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Marla Munro, Danica M. Voight, Brooke A. Bryson & Kathleen R. Bogart. (2023) Enacted Stigma Experiences and Identity Noticeability of LGBQ+ Women with Rare Diseases. Journal of Homosexuality 70:11, pages 2348-2373.
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Cécile Bardon, Anne Guillemette, Marie-Eve Rioux & Mélina Rivard. (2023) Group intervention programs and their impact on well-being and quality-of-life for adults living with a rare or orphan disease – realist review of literature. Disability and Rehabilitation 45:16, pages 2567-2577.
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Andrea Caputo. (2021) Telling a Complicated Grief: A Psychodynamic Study on Mental Health Nurses’ Countertransference Reactions to Patients’ Suicidal Behavior. Archives of Suicide Research 25:4, pages 862-875.
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Elodie Brugallé, Pascal Antoine, Laura Geerts, Laurence Bellengier, Sylvie Manouvrier-Hanu & Carole Fantini-Hauwel. (2021) Growing up with a rare genetic disease: an interpretative phenomenological analysis of living with Holt-Oram syndrome. Disability and Rehabilitation 43:16, pages 2304-2311.
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Silvia Potì, Laura Palareti, Frederica RMY Cassis & Sonia Brondi. (2019) Health care professionals dealing with hemophilia: insights from the international qualitative study of the HERO initiative. Journal of Multidisciplinary Healthcare 12, pages 361-375.
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Silvia Potì, Laura Palareti, Francesca Emiliani, Giuseppina Rodorigo & Lelia Valdrè. (2018) The subjective experience of living with haemophilia in the transition from early adolescence to young adulthood: the effect of age and the therapeutic regimen. International Journal of Adolescence and Youth 23:2, pages 133-144.
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Justine Deschamps, Damien Choffat, Andreas Limacher, Marc Righini, Juerg Hans Beer, Christine Baumgartner, Olivier Hugli, Drahomir Aujesky & Marie Méan. (2023) Quality of life in elderly patients with venous thromboembolism assessed using patient-reported outcome measures. Journal of Thrombosis and Haemostasis 21:11, pages 3193-3202.
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Francesco Marchini, Andrea Caputo, Viviana Langher, Chiara Giuliani, Alessio Convertino, Rossella Mazzilli, Antongiulio Faggiano & Angela Napoli. (2022) Understanding care relationships in diabetes practice: A psychodynamic interview-based exploratory study. PLOS ONE 17:2, pages e0263226.
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Gabriella Martino, Andrea Caputo, Carmelo M. Vicario, Ulla Feldt-Rasmussen, Torquil Watt, Maria C. Quattropani, Salvatore Benvenga & Roberto Vita. (2021) Alexithymia, Emotional Distress, and Perceived Quality of Life in Patients With Hashimoto’s Thyroiditis. Frontiers in Psychology 12.
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Andrea Caputo. (2020) When the body is defective: An object relations informed narrative analysis of the illness experience of people affected by pulmonary hypertension. RICERCHE DI PSICOLOGIA:3, pages 817-834.
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Fabiola Fedele, Andrea Caputo, Barbara Cordella, Ludovico Muzii, Daniela Pietrangeli, Cesare Aragona & Viviana Langher. (2020) What about fertility staff emotions? An explorative analysis of healthcare professionals’ subjective perspective. Europe’s Journal of Psychology 16:4, pages 619-638.
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Chiara Scaratti, Giovanna Zorzi, Erika Guastafierro, Matilde Leonardi, Venusia Covelli, Claudia Toppo & Nardo Nardocci. (2020) Long term perceptions of illness and self after Deep Brain Stimulation in pediatric dystonia: A narrative research. European Journal of Paediatric Neurology 26, pages 61-67.
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Guillaume Martinent, Manon Carrot, Anne Chirac, Sophie Dupuis-Girod, Anne-Emmanuelle Fargeton, Stéphanie Blois Da Conceição & Sylvie Fourdrinoy. (2020) Hereditary hemorrhagic telangiectasia and health-related quality of life: a qualitative investigation. Quality of Life Research 29:5, pages 1291-1299.
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Patrick Chérin, Taylor Pindi Sala, Pierre Clerson, Annaïk Dokhan, Yann Fardini, Martin Duracinsky, Jean-Charles Crave & Olivier Chassany. (2020) Recovering autonomy is a key advantage of home-based immunoglobulin therapy in patients with myositis. Medicine 99:7, pages e19012.
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Viviana Langher, Fabiola Fedele, Andrea Caputo, Francesco Marchini & Cesare Aragona. (2019) Extreme desire for motherhood: Analysis of narratives from women undergoing Assisted Reproductive Technology (ART). Europe’s Journal of Psychology 15:2, pages 292-311.
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Andrea Caputo. (2018) The Experience of Therapeutic Community: Emotional and Motivational Dynamics of People with Drug Addiction Following Rehabilitation. International Journal of Mental Health and Addiction 17:1, pages 151-165.
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David C. Buitenweg, Ilja L. Bongers, Dike van de Mheen, Hans A.M. van Oers & Chijs Van Nieuwenhuizen. (2018)
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Marja-Leena Kristofferzon, Maria Engström & Annika Nilsson. (2018) Coping mediates the relationship between sense of coherence and mental quality of life in patients with chronic illness: a cross-sectional study. Quality of Life Research 27:7, pages 1855-1863.
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Andrea Caputo. (2018) “I Have Been Bullied at Workplace!”: A Qualitative Study on Italian Employees’ Stories. The Spanish Journal of Psychology 21.
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Charlotte von der Lippe, Plata S. Diesen & Kristin B. Feragen. (2017) Living with a rare disorder: a systematic review of the qualitative literature. Molecular Genetics & Genomic Medicine 5:6, pages 758-773.
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Elena Nicod, Karen Berg Brigham, Isabelle Durand-Zaleski & Panos Kanavos. (2017) Dealing with Uncertainty and Accounting for Social Value Judgments in Assessments of Orphan Drugs: Evidence from Four European Countries. Value in Health 20:7, pages 919-926.
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Tomiko Takeuchi, Koko Muraoka, Megumi Yamada, Yuri Nishio & Isao Hozumi. (2016) Living with idiopathic basal ganglia calcification 3: a qualitative study describing the lives and illness of people diagnosed with a rare neurological disease. SpringerPlus 5:1.
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Livio Provenzi, Serena Barello, Monica Fumagalli, Guendalina Graffigna, Ida Sirgiovanni, Mariarosaria Savarese & Rosario Montirosso. (2016) A Comparison of Maternal and Paternal Experiences of Becoming Parents of a Very Preterm Infant. Journal of Obstetric, Gynecologic & Neonatal Nursing 45:4, pages 528-541.
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