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Psychology, Health & Medicine Volume 19, 2014 - Issue 2
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Articles

Illness perceptions, coping styles and psychological distress in adults with Huntington’s disease

Natalie ArranDepartment of Neuropsychology, Salford Royal Hospital NHS Foundation Trust, Salford, UK
,
David CraufurdUniversity of Manchester, Manchester Academic Health Science Centre, Manchester, UK;Central Manchester University Hospitals NHS Foundation Trust, Manchester, UK
&
Jane SimpsonClinical Psychology, Lancaster University, Bailrigg, UKCorrespondence[email protected]
Pages 169-179 | Received 12 Sep 2012, Accepted 30 Apr 2013, Published online: 14 Jun 2013

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Nicolò Zarotti, Katherine Helen O’Leary Deane, Catherine Elaine Longworth Ford & Jane Simpson. (2023) Perceived control as a predictor of medication adherence in people with Parkinson’s: a large-scale cross-sectional study. Disability and Rehabilitation 0:0, pages 1-11.
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Articles from other publishers (31)

Jiajie Li, Yan Wang, Riyun Yang, Wenjun Ma, JunGuo Yan, Yi Li, Gang Chen & Jingying Pan. (2023) Pain in Huntington’s disease and its potential mechanisms. Frontiers in Aging Neuroscience 15.
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Arianna Novati, Huu Phuc Nguyen & Julia Schulze-Hentrich. (2022) Environmental stimulation in Huntington disease patients and animal models. Neurobiology of Disease 171, pages 105725.
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Hiba Bilal, Narelle Warren, Pinithi Dahanayake, Wendy Kelso, Sarah Farrand & Julie C. Stout. (2022) The Lived Experiences of Depression in Huntington’s Disease: A Qualitative Study. Journal of Huntington's Disease 11:3, pages 321-335.
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Josine Engels & Erik van Duijn. (2022) Nursing Approaches and Perceived Quality of Life in Advanced Stage Huntington’s Disease Patients. Journal of Huntington's Disease 11:3, pages 313-320.
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Maria Dale, Ashleigh Wood, Nicolò Zarotti, Fiona Eccles, Sarah Gunn, Reza Kiani, Amanda Mobley, Noelle Robertson & Jane Simpson. (2022) Using a Clinical Formulation to Understand Psychological Distress in People Affected by Huntington’s Disease: A Descriptive, Evidence-Based Model. Journal of Personalized Medicine 12:8, pages 1222.
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Eileen Shaw, Michelle Mayer, Paul Ekwaru, Suzanne McMullen, Erin Graves, Jennifer W. Wu, Nathalie Budd, Bridget Maturi, Tara Cowling & Tiago A. Mestre. (2022) Disease Burden of Huntington’s Disease (HD) on People Living with HD and Care Partners in Canada. Journal of Huntington's Disease 11:2, pages 179-193.
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Özlem Devrim BALABAN & E. Cem ATBAŞOĞLU. (2022) Huntington Hastalığı’nın Nöropsikiyatrik YönüNeuropsychiatric Aspects of Huntington’s Disease. Psikiyatride Güncel Yaklaşımlar 14:1, pages 98-112.
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Fiona J.R. Eccles, David Craufurd, Alistair Smith, Rhys Davies, Kristian Glenny, Max Homberger, Leona Rose, Rachael Theed, Siofra Peeren, Dawn Rogers, Zara Skitt, Nicolò Zarotti & Jane Simpson. (2021) Experiences of Mindfulness-Based Cognitive Therapy for Premanifest Huntington’s Disease. Journal of Huntington's Disease 10:2, pages 277-291.
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Yanjin Liu, Miao Wei, Lina Guo, Yuanli Guo, Yiru Zhu & Yv He. (2021) Association between illness perception and health behaviour among stroke patients: The mediation effect of coping style. Journal of Advanced Nursing 77:5, pages 2307-2318.
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О.Р. Смирнов. (2021) Anxiety and Anxiety Syndromes in Patient with Dementia of Different Types. Психиатрия, психотерапия и клиническая психология:1, pages 106-115.
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Fiona J. R. Eccles, David Craufurd, Alistair Smith, Rhys Davies, Kristian Glenny, Max Homberger, Siofra Peeren, Dawn Rogers, Leona Rose, Zara Skitt, Rachael Theed & Jane Simpson. (2020) A feasibility investigation of mindfulness-based cognitive therapy for people with Huntington’s disease. Pilot and Feasibility Studies 6:1.
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Shoshana Shiloh, Sigal Levy, Irit Heruti & Ronit Avitsur. (2020) Health-related quality of life after injury: examining the roles of perceived daily-life stress and injury perceptions. Quality of Life Research 29:11, pages 3053-3063.
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Carla Roma Oliveira, Álvaro Mendes, Jorge Sequeiros & Liliana Sousa. (2020) Management of information within Portuguese families with Huntington disease: a transgenerational process for putting the puzzle together. European Journal of Human Genetics 28:9, pages 1210-1217.
