compassion Scale in Spanish caregivers. Health & Social Care in the Community 30:5.
Crossref
Manjusha G Warrier, Priya Treesa Thomas, Arun Sadasivan, Saraswati Nashi, Seena Vengalil & A. Nalini. (2022) Development of Guidelines for Spouses Engaged in Home-Based Care of Persons With Motor Neuron Disease From Indian Context. Journal of Patient Experience 9, pages 237437352210775.
Crossref
Barbara Bassola, Silvia Cilluffo & Maura Lusignani. (2020) Going inside the relationship between caregiver and care‐receiver with Amyotrophic Lateral Sclerosis in Italy, a Grounded Theory study. Health & Social Care in the Community 29:4, pages 1083-1090.
Crossref
Juyeon Oh, Jung-A Kim & Min Sun Chu. (2021) Family Caregiver Suffering in Caring for Patients with Amyotrophic Lateral Sclerosis in Korea. International Journal of Environmental Research and Public Health 18:9, pages 4937.
Crossref
James Grogan & Zachary Simmons. (2020) Telemedicine for the Care of Neuromuscular Disorders. Current Treatment Options in Neurology 22:6.
Crossref
Antonio Geraldo Abreu Filho, Leila Salomão Plata Cury Tardivo, Acary Souza Bulle Oliveira & Helga Cristina Almeida da Silva. (2019) Brazilian Nursing and Psychology students' visits to patients with amyotrophic lateral sclerosis: prospective analysis. Arquivos de Neuro-Psiquiatria 77:11, pages 782-791.
Crossref
Hyeon Sik Chu, Young Ran Tak & Seung Hyun Kim. (2018) Factors Influencing Psychosocial Well-Being in Family Caregivers of People with Amyotrophic Lateral Sclerosis. Journal of Korean Academy of Nursing 48:4, pages 454.
Crossref
Jessica de Wit, Leonhard A Bakker, Annerieke C van Groenestijn, Leonard H van den Berg, Carin D Schröder, Johanna MA Visser-Meily & Anita Beelen. (2017) Caregiver burden in amyotrophic lateral sclerosis: A systematic review. Palliative Medicine 32:1, pages 231-245.
Crossref
Anna Marconi. (2017) Psychological Intervention in Amyotrophic Lateral Sclerosis: Suggestions for Clinical Practice. Journal of Psychology & Clinical Psychiatry 8:2.
Crossref
Susan Bergin & Carole Mockford. (2016) Recommendations to support informal carers of people living with motor neurone disease. British Journal of Community Nursing 21:10, pages 518-524.
Crossref
Huub Creemers, Sandra de Morée, Jan H Veldink, Frans Nollet, Leonard H van den Berg & Anita Beelen. (2016) Factors related to caregiver strain in ALS: a longitudinal study. Journal of Neurology, Neurosurgery & Psychiatry 87:7, pages 775-781.
Crossref
Dezhi Chen, Xiaoyan Guo, Zhenzhen Zheng, Qianqian Wei, Wei Song, Bei Cao, Rui Huang, Rong Yang & Huifang Shang. (2015) Depression and anxiety in amyotrophic lateral sclerosis: Correlations between the distress of patients and caregivers. Muscle & Nerve 51:3, pages 353-357.
Crossref
Marilyn E. Miller. 2014. A Comprehensive Guide to Geriatric Rehabilitation. A Comprehensive Guide to Geriatric Rehabilitation 120 123 .

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Order Reprints Request Corporate Permissions

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

Request Academic Permissions

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.

Related research

People also read lists articles that other readers of this article have read.

Recommended articles lists articles that we recommend and is powered by our AI driven recommendation engine.

Cited by lists all citing articles based on Crossref citations.
Articles with the Crossref icon will open in a new tab.