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Claudia Carmassi, Claudia Foghi, Valerio Dell’Oste, Carlo Antonio Bertelloni, Andrea Fiorillo & Liliana Dell’Osso. (2020) Risk and Protective Factors for PTSD in Caregivers of Adult Patients with Severe Medical Illnesses: A Systematic Review. International Journal of Environmental Research and Public Health 17:16, pages 5888.
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Nicolò Zarotti, Elizabeth Coates, Alex McGeachan, Isobel Williams, Daniel Beever, Gemma Hackney, Paul Norman, Theocharis Stavroulakis, David White, Sean White, Vanessa Halliday & Christopher McDermott. (2019) Health care professionals’ views on psychological factors affecting nutritional behaviour in people with motor neuron disease: A thematic analysis. British Journal of Health Psychology 24:4, pages 953-969.
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Macarena De los Santos-Roig, Isabel Ruiz-González, Humbelina Robles-Ortega & Cristino Pérez-Meléndez. (2019) Cognitive Representations of Diabetes and their Role in Metabolic Control and Health: When a Positive View of Illness Protects. Clínica y Salud 30:2, pages 55-62.
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Gregory P. Sprenger, Kasper F. van der Zwaan, Raymund A.C. Roos & Wilco P. Achterberg. (2019) The prevalence and the burden of pain in patients with Huntington disease: a systematic review and meta-analysis. Pain 160:4, pages 773-783.
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Nicolò Zarotti, Jane Simpson & Ian Fletcher. (2017) ‘I have a feeling I can’t speak to anybody’: A thematic analysis of communication perspectives in people with Huntington’s disease. Chronic Illness 15:1, pages 61-73.
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Catherine Turkington, Martin Dempster & Jennifer Maguire. (2018) Adjustment to hand injury: Cross-sectional survey exploring adjustment in relation to illness perceptions and coping strategies. Journal of Hand Therapy 31:4, pages 502-510.
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Rachael Theed, Fiona J. R. Eccles & Jane Simpson. (2018) Understandings of psychological difficulties in people with the Huntington's disease gene and their expectations of psychological therapy. Psychology and Psychotherapy: Theory, Research and Practice 91:2, pages 216-231.
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M. Rohaa Langenhof & Jan Komdeur. (2018) Why and how the early-life environment affects development of coping behaviours. Behavioral Ecology and Sociobiology 72:3.
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John Maltby, Maria Dale, Mandy Underwood & Jane Simpson. (2017) Irritability in Huntington's Disease: Factor Analysis of Snaith's Irritability Scale. Movement Disorders Clinical Practice 4:3, pages 342-348.
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Mandy Underwood, Sheila Bonas & Maria Dale. (2016) Huntington's Disease: Prevalence and Psychological Indicators of Pain. Movement Disorders Clinical Practice 4:2, pages 198-204.
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Michael Baliousis, Michael Rennoldson, David Dawson, Jayne Mills & Roshan das Nair. (2017) Perceptions of Hematopoietic Stem Cell Transplantation and Coping Predict Emotional Distress During the Acute Phase After Transplantation. Oncology Nursing Forum 44:1, pages 96-107.
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Clare M Eddy, Ellice G Parkinson & Hugh E Rickards. (2016) Changes in mental state and behaviour in Huntington's disease. The Lancet Psychiatry 3:11, pages 1079-1086.
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Amy E. Richardson, Randall P. Morton & Elizabeth A. Broadbent. (2016) Illness perceptions and coping predict post-traumatic stress in caregivers of patients with head and neck cancer. Supportive Care in Cancer 24:10, pages 4443-4450.
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Jack K. Garlovsky, Paul G. Overton & Jane Simpson. (2016) Psychological Predictors of Anxiety and Depression in Parkinson's Disease: A Systematic Review. Journal of Clinical Psychology 72:10, pages 979-998.
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Leonie A.K. Löffler, Sina Radke, Carmen Morawetz & Birgit Derntl. (2015) Emotional dysfunctions in neurodegenerative diseases. Journal of Comparative Neurology 524:8, pages 1727-1743.
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Sónia Alexandra de Lemos Novais & Felismina Rosa Parreira Mendes. (2016) Representation of illness in Familial Amyloidotic Polyneuropathy Portuguese Association newspaper: A documental study. Nursing & Health Sciences 18:1, pages 85-90.
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S Crozier, N Robertson & M Dale. (2014) The Psychological Impact of Predictive Genetic Testing for Huntington′s Disease: A Systematic Review of the Literature. Journal of Genetic Counseling 24:1, pages 29-39.
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Krzysztof Laudanski. (2015) Denial Defense Mechanism in Dialyzed Patients. Medical Science Monitor 21, pages 1798-1805.
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